Research information coordinator jobs
Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
6 - 10
The client requests no contact from agencies or media sales.
Thank you!
Deputy Head of Service (Shared Lives)
Salary: £45,000 per year
Job Ref No: DHOS072025
Hours: 37 hours per week
Location: Office closest to applicant (listed in the job description)
Contract type: Permanent
Are you passionate about making sure people have a voice and a choice when it comes to their care? Fancy a new role you can get your teeth into and make a big impact?
We’re on the hunt for a new deputy head of our Shared Lives service.
What is Shared Lives?
Shared Lives is a little bit like fostering, but it’s for adults who need some support to live as independently as possible. Someone who needs support goes to live with one of our ace Shared Lives carers and they support them to live their best lives, do all the things they love and be part of their communities. PSS invented Shared Lives back in 1978 and it’s now become a national model of care that lots of other social care providers run. We’re really proud of that. It’s the most brilliant, safe and cost-effective form of care there is (and we’re not just biased – in October 2023, CQC rated 97% of Shared Lives schemes in England as good or outstanding, in comparison to just 78% for the wider social care sector!).
We have Shared Lives schemes in seven different places across England and North Wales – and we’ve got big plans to add to that.
What do we need out deputy head of Shared Lives to do?
Alongside the head of Shared Lives, your job will be to make sure each one of the services in Shared Lives is absolutely top-notch in every way:
- They provide excellent support to the people who use our Shared Lives service
- They support people to reach their goals
- Any issues that crop up are dealt with effectively and in line with our policies and procedures
- They run effectively and like clockwork (but are flexible enough to change things up when it’s needed – even if it’s how things have always been done);
- They’re performing well financially, they’re sustainable and they’re cost-effective
- Carers, PSS Shared Lives teammates and people we support all feel really well informed, motivated and part of a big family
- Our service is getting better all the time
You’ll be supported by a cracking team of service managers who will lead each of the seven individual regional services within Shared Lives. They’ll be looking to you to help them review and develop their services, looking at best practice and national/local strategic priorities together.
On a day-to-day basis, your work would involve things like:
- Getting behind our Shared Lives teams and offering them your support with Care Quality Commission (CQC) compliance, safeguarding reports and complaints
- Leading the way when we win new contacts in new areas of the UK (the plan is to grow our schemes)
- Deputising for our head of Shared Lives: maintaining the risk register for services, identifying, managing, monitoring and escalating risks appropriately when our head of Shared Lives isn’t around
- Helping keep our Shared Lives carers and supported people feeling happy, connected, motivated and part of our big Shared Lives family
- Finding out what our carers and supported people need and how they feel things are going by heading out on the road to meet them
- Supporting our Shared Lives communications and engagement manager with nailing any info and insights they need for their role by sharing what you know, and supporting them with maintaining and introducing communications and engagement initiatives
By 2029, we want to make PSS the most inclusive place it can possibly be, where everyone feels like they belong – and you’ll need to play your part, along with everyone else at PSS, to make it happen.
Check out the full job description on our website for more info about what you’ll need to do in this role.
So what are we looking for?
We’re on the hunt for someone who (amongst other things):
- leads teams brilliantly and especially through periods of change, has great people skills, communicates well and brings people along with them on the journey;
- is open-minded, determined, professional, big-hearted and genuine;
- understands and knows lots about the relevant quality and regulatory frameworks for health and social care;
- builds fantastic relationships with people;
- is self-aware and takes accountability for results whether they’re good or bad;
- loves driving continuous improvement strategies to make sure we’re getting nothing but excellent outcomes for the people we support; and
- has a degree in health or social care, or an equivalent qualification
Have a look at the person specification within the job description for more info about what we’re looking for.
Before you apply, we just want to let you know some key information about our selection process:
We have an equity, diversity and inclusion (EDI) policy, which aims to remove any kind of discrimination in employment. Our candidates are selected on merit only, which means they’ll be given equal opportunities no-matter what their age, disability, gender, sexual orientation, marital status, race, religion or beliefs might be.
Once you hit that ‘apply’ button, you’ll be taken across to an online recruitment system called Applied. Applied is the only hiring software with diversity and fairness built into every step of the process and we’re very proud to partner with them to help us give you an unbiased recruitment experience.
Applied wants to make sure its doing its job by finding out more about the socio-economic backgrounds of people applying for roles through their site. Once you register your details on the Applied site, you’ll be asked to give a bit of info about you: things like your age, gender, ethnicity, etc. You’ll also be asked questions around whether your parents went to university and whether you had free meals at school. These questions are set by Applied experts based on extensive research and expertise, and you can find out more about this here.
This information is completely anonymised, and here at PSS, we never see answers linked to a candidate’s name. The answers you give here don’t form any part of our decision-making. We only receive combined data about an applicant pool (and only when there’s enough applicants to ensure that answers can remain anonymous). We report on this data every quarter to help us find out if there’s anything in our process that harms the chances of success for candidates from minority groups and any possible steps to help improve this.
If you still prefer not to answer, that’s no problem at all - there’s also an option to select ‘prefer not to say’. The only EDI-related information that we will learn about you is if you tell us that you have any reasonable adjustments needed at any part of our process.
Your trusty candidate pack will also help you get a feel for what it’s like to work with us, find out what we’re looking for, explain the recruitment process and help you decide whether you can see yourself as a part of our amazing team. Each section is crammed with hints and tips to help you make a great application, so please take the time to give it a good read.
Please feel free to get in touch with us if you have any questions about the above.
We also welcome any feedback you might have about our approach so there’ll be plenty of opportunities for you to give this as part of the process.
Like the sound of it?
Come and join us!
Closing date: Friday 19th September 2025
PSS values the importance of diversity
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Senior Trust Fundraiser – Make an Impact That Lasts
Employer: Kids
Location: Remote (with opportunities to visit our services and attend in-person meetings, events, and networking with colleagues and partners)
Salary: £36,400
Hours: Full-time (36 hrs/week) – 4 days/week (28.8 hrs) considered
Contract: Permanent
Experience: Proven track record of securing funding from trusts and foundations
Are you a passionate storyteller who can turn great ideas into compelling cases for support?
If you’re motivated by making a tangible difference and want to work in a supportive, collaborative, and purpose-driven environment, we’d love to hear from you.
At Kids, we believe every disabled child and young person should have the opportunity to thrive. As our Senior Trust Fundraiser, you’ll play a vital role in making that happen—helping us secure the funding that powers life-changing projects.
What You’ll Be Doing
- Leading on exciting funding bids and growing relationships with a diverse portfolio of funders.
- Working closely with passionate colleagues across Kids to shape innovative, fundable projects that align with our mission.
- Building meaningful, long-term relationships with existing supporters, showing them the real-life impact of their generosity.
- Producing high-quality, inspiring reports that highlight the stories, numbers, and voices behind our work.
What We’re Looking For
We’re looking for someone who:
- Has at least two years’ experience in trust fundraising and understands the sector.
- Writes with clarity, warmth, and impact—able to distil complex ideas into persuasive proposals.
- Feels confident with budgets and can talk openly about charity finances.
- Thrives in building relationships—whether with funders, service delivery teams, or senior leaders.
- Is adaptable, tenacious, and ready to take on a competitive fundraising landscape with creativity and drive.
Why Join Kids?
We’re more than just a workplace—we’re a community. We care about your wellbeing, growth, and work-life balance. Here’s what we offer:
The Good Stuff/Benefits
- Join a company that truly cares about your wellbeing
- Enjoy an enviable annual leave package, starting at a generous 25 days and growing each year up to 30 days.
- Option to buy an additional 5 days holiday.
- Enjoy your entitlement to Bank Holidays.
- We've got your back with Maternity and Paternity Pay.
- Rest easy knowing you're covered with our Death in Service plan.
- Invest in your pension plan with the option to top it up knowing that Kids is also contributing 3%.
- Achieve work-life harmony with flexible hours tailored to your needs.
- Unlock exclusive discounts by taking up membership of a perks discount site
- Spread the word and reap the rewards with our enticing "Recommend a Friend" scheme.
- Access confidential support and expert guidance 24/7 through our Employee Assistance Programme, helping you navigate both personal and professional challenges.
- Take care of yourself with Company Sick Pay which you are entitled to from your first day.
- 5 days of paid family/carers leave.
- Salary sacrifice schemes available
- Develop your mentoring skills by either being a mentor or signing up for our mentoring programme.
- Expand your horizons with Kids’ online learning platforms, offering a wealth of professional courses for your personal and career development.
- Apprenticeship programmes available for employees
- Benefit from a colleague engagement programme enabling your voice to be heard.
- Lean on us during difficult times with Bereavement Leave.
We welcome applicants from all backgrounds
Whether you’ve worked for a national charity, a local organisation, or in another fundraising context, if you meet the criteria and share our commitment to equality and inclusion, we’d love you to apply. We particularly welcome applications from underrepresented communities in fundraising, including disabled, LGBTQ+, and ethnically diverse candidates.
Ready to apply?
View the full job description and submit your application. Tell us in your supporting statement how your skills and experiences match what we’re looking for—and why you’re excited about joining Kids
Please note that we may close the vacancy early if we receive a high volume of applications
The client requests no contact from agencies or media sales.
Thank you!
Students’ Union UCL is an organisation that exists to make more happen. We are the representative body for University College London’s (UCL) students, one of the most diverse student communities in the world. UCL students have the potential to do anything, and the Union plays an essential role in helping them to achieve things they may have never thought possible. As a charity we employ over 130 career staff and over 250 part-time student staff, and deliver a wide range of services and representative functions for students. We work in partnership with UCL towards a fantastic experience for all of our 48,000 students and to ensure that university life enables them to develop the skills, experience and confidence to become the leaders of the future.
Our vision is of an outstanding experience for all UCL students and to be one of the best students’ unions in the UK and the world.
It's an exciting time to join our growing organisation as we lead the delivery of UCL’s ground-breaking Student Life Strategy. This is enabling us to build more programmes to improve students’ mental and physical wellbeing, promote genuine equity for all, build students’ skills and confidence, develop their international connections and intercultural skills, and make a real contribution to our local community.
We support hybrid working. Excellent benefits including defined benefit pension scheme and generous holiday entitlement. We are proud of high levels of staff engagement and pride ourselves on being a great place to work.
The role is a full time permanent role. The role is based at Bloomsbury campus with flexibility to work from home on a 40/60 basis (40% working from the office). We will consider applications to work on a flexible and job share basis wherever possible.
We are looking for a Marketing Manager (Commercial) to lead a team to deliver effective and impactful multichannel marketing campaigns to drive engagement with our services, increase revenue, and support the development and expansion of the Union’s commercial portfolio. We operate a diverse range of values-led commercial services, including bars, cafes, shops and gyms.
Registered Charity
An outstanding experience for all UCL students and to be one of the best students’ unions in the UK and the world.
The client requests no contact from agencies or media sales.