Patient advocacy and policy officer jobs

We're the UK's specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research; provide information and support to patients and their loved ones; and raise awareness of blood cancer.

We are recruiting two Policy and Public Affairs Officers to join our Policy and Influencing team at Blood Cancer UK. One role will be based in London and focus on policy and public affairs activity across England and Wales, while the other will be based in Edinburgh and lead our work in Scotland and Northern Ireland. Both roles will play a vital part in ensuring that the voices of people affected by blood cancer are heard by decision-makers and that evidence-based solutions influence governments, health systems and policymakers across the UK.

Working as part of a collaborative UK-wide team, you will develop evidence-based policy positions, build and maintain relationships with parliamentarians, government officials and health stakeholders, and produce high-quality briefings and consultation responses. You will also represent Blood Cancer UK at meetings, events and stakeholder forums, helping to influence policy and drive meaningful change for people affected by blood cancer.

This role will require regular travel within your respective nations (England and Wales or Scotland and Northern Ireland) to attend meetings, events and stakeholder engagement activities. In addition, there will be occasional travel across the UK, including to London, Cardiff, or Edinburgh, Belfast and other locations, to support cross-UK influencing activity, team meetings and organisational events.

We are committed to actively promoting equality, diversity, and inclusivity. In line with our strategy we welcome approaches from individuals from underrepresented groups, including minority communities, and applicants with a disability, to better reflect the community we serve and help broaden our perspectives.

Expected interview dates: 

England & Wales

Thursday 30 July – first stage, online

Thursday 6 August – second stage, in person in our London office

Scotland & Northern Ireland

Tuesday 11 August – first stage, online

Tuesday 18 August – second stage, in person in our Edinburgh office

Closing Date: England and Wales: 9am on Thursday 23 July 2026; Scotland & Northern Ireland: 9am on Thursday 30 July 2026.

Community Builder (Community Development) – Leeds 

People-focused community engagement role supporting the armed forces community to connect, collaborate and lead local change

Salary: Up to £33,995 per annum   

Location: Remote in Leeds with travel within the UK. See the “Please Note” section below for further details.

Contract Type: Permanent

The Opportunity

We have an exciting opportunity for a COMMUNITY BUILDER to join our Community Development team, working to support local veterans to take an active role in their communities. 

This is a hands-on, relationship-led role focused on bringing people together, building trust, and enabling community-led action. You will work with veterans, local residents, community groups and organisations to strengthen connections and create opportunities for people to participate, contribute and thrive. 

If you are passionate about community engagement, relationship building, and supporting people to create positive local change, we would love to hear from you. 

About The Role  

As a Community Builder, you will work with members of the Armed Forces Community, particularly those who may face barriers to participation or engagement. 

This role may also be described in other organisations as a Community Development Officer or Community Engagement Officer. 

A Community Builder is a relationship-led professional who brings people together, builds trust, strengthens local networks and supports communities to take action on the things that matter most to them. 

In this role, you will be actively visible and present within your local community, building trusted relationships and supporting conversations that help people connect and collaborate. 

You will facilitate conversations with veterans, local residents and community groups to understand local strengths, interests and priorities. You will connect people with shared interests and ideas, helping to build collaboration and encourage community-led action. You will support community ideas to develop into practical activities, projects and opportunities, and you will work with local organisations and partners to strengthen community networks. 

This role brings together community engagement, facilitation and partnership working to create meaningful, long-term impact. 

What a Typical Two Weeks Might Look Like 

Community Development is a flexible role shaped by the needs of local people and communities, with some evening and weekend working required. 

To help you understand how the role operates in practice, we’ve included an example two-week working pattern attached. 

Please note this is for illustration only and will vary depending on community needs and priorities. 

About You  

We are looking for someone who is motivated by working with people and passionate about helping communities connect and thrive. 

You may already have experience in community development, or come from a background such as housing, social care, education, youth work or the wider charity sector. What matters most is your ability to build trusted relationships, engage people effectively and support collaboration that leads to positive change. 

You will be an excellent communicator, able to build trust, inspire action and work effectively with a wide range of people and organisations. You will also be comfortable working independently, managing a varied workload and developing strong working relationships across different groups.

We are looking for someone with:  

• A Community Development qualification and/or transferable Community Development skills and experience.

• An awareness of (or willingness to learn) Asset-Based Community Development (ABCD) – an approach focused on building on the strengths, skills and connections already present in communities. 

• Strong communication and interpersonal skills, with the ability to build relationships that drive action.  

• A track record of successful collaboration with internal and external partners and stakeholders.  

• Effective and efficient organisational and IT skills. 

PLEASE NOTE:  

• The successful candidate will need to be based within a 30-minute commute of their allocated locality and there is a requirement to travel regularly across the wider area (travel expenses covered).  The successful candidate must possess a valid full UK driver’s license and have access to a reliable vehicle with business insurance for work purposes.  

• There will also be a requirement for occasional travel to other UK locations for meetings and events depending on the charity’s needs such as our annual all colleagues in person event.   

• The successful candidate will work 35 hours per week over 5 days, Monday - Sunday. Core working days will be Monday to Friday; however, flexibility is essential, as regular evening and weekend work will also be required to meet the needs of the role. Working hours will vary to ensure a total of 70 hours is covered over a two-week period, so please take this into consideration before applying.  

• The successful candidate will be required to undergo a Disclosure and Barring Service (DBS) check   

About the Team  

You’ll be joining a supportive and collaborative team of Community Development professionals working across local communities to build relationships, develop partnerships and support community-led activity. Community Development Managers and Community Builders work closely together, sharing learning and supporting each other to deliver meaningful local impact. 

Please see the job description for more details.  

In return we can offer you: 

• Belonging to a team who make a difference to our community and value equality, diversity and inclusion. 

• 29 days’ annual leave plus 8 bank holidays, regardless of service -plus your birthday off to celebrate! 

• Opportunity to buy and sell up to 5 days annual leave per year. 

• Added to our free health scheme from day one, including discounts on dental, opticians, massages, and more - with the option to upgrade. 

• 3 volunteer days per year to support the Help for Heroes community.

• A generous salary sacrifice pension scheme with an 8% employer contribution and a minimum 3% employee contribution, plus life insurance up to 4× salary as an active member. 

Closing date: 23rd July 2026 

Please note: We may close this vacancy early should we receive a high volume of strong applications.

We are committed to equality, diversity and inclusion and welcome applications from all backgrounds.

About the role

Cardiomyopathy UK's Director of Research and External Affairs leads the charity's research, policy and advocacy, and communications and marketing functions, with a team of four staff. The post-holder sets the strategic direction of the directorate, drives high-quality delivery,  upholds the charity's values, and represents the charity externally. The Director is a member of the charity's Leadership Team, working closely with the CEO to steer the charity forward. 

For the right person, this is an opportunity with real strategic scope. We want to build on our strong policy positions and evidence base and translate them into more proactive campaigning and influencing, moving from good policy thinking to concerted public affairs activity, strategic stakeholder engagement, and campaigns that achieve real change. 

The Director will also lead the next phase of our research work, following our inaugural research grant-funding activity and James Lind Alliance top ten work. They will work with the Research Manager and our clinical and academic partners to better define and deliver our ambitions.

Raising awareness of cardiomyopathy, its signs, symptoms and genetic risk, is also within the team's scope. Too many people are still diagnosed late because neither they nor their GP knew what to look for. The Director will drive our communications and marketing agenda purposefully, equally ensuring the charity’s external profile is actively managed and enhanced.

About you

We're looking for a leader who is a collaborative and inclusive, able to build trust with staff, colleagues, external partners and the Board. They will have strong strategic, analytical and planning skills, with the ability to develop coherent strategies. They will have experience as a senior leader/ manager in a charity, health, research or patient-focused organisation. See the Person Specification for further details.
 
Why join us?

Cardiomyopathy UK is the national charity for people affected by cardiomyopathy. We provide specialist nurse support, peer support, wellbeing services and trusted information to thousands of people each year, as well as influencing policy, supporting advocacy, and funding and enabling better research.

We are ambitious about our future. We are committed to quality, accountability and continuous improvement. Most importantly, we are committed to ensuring that everyone affected by cardiomyopathy can live well with the condition.

We are a family friendly employer with flexible and hybrid working. We offer an enhanced Employee Assistance Programme, additional annual leave linked to length of service, and an extra special occasion day each year.

We are midway through our five-year strategic plan, at a genuinely exciting moment, both for the charity and for cardiomyopathy more broadly. If you are excited by the opportunity to shape our Research and External Affairs work, lead a strong team and ensure we can clearly demonstrate the impact of our work, we would love to hear from you.

The Senior Legacy Officer will lead the delivery and development of St Luke’s legacy fundraising programme, taking ownership of one of the hospice’s most critical income streams. Reporting to the Head of Public Fundraising, the role will focus exclusively on growing legacy income through strategic marketing, supporter engagement and stewardship, pipeline development and internal advocacy. The post holder will be responsible for the day-to-day management and continuous improvement of the legacy programme, using insight and best practice to maximise long-term income while delivering an outstanding supporter experience.

What you’ll be doing:

• Leading and developing St Luke’s legacy fundraising programme
• Planning and delivering multi-channel legacy campaigns
• Managing Free Will Writing initiatives and legacy events
• Building strong relationships with legacy supporters, pledgers and professional partners
• Developing engaging supporter journeys and stewardship communications
• Monitoring pipelines, income forecasts and campaign performance
• Acting as an internal advocate for legacy giving across the organisation
• Ensuring all activity complies with fundraising regulations and GDPR

We’re looking for someone who brings:

• Experience in legacy fundraising, direct marketing or supporter led fundraising
• Excellent relationship building and communication skills
• Strong copywriting and storytelling ability
• Confidence using CRM systems, data and reporting tools
• Strong project management and organisational skills
• Sensitivity and empathy when working with donors and bereaved families
• Knowledge of fundraising regulations and data protection requirements
• A relevant fundraising or marketing qualification is desirable but not essential.

About the role

You’ll be responsible for the day-to-day contact with healthcare professionals and NHS Trusts so that breast cancer patients get the right support at the right time. Here for You provides people diagnosed with breast cancer personalised and timely access to all of Breast Cancer Now’s trusted information and specialist support via a single healthcare professional referral.

You’ll build and enhance the relationships we have with NHS Trusts and healthcare professionals so that the referral route to Breast Cancer Now is integrated into their processes and procedures. You’ll also work with colleagues across the support and influencing directorate, as well as contributing to our monthly reporting.

About you

We’re looking for someone with excellent communication and presentation skills, who is comfortable with multi-tasking and being proactive. You’ll be highly organised, with the ability to adapt to changing circumstances.

You’ll be experienced in building positive relationships with colleagues and external partners alike.

Job description and benefits

The job description and our attractive benefits are available for you to download.

Primary location of role and hybrid working

This role can be primarily based in our London or Sheffield office. Our hybrid working model allows you to work up to 3 days per week at home.

The salary range is:

£28,000 to £29,000 per annum if Sheffield based

£30,00 to £31,000 per annum if London based

When applying

We hope you choose to apply for this role. Please refer to the essential criteria on the person specification and clearly provide as much information as you can with examples, to demonstrate how and where you meet the criteria. 

Our commitment to equity, diversity and inclusion

We’re committed to promoting equity, valuing diversity and creating an inclusive environment – for everyone who works for us, works with us, supports us and who
we support.

Closing date: Friday 3 July 2026, 09.00am

We reserve the right to close this advert early. Therefore, to avoid disappointment please submit your application as soon as possible, if you’re interested in this opportunity.

Interview date: Tuesday 21 July 2026