Trustee volunteer volunteer roles in Ibstock, leicestershire

We are seeking a Director and Chair of Trustees Designate to help shape the future direction of our organisation. We are looking for an individual with proven senior leadership experience - ideally, though not necessarily, within the third sector - who can bring strong strategic thinking, sound judgement, and a collaborative leadership style.

 About HIAS+JCORE

HIAS+JCORE is the UK Jewish response to refuge and asylum. Our vision is a UK where refugees can live in dignity, in a society free from racism. This work is driven by the belief that the Jewish community should play an active part in empowering refugees to thrive.

Our organisation came into this form through the joining of operations between two organisations: the UK-based JCORE (Jewish Council for Racial Equality) and HIAS, a global humanitarian aid and advocacy organisation. HIAS+JCORE is inspired by Jewish values and history to support those who are displaced, no matter their background.

Role purpose

The Fundraising Trustee will bring expertise, insight, and strategic guidance to help the charity strengthen and diversify its income. Working with the Board and staff/volunteers, they will ensure fundraising is ethical, sustainable, and aligned with the charity’s mission and values.

Key responsibilities

• Contribute to the overall governance of the charity as a member of the Board of Trustees.
• Provide advice and support on fundraising strategy, ensuring income generation is realistic and compliant with regulation.
• Act as a fundraising champion on HIAS+JCORE’s board, working with and supporting other trustees to explore fundraising possibilities.
• If networks for fundraising exist, use them to support the work of the charity.
• Support the development of diverse fundraising streams (e.g. individual giving, trusts and foundations, community fundraising, corporate support) and advise and support with appeals and major fundraising events/campaigns.
• Ensure compliance with fundraising regulation and best practice, including the Code of Fundraising Practice, and through HIAS+JCORE’s policies and procedures.
• Act as an ambassador for the charity, promoting its work and helping to raise its profile.

Person specification

Essential:

• Commitment to the charity’s mission and values.
• Understanding of the legal duties and responsibilities of charity trusteeship.
• Knowledge and experience of fundraising (e.g. trusts, corporates, major donors, community fundraising, or digital campaigns).
• Strategic thinker, able to balance long-term planning with practical advice.
• Strong communication and networking skills.

Desirable:

• Experience of fundraising in a small charity context.
• Existing networks that could support the charity’s fundraising efforts.
• Understanding of charity finance and/or marketing.

Harry’s HAT is a UK-based charity focusing on paediatric hydrocephalus.

Our mission is to make life better for children and their families who are affected by hydrocephalus. We work towards this through:

1. Awareness: delivering workshops and training to help people understand paediatric hydrocephalus.

2. Research: supporting research and funding training for professionals in health, social care and related fields.

3. Signposting and support: helping families find organisations that can offer advice, guidance and peer support.

4. Campaigning for early diagnosis of the condition.

We are now recruiting a Governance Trustee to strengthen our Board and help ensure our governance framework remains robust as the charity grows.

The Governance Trustee will play a key role in supporting good oversight, strong policy development and effective decision-making across the organisation.

Key responsibilities of the role:

• Supporting the Board in maintaining strong and effective governance.

• Helping review and develop the charity’s policy framework, including safeguarding, governance, finance and operational policies.

• Ensuring policies are reviewed regularly, compliant with current legislation and embedded in day-to-day practice.

• Working closely with fellow Trustees and the CEO to ensure decisions reflect our mission, vision and values.

• Contributing to the work of the Fundraising and Risk Group, ensuring governance considerations inform the group’s discussions.

Attending and actively participating in:

• Six Board meetings per year (usually held on the third Sunday of every other month from 18:00–19:30 via Teams).

• Quarterly Fundraising and Risk Group meetings (1.5 hours, evening).

• Two 1-2-1 meetings per year with the Chair of Trustees.

• The charity’s AGM and any additional meetings or events as needed • Providing occasional input on matters raised by the CEO, Trustees, staff and volunteers.

• Acting as an ambassador for Harry’s HAT and representing the charity with professionalism and warmth.

#trustee #governance 

About the Degrees Initiative

The Degrees Initiative is a UK-based NGO that builds the capacity of developing countries to evaluate solar radiation modification (SRM), a controversial proposal for reducing some impacts of climate change by reflecting sunlight away from the Earth. Degrees is neutral on whether SRM should ever be used, but we believe that developing countries should be empowered to conduct their own research and to play a central role in SRM discussions. The initiative has been working in different forms for over a decade, and our work receives worldwide coverage and widespread acclaim. 

The charity was founded in 2021, now has around 20 staff members and is growing. We seek a volunteer trustee with significant financial experience including an accounting qualification to join an existing five-person board to help guide a growing initiative that is changing the field of SRM.

This position offers a fantastic opportunity for the right candidate to apply their financial expertise in a high-profile governance role, shaping strategy and supporting a mission that empowers Global South researchers to lead in one of the world’s most important climate debates. 

Role 

The volunteer trustee will complement and further strengthen an existing five-person volunteer trustee board including the Chair & Treasurer. The role will entail strategic leadership, governance, and fiduciary responsibilities. Alongside the Treasurer they will predominantly be advising the Chief Operating Officer (COO) and the rest of the senior management team (the Chief Executive Officer and Chief of Staff) to ensure the robust financial health of the charity. This will include: 

• Maintaining an overview of the charity’s financial affairs by overseeing the annual financial planning and budgets proposed by the senior management team 

• Monitoring and evaluating financial progress against budgets and forecasts from staff reporting at quarterly board meetings, acting a voice of financial expertise during board discussions 

• Approving the audited annual accounts and financial statements presented by the senior management team alongside the rest of the board 

• Strategic input by reviewing risk assessments alongside financial implications and advising on the organisation of financial resources and reserves to support the long-term goals of the charity 

• Confirming transparency and accountability in financial operations, and that appropriate accounting procedures and controls are in place in addition to compliance with legal and regulatory requirements 

• Advising on how the charity can most effectively conduct its international work, especially providing grants to organisations in the Global South 

• Confirming that the charity has an appropriate investment policy, and that there is no conflict between any investment held and the aims and objects of the charity

• Sitting on any board sub-committees as required 

We are seeking motivated and skilled UK-based professionals to join our volunteer board. As a trustee, you will play a strategic role in guiding the organization, ensuring good governance, and supporting our mission to create meaningful social change in Uganda and the UK. This is a remote role, allowing you to contribute from anywhere in the UK.

Key Responsibilities

• Provide strategic direction and governance oversight

• Ensure compliance with UK charity law (once UK registration is completed) and organizational policies

• Support fundraising, donor engagement, and advocacy efforts

• Contribute to financial oversight and risk management

• Attend 4–6 board meetings per year, plus ad hoc subcommittee meetings as needed

Use your financial expertise to shape the future of a national bereavement charity. Aching Arms is seeking a volunteer Treasurer to join our Board of Trustees and provide strategic financial leadership.

Aching Arms is recruiting a committed and experienced Treasurer to oversee the charity’s financial affairs and support the Board in ensuring long-term sustainability, transparency, and compliance. This is a significant governance role within a respected organisation that provides vital support to bereaved families across the UK.

As Treasurer, you will play a central part in strengthening our financial stewardship. You will provide oversight of budgets, forecasts, cash flow, reserves, and investments, ensuring the charity has a clear and accurate financial position at all times. You will review management accounts, annual reports, and audited statements in preparation for Board approval, and ensure effective use of accounting systems such as Xero.

Working as a full member of the Board of Trustees, you will contribute to the charity’s governance, strategic planning, and risk management. Your expertise will help inform key decisions, ensuring they are financially sound and aligned with our charitable objectives. You will also maintain oversight of statutory and regulatory compliance, offering clear, accessible financial reporting during Board meetings.

The role involves constructive liaison with auditors and independent examiners, along with providing professional guidance to the Executive Team and Finance & Operations function. You will help strengthen financial controls, policies, and procedures, while offering appropriate scrutiny and challenge to support robust decision-making.

This opportunity is well suited to an individual with strong financial acumen, ideally with experience in accountancy, financial management, or charity finance, who would like to contribute their skills at a strategic level. By joining Aching Arms, you will play an essential role in supporting a charity dedicated to helping families through some of their most difficult moments.

If you are motivated to use your professional skills to deliver meaningful impact, we would welcome your application.

Help safeguard our future: Join BBS UK as our Treasurer

Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.

Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.

We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.

It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.

The role

As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.

This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.

Key responsibilities include:

• Maintaining a strategic overview of the charity’s financial health

• Presenting clear summaries of financial information at Board meetings

• Advising Trustees on the financial implications of plans and decisions

• Overseeing the annual budget and supporting longer-term financial planning

• Ensuring appropriate financial controls and procedures are in place

• Supporting the preparation of annual accounts and liaison with the Independent Examiner

• Helping ensure appropriate reserves are maintained in line with policy

The Board of Trustees retains collective responsibility for the charity’s finances.

We’re looking for someone with:

Essential:

• Experience in finance, accounting, bookkeeping, or financial oversight

• Confidence interpreting financial information and explaining it clearly to non-financial colleagues

• Understanding of financial controls and good governance

• Ability to think strategically and identify financial risks

Desirable:

• Experience in a charity or not-for-profit setting

• Understanding of restricted and unrestricted funds

• Experience working with budgets or management accounts

We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.

As a BBS UK Trustee, you will have:

• Induction, training, and ongoing support

• Reasonable expenses reimbursed

• Opportunities to develop new skills and contribute at a strategic level

• The chance to make a meaningful difference to a rare disease community

• Opportunities to collaborate with dedicated trustees, staff, and partners

Time commitment

• Attendance at four Board meetings per year (online, approximately 3 hours each)

• Reviewing financial information monthly or quarterly

• Additional input around budget setting and year-end accounts

• Attendance at our annual conference weekend (in person; expenses covered)

If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.

BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.

Supporting Trustees through the recruitment of central charity virtual roles including Trustees and Officer roles through creating and managing role adverts, reviewing applicants,conducting interviews and supporting onboarding.

We are looking for a finance professional to join our engaged and friendly board as Treasurer, with specific oversight of the charity’s financial management. While day-to-day financial administration is carried out by employees or external providers, the Treasurer works closely with them and the Board to ensure sound financial governance. The Treasurer provides financial leadership, helps trustees understand the organisation’s finances, and ensures that the charity meets its financial and statutory obligations.

You will have a qualification in Financial Management, Accounting, or Audit, and a strong understanding of financial management in the voluntary or business sectors. Previous charity experience is not necessary, but a willingness to undertake training is essential (usually one day).

You will have the ability to communicate financial information clearly to those without financial expertise and be a strategic thinker, with the ability to balance financial scrutiny with broader trustee responsibilities.

Our board meet once a month (either virtually or in person in London) for around 90 minutes. We aim to have strategy days twice a year. You will meet with the CEO and Finance Manager once a month, and be available for ad hoc emails, advice. Trustees are usually appointed for a three-year term, which can usually be extended. 

We will provide access to training (typically one day) if you do not have direct experience in charity finance.

You will also bring a commitment to the values, aims, and objectives of the charity, and a desire to help children and young people who have experienced grief.

Use your financial expertise to help bring joy to children living through crisis. Join Clowns Without Borders UK as our Treasurer and play a vital role in strengthening a small, high-impact international charity.

Governance 

Our Board is the ultimate governance body for the charity, serving as stewards of its resources, and ultimately responsible for our strategy, operations and financial management. Our board ensures we comply with our governing document, charity law and pursue our objectives. They are responsible for providing support, guidance and decisions to the CWB team, ensuring the effective and efficient administration of the organisation. 

Trustees are elected for a 2-year term but with the opportunity to be re-elected. 

Trustee Responsibilities 

Strategy and Governance 

• Actively contribute to the Board of Trustees’ role in giving firm strategic direction to the charity, setting overall policy, defining goals and setting targets and evaluating performance against agreed targets 
• Supporting high standards of governance and risk management 
• Ensuring the organisation is accountable and transparent in its activities 
• Ensuring compliance with relevant charitable and company legislation 
• Safeguarding the interests of Clowns Without Borders’s beneficiaries 

Advocacy 

• Acting as an ambassador for Clowns Without Borders
• Overseeing, and presenting budgets, accounts, and financial statements to the board 

Treasurer’s Responsibilities 

Overseeing the financial matters of the charity 

Ensuring proper accounts and records are kept 

Develop and/or review and implement financial and reserves policies 

• Be a point of contact and lead on issues relating to financial matters of the charity 

o Implementing and monitoring financial controls and ensuring relevant systems are in place 

o Liaising with charity’s director to ensure annual accounts are compliant with Charity Commission guidelines when necessary 

o Liaising with the charity’s independent examiner where appropriate. 

• Drive financial strategy and planning 

o Lead financial discussions with the board team 

o Present strategic options for future financial planning 

o Set up models to help other directors/trustees evaluate financial position and planning 

Expertise 

• Qualified UK Chartered Accountant 
• Knowledge and experience of current financial practices relevant to small charities 
• Strong financial management and strategic experience 
• Good financial analysis skills. 
• Ability to communicate clearly 

Person Specification 

• Passionate about children’s rights 
• Embody the values of CWB and endeavor to maintain a spirit of joy, peace, compassion and kindness in the way we work together on the Board 
• Enthusiastic about our mission and able to support this through the sharing of ideas, professional expertise and networks 

Remuneration 

The position of Trustee is unpaid. However, all reasonable out-of-pocket expenses incurred will be reimbursed in line with our Expenses Policy. 

We are seeking a proactive, strategic, and mission-aligned Funding Manager to join our growing team. This pivotal role will lead on identifying, applying for, and managing multiple streams of funding to support the delivery and expansion of our work. As a small charity with big impact, funding is vital to everything we do — from running support services to delivering education and campaigning for change. The Funding Manager will be at the heart of ensuring our sustainability and growth by securing the resources we need. You will be line managed by the Chair of Trustees, and work closely with the Treasurer and other trustees as needed to complete applications, manage current funding applications and report on grant outcomes.
 

What are the key responsibilities of this role?

This role will have the following duties, but are not limited to:

• Identify and research suitable funding opportunities from trusts, foundations, statutory bodies, and other grant-makers

• Lead and coordinate the writing and submission of compelling funding bids, applications, and proposals.

• Manage and track existing grants, ensuring compliance with reporting requirements and deadlines.

• Work with trustees (e.g. Treasurer and Chair) to gather financial and impact data for applications and reports.

• Maintain a funding pipeline and reporting calendar, ensuring visibility of all application stages and deadlines.

• Build and maintain relationships with funders, providing updates on Hidayah’s work and impact.

• Monitor trends in the funding landscape and keep the charity informed of relevant changes and opportunities.

• Advise and support the Board in developing a long-term funding strategy.

• To maintain clear records on the organisation’s shared systems (Google Drive).

• Meet regularly e.g. monthly or bi-monthly with your line manager to discuss funding applications and progress

• To check and respond to funding application emails promptly and within deadlines set for funding applications

What do we expect from the Funding Manager?

Please note that you must agree with and fit the criteria below to be eligible to volunteer in this role:

Essential:

• Demonstrable experience of successful fundraising from trusts, foundations, or statutory funders.

• Excellent bid writing and storytelling skills, with the ability to communicate impact clearly.

• Strong organisational skills, able to manage multiple deadlines and priorities.

• Financially literate, comfortable working with budgets and data.

• Self-motivated and able to work independently while collaborating with others.

• A commitment to the values and mission of Hidayah LGBTQI+.

• Knowledge of CRM or funding management tools.

Desirable:

• Experience working with grassroots or LGBTQI+ charities.

• Understanding of issues affecting LGBTQI+ Muslims or minoritised communities.

How much commitment is required?

This is a voluntary role with flexible hours, and can be carried out around your existing commitments. We are results-focused, so while you have autonomy over when you volunteer, we ask that funding bids and key deadlines are met in a timely and reliable manner.

The Opportunity:
Her Centre is seeking a dynamic Chair to help shape the future of our organisation
and lead our excellent board of trustees. This opportunity will involve working closely
with our CEO to drive change and ensure that our vital work continues to support
every woman in Greenwich who needs us. This is an exciting time of change, which
you will be embarking on with our CEO. You will be joining a dedicated board that
includes expertise from across the private and charitable sectors, the local authority,
and lived experience.

Our Work:
Greenwich has one of the highest rates of domestic abuse in London. Last year
alone, over 4,000 domestic offences were recorded in the borough: a shocking 35%
higher than the London average. Demand for our services has risen sharply: in 2017,
we received 321 acute high-risk referrals but by last year, this had more than
doubled to 780. The most common form of abuse reported is physical violence
(62%), followed by controlling and coercive behaviour (46%). However, the sad
reality is that many women face multiple and overlapping forms of abuse, including
sexual abuse and rape, threats to their children, financial control, and forced
imprisonment.
Last year, Her Centre supported nearly 1,000 women to find safety, seek justice, and
rebuild their lives. We also help children who witness abuse recover from trauma and
support teenagers facing exploitation or violence to recognise unhealthy
relationships and build self-worth. Her Centre is a safe and welcoming space where
all women are listened to and believed in an environment of trust and respect.
Please submit your Covering Letter and CV by Friday, 2 January 2026.

Role Description:
Board Chair

• Time commitment: 6-8 hours monthly. The HER Centre board meetings are hybrid

and currently held every two months.

• Location: Hybrid, in-person meetings at Clockhouse Community Centre, Defiance

Walk, London

Purpose of the role:
The Board Chair is responsible for leading the board, ensuring its effectiveness in
enabling the HER Centre to provide best-in-class service to HER Centre users,
providing strategic direction, and keeping the HER Centre as a leading agency
supporting women, particularly those in crisis due to abuse. The Board Chair focuses
the board on strategic matters, prioritising long-term goals and planning, including
approving the annual business, financial, risk, and operational plans. The Board
Chair also adheres to the Charity Commission's essentials of a trustee:
1. Ensure the HER Centre carries out its purpose for public benefit
2. Ensure the HER Centre complies with the governing document and law
3. Acts in the HER Centre’s best interest
4. Manage the HER Centre’s resources responsibly
5. Act with reasonable care and skill
6. Ensure the HER Centre is accountable
7. Reduce risk and liability

Main roles and responsibilities:
• Maintain high standards of governance, fostering transparency and ensuring the
HER Centre holds itself accountable to its service users and stakeholders.
• Ensure trustee awareness and compliance with legal and regulatory requirements,
including those set out in the constitution and the Charity Commission’s guidance
on trustee roles and responsibilities.
• Ensure that the trustee board annually reviews its structure, effectiveness,
delegations and key policies, and implements agreed changes as necessary.
• Manage trustee relationships to foster a positive board culture, including ensuring
the Board has the policies it needs.
• Liaising with the Board Secretary to arrange meetings and set agendas, and
chairing meetings to ensure these are well run and focused on delivering the HER
Centre’s work.
• Line managing the HER Centre CEO, by supporting, positively challenging and
holding them to account, including working with the Board to approve an appraisal
of the CEO.
• Act as a link between trustees, staff and the Service User Advisory Committee
• Act as a HER Centre representative and spokesperson as required
Term: Two years, renewable for a maximum of nine years.

Training and Induction:
You will receive an induction on the work of the HER Centre and meet the Trustees
and staff.
Payment and Expenses:
The Board Chair is a voluntary role. Agreed, out-of-pocket expenses will be
reimbursed.

The Deputy Chair of Hidayah provides essential support to the Chair, helps ensure the effective governance of the organisation, and stands ready to act in the Chair’s absence. This role helps maintain the smooth functioning of the Board and the organisation overall.

What are the key responsibilities of this role?

This role will have the following duties, but are not limited to:

· Support the Chair in providing strategic leadership and overseeing Trustee meetings, stepping in as Chair when needed

· Contribute to the development, implementation, and review of Hidayah’s Strategic Plan, Annual Report, and key governance policies

· Help manage volunteers and support fellow Trustees to ensure shared responsibility, accountability, and active engagement across the Board

· Assist in planning and delivering core governance activities, such as the Annual General Meeting (AGM) and Trustee votes

· Act as a signatory on financial matters, supporting the smooth running of Hidayah’s operations.

· Lead or support outreach activities, including identifying and engaging new partners, drafting proposals, and maintaining outreach records

· Help plan and promote events and campaigns, and contribute to the development of inclusive outreach strategies

· Represent Hidayah at external events, building relationships with individuals and organisations aligned with our mission

What do we expect from the Deputy Chair?

Please note that you must agree with and fit the criteria below to be eligible to volunteer in this role:

Essential:

· A strong commitment to Hidayah’s mission and values, particularly around LGBTQ+ Muslim inclusion

· Reliable, organised, and able to manage tasks independently

· Good written and verbal communication skills

· Basic digital literacy – including use of email, Google Drive, and Microsoft Office tools

· Ability to maintain confidentiality and act with integrity

· Respectful, inclusive, and collaborative working style

· Willingness to take initiative, contribute ideas, and stay engaged with wider organisational activity

Desirable:

· Experience in community outreach, project support, or partnership building – particularly in a grassroots, voluntary, or equalities-focused setting

· Familiarity with governance, quality assurance, or safeguarding in the charity or community sector

· Experience facilitating or supporting meetings and group discussions

· Ability to resolve conflict or challenges with empathy and professionalism

· Knowledge or lived experience of LGBTQ+ Muslim identities or the intersection of faith, gender, and sexuality

· Awareness of diversity, equity, and inclusion best practices

How much commitment is required?

This is a voluntary role with flexible hours, and can be carried out around your existing commitments. The role will take approximately 2 - 4 hours per week (flexible depending on needs and availability). You are also required to attend monthly board meetings. There is also an expectation of willingness to commit to the role for at least 3 months.

Are you passionate about supporting and managing volunteers in a small charity? Our Volunteer Coordinators will recruit, support & develop a team of volunteers, to enhance our work supporting people impacted by a chronic pain condition

What will you be doing?

We are looking for 1 volunteer coordinator to join the coordinators team who will volunteer to support our volunteers in various roles. The volunteer coordinators will 

• Help to recruit, and assure the adequate training of suitable, reliable volunteers
• Co-ordinate the volunteers to ensure that there is always someone available to support all our services 
• Help to create and distribute information regarding volunteer policies and procedures
• Monitor volunteers during their appointments to retain or replace candidates
• Meet with volunteers to assess their progress and satisfaction, as well as to conduct evaluations or skills audits
• Help to assess organisational and programme needs to determine number and range of volunteers needed for particular projects
• Induction of new volunteers
• Maintain regular communication among volunteers and between an organisation and its volunteers, in order to share news, progress, and available positions
• Maintains a database of volunteers and projects and track metrics
• Help to promote the charity and its volunteer accomplishments 
• Set up and arrange any relevant training required for volunteers

What are we looking for?

The Volunteer Co-ordinators role requires proactive and detail orientated individuals with an organised approach and an interest in supporting small charities. They will have good communication skills. The Volunteer Co-ordinators are responsible for the volunteer aspects of Burning Nights CRPS Support to ensure the smooth running of the charity’s services and ensuring that the volunteers are used optimally.

Our Volunteer Co-ordinators are also responsible for ensuring that suitable volunteers have DBS checks where needed and they are adequately trained to do their role working with our Charity Administrator.

Essential

• Experience in volunteering or HR and recruitment
• Managing and supporting volunteers
• Time manage effectively
• Supporting and advising others on policies and procedures
• Ability to motivate and encourage
• Working knowledge of databases
• Excellent communication and interpersonal skills
• Excellent organisation and team building skills

Desirable

• Facilitation and/or training skills
• Personal experience of volunteering

What difference will you make?

You most likely will not have heard of Complex Regional Pain Syndrome (CRPS), and you wouldn’t be alone in this! But we see and know first hand the impact it has on those living with it and on those caring for someone with the condition. We know the huge challenges they face even with simply getting a correct diagnosis, let alone the appropriate treatment and relevant support. 

You will join the charity during a challenging period and your expert knowledge and experience will be invaluable to our success. You will have a key role in ensuring we can maintain our support services and become a sustainable charity to allow us to fulfil our aims. 

What's in it for the volunteer?

This role is a fantastic opportunity to volunteer with a small but ambitious charity, developing and honing your skills.

You could gain experience in the charity sector, a broader C.V, or a sense of accomplishment from using your skills to help people affected by a very painful condition.

You would be a part of our small, friendly, forward-thinking charity team, focused on reaching people who may not have heard about the charity or the condition. You would have a key role in developing a volunteering team. This is a fantastic opportunity for you to make a real difference to a rare condition.

A few more details

If you don't have the exact experience, but are interested to volunteer with us, please apply! We would be thrilled to find out about how your interests and experience match with our needs or what we are doing. 

This role is done remotely using Zoom, phone and email. You would be working closely with the volunteers and trustees. However we would have regular updates and remote meetings with the Chair and/or Trustees.

We have an induction process to help successful applicant to understand how our Charity operates.