Patient advocacy and policy officer jobs

We're the UK's specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research; provide information and support to patients and their loved ones; and raise awareness of blood cancer.

We’re looking for a proactive and relationship-focused Corporate Partnerships Officer to support the delivery of high-value corporate partnerships that generate vital income for Blood Cancer UK. This role plays a key part in ensuring partnerships are delivered effectively, with a strong focus on stewardship, relationship management, and maintaining excellent engagement with corporate partners. Working closely with the Corporate Partnerships Manager, this role helps ensure partnerships achieve their financial and strategic objectives while delivering meaningful impact for people affected by blood cancer.

This is a collaborative and detail-oriented position, working across internal teams to support partnership planning, reporting, and impactful engagement activity. Externally, the role builds and maintains strong relationships within corporate partner organisations, acting as a key point of contact for day-to-day delivery. Strong organisation, communication, and relationship-building skills are essential, alongside a positive, solutions-focused approach and a commitment to supporting the growth and success of our partnerships portfolio.

Regular travel to the London office and partner offices will be required. The level of attendance may vary throughout the year, with increased time spent at partner offices during busy periods. This may range from a couple of days per week to approximately once per month, depending on business needs. 

We are committed to actively promoting equality, diversity, and inclusivity. In line with our strategy we welcome approaches from individuals from underrepresented groups, including minority communities, and applicants with a disability, to better reflect the community we serve and help broaden our perspectives.

Key responsibilities:

1. Main Purpose of the Job

• To ensure the panel reflects AvMA’s values and that where possible the panel is managed in line with our strategic plan.

• To manage and oversee the operation of the specialist AvMA clinical negligence panel to include ensuring the qualifying requirements for panel applicants are relevant and up to date and reflect any important medical and legal developments.

• The assessment of panel applications and interviewing of Applicants. Convening meetings of the panel committee, drafting agendas for those meetings and identifying issues to be discussed.

• Identify ways for the AvMA panel application process to become more streamlined, efficient and supportive of lawyers making panel applications. To develop the process to ensure it is fit for purpose, relevant and continues to meet the needs of the public.

• Ensuring the AvMA database of panel membership and special interests is kept up to date. Giving informal advice to solicitors enquiring about panel membership requirements, liaising and meeting with firms as required.

• Travelling and attending key networking events, including AvMA’s three-day (2 overnight stays) annual conference and AvMA annual panel meeting (usually held end Nov, beginning December), engaging with potential AvMA panel applicants, promoting the benefits of accreditation and the junior scheme (Certificates Competence Scheme (CCS)), keeping up to date with medical and legal developments. Speaking at panel meetings and generally to promote the panel.

• Working with the conference department to identify relevant topics for panel meetings and conference events.

• To improve on the current re-accreditation process to make it more streamlined and user friendly for applicants.

• To ensure relevant data from panel applications is captured on the CRM. Regular analysis of panel data, findings shared with AvMA senior leadership team and more widely where appropriate.

• To pursue AvMA’s EDI strategy by considering ways in which the panel can be developed to ensure panel members are as ethnically diverse as possible.

• To liaise with AvMA’s conference department to advise on any training which may be required to strengthen AvMA panel members knowledge and information base.

• To work with the Director Medico Legal services in assessing applications for Certificate of Competence Scheme (CCS) for juniors. To update and work on the Certificates Competence Scheme including organising applicant feedback to ensure this scheme continues to be fit for purpose. To inform and work with panel applicant mentors in strengthening the scheme.

• To deliver on administrative requirements such as quarterly reports for trustees, working with AvMA’s Service Delivery Quality and Outreach Committee (SDQOC) as required to update on continued improvement of AvMA Panel Accreditation Scheme.

• Dealing with queries raised by AvMA Panel applicants and/or juniors who may have had their applications rejected.

• Ensuring AvMA panel template letters and documents are updated

• From time to time speaking publicly about requirements for AvMA panel membership, common pitfalls and how to overcome them as well as other matters relating to panel.

• To consider client complaints about panel members to determine whether the threshold for disciplinary action under AvMA’s Panel procedures is met.

• To manage disciplinary procedure for AvMA Panel members, identify and liaise with adjudicators, prepare documentation, set up the hearing.

• To manage appeals against rejection of an application for accreditation/reaccreditation, liaise with adjudicators.

• To keep on top of any government, regulatory or other policy changes which may affect the way in which patients can access justice, recover damages and seek redress for adverse clinical outcomes, as well as any improvements or impediments to lawyers undertaking this work.

• To develop and grow the AvMA panel accreditation and Certificates Competence scheme membership; to identify cost efficiencies and maximum engagement with AvMA accredited panel solicitors.

• Any other duties associated with the role.

2. Skills and Experience

Administration of the AvMA Panel

The bulk of the administration and management tasks do not require specialist skills; however, assistance is provided by the PA to the CEO when required.

AvMA has a Customer Relationship Management (CRM) driven computer system throughout the organisation, the introduction has been phased and the applicant should be confident enough with sufficient IT skills to onboard the new system. The CRM works with Microsoft Dynamics 365 a data driven software solution which is intended to manage, track and store information. AvMA considers IT to be an ongoing commitment and the new panel accreditation manager should be willing to consider ways in which AvMA can maximise the impact of the CRM to improve services and data collection on key issues identified from panel related activities.

Tasks such as updating and preparing new panel application documents and report forms will require medical and legal input, the panel application interview process will involve discussions about topical medico legal issues and for this reason the post would suit someone who has a legal background, ideally qualified as a solicitor or barrister, preferably with clinical negligence accreditation. A a medical background would be helpful.

Assessment of new applications, interviews and dealing with correspondence

The Panel Accreditation Manager is primarily responsible for the assessment of new panel accreditation applications.

The role of Panel Accreditation Manager would suit someone who has practised as a claimant clinical negligence lawyer who is looking to draw on their expertise and experience in a new role.The successful applicant should be confident in assessing former peers and colleagues in a fair and impartial way.

The nature of this work is such that the Panel Accreditation Manager can come into possession of sensitive information, discretion and respecting confidentiality are key qualities for this role. 

Reaccreditations

Reaccreditation assessments are done internally by the Panel Accreditation Manager, occasionally assistance can be provided by members of the internal panel assessment team.

AvMA aims to make reaccreditations more straightforward for practitioners and the new appointee will be expected to liaise with the profession to understand where they consider the biggest hurdles to reaccreditation lie and to consider how these can be overcome without compromising standards. 

AvMA receives a minimum of 15 applications for reaccreditation per annum, however numbers are usually considerably higher, up to 30 per annum.It is thought that the reaccreditation process could be designed to be more streamlined and user friendly for both the applicant and in house.

Other AvMA Panel assessments

In addition to assessing AvMA panel applications and reaccreditations the Panel Accreditation Manager will need to assess applications from accredited panel members who have changed firms.

Change of firm applications tend to be straightforward if the applicant has been on the panel for some time and is going to a firm where there is another AvMA panel member but the process is more in depth for those going to a firm which does not have another AvMA panel member.  The Panel Application Manager needs to be confident that the new firm can meet the minimum standards and supervision requirements required of a first time panel application. 

There are about 5 applications for changes of firm rising to a maximum of 10 per annum. 

Interim Reviews

From time to time first time applicants may demonstrate that they largely meet the core criteria for AvMA Panel membership but there may be some areas that require improvement.In those cases, AvMA can award the applicant AvMA panel status subject to a review sometime later.The Panel Accreditation Manager is responsible for following up that review and examining progress made.The review is an opportunity to identify if the applicant has succeeded in strengthening the areas of weakness identified.If they have not, they risk losing their AvMA panel status entirely. 

There are about 3 interim reviews per annum, currently not exceeding 6. 

3. Other

• To support the Events Department’s quality initiatives and to suggest continuing improvements where needs arise.

• To undertake other duties commensurate with the post as may be required.

• Deputise for the Head of Events when necessary 

We’re looking for an exceptional Associate Director of Fundraising to lead one of the most ambitious and high-performing fundraising teams in the sector.  

At Blood Cancer UK, our fundraising is in a strong position. Over the last five years, we’ve doubled our income, achieved growth across every fundraising discipline, successfully launched new products, and reached new audiences.

We have fantastic momentum and the ambition to go even further. You would be joining us at an especially exciting time – we’re in the early stages of our first-ever major appeal and have already secured more than £8 million towards our £25 million target. Backed by a highly engaged and well-connected appeal board, this campaign has huge potential across Fundraising, but especially our high value audiences.

We’re looking for an experienced and confident high-value fundraiser — someone who can build authentic relationships with senior and influential supporters, open doors, and inspire people to be part of something transformative.

Alongside this, you’ll oversee our thriving mid-value and legacy fundraising programmes and help us deepen engagement with supporters across the UK.

Our community is the heartbeat of our organisation: passionate, determined people, often with a personal connection to blood cancer and a powerful desire to make a difference. With around five million people affected by blood cancer in the UK, the opportunity to grow our reach and impact is enormous.

You’ll bring ambition, passion and high standards, with the ability to lead and inspire a large, talented team of nearly 50 people. Collaboration will come naturally to you — you’ll build strong relationships across the organisation and be a key member of the Blood Cancer UK leadership team, creating a culture where people feel inspired to be their best.

Most importantly, you will make a real difference to the lives of people affected by blood cancer.

Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

Mind in Haringey is an independent charity organisation providing vital mental health services to our community in Haringey since 1989.

We have a broad and exciting range of services and projects running in a dynamic, evolving environment. We are constantly striving to develop and improve our services through listening to our community, peers, and staff team to evaluate and deliver the best possible projects for our community.

Working with Mind in Haringey will give you the opportunity to join a small, creative team with many opportunities for learning and progression. We are a diverse and passionate team, who welcome experiences and perspectives from all backgrounds. 

We particularly encourage applications from those with lived experience of mental health, from racialised communities, members of the LGBTQ+ community, and residents of Haringey who are passionate about changing things for the better in the borough. 

Haringey is a melting pot of culture, history, and resilience. Though there is much that needs to be improved, we are proud to work as part of a community that has displayed great strength in hardship both in the past and in more recent years. Interested in joining us in this work? We look forward to receiving your application for the role.

The Haringey Wellbeing Network shall be working in partnership with the Haringey GP Federation, focusing on improving physical health outcomes for those living with Severe and Enduring Mental Illness (SMI) within the BAME community.

The aim of this work is to create a seamless and integrated physical health check service, which improves outcome targets and builds better rates of engagement within the BAME community.

The purpose of the BAME Community Advocate is to support the work of the Haringey GP Federation, which is commissioned to focused on improving the uptake of Physical Health Checks with people living with a SMI. The Community Advocate will enable a joined-up approach in identifying and coordinating patient care with local community groups and secondary care services. In addition, the community advocate is expected to manage the SMI registers for the Haringey Wellbeing Network and report to the Federation.

Be part of something extraordinary at Epilepsy Society. We are seeking a values driven Policy & Public Affairs Manager to join a charity that provides world leading support for people with epilepsy through Care, Research and Advocacy.

About the role

Epilepsy Society is a dynamic charity with ambitious plans to revolutionise the lives of people through advocacy, research and care.

We are looking for someone to join our award-winning campaigns team and help us to progress change through political engagement at both national and local level. We have an impressive track record of working with government, locally elected politicians, professional organisations, patient stakeholder groups and other charities in the sector on a range of issues which affect people with epilepsy.

Our recent work includes our successful Zach’s Law campaign. This role is an exciting opportunity to help bring about further change that will make a real difference to the lives of people with epilepsy. 

The postholder will develop an effective programme of policy and public affairs work across the UK to have maximum impact for people with epilepsy and to raise the public profile of epilepsy. 

We seek someone with a degree or relevant experience in political or public affairs, extensive experience of influencing, organising campaigns and major events and negotiating at a senior level. You will be required to have a detailed level of understanding of government politics and the charity sector and an empathy to the cause.

Please download the recruitment pack attached to view the full job description and essential criteria. 

The post holders should demonstrate our people values of CAIRO (Caring, Accountable, Improving, Respectful and Open.

Some information about us

The Epilepsy Society’s Vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life - as free from seizures as possible. We set out to make a difference to every person affected by epilepsy whatever their background, however seriously it impacts on their life, and whether they have the condition themselves or are close to someone with epilepsy.

What we can offer

•    27 days annual leave + bank holidays, with the ability to buy and sell annual leave 
•    A generous Employee Referral Scheme (refer a friend and earn up to £150) 
•    Length of service awards
•    Access to shopping discounts and cashback with thousands of retailers through Purple Rewards
•    Staff recognition scheme 
•    Excellent training and development opportunities
•    Group Pension
•    Life Assurance (2x your annual salary)
•    Confidential, supportive Employee Assistance Programme, accessible 24/7
•    Salary Finance, offering you products linked to your salary and tailored to your individual circumstances. Providing services such as loans, advances, savings and financial education

If you have the right skills and experience and are inspired to apply, please do so by uploading your CV and covering letter explaining how you meet the specifications of this role. 

A DBS (Disclosure & Barring) check will be required before appointment is confirmed. 

We reserve the right to close the post early once we have received a sufficient number of applicants: please submit your application as soon as possible to avoid disappointment.

About us

We’re Breast Cancer Now, the research and support charity. We’re the place to turn to for anything and everything to do with breast cancer. However you’re experiencing breast cancer, we’re here. 

The brightest minds in breast cancer research are here. Making life-saving research happen in labs across the UK and Ireland. Support services, trustworthy breast cancer information and specialist nurses are here. Ready to support you whenever you need it. Dedicated campaigners are here. Fighting for the best possible treatment, services and care for anyone affected by breast cancer.

About the role

This is an exciting opportunity to work within our policy, evidence and influencing team to deliver change for people with breast cancer in Wales.

You’ll play a key role leading the development and delivery of our policy and public affairs work in Wales. You’ll develop evidence-based policy positions, and design and deliver influencing plans in line with our new strategy. Over the coming year this will include our engagement following the Senedd election and with the new Welsh Government. You’ll also support the roll out of campaigning activity in Wales and act as a key spokesperson for the charity in Wales, representing us in the media as well as with campaigners and senior stakeholders. 

About you

You’ll have experience of working in relevant policy or public affairs roles developing policy positions and materials, and a proven ability to build strong external contacts.

Along with strong analytical and communication skills, you’ll have the ability to work well independently while managing a varied workload, and the capability to lead projects and work with teams across the UK. 

You’ll have a good understanding of the current health policy landscape in Wales or the UK as well as knowledge of Welsh or UK parliamentary processes and legislative systems. 

Job description and benefits

Please download the job description and our attractive benefits package.

Location and hybrid working

This role is primarily based in our Cardiff office. Our hybrid working model allows you to work up to 3 days per week at home.

When applying

We hope you choose to apply for this role. To support your application, you’ll be asked to submit your anonymised CV and a supporting statement online. Please refer to the essential criteria on the person specification and clearly provide as much information as you can with examples, to demonstrate how and where you meet the criteria.

Our commitment to equity, diversity and inclusion

We’re committed to promoting equity, valuing diversity and creating an inclusive environment – for everyone who works for us, works with us, supports us and who we support.

Closing date: Tuesday 26 May 2026 at 09.00am

Interview date: Thursday 4 and Friday 5 June 2026

We reserve the right to close this advert early. Therefore, to avoid disappointment please submit your application as soon as possible, if you’re interested in this opportunity.

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary

As the Senior Public Affairs and Campaigns Officer, and with the support of the Senior Public Affairs and Campaigns Manager you will be responsible for the development, implementation and monitoring of public affairs and campaigns activity in order to achieve real change through influencing policy and legislation on health services which impact the lives of people affected by bowel cancer in England, with a particular focus on Westminster.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

About the job role

We have an exciting opportunity for a Legacy & In Memory Officer to join our Fundraising team at St Joseph’s Hospice. We are looking for someone who has experience in delivering legacy and/or in-memory campaigns and working in a fundraising environment.

The purpose of this role is to manage and grow the legacy fundraising and in-memory giving programmes. This will involve providing exceptional stewardship to supporters to build long-term engagement, managing legacy and in-memory campaigns to reach agreed objectives and building relationships with local solicitors and funeral directors alongside other stakeholders.

Working with the Public Fundraising Manager, the post holder will deliver a strategy to increase income, develop relationships and effectively deliver in-memory events and campaigns.

About you

You will need:

• Experience in delivering legacy and/or in-memory fundraising campaigns
• To be comfortable speaking to bereaved families with compassion and kindness
• Effective communication and planning skills
• Experience of managing activities to budget

Where you’ll work

St Joseph's Hospice was founded in 1905 by the Religious Sisters of Charity, and as such it has a rich, Catholic heritage which informs our work today: to support and welcome those in need, from all different cultures, religions and backgrounds.

We provide high-quality specialist palliative care for patients with cancer and other life-threatening conditions across East and North London. We have a large team of clinical staff who work across community, in-patient and out-patient services delivering individualised, responsive and holistic support to patients and their families/carers.

Why work for us?

• 27 days holiday plus public holidays, increasing up to 33 days with service
• Subsidised café and early access to retail sale events
• Season ticket/Welfare loans
• Continuation of the NHS Pension Scheme or an excellent salary-exchange pension scheme.
• Santander cycles discount and cycle to work scheme
• Health Cash Plan and access to the EAP services

Join St Joseph’s team and find out more!

We are an equal opportunity and a disability confident employer and welcome applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation or age.

For further information about the role, please download the Recruitment Pack below.

To apply, please visit our dedicated recruitment page via the 'Apply' button.

Closing date: 5th June 2026.

Interview date: 16th June 2026.f

Money & Energy Advice Service Lead

Pro rata salary: £39,825 (35 hour week)

Home-based, with travel as required

Up to 35 hours per week with occasional evenings and / or weekend work will be required

Permanent (subject to external funding)

Responsible for: 2.0 FTE Money & Energy Advisers

About the role

This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.

With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.

We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.

Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.

This role is made possible thanks to the support of British Gas Energy Trust.

About Kidney Care UK

Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.

Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease. 

About the Money & Energy Advice Service

The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.

What we offer

Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:

• Flexi-time – we are flexible about start and finish times, and flexible about your location.
• Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
• Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
• Health cashback plan – ability to claim back a wide variety of routine medical treatments.
• Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
• Cycle2Work scheme

Hello!
We're OUTpatients, the UK's LGBTIQ+ cancer charity. We're proudly patient-led and are here to shake up the system, advocate for equity, and stand up for every LGBTIQ+ individual navigating the cancer journey. We believe that no-one should feel like they're on the outside looking in when it comes to their own health. That's why we're working towards a world where everyone can bring their whole selves to cancer care. Our goal is fair and accessible cancer care for all, inclusive of our community. It's not just our dream, it's the change we create.

About the role
OUTpatients is seeking an experienced Education and Policy Manager who can help us reach people all over the UK with our sector leading education and policy advisory. We encourage applicants who have prior experience working in small, developing teams and are able to balance taking initiative with close collaboration with other staff members.

You will lead on managing our education arm of the charity, continuing to deliver existing webinars and sessions on LGBTIQ+ inclusive cancer care, and explore development into new products, content, and audiences. You will work closely with stakeholders in the NHS, third sector, and industry.

Experience developing and delivering education sessions or programmes would be beneficial. You should also have a strong understanding of data-led educational content, and how intersectionality can be applied as a lens throughout our work.

We strongly encourage people with lived experience and those from minoritised backgrounds to apply for this role. Our application process is anonymous, this means we will not know who you are until we decide to invite people to interview.

Responsibilities
Education
• Delivering education sessions on LGBTIQ+ inclusive cancer care to healthcare professionals, charities, and other organisations.
• Attending and presenting at conferences and special meetings.
• Securing new education clients and project work through networking and outreach.
• Collecting and analysing evaluation data to report on and inform education outputs.
• Managing junior and session staff to support education delivery and reach.
• Managing CRM and invoicing of education clients.
• Developing strategic plan for expansion of materials and/or clients and audiences, supported by the CEO.

Policy
• Keeping up to date with sector policy direction and announcements.

• Making recommendations to the CEO about areas of policy that the charity should try to influence.

• Working with the staff team and interns to draft policy related actions and asks for submission to the Department of Health and Social Care and other relevant bodies.

• Attend and present at policy oriented meetings and events to promote data-led insights and recommendations for improved LGBTIQ+ cancer care.

Person specification
Essential
A successful candidate will be able to to demonstrate a commitment to the charity's mission and possess the following qualities:
• Highly developed skills in public speaking, presenting, or delivering education sessions.
• Experience using Microsoft Teams or comparable video call platforms to organise and deliver presentations or webinars.
• Proficiency using Microsoft PowerPoint to create dynamic presentations.
• Experience working independently to deliver projects or workstreams.
• Demonstrable skills in using research and public data to create educational content.

Desirable
In addition to the above skills, we welcome applicants with the following experience, interests, and expertise:
• Experience designing educational programmes and products.
• Experience using CRM software or managing databases.
• Understanding of the cancer sector in the UK.
• Understanding of LGBTIQ+ health inequalities, and health inequalities more widely.
• Experience of working in the charity sector.
• Knowledge and experience in how to be GDPR compliant.

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).

Recruitment Timetable:
Deadline for initial CV interest – Wednesday 20th May
Deadline for applications – Tuesday 26th May
First stage interviews - Monday 8th, Tuesday 9th or Thursday 11th June
Final stage interviews – Friday 26th June

Role: Interim Director of Fundraising (Maternity Cover)

Hours: Full-time

Remuneration: Up to £80,000 GBP gross annual pro rata (dependent on experience). We are open to considering applications on a substantial part-time basis for the right candidate.

Right to work: Applications are accepted only from those with the right to work in the UK.

Duration: Approx. 8 months from starting late July

Location: UK-based; UK-Med is based in Manchester – postholder would need to agree sufficient attendance in Manchester office.

Can you provide inspiring interim leadership to drive fundraising growth that powers humanitarian impact?

UK-Med is a frontline medical aid charity founded on the values and expertise of the UK’s National Health Service (NHS). For more than 30 years we’ve been working towards a world where everyone gets the healthcare they need when emergencies hit.

We are seeking an Interim Director of Fundraising (Maternity Cover) to lead our fundraising and communications function, accelerating voluntary income growth to support the organisation’s humanitarian impact.

As a key member of our leadership team, you will lead and deliver our fundraising and communications strategy to maximise emergency fundraising, build a community of advocates and repeat givers and build meaningful partnerships with philanthropists and foundations. Our small and talented Communications Team, focused on growing our audiences and awareness across media and digital channels, reports into this role.

If you are an experienced fundraising leader with an international or humanitarian background and a proven track record of delivering exceptional interim leadership that drives income growth, we would love to hear from you.

How to apply

We strongly recommend that you read the Candidate Information Pack – Interim Director of Fundraising - April 2026 before applying for this role.

To apply, please submit a current CV and a supporting letter (2 pages) through our online jobs portal.

Response to the following question:

• A detailed explanation of your suitability for this post with specific reference to the essential criteria in the person specification

Please apply as soon as possible and no later than 17th April 2026.

This role is based in the UK, and applications are accepted only from candidates with the right to work in the UK.

UK-Med is committed to safeguarding of our personnel and beneficiaries and has a zero-tolerance approach to sexual exploitation and abuse. We conduct thorough vetting before any appointment is confirmed.

UK-Med is committed to the principles of diversity, equality, and inclusion. We strive to provide an inclusive and supportive environment where employees feel respected and supported to be able to fulfil their potential.

We're the UK's specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research; provide information and support to patients and their loved ones; and raise awareness of blood cancer.

We’re looking for a driven and relationship-focused Corporate Partnerships Manager – Pharmaceuticals to lead and grow our work with the pharmaceutical sector. In this role, you’ll manage and develop high-value partnerships, secure significant income (c.£500k annually), and identify new opportunities that support groundbreaking research and services for people affected by blood cancer. Working closely with senior stakeholders, you’ll shape compelling proposals, represent the organisation in pitches and negotiations, and ensure partners are engaged through excellent stewardship and impact reporting.

You’ll be a confident communicator with a strong track record in high-value fundraising, or equivalent transferable experience, and skilled at building relationships at all levels. Collaborative and proactive, you’ll work across teams to develop ambitious, mutually beneficial partnerships aligned with organisational priorities. 

Regular travel to our London office and donor meetings will be required, typically once or twice per month, or as the role demands.

We are committed to actively promoting equality, diversity, and inclusivity. In line with our strategy we welcome approaches from individuals from underrepresented groups, including minority communities, and applicants with a disability, to better reflect the community we serve and help broaden our perspectives. state this in your cover letter when applying. 

We are open to receiving applications from candidates wishing to work part-time, with a minimum of 28 hours per week. Please indicate in your cover letter if you wish to work part-time.