Parent services coordinator jobs in Edinburgh
How's your job search on our site?
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
- Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
- Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear
- Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
- Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Registered Charity
11 - 20
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.
The client requests no contact from agencies or media sales.
Thank you!
Volunteer and community involvement is a core part of what we do here at Sands. From Sands United Teams, Support Groups, knitters, Parent Speakers and event volunteer, volunteers are at the heart of Sands delivering peer support, and building a local community for bereaved parents.
Sands Groups are volunteer led, and community driven.
Sands has a vision to grow community-based peer support, community activity and volunteer involvement across the organisation. This requires an investment in enabling, innovation in peer support and volunteer involvement and partnership working.At the heart of this is our Befrienders.
Befrienders are in every Group across the UK and enable online support groups too.
This post is all about developing, delivering and managing our fantastic volunteer befriender programme across Sands. Ensuring that Sands befrienders are enabled to provide warm, supportive, evidence-based and values-driven peer support to bereaved families across the UK.
This maternity cover post will have two key focus areas
- Maintaining key components of the befriender programme, including regular communications and meeting with Befrienders, driving recruitment opportunities, supporting innovation in Befriending and troubleshooting in partnership with volunteers.
- Deliver a fixed timeline project focused on developing the Befriender programme.
Responsibilities
Best practice in peer support and befriender programmes
- Manage the direction and growth of the Befriender programme
- Work with the Development Leads and Community Development Officers to create plans for regions to support existing Befrienders and grow the peer support offer across the UK
· To engage, inspire and support existing Sands befrienders, providing a positive volunteer experience from recruitment to saying goodbye
- Be the point of contact for Befriender safeguarding issues. Be proactive in addressing and be an escalation point for challenges, risks and safeguarding issues.
- Practice and support excellent standards in all aspects of inclusion and diversity, particularly in reaching marginalised groups in recruitment and enabling volunteers to provide inclusive support spaces.
- Lead on development of processes, guidance and resources, ensuring good governance and risk management of the Befriender Programme
- Work with the Volunteering Coordinator to ensure delivery of key processes, process development and improvement to enhance the volunteer experience.
· To identify learning and development opportunities for befrienders and create a culture of continued learning for all Befrienders
Develop and innovate
- Be an opportunity spotter, picking up innovation opportunities to grow and develop the Befriender programme, alongside relevant Sands’ staff teams.
- Manage short- and long-term projects and where appropriate join cross organisational working groups to represent the Community and Volunteering Team. Including projects that may have budgets.
- Advocate the voices and needs of Befrienders, bringing in knowledge and feedback to enable good decision making and volunteer participation in new ways of working
- Through supporting approaches to recruitment and partnerships, ensure that individuals with a wide range of bereavement experiences are at the heart of Sands’ volunteering
· Build a data driven understanding of gaps in service and representation, and make promotion and recruitment decisions to support growth for under-represented towns/regions/groups
· Support continuous improvement and accurate delivery of processes in the welcome journey for new befrienders, including in recruitment, on-boarding and off-boarding processes in partnership with the Volunteer Coordinator
· Use the CRM to record accurate information and help make data informed decisions
Internal and external partnerships
- Work with the Bereavement Support Services Team (BSS) to ensure collaboration across the Befriender programme and national BSS support groups and ensure the Befriender programme continues to be rooted in trauma-informed practice.
- Work with the Training Team to ensure that training and learning experiences for Befrienders are up to date, relevant and accessible.
- Work with the Philanthropy and Partnerships team and the Head of Community and Volunteering to maximise compelling cases for support, storytelling and funding opportunities at a national and local level.
· Work with the Engagement Team to ensure Sands befriending is represented in an engaging and positive way across Sands social media and the media
Registered Charity
51 - 100
We are here to support everyone touched by pregnancy loss or the death of a baby. Always.
The client requests no contact from agencies or media sales.