Parent services coordinator jobs in Edinburgh

Wolfram Syndrome UK (WSUK)

WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. For further information visit the Wolfram Syndrome UK website 

WSUK Adult Support Co-ordinator Role

WSUK is seeking a part-time adult support co-ordinator (2.5 days per week, working over 4-5 days, 0.5 FTE, £14.1k-£15.6k per annum), based in the Midlands area. This home-based role will provide support to WS affected adults and their families to help improve the quality of their lives. Through liaising with professionals (including the WS expert clinical team at Queen Elizabeth Hospital (QEH), Birmingham), external or advocacy organisations, this role will help facilitate access to the services to which WS affected adults and their families are entitled. The adult support co-ordinator will help adults and their families to increase their confidence and independence in living with their condition. This role will also act as an important point of contact for WS affected adults, providing advice and support in confidence.

Skills and experience

Applicants should have several years’ experience in a similar position, working with people affected by sensory loss, long-term medical / genetic condition, or disability. Applicants should also have a strong desire to help improve the lives of adults living with a long-term condition or disability and be confident in talking with people with a range of abilities and diverse cultural backgrounds.

Applicants should have experience in working effectively as part of a remote team, be confident in working independently and in managing conflicting priorities.

Some limited UK travel will be required (particularly to meet WS affected adults during their WS clinic visit at QEH, Birmingham (6 clinics per year) and the annual WS conference. An enhanced DBS check will be required.

Trusts and Foundations Manager
Permanent | Full time
Ideally 1 or 2 days a week in either in Coventry or Middlesbrough
circa £38,000 - £45.000 per annum

Are you an experienced trusts & foundations fundraiser looking to join a much loved charity which supports babies and young children who have life-limiting and life-threatening conditions.

Aquilas is delighted to be supporting Zoe’s Place in the appointment of a new Trusts and Foundations Manager, a key role at an exciting time of growth for the charity.

About the charity

Zoe’s Place is the only baby specific hospice charity in the UK, providing specialist palliative, respite and end of life care for children aged 0 to 5 with life limiting and life-threatening conditions. They offer a safe, nurturing and joyful environment where families can feel completely supported. With their dedicated nurses delivering 24-hour care, they work together to make every moment of childhood count.

About the role:

Supporting the delivery of Zoe’s Place overall income generation strategy, by researching, record keeping, applying and reporting to a portfolio of trusts and foundations to deliver long term sustainable income growth for the Trust. Overall accountability for capital projects across the Trust

Key Responsibilities:

Account manage the trust and foundations fundraising function   

• Contribute to the maintenance of a comprehensive database for both hospice sites of all relevant grant making trusts and keep up to date with changes in the sector.
• Develop and write applications and bids to a wide range of funders as required.
• Work collaboratively with the Head of Fundraising and fundraising colleagues to ensure all funding opportunities are maximised
• Manage and develop relationships with new and existing funding partners.
• Work collaboratively with Director of Clinical Services, clinical teams and finance to prepare bids and reports.
• Ensure funding partners receive timely and appropriate information about the progress and outcomes of projects including written reports and evaluation in accordance with requirement.
• Responsible for delivery of income targets.
• Ensure excellent relationships are maintained with current, past and prospective funders so the Zoes Place Trust name is associated with honesty and high standards of service delivery.
• Organise visits and tours for trustees of charitable foundations if requested to both Middlesbrough and Coventry sites.

 Administration and pipeline

• Use our fundraising CRM and in line with GDPR to ensure accurate and timely record keeping allowing for good stewardship.
• Carry out detailed research on prospective foundations, identify and maintain a calendar for submitting applications.
• Working with an income pipeline / tracker to ensure accurate and timely financial forecasting, identifying risk to income and mitigating accordingly.
• Ensure activities comply with current law, guidance and best practice of the Fundraising Regulator

Person Specication:

• strong track record in Trusts and Foundations fundraising
• Experience of working in the charity Sector
• Excellent and persuasive writing skills and a sharp eye for details
• Excellent interpersonal and verbal communication skills

To Apply:

To receive a candidate pack or arrange a confidential conversation, please contact:

Kieran McGorrian, Head of Not for Profit Appointments, Aquilas (contact details in candidate pack)

Applications close 5pm Monday 20th April

Aquilas are wholly committed to equality of opportunity and diversity and we warmly welcome applications from all suitably-qualified candidates.  We are truly invested in our candidates and being supportive and informative throughout the application journey