Patient care volunteer volunteer roles in Edinburgh

Beacon for Rare Diseases hosts The Resources Hub, a 100% free and accessible e-learning platform created to support the rare disease community, including:

• Patient groups, patients and families
• Researchers and life science professionals
• Rare disease advocates

The Resources Hub brings together over 100 free resources, including written courses, video guides, webinars and recordings from events and conferences. These resources are designed to support people at every stage of their rare disease journey, whether they are just getting started or are part of a well-established organisation.

We are incredibly proud of the breadth and quality of what’s available on the Hub. However, much of our long-standing content is under-promoted, meaning that people don’t always find the right resource at the right time.

“The Resources Hub provides invaluable resources to help patient group leaders navigate challenges such as caring responsibilities, health issues, and employment.”

“It breaks down topics relevant to the rare community in a way that's easy to digest and empowering to take action!”

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About the role

We are looking for a social media volunteer to help us shine a light on the wealth of content already available within the Resources Hub.

In this role, you will:

• Spend time exploring our existing Resources Hub content
• Write 1–3 social media posts per resource, tailored for different platforms
• Help us build a reusable library of social media posts that we can draw on to promote resources when they are most relevant

This role is about helping people discover support that already exists, making it easier for patient groups and advocates to find information that could make a real difference to their work.

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Who this role would suit

This is a specific, project-based placement and would suit someone who already has experience in communications, social media or content creation.

You’ll be someone who:

• Enjoys writing clear, engaging social media copy
• Understands how to adapt messaging across different platforms
• Is comfortable working independently and managing their own time
• Can take guidance on tone and branding and run with it

While we don’t have capacity to provide training, you won’t be left on your own. We will:

• Provide clear direction on priorities and approach
• Share brand guidance and examples
• Review initial work to make sure everything feels aligned
• Have routine check-ins, provide feedback, and an end-of-placement review

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Time commitment and flexibility

​This is a fully remote volunteering role, which we ideally hope can be completed within around three months. We anticipate a minimum commitment of approximately two hours per week, though a shorter, more intensive placement could also be arranged to suit the volunteer. We are open to having more than one volunteer on this project and do not expect a single person to work through the entire Hub.

Please note: we are looking for this placement to begin as soon as possible. 

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Why volunteer with Beacon?

By volunteering with Beacon, you will:

• Help improve access to free, high-quality resources for the rare disease community
• Support patient groups, patients and advocates to build confidence and capacity
• Gain experience working with a well-established national charity
• Take on a clearly defined project with flexible working

Chatterbox Befrienders offer one-to-one telephone support and will call a client once a week offering companionship and a listening ear for an individual who might otherwise go unheard. Chatterbox volunteers befriend a variety of people including carers, socially isolated individuals who are struggling with loneliness, people with ill health and those that 
have been bereaved. 

THIS ROLE COULD BE FOR YOU IF:

- Would like to make a real difference in someone’s life

- Want to challenge loneliness and can commit to a weekly phone call

- Are a good listener

- Are empathetic, patient and of a caring nature

- Have good verbal and inter-personal communication skills

- Recognise the importance of confidentiality and can uphold this in practice

- Are committed to inclusion and treating people with dignity and respect

REQUIREMENTS OF A BEFRIENDER INCLUDE:

- Calling your client once a week for a chat of up to 45 minutes; this is a 26 week initial commitment, at the end of which each client’s needs are reviewed

- Completing an online call log record promptly after each phone call

- Ensuring immediate contact with the Chatterbox Coordinators if you feel that the client might be a risk to themselves or others

- Liaising with the Chatterbox Coordinator on a regular basis regarding the service, as well as discussing personal learning and development needs

- Respecting service standards, appropriate boundaries and recognising the range of policies and procedures that impact on befriending vulnerable adults

BENEFITS OF THE ROLE MAY INCLUDE:

- Knowing you are making a difference to someone’s life

- Joining the Omega Team who are taking action against loneliness and isolation

- An opportunity to enhance your CV or learn new skills

- An opportunity to engage with your community

SUPPORT AND TRAINING PROVIDED:

- Omega Chatterbox induction program

- Safeguarding training

- Ongoing support from Chatterbox Coordinators for all questions, concerns, and support

- Out of pocket expenses are reimbursed and a mobile phone can be provided if appropriate

- Monthly Befriender group support meetings via the Zoom app

LOCATION OF THE ROLE:

- Home-based

WHEN ARE YOU NEEDED:

- Provided on enquiry

A Disclosure and Barring Service (DBS) check is required for this role. If you have a criminal record this does not automatically prevent you from being considered as an Omega Chatterbox Befriender. We will take into account the nature of the offence, when it happened and whether it is relevant to the voluntary role. If you are shortlisted, this will be discussed with you during the recruitment process.

The role in a nutshell:

Age UK Cheshire's Sharing Time Reconnect Befriending service strives to reduce loneliness and isolation by matching our volunteers with older people via a meaningful befriending relationship.

What will you be doing?

You will be calling a lonely older person for a chat with the aim of developing a long term, meaningful befriending relationship which is positive for both parties. You will not only prevent an older person from feeling lonely and isolated, you will also hear amazing stories and share meaningful moments. 

How would you be supported in this role?

Our volunteers receive an initial induction into the work and policies of our charity and then specific training on befriending and safeguarding. You will be part of a caring and experienced team and have the support of a dedicated service coordinator. 

Why do we need volunteers in this role?

Loneliness among older people is a growing crisis. By volunteering with Age UK Cheshire’s Sharing Time project, you will offer more than a regular telephone call – you will offer a lifeline to older people in your community. 

Befriending phone calls usually last around 30 minutes. They are typically weekly but can be flexible depending on the individual you are supporting and their circumstances. They continue indefinitely or until one party’s circumstances change. 

What skills, interests or experience might be helpful in this role?

• A good listener, patient, friendly and can show empathy.
• Active listening skills with the ability to motivate others.
• Awareness of acting in a way that respects equality, diversity, and inclusion.
• Willingness to follow guidance to keep yourself and others safe.
• The desire to ensure your befriendee receives an enjoyable, stimulating, person-centred and empowering experience!

Are you passionate about building a more inclusive, sustainable and resilient economy? Are you looking for a meaningful way to use your finance expertise?

ECU is a small, dynamic non-profit working to transform the economy so that everyone has the freedom and security to live a good life. 

We are now recruiting for ECU’s first Treasurer, who will lead at board level on monitoring ECU’s financial performance and sustainability, ensuring that we have robust financial policies and processes in place, and supporting other board members to fulfil their collective responsibilities around finance. 

This is an exciting time to join ECU. We have an ambitious vision for change, a strong analysis of the opportunities and barriers to progress, and a clear view of our role in building a better economy. Our board is committed, collaborative and inclusive, with a strong understanding of its role and remit, and a culture of open dialogue. Our work is challenging, fascinating, and fulfilling – and, with rising levels of inequality, an unfolding climate emergency, overstretched public services and a growing concentration of corporate power, it couldn’t be more important.

Are you passionate about building a more inclusive, sustainable and resilient economy? Are you looking for a meaningful way to use your finance expertise?  ECU is a small, dynamic non-profit working to transform the economy. Join us!

What will you be doing?

In addition to the responsibilities of all board members, the Treasurer will: 

1. Support the Board to review and monitor ECU’s financial performance and sustainability
2. Ensure the Board receives timely, accessible and accurate financial information
3. Support the team to develop and maintain robust and proportionate financial policies, processes and risk management systems

What are we looking for?

• Commitment to ECU’s mission and values
• Commitment to the legal duties and responsibilities
• Financial management experience, policies, risk
• Qualifications
• Able to interpret, interrogate and communicate financial information
• Work as part of a diverse team, and devote the time 

Desirable - treasurer experience

What difference will you make?

We have an ambitious vision for change, a strong analysis of the opportunities and barriers to progress, and a clear view of our role in building a better economy. Our board is committed, collaborative and inclusive, with a strong understanding of its role and remit, and a culture of open dialogue.

Before you apply

• Your interest in this role and what you could bring to it
• What would you want to learn and gain?

Interview 25 Feb in London (expenses paid)