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Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

This is an exciting opportunity to build and lead a trusted online peer support service that people affected by Motor Neurone Disease (MND) rely on.  As an Online Communities Lead, you will have the autonomy to shape how the forum develops. You will take ownership of a live online service, with clear accountability for moderation standards, platform governance and overall service quality.

As an Online Communities Lead, you will make independent moderation decisions, including assessing safeguarding risks and applying proportionate escalation in complex situations. You will be comfortable holding responsibility for service-level risk, working within clear governance frameworks while acting decisively when it matters most.

You will act as product owner and primary administrator for the platform, managing configuration, permissions, workflows and continuous improvement. The Online Communities Lead will also lead and support a team of online volunteers, ensuring their wellbeing while maintaining consistent service standards.

Key Responsibilities

• Take ownership of and lead the day-to-day delivery of online peer support services
• Act as primary administrator and product owner of the community platform
• Manage moderation, safeguarding concerns and complex risk escalation
• Ensure compliance with GDPR, Online Safety Act and organisational standards
• Analyse community data to inform service development and reporting
• Grow reach and improve accessibility
• Manage external suppliers supporting the platform
• Lead, recruit and support online community volunteers
• Maintain service continuity plans and respond to incidents

About You

Essential:

• Experience managing online community platforms and tools
• Strong knowledge of GDPR and Online Safety Act requirements
• Experience handling complaints and crisis situations, including content moderation, escalation protocols
• Ability to analyse community metrics and report on impact
• Confident communicator, able to represent community voices
• Experience managing or supporting volunteers, including remote management

Desirable:

• Understanding of person-centred and accessible digital support
• Experience developing or improving online services
• Experience working with external partners or agencies
• Background in a charity or peer support environment

Hybrid working expectations: This role is home-based with occasional travel to our Northampton office

Further information about MND Association and full job description is available in the attached Candidate Pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

What We Offer

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
• 24/7 GP access via phone and video
• Life assurance and confidential counselling helplines
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
• Access to Benefit Hub for discounts on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development

About Us

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.

Role Purpose

Special events play a vital role in engaging our supporters, inspiring their support, and raising vital income for Child Bereavement UK.

The Special Events Manager is responsible for planning, coordinating, and executing high-quality Special Events. You will work with colleagues from across the charity to develop programmes that will engage our audiences and communicate the impact we deliver as a charity.

The role will work closely with the Philanthropy team delivering high profile events that engage an inspire high net worth individuals across the country.

Main Responsibilities

Leadership

• To lead and inspire the Special Events Team fostering a collaborative and high culture that delivers against income and objectives 
• Provide clear and supportive leadership that motivates staff to achieve, develop and grow in their roles 
• Undertake quarterly reviews for all direct reports 

Special Events

• Support the Head of Philanthropy and Special Events to deliver the Special Events strategy
• Plan and lead on all Special Events ensuing all return a good ROI
• Lead on relationships with external suppliers including venues, caterers, AV suppliers, photographers etc
• Work with the Head of Philanthropy & Special Events to manage relationships with senior volunteers and supporters
• Developing comprehensive proposals and plans for every event detailing objectives, formats, timelines, risks, marketing/communications plans and evaluation plans
• Working closely with the Philanthropy team to create and liaise with special event committees
• Ensure the smooth running of the events in line with health and safety guidelines
• Prepare detailed event briefings, and evaluate the success and impact of the events
• Manage and monitor expenditure for the events, as agreed with the Head of Philanthropy and Special Events ensuring value for money and adherence to budget
• Oversee recruitment and support for all Event committees
• Ensuring all associated activities are compliant with charity law, regulatory requirements and best practice, including the Data Protection Act and GDPR
• Work with Marketing to promote events across all channels

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Person Specification

Essential

• Proven experience of running a wide range of high-quality events from conception to completion
• Leadership experience
• Strong event planning skills
• Demonstrable experience of delivering events within strict budgets and timescales
• Management of senior volunteers and stakeholders
• A thorough understanding of every stage of the events planning and delivery process
• Demonstrable problem solving ability and skills
• Budget management
• Able to work in fast-paced, deadline driven environment
• Ability to build constructive and collaborative relationships with all levels of internal and external stakeholders
• High level of interpersonal and communication skills
• Excellent attention to detail
• Knowledge of relevant charity law and codes of practice including data protection and GDPR

Desirable

• Experience in charity events
• Experience of using fundraising database(s), particularly Sales Force or another fundraising or CRM database

Recruitment Timetable

Application deadline: 2nd June 2026 at midnight

First Stage Screening Interviews

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

Position: Policy and Public Affairs Officer (Scotland)
Hours: Full-time, 35 hours a per-week
Contract: Permanent
Location: Home Based in Scotland
Salary: Starting from £26,384 per annum plus excellent benefits
Salary Band and Job Family: Band 1, Charity
You will start at our entry point salary of £26,384 per annum, increasing to £28,033 after 6 months service and satisfactory performance and to £29,682 after a further 6 months.

About us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus. 

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information. 

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

We’re looking for an enthusiastic and talented policy and public affairs professional to join our team. You should have experience of working to develop policy and have the ability to communicate our position to a wide range of audiences across Scotland.

In this exciting role you will work with the MS community to influence change in public policy, continuing to make the case for improvements in the treatment, care and support of people affected by MS.

This is a fantastic opportunity for someone who understands the political and policy environment in Scotland, who has experience in external facing influencing roles, who is outcome-focused and delivers tangible results. The successful candidate will work closely with the MS community, the Scottish Policy and Communications team as well as key external partners such as MSPs and their teams.

Closing date for applications: 9:00 on Monday 1st of June

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

Equal Opportunities 
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 38 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.

This role will support the development and delivery of our services and resources for young people born with a cleft lip and/or palate. Working closely with the Engagement & Services team to help us achieve our mission. 

The Youth Engagement Coordinator will sit within the Engagement & Services Team. They will join a friendly and supportive team of seven colleagues who, together, are responsible for the delivery of CLAPA’s adult, family, children and young people and involvement services. The post holder will develop and deliver services for eight- to seventeen-year-olds, which will enable the young cleft community to connect, share experiences and access guidance and emotional support. Shaping what support looks like, creating positive impact and strengthening reach, this new role for CLAPA will make a real difference to the lives of children and young people born with a cleft.

If you think you have the talent, passion and experience to help us ensure we can always meet the needs of the community we serve, we want to hear from you.

Community Fundraising Assistant - North 

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?

Brain Tumour Research is an exciting, innovative, and ambitious charity. We are passionate about finding a cure for brain tumours through the establishment of dedicated Brain Tumour Research Centres of Excellence around the UK.​

After a successful 2025, we’re building on our momentum and looking ahead with ambition. As our work continues to expand, so does our impact. We are now looking for passionate people to join us on the next stage of our journey!

It is a fantastic time to be joining us and we are keen to share this with likeminded and talented individuals. We currently have an opening for a Community Fundraising Assistant - North, to join our Community and Digital Fundraising team.

• Do you want to make a difference in one of the most innovative and exciting medical research fundraising charities in the UK?
• Are you able to provide friendly and professional support to fundraisers and supporters?   
• Do you have experience in supporting events or community activities?
• Do you live in either Scotland, North East England, North West England or the East Midlands? 

​

Have you answered Yes to these questions?

Does this sound like the opportunity to really take the next step in your career?

Excited to learn more about this position? Then please take a read through our recruitment pack which is included within this advert.​​​

If you have the skills and ambition that we are looking for we are excited to receive your application.  We are really looking forward to welcoming a new member to our team!​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

​

We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

​

Artswork is looking for a Data Protection & Impact Manager to lead Artswork’s approach to data so we operate safely and legally, and so that data informs every area of our work, shapes our planning, and enables us to demonstrate the impact of our programmes. This role works closely with the Evaluation & Impact Manager, and focuses specifically on data protection, data analysis and data reporting e.g. to funders. 

We are looking for someone to lead on data analysis and data protection within Artswork, embedding a data-led approach to our work. Working closely with the (part-time) Evaluation & Impact Manager, you will not only provide expertise in data generation across the organisation but also insightful analysis of the data to feed into the organisation’s strategic decision-making. You’ll be skilled in using tools that enable us to aggregate, manipulate and visualise data. You’ll be able to generate reports at different levels, from overviews to granular detail, and you’ll be willing and able to do accurate, capable data entry when needed (for example onto funders’ reporting platforms). You’ll liaise with other teams around their data requirements, particularly the Co-CEOs, Fundraising and Sales & Marketing. You’ll also lead on Data Protection for the organisation, training team members, generating ​‘how to’ guides for colleagues and ensuring that our data protection policies and procedures are updated and compliant with current legislation. 

Main Responsibilities:

Strategy 

• Embed a data-led approach across Artswork, ensuring data is used to inform organisational planning, prioritisation and decision-making. 
• Collaborate with the Evaluation & Impact Manager to align data generation, evaluation activity and reporting cycles, ensuring coherence across programmes. 
• Develop, maintain and continuously improve organisational data systems, tools and processes so that they are fit for purpose, efficient and scalable. 
• Provide insight and recommendations based on analysis, highlighting trends, opportunities, risks and areas for improvement in our work directly with children and young people.

Data analysis and treatment 

• Lead on organisation-wide data aggregation and analysis, ensuring accurate interpretation of programme, audience/participant and organisational data. 
• Collaborate with the Evaluation & Impact Manager to support the design and improvement of data collection methods (e.g. surveys, forms and CRM processes), ensuring data is robust, consistent and useful. 
• Clean, validate and audit datasets to maintain high data quality, including addressing gaps, duplicates and errors. 
• Maintain and improve data structures (e.g., spreadsheets, CRM exports, dashboards), enabling analysis at overview and granular levels. 
• Use appropriate tools to analyse and visualise data efficiently (e.g., Excel/Power Query, Power BI, dashboards), and document processes to support consistency and continuity. 
• Carry out accurate data entry when required, including into funder platforms and monitoring systems. 
• Liaise with colleagues across teams (particularly Co-CEOs, Fundraising and Sales & Marketing) to understand their data needs and provide analysis in usable formats. 

Impact reporting 

• Collaborate with the Evaluation & Impact Manager to produce clear, accurate and timely reporting for internal and external audiences, working together to translate data into insight and narrative. 
• Support consistent reporting cycles (quarterly/annual as required), including monitoring returns and KPI reporting. 
• Contribute data and insight to funder reporting, including accurate entry onto funders’ platforms and the production of supporting evidence. 
• Generate reports at different levels (headline dashboards through to detailed breakdowns) to support operational planning and strategic decisions. 
• Work with Fundraising and Sales & Marketing to align impact evidence with funding priorities and communications needs, providing statistics, summaries and insights. 

Data Protection compliance 

• Lead on Data Protection for the organisation, ensuring compliance with relevant legislation and internal policies and procedures. 
• Maintain, implement and regularly review data protection policies, procedures and guidance, ensuring they are practical and compliant. 
• Train and onboard staff on data protection requirements, creating accessible ‘how to’ guidance and providing ongoing support to colleagues. 
• Support and advise on appropriate data handling, including lawful bases, consent, retention, deletion and secure storage.
• Work with the Finance & Operations team and external IT provider to review and implement new data security requirements, including mapping software use and implementing new data protection controls. 
• Review data protection clauses and data sharing agreements for organisational contracts with third parties especially in relation to tenders and new business. 
• Manage subject access requests, data protection breaches, internal investigation & documenting, external responses and organisational learning. 
• Liaise with teams to ensure their data practices (including fundraising and communications activity) meet legal and regulatory requirements. 

Administration and Legal compliance  

• Maintain positive professional relationships with our participants, partners and stakeholders.  
• Adhere to Artswork’s values and its policies and procedures, i.e. Equalities, Health and Safety, Data Protection, Safeguarding and Environmental policies.   
• Be a committed champion for Artswork’s Anti-Discrimination Charter.   
• Maintain and develop personal skills and knowledge through appropriate training.  
• Perform own administrative duties.  

Application Procedure

Applicants should complete the Artswork application form, available below. CVs will not be accepted, and applicants should not attach CVs or other supporting documents.  

Applications must arrive by 12:00 Monday 8 June 2026 using the online form provided. 

We would be grateful if applicants could also complete Artswork's equal opportunities monitoring form using the link provided at the bottom of this page. This is separate from your application form and not viewed by the shortlisting or interviewing panel. It is submitted anonymously and is only used for monitoring purposes.  

Benefits:

We provide a range of benefits for employees including:    

• Flexible working options   
• Generous 29 days holiday pro rata plus bank holidays, including guaranteed time off between Christmas and New Year   
• Access to the Sage Employee Benefits programme   
• Stakeholder pension
• Additional wellbeing time, which allows you to take 25% of your hours back when you really need it   
• Enhanced Parental Leave and Carer’s Leave Policies to help maintain a positive work life balance that recognises caring commitments 
• 3 paid volunteering days a year, including 1 dedicated to environmental activities 

We champion continuous professional development and offer all employees access to training opportunities, as well as investing in your learning and nurturing your aspirations with a £500 annual budget to be spent on training of your choice. 

Accessibility and flexible working:

Artswork values the diversity of its employees and is committed to creating an inclusive working environment. We help everyone to work in a way that is best for them and have an Adjustments Policy to enable us to support employees by implementing measures that remove barriers and make working easier. 

Artswork’s flexible working policy includes compressed hours, flexitime, staggered hours and reduced hours or a combination of these arrangements. We support remote working for all roles. 

We welcome requests for adjustments and flexible working at any stage of the recruitment process. These are not considered as part of our scoring or decision making when assessing candidates for the role. 

Closing date and interviews:

Applications must be made by 12:00 Monday 8 June 2026 using the online form provided on our website

Interviews: 
 

Interviews will take place on Tuesday 23 June 2026 on Teams. 

This will be a standard interview.  Candidates who are selected for this stage will be informed no later than 5pm on Tuesday 16 June. If you are successfully shortlisted, the interview questions will be sent in advance to support you. If you require any further support please let us know.  

We regret to say that we will not be able to provide feedback to candidates who have not been shortlisted. Thank you for your interest in this post. 

The South East District are excited to advertise the opening for a full time District Mission Enabler to support the District, its churches, circuits and people, in mission. Home based, own transport is essential. There will be an expectation to attend the District Office in Crawley, Sussex, on occasion, as well as other locations across the South East District.