The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
Registered Charity
21 - 50
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.
Thank you!
Little Village makes a big difference to families with babies and young children living in poverty across London. Via its network of baby banks and partners such as Family Hubs, community organisations and all of London’s maternity units, the charity passes on pre-loved goods from one family to another – clothes, toys and equipment – so that many more children have the essential things they need to thrive.
Families are supported through welcoming hubs or home deliveries, and connected into a wider network of support in community settings, while Little Village also raises its voice to highlight the realities of child poverty.
Little Village is entering an exciting new phase as it approaches its 10-year milestone and prepares to launch its next strategy. QuarterFive are partneruing with Little Villag to find a Director of Fundraising, Marketing & Communications to play a central role in shaping its future – leading how the organisation grows income, strengthens its brand and amplifies its voice. Sitting on the Senior Leadership Team, you will lead a newly integrated fundraising, marketing and communications department, driving a cohesive, high-performing function and building on strong foundations to deliver a more strategic, scalable and insight-led approach.
With an income base with high potential for growth and particular strength in high-value fundraising, there is significant opportunity to grow and diversify income further, while also increasing visibility and influence at a time when public awareness of child poverty is rising.
We are looking for a strategic and hands-on leader with a track record in delivering income growth. You will be motivated by impact and excited to help drive Little Village’s next phase, strengthening long-term income and increasing its influence.
This role is home-based with regular travel to Little Village hubs across London. Core hours: 09:30-15:00. Weekly or fortnightly team and SLT meetings in London plus other meetings as needed.
As Director of Fundraising, Marketing & Communications, you will:
- Lead and deliver an integrated fundraising, marketing and communications strategy aligned to organisational priorities
- Set and achieve ambitious income targets across multiple streams, including high-value philanthropy and partnerships
- Develop a more structured, data-informed approach to fundraising, including pipelines, forecasting and performance management
- Oversee brand and communications, ensuring a clear, compelling and consistent narrative
- Build and steward relationships with major donors, partners and senior stakeholders
- Act as a senior ambassador, raising Little Village’s profile and influence
- Lead and develop a high-performing, collaborative team
Essential skills and experience:
- A strong track record of developing and delivering successful multi-stream fundraising strategies, weighted towards high value income streams including major donors, corporates, and trusts and foundations
- Proven success in securing significant and multi-year funding
- Experience leading and developing high-performing teams
- Exposure to or interest in mass fundraising
- Strong financial, forecasting and pipeline management skills
- Expertise in working with senior stakeholders/volunteers, ideally including reporting to Committees and Trustee boards
- A successful track record of involvement in launching, managing, and evaluating campaigns
- Strong understanding of brand management, digital engagement, and integrated campaigns across multiple channels
- Understanding of digital transformation, including CRM/data integration, marketing automation, and analytics
- A data-informed approach, with experience using insight and systems to drive performance
- Excellent influencing, relationship-building and storytelling skills
Desirable:
- Experience leading an integrated fundraising and communications function within a frontline charity
- Experience of using Beacon CRM
- Lived or personal experience of the issues faced by the families Little Village supports
Diversity and Inclusion:
Little Village operates in London, one of the most diverse cities in the world. The charity are working towards a goal where their team fully reflects that diversity and difference in lived experiences and strongly encourage applications from under-represented groups including: people from Black, Asian and Minority Ethnic backgrounds, LGBTQ+ people, people with disabilities, people with lived experience of poverty either personally or through family, experience of the care system, non-graduates and first-in-family graduates. As part of their commitment to fairer recruitment, all applications will be assessed without names and any protected characteristics.
As part of our commitment to increasing representation of people from Black, Asian and Minority Ethnic backgrounds, we are piloting a Guaranteed Interview Scheme (GIS) for this role, as a new approach to make our recruitment more equitable. If you identify as Black, Asian or other Minority Ethnic backgrounds and meet the essential criteria for the role, you can choose to opt in to the GIS. We will be aiming to offer everyone who opts into the scheme and meets the essential criteria a first stage interview/ assessment. See the applicant pack for further details.
Employee benefits include:
- 25 days per year annual leave plus bank holidays (pro rata for those working fewer than 35 hours per week)
- Team members are usually given time off between Christmas and New Year, which doesn’t come off your allowance
- Pension contributions matched by 3%
- A period of sick leave at full pay regardless of length of service
- Enhanced family friendly policies including Maternity, Paternity, Shared Parental Leave and Adoption pay, with a Fertility Policy designed to support employees during fertility investigations and treatment
- Death in Service benefit (x3 annual salary)
- Employee Assistance Programme
- Rewards Gateway and Tickets for Good
To apply, please upload your CV, making sure it reflects the essential skills and experience within the person specification. You can use the notes section to share any additional information. Suitable applicants will be contacted and given full support with the formal application process.
First round interviews (online): Thursday 21st May
Second round interviews (in-person): w/c 1st June
Registered Charity
51 - 100
To bring about change for children and families through the power of sharing, reusing and connecting
