Patient advocacy and policy officer jobs

About you

Do you want to use your skills to make it possible for people with myeloma, an incurable blood cancer, to live longer and better lives?

Myeloma UK is looking for a motivated and highly proactive Senior Policy Officer to join our Patient Advocacy team within the wider Research and Advocacy directorate. 

You will have experience in analysing, developing, and communicating complex policy issues, strong communication skills, and the ability to prioritise a fast-moving and wide-ranging workload.

You will also have experience working collaboratively and building relationships with a range of internal and external stakeholders. 

You will have the ability to present findings and recommendations to a range of audiences and produce high-quality succinct briefings in a timely fashion, underpinned by evidence.

Empathy and sensitivity are required to work closely with patients and their families and friends.

Experience in the health charity sector, public/patient engagement work, and working on the National Institute of Health Care Excellence (NICE) and Scottish Medicines Consortium (SMC) consultation processes would be beneficial but not essential.

About the role

As Senior Policy Officer you will be part of the Patient Advocacy team who work to ensure that the patient voice is heard and acted upon by UK and devolved nations healthcare policy decision makers. You will represent the charity externally including national meetings with senior healthcare decision makers.

Your role is vital to developing strategic approaches to health technology appraisals (HTA), regulatory pathways (MHRA), clinical development programmes (academic and industry clinical trials) and commissioning routes to broaden access to new myeloma drug therapies and diagnostic technologies.

You will apply your skills flexibly across key policy areas including access to treatment, patient voice, stakeholder engagement and general healthcare policy and work with colleagues in communications and fundraising to make sure our supporters and the wider myeloma community understand the positive impact we make.

About us

Myeloma UK is the only UK charity focused on myeloma and its related conditions.  We provide support and influence access to treatments, while researching a cure.  Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well.  Together, we support, so no one faces myeloma alone. 

We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.

Our culture

Wellbeing and staff engagement are at the heart of our culture.  We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.

How to apply

If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:

1. A cover letter telling us more about you and what you think makes you a good fit for this role

2. A CV that sets out your career history, with key responsibilities and achievements

Applications close 9am on 6 October 2025 and interviews will be held w/c 27 October 2025.

Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:

· sex

· race

· disability

· age

· sexual orientation

· gender reassignment

· religion or belief, marital status, or pregnancy and maternity

Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.

Join Beacon to drive projects that place patients at the heart of translational research, shaping progress and improving outcomes with and for rare disease communities.

OVERVIEW OF THE ROLE

Beacon, now in its second decade of operation, has experienced substantial growth over the last three years, including an organisational rebrand and expansion into international projects. We are now recruiting a Senior Patient and Scientific Engagement Officer to play a central role in delivering ambitious projects that put patients at the heart of translational research.

This role sits at the crossroads of patient involvement and scientific communication, building meaningful collaborations between patients, researchers, and other stakeholders. You’ll provide essential operational support and subject expertise to ensure projects run smoothly and reflect the real-world needs of the rare disease community.

You will contribute primarily to two of Beacon’s major collaborative initiatives: REMEDi4ALL, a European-wide drug repurposing platform with over 25 partner organisations, and the LifeArc Translational Research Centres for Rare Disease (LifeArc TrC4RD), a UK-wide partnership. In this role, you will work directly and regularly with partners across these consortia, encompassing patient group leaders, patient representatives, academic researchers, clinical trialists, and beyond. You will act as a vital interface between patients and researchers in both projects, coordinating activities, facilitating collaboration, and embedding patient perspectives throughout the work. While these will be your main focus, you will also support other initiatives across the charity, particularly those aimed at advancing scientific understanding of rare diseases and strengthening patient involvement in research.

This is a varied position offering the chance to apply and further develop your expertise across areas such as patient and public involvement, scientific content development, training, and stakeholder engagement. We are looking for someone with a strong grasp of both the scientific and patient landscapes, who can balance attention to detail with big-picture awareness and work confidently in highly collaborative settings with multiple partner organisations. This role offers a unique opportunity to make a tangible contribution to advancing rare disease research and ensuring patients’ voices drive progress across the UK and Europe.

See our full job description for more information on REMEDi4ALL and The LifeArc TrC4RD

MAIN DUTIES AND RESPONSIBILITIES

Your main responsibilities will span aspects of project delivery, stakeholder engagement, and patient-centred scientific support. In this role, you will:

• Support the delivery of Beacon’s work within REMEDi4ALL and the LifeArc TrC4RD, collaborating directly with partners across these consortia to coordinate activities and ensure timely delivery of shared goals.
• Assist in the preparation of project materials, reports, and updates for consortium meetings and communications.
• Write, review, and refine accessible, patient-facing materials that explain complex scientific concepts and research projects clearly.
• Help design and deliver patient engagement strategies for major collaborative projects, ensuring patient perspectives are embedded throughout.
• Support and liaise with REMEDi4ALL Patient Champions and the LifeArc Patient Engagement Group, including coordinating mentorship, facilitating input into project teams, and managing communications.
•  Build and maintain strong working relationships with patient advocates, researchers, funders, and partner organisations, ensuring clear communication and effective collaboration.
• Contribute to the planning and delivery of multi-stakeholder meetings, workshops, and webinars that bring together patients, researchers, and other partners to discuss research priorities and approaches.
• Support the creation and delivery of training materials, sessions, and talks for patient groups, researchers, and other stakeholders on topics such as patient and public involvement (PPIE) and rare disease research.
• Participate in project discussions to understand current patient engagement and provide input or signposting to improve engagement and support.
• Represent Beacon and its work at consortium meetings, external conferences, and events – both as a delegate and, where appropriate, as a speaker.
• Support other Beacon-led projects as required, particularly those focused on advancing patient knowledge, engagement, and scientific understanding.
• Provide hands-on support for the on-the-day delivery of Beacon events, training programmes, and other charity activities.

 PERSON SPECIFICATION

This is a mid-to-senior level role. Candidates should have professional experience in scientific engagement, patient involvement, or research coordination, and be ready to contribute confidently to collaborative consortium projects with external partners.

We are looking for someone with a strong commitment to patient-centric approaches, who is willing to advocate for patients’ perspectives and priorities, while also navigating the need for compromise and collaboration across multiple organisations.

Essential

• Relevant professional experience (e.g., life sciences, medical communication, translational research, or patient engagement), ideally accompanied by a scientific qualification.
• Experience in patient and public involvement or patient engagement within research, ideally in health contexts.
• Strong understanding of scientific processes, translational research, or clinical research, with the ability to communicate complex concepts clearly to non-specialist audiences.
• Ability to work effectively within multi-partner or consortium projects, collaborating with external organisations.
• Confidence in liaising with a wide range of stakeholders, including patients, researchers, funders, and partner organisations.
• Experience developing accessible, patient-centred materials, training, or communications.
• Excellent organisational skills, with the ability to manage multiple tasks and deadlines while maintaining attention to detail.
• Strong interpersonal skills and confidence in building relationships across diverse groups.
• Ability to work independently and proactively, while contributing effectively as part of a team.
• Commitment to patient-centred research and improving outcomes for the rare disease community.
• Flexibility to travel for in-person meetings, workshops, and events within the UK and internationally multiple times a year.

 Desirable

• Experience supporting or delivering training sessions, workshops, or webinars for patient or professional audiences.
• Familiarity with drug repurposing, translational research, or rare disease research environments.
• Experience managing or contributing to multi-stakeholder research projects.
• Experience working or volunteering in the charity or not-for-profit sector.
• An understanding of rare diseases, health charities, or small-organisation dynamics

WORKING AT BEACON

Beacon is a small, tight-knit team, with a friendly atmosphere and strong commitment to our beneficiaries. We aim to give all employees opportunities to pursue their interests, develop their skills, and shape their career path.

We offer flexible working practices to help our staff balance their personal and professional lives, including hybrid working (50% split between home and office working) and flexible hours. We also recognise the substantial benefits of in-person collaboration and communication for the organisation, team morale, and for individual staff development, and are committed to maintaining this as a core part of how we work.

After the initial in-person onboarding period, we’d like this role to be based in the office for around 2–3 days a week on average (though not necessarily every single week) to support effective teamwork, strong communication, and smooth daily operations.

BENEFITS

• 25 days holiday, plus bank holidays and Christmas to New Year closure 
• Flexible working practices including hybrid working and flexitime
• Time off in lieu to support appropriate work/life balance
• 5% pension contribution 
• Annual training budget to support personal and professional development 
• A close knit and friendly small team environment 
• Frequent opportunities to meet with beneficiaries and expand your professional network
• Employee Assistance Programme (EAP) including access to mental health support, 24/7 GP service, discounted gym membership, shopping savings and more

Hybrid working with regular travel to our London Bridge Office

What the job involves

The Policy and Health Influencing team is responsible for using clinical data and evidence to shape what the organisation thinks and to develop solutions that drive change for men with and at risk of prostate cancer. This means working with clinicians, patients and stakeholders to interpret the latest changes in prostate cancer research, care, support and treatment which will help shape our strategic direction and activities.

As the Policy and Health Influencing Coordinator, you're key to supporting the policy and health influencing team, and teams across the Health Services, Equity and Improvement Directorate when needed. You'll have a varied and far-reaching portfolio of work for example, at times arranging important stakeholder events and meetings and ensuring we're hearing from people who've been through prostate cancer themselves. You'll also help share our work on social media and capture the outcomes of our external engagement.

In this role you’ll assist us in keeping track of and evaluating our progress in line with our organisational strategy, as well as keeping an eye on trends in the wider cancer and health landscape and reporting on them. Plus, you'll handle budget matters and make sure we have effective budget monitoring mechanisms in place.

What we want from you

We’re looking for a Coordinator who is highly organised, an effective communicator who knows how to adapt and effectively prioritise your time. You’ll have excellent coordination skills and can organise others too (especially teams which are based across the UK) and have experience of creating and updating forward planners, project schedules and streamlining team processes. You’ll be able to comfortably engage with senior managers and a breadth of external senior level stakeholders. Regularly taking the initiative to drive improvements so that the teams you support can operate efficiently.

With skills in collecting and utilising data to monitor, trend, and report on activity, you're proactive in acting on the results. You’ll have some experience or interest in working in the health or volunteer sector. You’re also quick to learn and capable at picking up new systems including those for budget management and product fulfilment.

Why work with us?
Every man needs to know about the most common cancer in men – prostate cancer. It’s a real and present danger that takes over 12,000 of our dads, grandads, brothers and friends each year.

Prostate Cancer UK is the largest men’s health charity in the UK. We have a simple ambition – to stop prostate cancer damaging lives. We invest millions in research to revolutionise testing, treatment and care. We’re blazing a trail to a screening programme that could save thousands of lives with regular, accurate tests for all men at risk. And we work tirelessly to spread the word about risk and offer specialist support to people living with the disease.

Work with us and you’ll see your efforts pay off as we give men and their families the power to navigate prostate cancer. 

Our commitment to equity, diversity and inclusion

At Prostate Cancer UK we’re committed to righting health inequalities across the UK, starting with those faced by Black men. This includes ground-breaking research into Black men's risk and working with communities directly to overcome barriers to the diagnosis and treatment of prostate cancer. To make this happen, we're dedicated to being an inclusive, proactive organisation, as we strive to be Allies to Black communities. We’ll achieve this by advocating and working alongside those communities to promote change. We're also working to be Allies to each other, not only protected groups. In 2024, we launched our New Allyship Training Programme. All colleagues at Prostate Cancer UK will be trained to act and identify as an Ally. 

We've also signed Business in the Communities Race at Work Charter, as a dedication to our Black health equity work and wider EDI priorities. As a signatory, we're responsible and accountable for driving positive change.

Ways of working

Our hybrid working approach combines the best of flexible working – a positive work/life balance, inclusive and accessible platforms, and online information at our fingertips.

Next steps
More information on what we offer, as well as the role, can be found on our vacancies page. Please download our job profile document (job description) with our ‘How to apply’ section sharing the key points to refer to in your application and to apply

Senior Events Officer

35 hours per week, Monday to Friday 9am–5pm (some evenings and weekends)

Permanent

Hybrid working – home-based and in Alton, Hampshire (two days a week)

£30,000–£34,000 (depending on experience)

About the Role

Are you passionate about creating unforgettable experiences? As our Senior Events Officer, you’ll take the lead in planning and delivering a portfolio of high-profile fundraising events that inspire, engage and make a real difference for kidney patients. From overseeing event logistics and marketing to managing budgets and nurturing supporter relationships, you’ll ensure every event runs smoothly and every supporter feels valued.

You’ll also mentor and guide either our Event Officer or Fundraising Assistant, helping to build a high-performing team that shares your passion for delivering outstanding events.

If you thrive in a fast-paced, hands-on environment and love seeing your ideas come to life, this is the role for you.

Join an ambitious Fundraising team that has been growing non-legacy income 34% year-on-year since 2021

What You’ll Do

• Lead the planning, management, and delivery of a varied portfolio of fundraising and challenge events, for example: Cambridge Half Marathon | The Big Half | London Landmarks Half Marathon | Manchester Half Marathon | Virtual Challenges (Marathon May, October Dog Walk) | Great North Run | Cardiff Half Marathon | Do your own thing | plus other events as agreed
• Oversee event budgets, monitoring costs and ensuring financial targets are met.
• Line-manage, coach and support the Fundraising Assistant to ensure team success.
• Develop and implement marketing and recruitment strategies to maximise participation and income.
• Deliver exceptional supporter experiences, ensuring participants feel valued and inspired.
• Build and maintain strong relationships with suppliers, agencies and partners.
• Ensure all events comply with health, safety, insurance and risk regulations.
• Evaluate event performance and produce insightful reports to drive continuous improvement.
• Collaborate with colleagues across fundraising and communications teams for integrated campaigns.
• Keep up-to-date with market trends, exploring new opportunities for the charity.

What You’ll Bring

• A minimum of two years’ experience in a fundraising or events role, with a proven ability to deliver successful events.
• Proven experience in organising challenge events, using creativity and strategy to maximise participation and revenue.
• Line management experience, coaching and inspiring colleagues to reach their potential.
• Excellent project management skills – you can juggle multiple events and deadlines with ease.
• A creative flair for spotting opportunities, developing ideas and executing them flawlessly.
• Strong communication and interpersonal skills – you know how to build lasting relationships.
• A passionate, energetic, and self-motivated approach to delivering excellent supporter experiences.
• Experience managing budgets and suppliers to ensure smooth event delivery.
• An eye for detail and a knack for problem-solving, keeping events running seamlessly.

Desirable:

• Experience with Beacon or other fundraising databases.
• Knowledge of fundraising regulations and data protection.
• Understanding of long-term or chronic health conditions.

Why Join Us?

Kidney Care UK is at the forefront of supporting people affected by kidney disease. By joining our events team, you’ll play a key role in helping us engage with supporters, raise vital funds, and make a tangible impact on people’s lives. Plus, you’ll get to work in a supportive, friendly and flexible environment where your ideas and creativity are celebrated.

Employee Benefits:

Opportunities to take on an apprenticeship: Fundraiser (level 3) - apprenticeship training course

Employee assistance programme | Generous annual leave | Pension | Cycle2Work scheme | Flexible working | Retail discounts | Family leave | Health cash plan

Trusts and Foundations Manager
Alton, Hampshire (flexible/hybrid working considered with a minimum of one day per month at Head Office)
37.5 hrs per week or Part Time considered. Permanent
£35,000 to £39,000 a year, dependent on experience

About the role

For 50 years, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease.

We are looking for a passionate, talented Trusts and Foundations Manager to join our ambitious, successful Fundraising team that has been growing non-legacy income 34% year-on-year since 2021 as we approach our new 5 year fundraising strategy.

This role is responsible for managing and developing the charity’s portfolio of Trusts and Foundations, securing significant gifts and growing the long-term potential of this portfolio (target for this 12 months period is £378,000). There are no direct reports, however the successful candidate will be expected to work closely with Senior Management Teams, other departments and stakeholders to build and develop cases for support to help fund our much-needed work.

The successful candidate will utilise their expert writing skills to shape those cases for support into compelling, high-quality proposals and reports.

Building relationships with a wide range of audiences including funders is key. Inspiring them to support kidney patients across the UK and engage with the kidney community, enabling them to tell their stories and better communicate how larger trust grants can make a real difference for people with chronic kidney disease.

A dynamic, self-motivated, ambitious and pro-active fundraiser is required for this role, demonstrating enthusiasm for the projects and services we are seeking funds to support.

About you

The ideal candidate for this role will have experience and a proven track record of successful income generation and delivering against targets.

You will have demonstratable experience in researching potential Trust funders, submitting compelling proposals, securing funding and project managing successful bids through to completion of the grant award.

You will also have a background in report writing and demonstrating grant impact whilst being able to build relationships with funders, individual/major donors and senior stakeholders.

Experience of providing excellent supporter care, building mutually beneficial long-term relationships with funders is a must for this role.

Key responsibilities

Research and process management

• Work closely with our Director of Patient Support Services (Patient Grants, Hospital Grants, Advocacy and Counselling) to fully understand our work, and with our Director of Finance to fully understand the costs of delivering our work
• Build strong cases for support, ensuring that you have all the information needed to create compelling proposals and reports for high and mid-value funders
• Research and identify prospective trusts and foundations and other grant giving bodies
• Grow and maintain a strong trust funding pipeline, creating new trust prospects for our priority funding areas
• Develop our long-term trusts and foundations strategy, and agree ongoing budgets and targets for this income stream
• Maintain accurate records including tracking and analysing opportunities, results, and outcomes

Fundraising 

• Identify and manage a pipeline of high-value prospects and opportunities which have the potential to deliver five- and six-figure grants
• Work with colleagues across Kidney Care UK to develop and submit high-value and high-quality trust and foundation bids for a range of short, medium and long term projects
• Develop relationships with the Senior Management Team and other key stakeholders across the charity maximising every opportunity for cultivation and development
• Champion ways of working with the kidney community to enhance your fundraising approaches
• Plan and organise opportunities for funders to view Kidney Care UK’s work first-hand, ensuring all safeguarding procedures are followed and met

Reporting 

• Compile comprehensive and compelling progress reports to feed back to grant makers in a timely fashion and incentivise continued support
• Alongside the Director of Finance prepare accurate budgets detailing spending of specific grants
• Draw down on any multi-year grants as outlined in our annual budget
• Provide briefing notes and income pipeline on donor activities and potential funding opportunities

Employee Benefits:

Employee assistance programme | Generous annual leave | Pension | Cycle2Work scheme | Flexible working | Retail discounts | Family leave | Health cash plan

35 hours per week

Teddington, London Borough of Richmond

Ruils is run by, and for, disabled people. We exist to remove the barriers that prevent disabled people from living independent lives. Our vision is a society where all individuals have choice and control to live independently. We provide information, advice, advocacy, befriending and activities to our clients and their families.

We work with the Richmond General Practice Alliance (RGPA) and our local Primary Care Networks to deliver personalised care services: Social Prescribing and Proactive Anticipatory Care (PAC). This allows GPs and other health care professionals to refer patients to a Link Worker or Care Coordinator, who can work with the individual and connect them with services and activities in their community. We have a team of 15 Link Workers and Care Coordinators spread throughout the borough and in this role you will lead and manage the team.

The NHS Plan also highlighted the need to focus on the prevention of long-term conditions and reduce health inequalities faced by sections of society. You will also lead the delivery of ‘Health in Your Hands’ and a Community Health and Wellbeing Programme, which focuses on targeting localities that are facing health inequalities due to high levels of social deprivation.

You may currently be:

• Social Prescribing Link Worker looking for career progression
• Working in the voluntary sector and looking for career progression into a management role
• An allied professional with knowledge of personalised care services
• An experienced manager looking for a new opportunity in the field of health and social care.

Duties and Responsibilities:

• Leading and motivating a team of professionals with differing skills and experience to deliver high quality services meeting Key Performance Indicators.
• Being a key member of the Charity’s leadership team able to consider and discuss the wider aspects of the charity outside of your own direct responsibilities.
• Working with the RGPA contract manager and the CEO to set and monitor targets for each project/service and identifying and resolving any issues that arise.
• Strong project management skills – able to set up projects, processes and communicate these clearly to the wider team.
• Creating coherent and comprehensive reports for stakeholders by analysing and collating data from different sources.
• Working on your own initiative and with minimum day to day supervision to achieve agreed goals and targets.
• Attending meetings and events, communicating effectively with a variety of individuals including health professionals and other organisations in the voluntary sector.
• Being responsible for the recruitment, selection, induction and training of new permanent or temporary staff.

What we can offer you:

• A vibrant and interesting work environment – every day is different
• An experienced and supportive leadership team
• Training and development opportunities
• Flexible working
• Kind and caring colleagues who work as a team
• A cycle to work scheme
• An employee assistance programme (EAP)

We operate a Guaranteed Interview Scheme; we will guarantee an interview to all disabled applicants who meet the essential criteria for the post. Please state in a cover letter if you wish us to consider you for this guaranteed interview scheme.

To apply for the role, please send your CV and covering letter outlining how you meet the key requirements for the role (as outlined above). If you would like a full Job Description to aid your application, please request this, as detailed in 'How to Apply'.

Closing date: 23rd September 2025.

Face-to-face interviews will take place during the week commencing 29th September 2025.

What the job involves

The Health Information Coordinator is a vital role supporting a busy team that creates health information and communications for men who have been diagnosed with prostate cancer or those at high risk of developing it.

You’ll have the opportunity to play a key role in keeping all the health information on the website up-to-date and in line with the Patient Information Forum’s PIF TICK quality standard. As well as coordinating and editing the team’s social media communications. Supporting the promotion of our resources both internally and externally, you’ll help to evaluate the effectiveness of the service we provide.

The role is responsible for making sure all our health information publications are in stock, so we deliver an effective health information service for men and their families affected by prostate cancer. You’ll also develop and maintain administrative systems to support the team’s work including financial processing.

This role is fixed term until end of October 2026 covering an internal secondment.

What we want from you

We’re looking for a pro-active and highly organised person to join our team. You’ll be self-motivated and able to multi-task, supporting a busy team while keeping on top of your own projects. You’ll have experience of communicating in plain English across multiple platforms including social media and our website. You’ll also have the opportunity to develop an in-depth understanding of how medical and health-related information is produced to standard guidelines.

You’ll be a strong team player with excellent interpersonal skills, you’ll be happy communicating with a wide range of people, from men with prostate cancer and their families to specialist clinicians and researchers. 

If you’d like to make a real difference to the lives of men with prostate cancer, we’d like to hear from you.

Why work with us?
Every man needs to know about the most common cancer in men – prostate cancer. It’s a real and present danger that takes over 12,000 of our dads, grandads, brothers and friends each year.

Prostate Cancer UK is the largest men’s health charity in the UK. We have a simple ambition – to stop prostate cancer damaging lives. We invest millions in research to revolutionise testing, treatment and care. We’re blazing a trail to a screening programme that could save thousands of lives with regular, accurate tests for all men at risk. And we work tirelessly to spread the word about risk and offer specialist support to people living with the disease.

Work with us and you’ll see your efforts pay off as we give men and their families the power to navigate prostate cancer. 

Our commitment to equity, diversity and inclusion

At Prostate Cancer UK we’re committed to righting health inequalities across the UK, starting with those faced by Black men. This includes ground-breaking research into Black men's risk and working with communities directly to overcome barriers to the diagnosis and treatment of prostate cancer. To make this happen, we're dedicated to being an inclusive, proactive organisation, as we strive to be Allies to Black communities. We’ll achieve this by advocating and working alongside those communities to promote change. We're also working to be Allies to each other, not only protected groups. In 2024, we launched our New Allyship Training Programme. All colleagues at Prostate Cancer UK will be trained to act and identify as an Ally. 

We've also signed Business in the Communities Race at Work Charter, as a dedication to our Black health equity work and wider EDI priorities. As a signatory, we're responsible and accountable for driving positive change.

Ways of working

Our hybrid working approach combines the best of flexible working – a positive work/life balance, inclusive and accessible platforms, and online information at our fingertips.

Next steps
More information on what we offer, as well as the role, can be found on our vacancies page. Please download our job profile document (job description) with our ‘How to apply’ section sharing the key points to refer to in your application and to apply.

Got a question? Please let us know if you have any accessibility requirements or questions – we’re here to help.

The closing date is Sunday 21st September 2025.  Applications must be submitted by 23:45 UK time.

Interviews: By arrangement. Currently scheduled for the week of Monday 29th September 2025.

You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025. 

Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.

Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising. 

This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.

Key duties

Major Donor Fundraising

• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+

• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.

• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships

• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.

• Be responsible for our Breakthrough-ME Group with high quality proposition development.  Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.

• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.

• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.

• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.

• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.

• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.

• Create adequate systems and processes to support the major donor programme.

• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.

• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.

• Provide regular feedback and internal reporting to line management.

• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.

• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.

• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity

• Occasional travel to London, Bristol & events

Other duties

• To positively promote the work and activities of Action for M.E. at all times.

• To contribute to the team’s overall, ongoing and annual planning and budgeting.

• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.

• Act as an advocate for the Charity and its work.

• To work in accordance with Action for ME’s values of collaboration, equity and empathy.

Join Our Team!

We have an exciting opportunity to join us as our IBD Project Manager. You will lead and coordinate the redesign and relaunch of the IBD UK Alliance programme, to improve the quality and standards of health services for people affected by Crohn's and Colitis across the UK.

You'll be working closely with the Director of Services & Evidence and Head of Health Services to support the charity's leadership of the IBD UK Alliance.

Download our recruitment pack from our website containing full details of the job description and person specification.

About you

You will need to have:

• Experience of developing and delivering successful health service quality improvement projects and programmes.
• Knowledge and experience of working in UK health services or a health or medical charity.
• Experience of successful development of operational performance metrics, strategies and objectives.
• Evidence of establishing and maintaining effective relationships with external stakeholders, including senior clinicians and NHS business managers.

Benefits:

• 25 days annual leave plus bank holidays, increasing by one day per year up to 30 days
• Salary Sacrifice Pension scheme
• Flexible working options
• Enhanced maternity, adoption and paternity pay
• 24/7 Employee Assistance Programme
• Wellbeing programme
• Interest free loan for season tickets
• Cycle to work scheme
• Free parking and secure bike locks
• Training and development financial support and/or study leave
• Performance review and development scheme

Our location

We are based in Hatfield, Hertfordshire, so we are easily accessible by road and rail. In this role there is plenty of scope for working from home, although there will be occasions when you will need to attend 2 directorate days and conferences/events. In addition, the charity meets four times a year at the office in Hatfield for its 'All Staff Together' days, at which attendance is mandatory.

Title: Monitoring, Evaluation and Learning Advisor (Qualitative Evidence) 

Salary: £41,000 to £56,000 per annum 

Location: UK remote - with occasional travel to Haywards Heath, when required 

Contract: 24-month Fixed-Term Contract 

Hours: This is a full-time 35 hours per week 

Responsibilities 

About the role 

We are seeking an experienced Monitoring, Evaluation and Learning Advisor to provide sound technical advice and guidance to ensure high quality qualitative outcome measurement tools and approaches in line with our increasing portfolio in disability and social inclusion in order to continuously improve Sightsavers’ evidence base. 

As the MEL Advisor you will lead qualitative project baseline and endline data collection, coordination, reporting and learning to improve the quality of our programmes and Sightsavers impact. You will maintain and further develop Sightsavers’ qualitative outcome monitoring approach across our thematic areas and ensure high quality data collection, analysis and reporting.

Sightsavers has developed and introduced a MEL framework to measure the organisation’s strategic progress - Learning Accountability and Monitoring Progress (LAMP). The post holder will support its processes and make a significant contribution to understanding progress using qualitative evidence. 

Responsibilities include: 

Developing and strengthening practices 

• Lead on the strengthening and design of innovative and participatory monitoring and evaluation methodologies and tools to assess outcomes and impact of programmes; support the integration of successful approaches in routine MEL practice.

• Lead on the piloting, implementation and revision of Sightsavers MEL approaches in existing and new projects including strong links with LAMP; support MEL team members to implement appropriate tools. 

• Contribute to Country Office, Regional and Global capacity building plans and provide MEL-focused training and facilitation.

Technical Support and guidance 

• Strengthen the use of Theories of Change (ToC) within projects through participating in their development and ensuring clear relationships between ToC and baselines and endlines. 

• Provide technical support to logframe development during the project design process ensuring strong links with LAMP, particularly for social inclusion and inclusive education projects. 

• Contribute to project MEL planning by ensuring continuity between baseline and endline data collection tools, and annual monitoring tools. 

• Ensure the accurate design of evidence gathering elements, including clear and robust rationale, budgets and resourcing. 

• Maintain open lines of communication among internal stakeholders about project progress and escalate risk when needed. A key focus is to assist institutional funding and senior management with communications on project progress and challenges. 

Evidence generation and learning 

• Lead Country and Global teams to conduct evidence generation activities to support strategic direction including, project baseline, annual and endline data collection, reporting and learning at project and portfolio (strategy) level 

• Analyse, consolidate and disseminate indicator baseline and endline data, provide technical support to donor reporting when necessary 

• Support the integration of needs and opinions expressed by people and communities we serve 

• Collaborate with MEL team members to analyse performance data, write reports and provide recommendations 

• Ensure that learning from project baselines contributes to project design, implementation and improvements in MEL practice

• Support the design, delivery and dissemination of learning, particularly around inclusion, within and between relevant thematic areas 

The post holder is expected to travel up to eight weeks a year locally and internationally. The role offers flexible working from home and the office to be agreed upon with the line manager. 

Skills and Experience 

As the successful candidate you will possess a degree in a relevant field or subject (international development, public health, social sciences), or equivalent learning and experience. You will have a background in the comprehensive design and delivery of outcome focussed qualitative approaches/techniques including participatory MEL, tool development, data collection, analysis and reporting, and have experience of analysing rich qualitative data from multiple sources including the use of appropriate analysis methods and data analysis software tools. 

Further required knowledge, skills and experience include: 

Essential 

• Experience in monitoring, evaluation and learning gained within the international development sector in programme countries.

• Excellent technical skills in monitoring, evaluation and learning: developing and using theories of change, designing MEL plans, designing logframes, managing oversight processes, sharing evidence and communicating learning, data quality assessment.

• Experience producing analytical reports and communication materials of good quality for a wide range of audiences, particularly using qualitative data. 

• Excellent self-management and initiative with proven ability to independently manage large, complex pieces of work with multiple stakeholders in a high-pressure environment working to competing deadlines. 

• Ability to build and manage strong, effective working relationships with internal and external audiences on complex international development projects (working with multiple countries and continents) 

• Ability to balance attention to detail with understanding the big picture. 

• Sound knowledge of Microsoft Office products and relevant use of artificial intelligence (AI) software 

Desirable 

• Fluency in other Sightsavers’ languages e.g. French, Portuguese, Bengali, Kiswahili. 

• Experience in MEL for social inclusion and/or education programmes and inclusive data skills. Disability data skills are an asset. 

• Skilled in efficient working practices within a geographically disbursed team. 

• Experience of planning, monitoring and evaluating flexible adaptive programmes. 

• Understanding of operational research methodologies and approaches 

This is a highly varied and involved role, and the above is not an exhaustive list of duties or required professional skills. Please see the Job Description for full details.  

Candidates are welcome to demonstrate their ability to match the person specification by expanding on how their experience, training and/or qualifications might have provided them with the knowledge or skills required for the role. Successful candidates will be appointed on merit. 

Benefits 

Sightsavers offers some fantastic benefits. Our comprehensive benefits package includes generous annual leave allowance, pension, season ticket loan, cycle to work scheme, discounted gym memberships and wellness discounts. If you choose to work in or are visiting our collaborative, modern office space, you will find it an easy 20-minute train journey from Brighton or 45 minutes from London. 

Next steps 

To apply for this exciting new opportunity, please submit your CV via our recruitment portal. We are particularly interested in learning of your motivations for applying.

Please note that there will be an expectation that you can occasionally visit our modern and collaborative offices in Haywards Heath, West Sussex (RH16 3BW). 

Closing date: 21 September 2025 

As an equal opportunity employer, we actively encourage applications from all sections of the community. Sightsavers is a Disability Confident Leader and qualified people with a disability are particularly encouraged to apply.

Sightsavers is an employer that does not tolerate any form of harassment and has zero tolerance for sexual exploitation and abuse. All potential candidates will be subjected to rigorous background checks and controls. 

Are you passionate about generating income for charitable causes? Do you have experience building strong relationships and leading applications to institutional funders?

We are looking for a motivated and experienced Grants & Trusts Manager to join our Income Generation Directorate. You will play a key part in securing vital income to support our work and mission. As the Grants & Trusts Manager, you will lead and inspire a dedicated team to deliver essential funding for the Association.

Key Responsibilities:

• Lead the identification and development of a portfolio of grants, trusts, and foundations.
• Build and nurture strong relationships with funders to secure long-term partnerships.
• Lead, motivate and manage the Trusts team, including the line management of two Trusts Fundraising Officers, providing ongoing support and team development.
• Deliver high levels of donor stewardship through a proactive approach.
• Oversee the Trusts Team in delivering to develop and deliver persuasive and timely funding applications.
• Collaborate with the Prospect Researcher to identify and champion the development of new funding sources and opportunities.
• Work across the organisation to create compelling propositions that align with funders’ priorities.
• Ensure clarity and alignment with other fundraising teams on donor stewardship and contact strategies.
• Manage reporting, ensuring compliance with all terms and conditions of awarded grants.
• Assist with the creation of income and expenditure budgets and provide regular progress reports.
• Champion the use of our CRM system to ensure accurate and accessible donor information.

About You:

• Experience in growing income through grants, trusts, and foundations, with strong bid writing skills.
• Proven leadership skills with the ability to develop and motivate a high-performing team.
• Strong relationship management and communication skills, including the ability to influence at senior levels.
• Financial expertise including analytical skills with experience in budget management and the ability to develop funding pipelines.
• Proficiency in CRM systems and fundraising software.
• A commitment to the mission and values of the MND Association.

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

The full job description and further information about working for the MND Association is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office 1 - 2 days per week.

Job Description

Job Title:Community & Events Fundraiser 

Reports to:Fundraising Manager

Location:Hybrid & Borough High Street, London SE1 (2 days a week in the office)

Salary:                £31,000 

Contract:Permanent

Hours:35 hrs per week. Office hours are 9 – 5 

Background and purpose

We are the only UK-wide charity for everyone affected by a genetic and acquired bleeding disorder. 

At the Haemophilia Society (THS) we want to empower everyone affected by a bleeding disorder to live life to the full, whatever your stage in life.

One in 2,000 men, women and children in the UK have a diagnosed bleeding disorder, which are a group of conditions, including haemophilia and von Willebrand disorder, that result when the blood cannot clot properly. 

As many as a third of bleeding disorder diagnoses have no known family history and can be the result of a random gene mutation. This means a bleeding disorder diagnosis can come completely out of the blue.

THS brings together people with bleeding disorders and their families to share experiences and understand more about how to live well with a bleeding disorder. Together, we can all make a difference.

What we do:

Support each other

We understand each other. We offer advice and support from personal experience. Our growing community is there for each otherbecause we’re in it together.

Raise awareness

We rally together because every little thing we do makes a difference and gives hope to people living with a bleeding disorder.

Make a lasting difference

We influence and advocate on what matters to our community. Health and social care policy, access to treatment and much more.

What we offer:

Competitive Salary

Generous Pension Contribution Agile Working

25 days’ holiday (pro rata) plus an additional day for each year of service up to 5 years

Well located office very close to Borough Market.

About the role

We’re incredibly lucky to have a generous and dedicated community who are always looking for new ways to support our work. We are looking for a passionate fundraiser who can take ownership of our community fundraising and empower our members and supporters in their fundraising ventures. You’ll act as the face of THS for people looking to raise money in a variety of wonderful ways – ensuring they have what they need to be as successful as possible. This will include managing a number of key events such as the London Marathon, Ride London and Swim Serpentine. 

This role would be ideal for someone with 2-3 years’ experience and looking to take the next step in their fundraising career. As part of a small team, you’ll be excited about getting involved in all areas of community and events fundraising, building relationships with our members and driving our fundraising strategy forward. 

The purpose of the role is to:

Community Fundraising

·Supporting and running the community fundraising activities - engaging our centres, signing up new members, stewarding our donors, being the key point of our enquiries

·Organisation and delivery of mass participation events

·Providing guidance and supporting participants in promoting their efforts on social media

·Spotting opportunities for business development with organisations

• Provide guidance and support for supporters undertaking community fundraising and act as a key first point of call. Developing and improving the supporter journey with new materials.
• Organise and project manage events and fundraising campaigns. Add new fundraising campaigns and events to the calendar.
• Develop key materials needed to promote events and fundraising campaigns. Source case studies we can use to promote events, as well as the charity and use them in publications and socials.
• Keeping up-to-date records and giving timely recognition of donations using our CRM system
• Creating fundraising communications to encourage greater participation, working with our Communications Officer and liaising with members and volunteers. 
• Working to strict deadlines to ensure that fundraising activity is widely promoted and the success of fundraisers is celebrated to encourage greater take-up of fundraising activities. 
• Representing the charity at events hosted by community and corporate supporters. Representing the charity at services events promoting fundraising.
• Showcasing the work of the organisation and speaking confidently at events about our work to connect fundraisers to our cause and encourage fundraising.
• Developing engaging national fundraising campaigns.
• Thinking creatively, developing action plans and budgets to support national campaigns like World Haemophilia Day and TalkingRed. You will be able to understand the diverse needs and abilities of our community and create accessible fundraising initiatives that work for a geographically dispersed supporter base.
• Understanding and maintaining relationships with external suppliers for fundraising e.g. Great North Run, Just Giving, London Marathon etc. to ensure that we are abreast of any new trends and developments, or promotional opportunities.
• Working on two annual appeals, helping sourcing case studies and overseeing thanking process

Social Media

·Use our social channels to support your work 

·Monitoring social media accounts

·Keep on top of social trends particularly around fundraising 

·Creative flair to create compelling content for marketing/comms/campaigning

• Work with our Marketing Manager to develop social media to support fundraising, including promotional videos and graphics.
• Produce content for social media, e-news and the website. Adding materials to the webpage promoting other ways to support us – COTY, payroll giving, legacy and in memory giving.

Person Specification

Experience, Qualifications

Essential qualities, skills and experience

• Experience of organising and supporting events and/or community fundraising in a voluntary or paid role.
• Excellent organisational skills and ability to plan ahead, keep records, manage deadlines, prioritise workload and maximise your use of time.
• An outgoing, enthusiastic and helpful personality.
• A creative approach to fundraising and events. 
• Great customer service skills, the ability to recognise and meet the needs of individuals and to manage expectations when required.
• Excellent written and verbal communication skills.
• Numeracy and the ability to understand basic financial information.
• Ability to work in a team as well as to use individual initiative and judgement.

• Good level of IT literacy, including a good knowledge of standard business software, Google Suite and social media.

• A commitment to the vision and values of The Haemophilia Society
• Experience in using CRM systems.

Desirable qualities, skills and experience

• Completion of a professional fundraising programme or training course.
• An understanding of long term health conditions, their impact on patients and families, and how being affected might act as a motivation for fundraising.

·Experience of managing a charity’s accounts for fundraising suppliers like Just Giving or other fundraising sites. 

·A good knowledge of data protection (GDPR) legislation and good practice in information management.

·Well-developed IT skills with the ability to write engaging content for the website and social media.

• A good understanding of safeguarding principles when working with vulnerable people and the need for professional boundaries

·Ability to gain the trust and confidence of members and supporters.

·Excellent project planning skills and ability to work on cross-organisational projects from design to delivery.

Personal qualities

·A warm, compassionate and empathetic personality with the ability to develop positive relationships with people from all backgrounds including members and health professionals.

·Be an effective member of the team, recognising, respecting and promoting the different roles and diversity of the individuals in the team and presenting a positive impression of the team and The Society.

·Enthusiastic and fun with drive and determination to meet targets.

·Good attention to detail and accuracy in preparing communications and events. 

·A highly motivated, supportive and collaborative team worker. 

·Values-driven with a proven commitment to social inclusion and equal opportunities.

Other requirements

• Must be prepared to occasionally travel throughout the UK and to work varying hours including evenings and weekends as required.
   
• Due to the nature of our work with children and vulnerable adults, this role will require a DBS check and checks on previous employment.

The Haemophilia Society are an equally opportunity employer.