Patient advocacy and policy officer jobs

About IAPO 

A unique global alliance, we are committed to improving the lives of patients from all around the world. We nurture relationships with members, partners and all those involved in healthcare, and build dialogue with decision-makers around the world to promote patient-centred healthcare.
IAPO’s almost 300 members are patients’ organisations working at the local, national, regional and international levels to represent and support patients, their families and carers. We define a patient as any person with a chronic disease, illness, syndrome, impairment or disability.
These patients’ organisations work in many disease areas, from cancer, heart disease and diabetes to endometriosis, narcolepsy, and depression. Many are founded and governed by the patients themselves and are diverse in terms of their capacity, budget and influence.

Since its inception, IAPO has become recognized as a crucial alliance for the patient sector globally. Our membership is increasingly developing, and we are able to provide a range of resources and information to a wider community of patients’ organisations in all regions of the world, enabling them to be well-informed and effective advocates at every level where healthcare decisions are made.

About this Role

The Marketing and Communications Officer will play a crucial role in enhancing and promoting IAPO's mission and initiatives through effective marketing and communication strategies. The Officer will be responsible for developing and delivering advocacy campaigns and engagement activities, creating compelling content, managing social media channels, and amplifying IAPO's online presence and visibility within the global health community. The role requires creativity, strong communication skills, and a passion for non-profit work. The post holder will report to IAPO's Chief Executive Officer and work closely with all staff members.

The post holder must be prepared to work collaboratively in a relatively small team. They should be prepared to contribute to the friendly, positive and mutually supportive atmosphere that has been developed at IAPO. The post holder is expected to model IAPO’s values and to take an empowering approach to their work with IAPO’s members, within the staff team, and with other stakeholders.

It is essential that the post holder has experience in a related role such as communications officer, or other relevant position, for at least 3 years.

Sarcoma UK exists to support everyone affected by sarcoma and to ensure their voices shape everything we do. As we prepare to launch our new five-year strategy, this pivotal role will help embed lived experience at the heart of our work.

We are growing our existing Involvement Programme to ensure patients, families, and supporters are meaningfully involved across all areas of Sarcoma UK’s work. As Involvement and Volunteer Coordinator, you will lead the development of our volunteering and involvement infrastructure creating impactful opportunities that inform our services, drive engagement, and raise awareness of sarcoma.

Reporting to the HR and Governance Manager, you’ll work collaboratively across all internal teams and externally with people affected by sarcoma and their support networks. This is a unique opportunity to shape how we involve our community, build capacity, and deliver on our strategic goals.

Benefits

• Flexible working options including hybrid working
• Pension with 5% employer contribution
• 25 days holiday entitlement per annum plus bank holidays and the working days between Christmas and New Year
• Additional day off for your birthday
• Health and wellbeing:
  • Health Cash Plan
  • Therapy sessions
  • Wellbeing Group

Our Values

• Pioneering we are leading the way to a better future for the sarcoma community.
• Together we are creating a community to make a difference for all those affected by sarcoma.
• Expert we use our expertise in understanding sarcoma to deliver better outcomes

Duties and Responsibilites: 

Involving people affected by sarcoma

• Strengthen and support our existing Involvement Network, keeping members engaged and informed.
• Facilitate a variety of inclusive involvement opportunities for people affected by sarcoma, reflecting diverse capacities, interests, and abilities, and ensuring these align with our Equality, Diversity, and Inclusion (EDI) framework.
• Recruit, induct, and train new Involvement Network members, promoting the network through Sarcoma UK’s communication channels.
• Develop systems to capture meaningful feedback and measure the impact of involvement activities.
• Collaborate with colleagues within Sarcoma UK to create and facilitate meaningful involvement opportunities that engage people with lived experience in our work, ensuring these opportunities are inclusive, accessible, and aligned with our strategic goals
• Champion the voice of patients and families across Sarcoma UK’s work.
• Produce and distribute a regular involvement newsletter to communicate opportunities, updates, and information about the work of Sarcoma UK.

Volunteer Management

• Develop and implement a volunteering programme aligned with Sarcoma UK's organisational objectives.
• Design and maintain efficient systems for the recruitment, screening, induction, and support of volunteers.
• Act as the initial point of contact for volunteer recruitment and onboarding, before handing over management to the relevant staff member (e.g. fundraising event organiser or project lead) depending on the role.
• Define clear volunteer roles and pathways that deliver impact and reflect volunteer motivations and interests.
• Plan and deliver engaging training for volunteers based on role requirements.
• Maintain accurate volunteer records using our database (Raiser’s Edge NXT).
• Develop and manage volunteer policies, procedures, and risk assessments.
• Ensure compliance with volunteering regulations and best practice.
• Monitor, evaluate and report on the impact of volunteering initiatives.
• Administer volunteer expenses and coordinate recognition within agreed budgets.

 General

• Support cross-organisational projects that involve people affected by sarcoma.
• Attend Sarcoma UK events and contribute to the wider work of Sarcoma UK.
• Travel occasionally to meetings and events. Occasional evening or weekend work may be required (time off in lieu will be given).
• Work flexibly and collaboratively in a dynamic environment, undertaking other duties as required to support the wider operations of Sarcoma UK.

Join RUHX – Be part of something extra extraordinary.

At RUHX, we’re more than the Official NHS charity of the Royal United Hospitals Bath. We go further to give every patient the extra extraordinary care they deserve, while supporting our staff to do what they do best and furthering innovation within our hospitals. We’re out there in our community, collaborating with the people and organisations who drive real change. And we’re making sure that every penny we raise goes towards improving health, happiness and wellbeing for everyone in our community.

We’re now looking for a highly organised and motivated Community & Volunteer Officer to join our dedicated and fun team. This is your chance to be part of a charity that believes in being positively disruptive, creative and collaborative, all to make a transformative difference for our patients, staff and community.

We’re big enough to make an impact and small enough to care. This means that we believe in creating an inclusive, supportive, and nurturing environment for all our staff, as we know that a diverse, happy, and healthy team is vital to our success.

Main duties of the job

No two days in our team are the same. We split our time evenly between working flexibly at home and onsite in the office in Bath, as well as being out and about in our community. You will have a varied role which involves managing a wide range of duties and tasks including:

• Build relationships with local groups, companies, schools, and individuals to grow community fundraising income.
  Develop and deliver inspiring opportunities for volunteers to support our work.
• Provide day-to-day support and communication to our volunteers.
• Represent RUHX at community events, talks, and meetings.
• Help raise awareness of our charity across Bath and the surrounding areas.

We’re looking for a kind and compassionate person who is passionate about the NHS and making a difference to healthcare for our community. A great communicator and team player.

• Proactive, organised and creative in problem solving.
• A people person who thrives on building relationships and inspiring others.
• Experienced in volunteer coordination and/or community engagement.
• Passionate about health and wellbeing in our local community.
• Comfortable with regular evening/weekend work and travel in the region.

Person specification

Qualifications

Essential criteria

• Educated to Degree Level or equivalent appropriate work experience
• Evidence of a qualification in Fundraising or Marketing

Desirable criteria

• Membership of Institute of Fundraising

Knowledge

Essential criteria

• Demonstrable experience of working in Volunteers & Community Fundraising including managing and delivering large projects and events from initiation to completion on own.
• Experience of carrying out risk assessments
• Experience in managing & working with individual volunteers and groups, securing their effort and commitment and maintaining a high level of customer care.
• Sound understanding of charity law, fundraising regulations and best practice relating to sponsorship, donated support, public collections, licensing etc
• Experience of working in a fundraising team and office environment and following procedures accurately without significant direction.

Desirable criteria

• Experience of working in the NHS
• Experience in developing and delivering marketing plans including charity media relations, social media and digital marketing.
• Experience of setting, managing and reporting on income and expenditure budgets.
• Knowledge & experience of Raisers Edge relationship management database.

Skills

Essential criteria

• Ability to use own initiative and to escalate issues in a timely manner where unable to resolve an issue personally.
• Flexible team player with the ability to prioritise and organise a changing workload and work systematically towards deadlines. High attention to detail and an ability to see a task through to fruition with minimal supervision.
• Ability to use storytelling to communicate a compelling case for support in a way that is comprehensible to supporters and volunteers via a range of channels including public speaking, written communications, social media, telephone and face to face conversations.
• Ability and confidence to communicate effectively in sensitive situations, using patience and tact in relations with supporters, general public and press
• Ability to build credibility with senior volunteers, supporters and RUH staff through the use of effective interpersonal and influencing skills.
• Advanced Keyboard skills, including good Microsoft Word, and Excel.
• An understanding of the Data Protection Act, GDPR and Fundraising regulations and best practice.
• Ability to analysis problems and work around obstacles. Offering a range of appropriate solutions

Do you have experience in research funding? Or a keen interest to apply a scientific degree to funding impactful child health research? If so, then we have a fantastic opportunity for you. 

Following a promotion, Great Ormond Street Hospital Charity is hiring for a Research Officer is responsible for ensuring charitable funding supports the highest quality projects within our funding priority areas of: research; patient and family experience; technology and medical equipment; hospital staff support; education; and environment (through supporting redevelopment projects and capital builds).

Salary

The salary for this position is £31,935 per annum and we operate a hybrid working policy of a minimum of 2 days per week in the office.

In line with our EDI strategy and Total Reward policy, we calculate our salaries based on benchmarking data across the charity sector. To ensure fairness for existing staff and new joiners, we do not offer salaries above the advertised rate. 

Key Responsibilities

Research grant management

• Managing the delivery of GOSH Charity’s response-mode funding schemes, including our National Research Project Grant and ‘Lift Off’ pilot study funding call and others.
• Supporting potential applicants via email, phone or in person to ensure we receive high quality grant applications. 
• Processing, reviewing and validating grant applications. 
• Leading the peer review process using our Grant Management System.
• Project managing the delivery of the Research Assessment Panel.
• Supporting the input of patient and public voice, to ensure they’re built into our research funding decision making. 

Committee management

• Providing operational and secretariat support to the Research Assessment Panel and Lift Off Scientific Assessment Panels, and other expert research review panels as required.
• Managing agendas and meeting logistics, including face to face meetings as they are arranged.
• Preparing papers and reports, and collating these from across the team for delivery to the Committee in good time.
• Preparing high quality minutes that provide a clear record of discussions, decisions, and actions, and disseminating these following internal and Chair approval.
• Support the regular review of the Committee membership and tenure.
• Evaluating and recommending improvement and applying sector best practice to the Committee operations.
• Being a first point of call for Committee members, supporting them to deliver their role and ensuring they have a good experience working with GOSH Charity

This is a varied role with high impact, please refer to the full role profile for all the information. 

Skills, Knowledge and Expertise

• Previous experience working in grants management or within relevant scientific research. 
• Knowledge of research principles and the UK research funding environment. 
• Sound knowledge of paediatric research or similar discipline. 
• Demonstrate experience of research quality assessments, including peer review.
• Exceptional written and verbal communication skills with high attention to detail. 
• Strong organisational skills with the ability to manage multiple projects at once. 
• Strong relationship builder, with the ability to network in the scientific, clinical and research communities. 
• Either an undergraduate degree in a relevant scientific discipline, or equivalent relevant work experience. 

Join RUHX – Be part of something extra extraordinary.

At RUHX, we’re more than the Official NHS charity of the Royal United Hospitals Bath. We go further to give every patient the extra extraordinary care they deserve, while supporting our staff to do what they do best and furthering innovation within our hospitals. We’re out there in our community, collaborating with the people and organisations who drive real change. And we’re making sure that every penny we raise goes towards improving health, happiness and wellbeing for everyone in our community.

We’re now looking for a highly organised and motivated Charity Operations Officer to help ensure our internal systems and processes run smoothly, so our fundraising and impact can go even further. This is your chance to be part of a charity that believes in being positively disruptive, creative and collaborative, all to make a transformative difference for our patients, staff and community.

We’re big enough to make an impact and small enough to care. This means that we believe in creating an inclusive, supportive, and nurturing environment for all our staff, as we know that a diverse, happy, and healthy team is vital to our success.

Main duties of the job

No two days in our team are the same. This role will be based onsite in the office in Bath, with some opportunities to work flexibly.  You will have a varied role which involves managing a wide range of duties and tasks, including.

• Supporting the Head of Operations with administrative, finance, compliance, and governance tasks.
• Leading internal processes, including banking and financial processes, supplier relationships, and documentation.
• Helping maintain accurate financial records and managing charity databases and systems.
• Data management, analysis, segmentation and reporting to drive strategic decision-making across the RUHX team.
• Helping embed good financial and data practices that support our values and enhance our culture

We’re looking for a kind and compassionate person who is passionate about the NHS and making a difference to healthcare for our community. A great communicator and team player. Proactive, exceptionally organised and creative in problem solving. And in addition; 

• Skilled and knowledgeable in finance and administration, ideally within a charity or public sector.
• Confident in administering CRM/databases, and developing segmentation, insights and reports.
• Confident using systems like Microsoft Office, finance systems and project planning tools

Person specification

Qualifications

Essential criteria

• Educated to graduate level or equivalent, appropriate work experience
• Evidence of continuing professional development
• Excellent standard of English, both written, spoken and grammar

Desirable criteria

• Evidence of a qualification in Fundraising or financial / management accounting
• Experience of Raisers Edge NXT
• AAT Level 3 qualified

Knowledge

Essential criteria

• Two years’ experience in charity operations, including financial systems, accounts and CRM databases
• Experience using accounting software and producing complex regular income and expenditure reports to inform the wider charity teams on progress and performance against plans.
• Demonstrable experience using and administrating a charity CRM to a high level to deliver insights and reporting to the broader organisation.
• Experience in delivering training on finance and CRM systems to colleagues.
• Experience in customer care and delivering customer-facing support on the phone, in person and via email.
• Ability to interpret and implement with minimal guidance, legislation surrounding SORP and Institute of Fundraising Codes of Practice, regulations and best practice.
• Knowledge and understanding of the not-for-profit sector
• Experience of having a planned and organised approach to managing their own workload to meet tight deadlines

Desirable criteria

• Experience of working in the NHS
• Experience of setting, managing and reporting on income and expenditure budgets.
• Knowledge & experience of Raisers Edge relationship management database.

Skills

Essential criteria

• Ability to use initiative and escalate issues promptly when unable to resolve an issue personally.
• Experience working flexibly to meet the needs of the charity and ensure a customer focused response.
• Flexible team player who can prioritise and organise a changing workload and work systematically towards deadlines. High attention to detail and an ability to see a task through to fruition with minimal supervision.
• Able to communicate complex information that may be sensitive or contentious and may require persuasion/negotiation.
• Advanced IT skills, including good Microsoft Word, and Excel including the ability to design spreadsheet models and complex reports.
• Ability to analyse a range of financial data and interpret a range of options
• Excellent ability to think analytically; anticipating obstacles and thinking ahead; using analytical techniques to draw logical solutions to problems
• An understanding of the Data Protection Act, GDPR and Fundraising regulations and best practice.

Are you looking for a new and exciting challenge? We have an opportunity to expand our South West prisons peer project. We are looking for a self-motivated individual that can work on their own and as part of a prison healthcare team, who can engage with stakeholders and has a desire to make a difference.

Do you have experience of working within Criminal Justice, Prisons or Drug Services, have you been affected by hepatitis C or have you supported anyone who has hepatitis C?

Do you have experience of delivering workshops and training sessions to service users and staff?

We have the opportunity for you.

You will have great engagement skills, an outgoing personality, be solution focused and able to communicate effectively. We are a patient led organisation – you will have experience of working in an environment where the patient/service user/client is placed at the centre of all that you do

Ability to access prisons and clear prison security is an essential requirement for this role.

This post will require occasional travel so a driving licence would be helpful, although not essential if you live local to Bristol.

Join Our Mission at Neuroendocrine Cancer UK

We are seeking a passionate and experienced Individual Giving Fundraiser to join our small, dynamic team during an exciting period of growth. This newly created role is pivotal in shaping and delivering our individual giving strategy, helping to secure the long-term sustainability of our work.

You will lead on developing and implementing initiatives to grow our regular giving and legacy programmes, while identifying new opportunities to engage and inspire individual supporters.

This is a fantastic opportunity for someone who is ambitious, creative, and ready to make a real impact in a growing charity.

About Neuroendocrine Cancer UK (NCUK)

Neuroendocrine Cancer UK is a national charity with a clear mission: to support and inform patients and families from diagnosis, enable access to the best care and treatment, stimulate research, raise awareness, and influence improvements in outcomes.

We deliver our mission through four strategic priorities:

1. Patient support and advocacy
2. Education and awareness
3. Research and innovation
4. Policy and service improvement

If you’re ready to bring your skills and passion to a cause that matters, we’d love to hear from you.

Job Title: Health Independent Gender Vioelnce Advocate (Health IGVA)

Location: The Gaia Centre, Lambeth (London)
Salary: £28,857.12 per annum, including London weighting if applicable
Contract type: Full Time, Fixed Term Contract (2 June 2026) 

Hours: 37.5 hours per week

This is an opportunity to join Refuge as a Health IGVA supporting women and children who are impacted by different strands of Violence Against Women and Girls (VAWG). You will work closely with victims of VAWG from the point of crisis, to provide high quality independent advocacy and support to survivors of VAWG at the highest risk and their children.

The Health IGVA will train and provide ongoing support to GP practices and other health professionals and providers to enable primary and secondary care staff to be able to effectively talk to their patients about gender based abuse and different strands of Violence Against Women and Girls (VAWG): including Domestic abuse and violence (physical, sexual, emotional,  psychological, economic or tech abuse)​​, Sexual Violence (Rape and sexual assault​)​, Stalking and harassment ​, Sexual exploitation ​​(including women working in sex industry and Child Sexual Exploitation)​​, Female genital mutilation (FGM)​/cutting , Forced marriage​​, So-called ‘honour’-based abuse, provide early identification and offer appropriate care pathways for survivors of all genders, aged 16 years and over and their children, living, working or/and studying in Lambeth.

The post holder will work in partnership with the local Integrated Care Board (ICB) and the Gaia Service Manager to proactively develop and maintain links with health providers in the local area and build links with health professionals and support agencies. 

The job involves working within a multi-agency framework consisting of the Multiagency Risk Assessment Conference (MARAC) and local partnership protocols and procedures that prioritise the safety of survivors. The post holder will empower survivors by providing them with emotional, practical and personal welfare support.

The job involves informing survivors of the full range of civil, criminal, and practical options that might increase their safety. 

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 1 July 2025

Interview Date: 7 and 8 July 2025

The Philanthropy Manager will join our recently established Philanthropy and Partnerships (P&P) team to help us develop and nurture a range of corporate and philanthropic relationships. Together, we will significantly increase our income in support of the world leading research, treatment, and care that takes place across our hospitals in areas such as: childhood cancer, rare diseases, neonatal and maternal health, children and young people’s mental health, and critical care.

We’re looking for an experienced Philanthropy Manager to play a pivotal role in securing significant philanthropic income from high-net-worth individuals and charitable trusts and foundations to support the vital work of our hospitals. Leading a team of three, this role is responsible for cultivating and managing existing high-value philanthropic relationships, expanding our high-value networks and further embedding a culture of philanthropy across our hospitals and charity.

The ideal candidate will have strong understanding and experience in working with high-net-worth individuals to secure 5-6 figure gifts. Communication skills (both verbally and in writing) ideally gained within a fundraising or sales/business development environment. They will be a self-starter with an appetite to make unsolicited approaches to individuals, along with the ability to develop and grow lasting relationships with high-net-worth individuals, charitable trust and foundations.  They will have strong time management skills, a motivation to work towards and achieve targets, and an appreciation of working for the NHS.

Join our team!

Crohn's & Colitis UK are looking for an experienced, confident, and proactive individual to join our team. You will be an integral part of the charity, leading on the majority of new business within our Corporate Partnerships Team, building your own pipeline, and strategic partnerships, whilst acting as resident expert for external corporate opportunities.

About us

We're the UK's leading charity for Crohn's Disease and Ulcerative Colitis.

A diagnosis of Crohn’s or Colitis is life-changing. Over 500,000 people in the UK are living with a lifelong disease many people have never heard of, and for which there is no known cure.

Crohn’s & Colitis UK funds research, provides award winning information and support and raises vital awareness by increasing the public’s understanding of the conditions, and what it means to live with debilitating symptoms. But we need to do more. We need to be a louder voice in the marketplace. Our ambitious plans for 2025, will help to make a real difference to every supporter’s journey with us. If this excites you - join us!

The role

Salary: £35,000 - £38,000 per annum, depending on experience

Hours: Full-Time (35 hrs per week)

Place of work: Hybrid, with a requirement to attend the office in Hatfield, Hertfordshire, once a month and 4 times a year for our mandatory All Staff Together days.

You will be ambitious in vision, feeling confident to develop strategic multi-year partnerships from the beginning. This is a role you can really make your own and know that your success does make a difference. By succeeding in this, we are helping to build better diagnosis, better care and better lives for everyone affected by Crohn’s Disease and Ulcerative Colitis.

About you

The role is suited to someone who:

• Has a proven new business track-record developing partnerships with commercial and corporate organisations across multiple sectors, ideally operating at five and six figures
• Experience of managing corporate partnerships, ideally from within the charity sector
• Demonstrable knowledge of the commercial sector and how to access decision makers
• Enthusiastic, highly motivated, and a good networker
• Confident in presenting and pitching presentations to a variety of stakeholders via a number of channels
• Both empathetic and resourceful, with an open, honest, and flexible approach to work
• Enjoys a challenge, is self-motivated and is open to new ideas
• Excellent project and time management skills, with the ability to effectively manage competing priorities
• Good numeracy skills and ability to analyse and report on financial performance
• Excellent communication skills, verbal and written and comfortable reaching out to cold contacts via a number of different channels
• Is a strategic thinker, and a team player.
• Is a fantastic communicator, able to build and maintain effective relationships with our stakeholders.
• Has experience of working with databases

Please see our Recruitment Pack for details of our full Job Description and Person Specification.

Our location

We are based in Hatfield, Hertfordshire, so we are easily accessible by road and rail. In this role, there is plenty of scope for working from home,  although there will be occasions when you will need to attend face-to-face meetings with, donors, your team, our partner agencies, or several team away-days each year. In addition, the charity meets four times a year at its office in Hatfield (or a location in London) for our mandatory ‘All Staff Together’ days.

Benefits

We offer competitive benefits that include:

• 25 days’ annual leave plus bank holidays, increasing one day per year up to 30 days
• Salary Sacrifice Pension scheme
• Flexible working options
• Enhanced maternity, adoption and paternity pay
• 24/7 Employee Assistance Programme
• Wellbeing programme
• Interest free loan for season tickets
• Cycle to work scheme
• Free parking and secure bike locks
• Training and development financial support and/or study leave
• Performance review and development scheme.

This is National Lottery funded role in a growing charity representing children and young people affected by the neuropsychiatric conditions PANS and PANDAS. 

The purpose of this role is to work closely with our established Youth Board to ensure that the voices of young people affected by PANS and PANDAS are heard, valued, and reflected in our work.

The successful applicant will support the Youth Board in identifying, developing, and delivering one or more youth-led projects that align with their priorities and lived experiences. 

See the job description and the recruitment pack attached for more informaton.