National Support Co-Ordinator

Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.

Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!

Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.

You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.

Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.

Who are we?

Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist  welfare rights advisor. 

Myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Discretionary £1,000 increase after successful completion of probationary period

Application Instructions

Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026

Initial screening chats will take place on Thursday 14th May 2026

Interviews will be week commencing 25th May 2026  

Interviews will be held over Microsoft Teams

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.