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Help create a world free of MSA.

The Multiple System Atrophy Trust is the UK’s leading charity supporting people affected by multiple system atrophy (MSA), a rare neurological disease with no known cause or cure.

Our ambition is a world free of MSA. Until the cause and cure are found, we offer everyone affected by multiple system atrophy expert support, trusted information and a strong, compassionate community, so no one has to face this rare neurological disease alone.

Why our work matters

MSA is a progressive neurological disorder that can affect movement, balance and vital autonomic functions, including bladder and blood pressure control.  Affecting approximately 3,300 people in the UK, there is currently no known cause or cure, but the right specialist support, practical guidance and human connection can transform how people experience life with MSA.

Support, connection and hope

Across the UK and Ireland, our telephone and email support line, eight specialist MSA nurses and two social welfare specialists provide expert help when it matters most. Our regional and online support groups, introductory webinars, research updates, coffee mornings and carers’ groups create connection, share knowledge and reduce isolation. At the same time, we fund research to uncover the cause of MSA and move us closer to a cure.

Could you unite communities, create unforgettable fundraising experiences and turn people’s passion into lasting impact for everyone affected by MSA? Join a supportive, collaborative and values-led charity where you can help shape our events and community fundraising, bring ideas to life and build relationships that improve lives.

The Trust has seven core values; we aspire to be:

• Led by those we serve: we strive to put those we serve at the heart of everything we do
• Collaborative: we will work collaboratively when this is in the best interests of those we serve and the Trust
• Supportive: we exist to support people affected by MSA throughout their journey; we are on their side, and we want them to know and feel this
• Open: we want to be open and welcoming to everyone affected by MSA who contacts us
• Respectful: our ethos is to critique not to criticise
• Committed: everyone who is involved with the Trust should be committed to doing what they can, in whatever capacity, to improve the lives of people affected by MSA
• Informative: we want to inform and be honest and transparent about what we say and what we do.

Position: Senior Events and Community Fundraising Officer

Reports to: Director of Operations and Research

Location: Hybrid working with a minimum of three days per week in our London (N1) office and two days working from home

Hours: 35 hours per week (full-time), core hours of 9am – 5pm

Salary: circa £35,000

About the Role

As our Senior Events and Community Fundraising Officer, you will take ownership of a varied and visible events and community fundraising portfolio. You will have scope to develop new ideas, shape our events programme, enable supporters to bring their fundraising ideas to life and build lasting community partnerships across the UK. As part of a small, collaborative fundraising team (3.2 WTE), you will have the autonomy to make things happen, see the impact of your work and help shape the Trust’s fundraising future. By growing income, participation and awareness, you will sustain vital services today while helping bring a future free of MSA closer.

What you’ll be working on:

• Leading the delivery of our challenge events and community fundraising activities, inspiring more people to take part and stay involved through thoughtful supporter stewardship at every stage.
• Creating and delivering awareness and fundraising campaigns that deepen understanding of MSA, grow the Trust’s reach and turn interest into participation and fundraising income.
• Using social media and digital channels to bring our fundraising story to life, engage new audiences, recruit participants for events and community fundraising, and strengthen supporter connections.
• Building trusted, lasting relationships with supporters, volunteers and community partners, and helping their ideas and enthusiasm flourish.
• Shaping the next chapter of Sarah's Wood as a distinctive place for community, remembrance and meaningful engagement.
• Taking a proactive role in translating the Trust’s fundraising priorities into engaging campaigns and activities, from initial idea through to delivery and evaluation.
• Monitoring fundraising income and participation against agreed targets, reporting on performance and using insight and supporter feedback to improve future activity.
• Supervising and developing the Fundraising Officer, providing clear direction, encouragement and support to build confidence, skills and potential.

This job is for you if...

• You enjoy building meaningful relationships and can engage, motivate and inspire supporters, volunteers and community partners.
• You have experience delivering community fundraising, events fundraising, supporter engagement, or similar relationship-based activities.
• You can create engaging digital content and use social media and online platforms to connect with audiences, support events and community fundraising, and keep supporters involved.
• You are an excellent communicator, both in writing and in person, and can adapt your style to different audiences.
• You are organised, proactive and able to manage multiple projects, priorities and deadlines successfully.
• You are motivated by achieving targets and can use insight and feedback to improve performance and engagement.
• You are comfortable using Microsoft Office applications and other digital tools, including social media, to organise your day-to-day work and support fundraising delivery.
• You are passionate about making a difference and want to improve the lives of people affected by MSA.
• You are warm, approachable and empathetic, and can provide an excellent experience for everyone who engages with the charity.
• You are self-motivated, solutions-focused and adaptable, with a positive attitude and willingness to get involved wherever needed.
• You are comfortable working autonomously within a small team of passionate individuals to achieve lasting impact and results.
• You are comfortable representing a charity at events, building partnerships and occasionally travelling across the UK and Ireland.

It's a bonus to us if...

· You have experience in the charity sector, particularly within health, disability or rare disease organisations.

· You have experience supervising staff or volunteers.

· You have used a CRM database such as Raiser's Edge.

· You have delivered awareness campaigns or community engagement programmes.

Our benefits and flexible working

At MSA Trust, we recognise that our people are our greatest asset. We are committed to creating a supportive, flexible and rewarding working environment where colleagues can thrive both professionally and personally.

1. Flexible and hybrid working: This role combines a minimum of three days per week in our London (N1) office with two days working from home. Within this arrangement, we take a flexible approach to how work is delivered, opportunities to work remotely from your home address on occasion, by agreement. We also offer limited opportunities to work from abroad where operationally appropriate.

2. Annual leave: We offer 33 days of annual leave, including bank holidays, plus an additional day's leave to celebrate your birthday. Annual leave entitlement also increases with length of service.

3. Pension scheme: We provide a 6% employer pension contribution and access to salary sacrifice schemes to help you plan for the future.

4. Life assurance: Eligible employees are covered by our Death in Service benefit, providing a payment of three times annual salary.

5. Long-service recognition: We value commitment and dedication, offering additional benefits including long-service sabbatical opportunities.

6. Eye care support: We offer free eye tests and a contribution towards the cost of glasses where required for work-related screen use.

7. Volunteering and wellbeing: We support colleagues to give back through volunteering opportunities and provide paid time off to attend blood donation appointments.

8. Team connection: We believe strong teams achieve great things. That's why we invest in an annual team away day, regular social activities and a staff social fund.

9. Time off in lieu: We recognise that some roles occasionally require work outside normal hours and offer TOIL for approved additional time worked.

10.  Learning and development: We are committed to helping our people grow, providing opportunities for learning, professional development and career progression within a supportive charity environment.

Our commitment to Equality, diversity and Inclusion

• We are committed to promoting equality, diversity and inclusion, and welcome applications from people of all backgrounds, particularly those from underrepresented groups, including minoritised communities and disabled people.
• At MSA Trust, we believe that diversity strengthens our organisation. By bringing together people with different perspectives, experiences and skills, we foster innovation, improve decision-making and enhance our ability to support the communities we serve.

How to apply

Click the CharityJob Apply button below. You’ll be asked to submit a CV and answer a few short screening questions about your relevant skills and motivation.

Closing date: 29 November 2026.

Interview date: 9 December 2026.

Please note, we’re actively reviewing applications and interviews will be held on a rolling basis. The ad may close early if a successful candidate is found.