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Page 22 of 59
London, Greater London (On-site)
£57,000 - £65,000 (0.8 considered)
Full-time
Permanent
Job description

Transform services, raise national awareness and lead the growth of a small but vital national charity.

Application closes at 9 a.m. Monday 19th January

Location: Vauxhall, London at least 2 days per week on site

Dystonia is the third most common movement disorder, affecting at least 100,000 people in the UK, yet it remains significantly misunderstood and under-recognised.

For more than 40 years, Dystonia UK has been the national voice for people living with this complex neurological condition. We provide trusted information, respond to individual enquiries, help to connect people around the UK, work with clinicians, influence decision makers, and fund small but impactful research projects that improve quality of life. We are the organisation people with dystonia turn to first.

Today, the Charity is at an important point of renewal. We are seeking to strengthen the support we can provide for the dystonia community.

About the role

We are seeking a Chief Executive Officer who can lead with humanity, clarity and confidence. You will inherit an organisation that has been doing its best through difficulty and now needs a leader who can bring direction, strengthen relationships, and help us give hope and support to everyone living with dystonia.

This role will give you scope to improve services, reshape structures and bring a renewed sense of purpose to the charity.

Your priorities will include:

  • Creating financial sustainability and diversifying income
  • Providing leadership to our staff
  • Strengthening our core services
  • Raising awareness nationally and helping to lobby for improved patient pathways

This is a hands-on role in a small organisation where you will directly influence operational improvements as well as strategic direction.

Please click 'Redirect to recruiter’ to be redirected to the Peridot Partners website, where you can find full details of the job description and register your interest to apply.

Applications for this role close at 9 a.m. Monday 19th January

Posted by
Dystonia UK View profile Organisation type Registered Charity Company size 1 - 5
Posted on: 02 January 2026
Closing date: 19 January 2026 at 23:59
Tags: Advice / Information, Social Care / Development, Advocacy, Operations, Strategy, Wellbeing, Governance / Management