Volunteer fundraising manager jobs in Bristol

We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.

The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.

Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.

Key Responsibilities

Community Growth and Engagement

• Contribute towards the development and delivery of a comprehensive membership growth strategy aimed at engaging at least 50% of the UK myasthenia community within five years.
• Build a deep understanding of the patient journey and identify opportunities to connect with people from diagnosis onwards.
• Lead the development of services, programmes and engagement approaches that increase membership recruitment, retention and participation.
• Ensure that people affected by myasthenia are at the heart of all organisational decisions, campaigns and strategic priorities.
• Create pathways for members, volunteers, supporters and ambassadors to actively contribute to myaware's work.
• Use data, insight and market intelligence to measure community reach, identify underserved groups and drive continuous improvement.

Campaigning, Policy and Influence

• Develop and implement a national campaigning and influencing strategy focused on awareness, equity of care, access to treatment and service improvement.
• Position myaware as a leading voice within healthcare, policy and rare disease discussions across the UK.
• Build strategic relationships with parliamentarians, government departments, NHS organisations, Integrated Care Boards, NICE, clinicians, researchers, industry partners and allied charities.
• Lead public affairs activity, including consultation responses, parliamentary engagement, policy briefings and stakeholder events.
• Ensure lived experience evidence informs policy development, healthcare decision-making and treatment access discussions.

Organisational Leadership

• Serve as a member of the Senior Leadership Team and contribute to organisational strategy and performance.
• Foster a culture of innovation, inclusion, collaboration and measurable impact.
• Work closely with fundraising, communications, partnerships, and service delivery colleagues to maximise organisational reach and effectiveness.

Awareness and Public Engagement

• Increase awareness and understanding of myasthenia among healthcare professionals, policymakers, media and the public.
• Lead initiatives that strengthen myaware's visibility, reputation and influence.
• Support the development of compelling campaigns, media activity and storytelling that inspire engagement and drive action.
• To be the spokesperson for myaware.

What Success Looks Like

Within five years, the postholder will have:

• Led significant growth in membership, progressing towards engaging at least 50% of the UK's myasthenia community.
• Increased participation in surveys, campaigns, events, volunteering and lived-experience activities.
• Established myaware as the recognised national voice for people affected by myasthenia.
• Secured meaningful influence in policy, healthcare and treatment access discussions.
• Generated evidence of improvements in awareness, service delivery, treatment access and patient representation.
• Built a highly engaged and empowered community capable of driving change at local, national and system levels.

Person Specification

Essential Experience

• Significant senior leadership experience within the charity, healthcare, membership, public affairs or advocacy sectors.
• Proven success in growing and engaging communities, memberships, movements or supporter bases at scale.
• Experience developing and delivering campaigning, influencing or public affairs strategies that have achieved measurable outcomes.
• Strong track record of building relationships with senior external stakeholders and decision-makers.
• Experience using data, insight and lived experience to shape organisational priorities and influence strategy.
• Experience leading, motivating and developing high-performing teams.

Essential Knowledge and Skills

• Outstanding strategic thinking and leadership abilities.
• Exceptional communication, influencing and relationship-building skills.
• Strong understanding of community mobilisation, supporter engagement and membership growth.
• Ability to translate complex healthcare and policy issues into compelling public narratives and calls to action.
• Strong analytical and performance management skills.
• Commitment to inclusion, co-production and patient-centred approaches.

Personal Attributes

We are looking for someone who is:

• Ambitious about building one of the UK's most engaged rare disease communities.
• Passionate about amplifying the voices of people with lived experience.
• Collaborative and inspiring.
• Politically astute and credible with senior stakeholders.
• Resilient, innovative and outcomes focused.
• Motivated by creating lasting change for people living with long-term health conditions.

Why Join Us?

myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.

Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor. 

myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Application instructions

Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September

Provisional interview dates will be week commencing: 28.9.26

Interviews will be held over Microsoft Teams.

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

The client requests no contact from agencies or media sales.

Context of role:
The Outreach Officer plays a key role in raising awareness of services, strengthening community
partnerships and supporting the delivery of high-quality bereavement support activities across the
region. The postholder will engage with local networks, coordinate events, and support volunteers while ensuring effective monitoring, reporting and continuous improvement.
This role sits initially within Shropshire, Worcestershire and Herefordshire, but will expand to support phase 3 of the expansion which will include the West Midlands, Warwickshire and
Staffordshire. 

Key responsibilities:
Support Service:
1. Event Coordination and Delivery
1.1: Coordinate and deliver regular community engagement activities, including; coffee mornings and
support events.
1.2: Organise and facilitate regular wellbeing and social activities, such as; walks or group sessions.
1.3: Represent the organisation at regional events, including supporting fundraising and CYP teams
when required.
1.4: Co-lead on bookings and coordination of Ty Uchaf, our respite house.
2. Awareness, Training and Engagement
2.1: Lead on regional awareness training delivery for non-emergency services and community-based
organisations.
2.2: Deliver additional 2wish training programmes as required, including Children & Young People
(CYP) and Bereavement in workplace support training.
2.3: Lead awareness and advocacy activities with local ‘support champions’, including professionals
within non-emergency services.
3. Partnership and Network Development
3.1: Actively engage with local bereavement networks through attendance at meetings, hosting
information stands and building strong professional relationships across the region.
3.2: Develop and maintain effective links with community partners to expand reach and awareness of
services.
4. Volunteer Support
4.1: Act as a key local contact for volunteers.
4.2: Support the recruitment, training and retention of volunteers in collaboration with the wider
team.
5. Administration, Monitoring and Reporting
5.1: Maintain and take ownership of relevant systems and spreadsheets, including those used for:
52: Event planning and delivery
5.3: Marketing and communications
5.4: Contact and engagement tracking
5.5: Professional and family engagement records
5.6: Accurately record interactions with stakeholders, including; families, professionals, champions
and referral partners.
5.7: Monitor and manage posts/content on Facebook family accounts.
6. Quality Assurance and Improvement
6.1: Support quality audits and contribute to continuous improvement processes.
6.2: Collect and review feedback from events and training sessions to inform future development.2.0 General:
1.1: To be responsible for organising own work agenda, time management and administration
1.2: To keep clear and up to date records on database of activities with families and any ensuing
action
1.3: To promote the on-going work and continued support that 2wish can offer
1.4: To work as part of a team providing support to suddenly bereaved families
1.5: To work alongside support team and maintain a seamless approach to service delivery
1.6: To maintain a high degree of confidentiality in accordance with the charity’s policies
1.7: To show respect and sensitivity for the cultural and religious beliefs of families
1.8: To undertake learning opportunities and seek them out for the team
1.9: To adhere to all company policies and procedures including Safeguarding, Confidentiality,
Health and Safety and Lone Working; and to be proactive in implementing new safe working
practices as appropriate
1.10: To attend weekend and evening community events in support of the charity as necessary
1.11: Participate as and when required in team meetings and one-to-one meetings, and
undertake, as appropriate, courses/training/other developmental activities, which is relevant to
the role
1.12: To contribute to the evaluation and monitoring processes to ensure effectiveness of
services and activities provided
1.13: Contribute on the social media platforms maintained by 2wish
It is the nature of the work that tasks and responsibilities are in many circumstances
unpredictable and varied. All employees are therefore expected to work in a flexible way and
tasks, which are not specifically covered in their job description may have to be undertaken.
This role is subject to a DBS check.

Marie Curie is the UK’s leading end-of-life charity. We are the largest non-NHS provider of end-of-life care in the UK, the only provider across all 4 nations, delivering community nursing and hospice care across the country, while providing information and support on all aspects of dying, death, and bereavement.Our leading research pushes the boundaries of what we know about good end-of-life, and our campaigns fight for a world where everyone gets to have the best possible quality of life while living with an illness, they’re likely to die from.

Join a dynamic team at a pivotal moment of transformation, where significant investment in email marketing is creating exciting opportunities to lead, innovate, and help amplify the voice of Marie Curie. This is a fixed-term role (to April 2027) that offers genuine end-to-end ownership of the email programme, real scope to mentor and deputise, and a fast-track opportunity to prove yourself at Senior level. You'll have a direct impact on our mission while working in a collaborative, agile environment that values fresh ideas and empowers people to make things happen.

Marie Curie's Digital Marketing team is at the heart of supporter engagement, delivering intelligent, data-led campaigns that drive fundraising, awareness, and long-term supporter relationships. As part of a high-performing, collaborative team, you'll work alongside specialists across fundraising, content, design, CRM, and digital marketing to maximise the impact of one of the charity's most important communication channels

As Senior Email Marketing Executive, you'll lead the day-to-day delivery of Marie Curie's email programme, driving innovative campaigns that engage supporters and generate vital income. You'll take ownership of campaign planning, performance optimisation, audience targeting, and marketing automation, while actingas a trusted advisor to stakeholders across the organisation. This is a fantastic opportunity to influence strategy, mentor colleagues, and help shape the future of Marie Curie's multi-channel CRM programme

Your Impact:

• Lead the planning, scheduling, and delivery of email campaigns across fundraising, campaigns, services, retail, and supporter communications.
• Drive continuous improvement by developing templates, refining processes, and implementing best practice across the email programme.
• Deliver and optimise SMS and WhatsApp communications as part of integrated multichannel marketing activity.
• Lead audience segmentation and targeting, ensuring supporters receive relevant and personalised communications.
• Build, optimise, and maintain automated supporter journeys, including welcome, nurture, re-engagement, and stewardship programmes.
• Own the email test-and-learn programme, using campaign insights to drive continual performance improvements.
• Develop strong relationships with stakeholders, providing expert advice and helping shape integrated campaign plans.
• Mentor and support the Email Marketing Executive and deputise for the Email Marketing Manager when required.

Key Requirements:

• Proven experience delivering successful email marketing campaigns from planning through to evaluation, using email service providers and marketing automation platforms such as DotDigital or similar.
• Strong understanding of email marketing best practice, including deliverability, accessibility, mobile-first design, and optimisation.
• Experience working with audience segmentation, data selections, and personalised communications.
• Excellent project management and organisational skills, with the ability to manage multiple campaigns simultaneously.
• Outstanding communication and stakeholder management skills.
• Knowledge of GDPR, PECR, and marketing consent requirements.
• Experience with lifecycle marketing, automated journeys, SMS, WhatsApp, or wider digital marketing would be advantageous

Please see the full job description .

Application & Interview Process

• As part of your online application, you will be asked for a CV and supplementary details. Please review both the advert and job description and outline your most relevant skills, experience and knowledge for the role.
• Close date for applications:23 August 2026.We encourage early applications as we may close the job advert sooner after receiving a sufficient number of applications.

Salary:£31,415(+ £3,500 London Weighting Allowance if applicable)

Contract:Fixed-term (until April 2027), full-time (35h per week)

Location:Home-based (UK) or hybrid in London (2 days a week from our Embassy Gardens office)

Benefits you’ll LOVE:

• Flexible working. We’re happy to discuss flexible working at the interview stage.
• 25 days annual leave (exclusive of Bank Holidays)
• Marie Curie Group Personal Pension Scheme (we will match your contribution up to 7.5%)
• Loan schemes for bikes; computers and season tickets
• Continuous professional development opportunities.
• Industry-leading training programmes
• Wellbeing and Employee Assistance Programmes
• Enhanced bereavement, family friendly and sickness benefits
• Access to Blue Light Card membership
• Subsidised Eye Care
• 15% discount in-store at our Marie Curie Shops (Terms & Conditions apply)

At Marie Curie, our values are central to everything we do. They guide how we care for people, how we work together, and how we make decisions every day. We are committed to creating a workplace that is safe for everyone — staff and volunteers alike — supportive, inclusive and rewarding. We take stringent steps to ensure that anyone who joins our organisation are suitable for their roles and are committed to safeguarding all our people from harm. We actively consider our impact on the planet, embedding sustainability into everyday decisions to create a lasting, positive difference for the individuals we care for and the world we share.

We believe everyone should have the opportunity to thrive and fulfil their potential. Marie Curie is deeply committed to diversity, equity and inclusion, recognising both the social justice imperative and the strength a diverse workforce brings. We actively encourage applications from people of all cultures, perspectives and lived experiences.

We are happy to make reasonable adjustments throughout the recruitment process. If you require any support, please contact us at .

Every application we receive is personally reviewed by a member of our Talent Acquisition team, and in return, we ask that your application authentically reflects you — your experience, perspective and voice.

About you

Do you want to use your skills to make it possible for people with myeloma to live longer and better lives?  We are looking for a Support Group Co-ordinator who will deliver the Myeloma UK Support Group Partnership programme in line with the organisation’s overall strategy.

You will have experience of working with support groups and/or volunteer networks as well as recruiting, training, managing and supervising a diverse range of staff or volunteers.  The post holder will need to show clear evidence of relationship building and working with underrepresented groups.  A key part of the role is understanding the needs of cancer patients and their families and of health inequalities.

You’ll have excellent relationship building skills and an understanding of the barriers that exist in accessing support. You will need the ability to set priorities, work under pressure with great attention to detail and understand and meet the training and development needs of volunteers. Experience of working with haematology or oncology patients and working with a database would be an advantage but not essential.

About the role

The Support Group Co-ordinator will be the first point of contact within the organisation for all Support Group enquiries. You will coordinate the Support Groups Partnership Programme activity, including developing and promotion of the existing Myeloma Support Groups and coordinate the recruitment, induction and ongoing support of new local groups to the Support Groups Partnership Programme

You will be responsible for working with local groups and other local network partners to increase the reach and impact of Myeloma UK, ensuring that partnered support groups operate in line with Myeloma UK guidelines and ensure that they receive consistent information, training and advice.

The post holder will maintain an awareness and understanding of all legislation that may be relevant to the role and develop, maintain and evaluate a training programme for Support Group Leaders as well as moderate and update the Support Group Leaders’ online hub on a regular basis.  You will lead the Support Groups’ responsibility for designing and delivering activities in line with our Partnership Agreement so that they are safe, effective and impactful as well as moderate.

About us

Myeloma UK is the only UK charity focused on the incurable blood cancer, myeloma and its related conditions.  We provide support and influence access to treatments, while researching a cure.  Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well. 

We are committed to bringing together the best and brightest people to help us ensure that every person affected by myeloma has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every person living with myeloma, live well, for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change.

Our culture

Wellbeing and staff engagement are at the heart of our culture.  We offer employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working which includes both home and hub-based office working, health plan, employee assistance plan and holiday purchase scheme. We are committed to providing learning and development opportunities for all our employees.

How to apply

If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:

1. A cover letter telling us more about you and what you think makes you a good fit for this role

2. A CV that sets out your career history, with key responsibilities and achievements

Applications close on 12noon on 19 August 2026 and interviews will be held w/c 24 August 2026

Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:

· sex

· race

· disability

· age

· sexual orientation

· gender reassignment

· religion or belief

· marital status

· or pregnancy and maternity

Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.

Context of role:

Key responsibilities:

Support Service:

1. Event Coordination and Delivery

1.1: Coordinate and deliver regular community engagement activities, including; coffee mornings and

support events.

1.2: Organise and facilitate regular wellbeing and social activities, such as; walks or group sessions.

1.3: Represent the organisation at regional events, including supporting fundraising and CYP teams

when required.

1.4: Co-lead on bookings and coordination of Ty Uchaf, our respite house.

2. Awareness, Training and Engagement

2.1: Lead on regional awareness training delivery for non-emergency services and community-based

organisations.

2.2: Deliver additional 2wish training programmes as required, including Children & Young People

(CYP) and Bereavement in workplace support training.

2.3: Lead awareness and advocacy activities with local ‘support champions’, including professionals

within non-emergency services.

3. Partnership and Network Development

3.1: Actively engage with local bereavement networks through attendance at meetings, hosting

information stands and building strong professional relationships across the region.

3.2: Develop and maintain effective links with community partners to expand reach and awareness of

services.

4. Volunteer Support

4.1: Act as a key local contact for volunteers.

4.2: Support the recruitment, training and retention of volunteers in collaboration with the wider

team.

5. Administration, Monitoring and Reporting

5.1: Maintain and take ownership of relevant systems and spreadsheets, including those used for:

52: Event planning and delivery

5.3: Marketing and communications

5.4: Contact and engagement tracking

5.5: Professional and family engagement records

5.6: Accurately record interactions with stakeholders, including; families, professionals, champions

and referral partners.

5.7: Monitor and manage posts/content on Facebook family accounts.

6. Quality Assurance and Improvement

6.1: Support quality audits and contribute to continuous improvement processes.

6.2: Collect and review feedback from events and training sessions to inform future development.

2.0 General:

1.1: To be responsible for organising own work agenda, time management and administration

1.2: To keep clear and up to date records on database of activities with families and any ensuing

action

1.3: To promote the on-going work and continued support that 2wish can offer

1.4: To work as part of a team providing support to suddenly bereaved families

1.5: To work alongside support team and maintain a seamless approach to service delivery

1.6: To maintain a high degree of confidentiality in accordance with the charity’s policies

1.7: To show respect and sensitivity for the cultural and religious beliefs of families

1.8: To undertake learning opportunities and seek them out for the team

1.9: To adhere to all company policies and procedures including Safeguarding, Confidentiality,

Health and Safety and Lone Working; and to be proactive in implementing new safe working

practices as appropriate

1.10: To attend weekend and evening community events in support of the charity as necessary

1.11: Participate as and when required in team meetings and one-to-one meetings, and

undertake, as appropriate, courses/training/other developmental activities, which is relevant to

the role

1.12: To contribute to the evaluation and monitoring processes to ensure effectiveness of

services and activities provided

1.13: Contribute on the social media platforms maintained by 2wish

It is the nature of the work that tasks and responsibilities are in many circumstances

unpredictable and varied. All employees are therefore expected to work in a flexible way and

tasks, which are not specifically covered in their job description may have to be undertaken.

This role is subject to a DBS check.

The Belay Foundation supports adoptive, kinship and special guardianship families raising children who have experienced early developmental trauma, often alongside neurodiversity. Founded in 2020 from lived experience, Belay offers something many families struggle to find elsewhere: practical, in-home support and expert guidance that’s genuinely trauma-responsive, delivered by people who understand what these families are living through.

Why now? - Belay has just spent a year strengthening its foundations - redesigning services, building organisational capacity and setting an ambitious growth plan. The groundwork is done. What we need now is a permanent CEO with the vision to take a small, high-impact charity and turn real momentum into lasting change - for families and for how the sector understands and responds to developmental trauma.

About the role - You’ll provide strategic and financial leadership across a small team, working closely with an exceptional Board and Belay’s Founder, who remains closely involved as Services Director. You’ll lead fundraising and income diversification, shape Belay’s public voice and ensure the organisation’s trauma-responsive, DDP-informed model continues to deliver real impact as it scales.

This is a rare chance to take the helm of an organisation with an innovative model, a loyal community and genuine room to grow - and to leave your mark on how the UK supports some of its most vulnerable children and families.

This is a home‑based role, but applicants must be permanently based, and have the right to work, in the United Kingdom. For legal, tax, and operational reasons, we cannot consider applications from outside the UK.

Please see the CEO Application Pack for further details, including the full job description and the application/ interview process.

Job Purpose

Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.

Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.

You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.

As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.

You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.

As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.

Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.

Key Duties

• Help monitor inboxes and respond to routine project enquiries in a timely and sensitive manner, escalating more complex matters as appropriate
• Assist the project's management team and other team members with meeting scheduling and diary coordination
• Take accurate minutes at project, management and other project-related meetings, and follow up and track resulting actions to completion
• Prepare, format and proof-read governance documents and papers
• Maintain and update project databases including the Teams channel, ensuring documents are saved correctly, other management information/recording systems to ensure accurate and timely record-keeping. Help with the tracking of expressions of interest from potential study participants.
• Provide administrative support for project events - from planning and logistics through to on-the-day support
• Help prepare presentations, slide decks and briefing materials for internal meetings, funders, partners and participant-facing communications
• Support the drafting, formatting and coordination of project communications, such as updates for partners, funders or the wider ME and Long Covid community
• Support coordination between internal teams and external partners, including research and funding partners
• Maintain project files and documentation in line with agreed communication operating procedures with internal and external partners ensuring information is well organised, up to date and easy for the team to access
• Maintain confidentiality at all times and in line with relevant policies and procedures, ensuring compliance with GDPR and that all data consent processes have been followed in relation to data protection
• Positively promote the work of the Sequence ME & Long Covid project and Action for ME at all times
• Undertake any other reasonable activity in line with the responsibilities of the post, as requested by the CEO, Business Development & Partnerships Manager, Senior Research Manager or the project's Management Team

Person Specification

Essential skills and experience

• Organisational skills - Highly organised with the ability to manage multiple tasks across a fast-moving research project, with attention to detail and accuracy maintained under pressure
• Communication - Excellent verbal and written communication skills, with the ability to interact effectively with diverse audiences including researchers, funders and people affected by ME and Long Covid
• IT literacy - Proficient with common office software, including Microsoft Office (Word, Excel, Outlook, Teams, PowerPoint), and able to quickly learn relevant project management, database or communications systems as needed
• Problem-solving - A creative and solution-focused mindset to address challenges and find innovative ways to improve processes
• Adaptability - Capable of managing changing priorities, working flexibly, and adapting to the needs of a fast-paced, ambitious research programme
• Initiative - A proactive approach, with the ability to work independently and take initiative, while also following clear instructions when given
• Teamwork - A collaborative team player with a proven ability to work effectively as part of a team, including a remote-working team spanning multiple partners and stakeholders
• Interest in the sector - A genuine interest in health research, the Third Sector, and a desire to take action to improve the lives of people with ME and Long Covid
• Experience - Demonstrable ability to be an effective administrator, ideally within a charity, research, or project environment. Experience supporting governance processes, events, or communications would be an advantage but is not essential

Desirable skills and experience

• Experience providing administrative support for scientific or research-related projects
• Experience writing and communicating with non-specialist or general audiences

Please note, the salary of £24,642.09 FTE per year pro rata is based on a 35-hour week.

Support Coordinator

We’re looking for an innovative, compassionate and professional person with strong communication and organisational skills to join the Stroke Recovery Service in Herefordshire and Worcestershire.

Position: 000012 Stroke Support Coordinator

Location: Home-based covering Herefordshire and Worcestershire. However, this role will require extensive travel across the delivery area. Travel will also be required for team meetings and other work-related meetings

Hours: Part-time, 28 hours per week

Salary: Circa £22,600 per annum (FTE circa £28,300 per annum)

Contract: This is a fixed-term contract until 31st March 2027. Services are contracted and there is currently funding for this contract until 31st March 2027

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Health Cash Plan, flexible working opportunities available.

Closing Date: 30 August 2026

Interview Date: 14 September 2026. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

In this role, you’ll support stroke survivors and their families as they adjust to life after stroke. You’ll help identify their needs, provide personalised information, advice and support, and work with them to achieve the outcomes that matter most to them.

Reporting to the Stroke Service Delivery Coach, the Stroke Support Coordinator will:

· Support stroke survivors and carers as they move from hospital discharge back into the community.

· Use a person-centred approach to help stroke survivors and carers set goals and access the right support.

· Provide clear, tailored information, advice and practical support.

· Encourage stroke survivors to make informed lifestyle changes that may reduce the risk of further strokes.

· Work closely with NHS colleagues and community partners to improve the lives of people affected by stroke.

About You

You will:

· Have a background in a caring and/or charity profession supporting people with disabilities.

· Be able to demonstrate previous experience of working collaboratively with other organisations to achieve joint ambitions.

· Have experience of working with people who may have additional communication support needs.

· Be proficient in using Microsoft applications, including Word and Excel and experience using IT systems to record and maintain beneficiary data.

This role requires extensive travel across a large geographical locality to visit people at home and in community settings. Candidates must be able to demonstrate how they can meet this requirement of the role.

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

Applications

You will be asked to submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

If you are applying under the Disability Confident scheme, please indicate this in your supporting statement, and in the main body of your email when applying for the role.

You will be able to view the role profile when you apply.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support.

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Care Coordinator, Stroke Support, Stroke, Care, Care Worker, Support Worker, Carer, Care Team Leader, Support Team Leader, Volunteering Manager, Volunteer Coordinator, Support Group, Support and Advice, Social Care, Carer Support, Support Service.

Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP

Context of role:

The Outreach Officer plays a key role in raising awareness of services, strengthening community
partnerships and supporting the delivery of high-quality bereavement support activities across the
region. The postholder will engage with local networks, coordinate events, and support volunteers
while ensuring effective monitoring, reporting and continuous improvement.

Key responsibilities:
Support Service:
1. Event Coordination and Delivery
1.1: Coordinate and deliver regular community engagement activities, including; coffee mornings and
support events.
1.2: Organise and facilitate regular wellbeing and social activities, such as; walks or group sessions.
1.3: Represent the organisation at regional events, including supporting fundraising and CYP teams
when required.
1.4: Co-lead on bookings and coordination of Ty Uchaf, our respite house.
2. Awareness, Training and Engagement
2.1: Lead on regional awareness training delivery for non-emergency services and community-based
organisations.
2.2: Deliver additional 2wish training programmes as required, including Children & Young People
(CYP) and Bereavement in workplace support training.
2.3: Lead awareness and advocacy activities with local ‘support champions’, including professionals
within non-emergency services.
3. Partnership and Network Development
3.1: Actively engage with local bereavement networks through attendance at meetings, hosting
information stands and building strong professional relationships across the region.
3.2: Develop and maintain effective links with community partners to expand reach and awareness of
services.
4. Volunteer Support
4.1: Act as a key local contact for volunteers.
4.2: Support the recruitment, training and retention of volunteers in collaboration with the wider
team.
5. Administration, Monitoring and Reporting
5.1: Maintain and take ownership of relevant systems and spreadsheets, including those used for:
52: Event planning and delivery
5.3: Marketing and communications
5.4: Contact and engagement tracking
5.5: Professional and family engagement records
5.6: Accurately record interactions with stakeholders, including; families, professionals, champions
and referral partners.
5.7: Monitor and manage posts/content on Facebook family accounts.
6. Quality Assurance and Improvement
6.1: Support quality audits and contribute to continuous improvement processes.
6.2: Collect and review feedback from events and training sessions to inform future development.

2.0 General:
1.1: To be responsible for organising own work agenda, time management and administration
1.2: To keep clear and up to date records on database of activities with families and any ensuing
action
1.3: To promote the on-going work and continued support that 2wish can offer
1.4: To work as part of a team providing support to suddenly bereaved families
1.5: To work alongside support team and maintain a seamless approach to service delivery
1.6: To maintain a high degree of confidentiality in accordance with the charity’s policies
1.7: To show respect and sensitivity for the cultural and religious beliefs of families
1.8: To undertake learning opportunities and seek them out for the team
1.9: To adhere to all company policies and procedures including Safeguarding, Confidentiality,
Health and Safety and Lone Working; and to be proactive in implementing new safe working
practices as appropriate
1.10: To attend weekend and evening community events in support of the charity as necessary
1.11: Participate as and when required in team meetings and one-to-one meetings, and
undertake, as appropriate, courses/training/other developmental activities, which is relevant to
the role
1.12: To contribute to the evaluation and monitoring processes to ensure effectiveness of
services and activities provided
1.13: Contribute on the social media platforms maintained by 2wish
It is the nature of the work that tasks and responsibilities are in many circumstances
unpredictable and varied. All employees are therefore expected to work in a flexible way and
tasks, which are not specifically covered in their job description may have to be undertaken.
This role is subject to a DBS check.

Lead change. Shape policy. Amplify the voices of bereaved families.

Child Bereavement UK is looking for an accomplished Head of Policy & Research to lead our evidence and policy agenda at a pivotal time for the charity.

You'll bring a strong track record of leading policy and research activity, developing influential partnerships, and translating evidence into meaningful change. With an established understanding of the policy landscape and the credibility to engage senior stakeholders across health, social care, government and the voluntary sector, you'll play a key role in shaping policy and practice for bereaved families across the UK.

You'll lead our research programme, develop evidence-based positions, build strategic partnerships, and ensure the experiences of bereaved children, young people and parents bereaved of a baby or child are reflected in policy and practice across the UK.

We're looking for someone who:

• Has experience and established networks in policy and research.
• Can translate complex evidence into compelling recommendations for change.
• Is an exceptional relationship-builder, communicator and strategic thinker.
• Is passionate about improving outcomes for bereaved children, young people and parents.

This is a rare opportunity to shape national conversations, influence decision-makers and ensure lived experience is at the heart of policy and practice.

Please note, the role will involve regular travel to London based conferences, events and network meetings as required, plus occasional travel to team meetings in Birmingham.

Join us and help create lasting change for bereaved families across the UK.

Remote (Surrey and surrounding areas) | 18 – 24 hours

£27,500 pro rata | Flexible working | Real impact

Are you kind, caring and professional – the sort of person who listens deeply, holds space for others, and wants to make a real difference?

At Jigsaw South East, we support children and young people who are facing or coping with the death of a loved one. We’re looking for a compassionate and confident Grief Support Worker to join our small, dedicated team.

In this role, you’ll:

• Support families one-to-one and in groups, both pre- and post-bereavement
• Hold meaningful (and sometimes tough) conversations with warmth and sensitivity
• Help children feel less alone in their grief, and families feel more connected
• Contribute to our PIECES group programme, helpline, and referral process

This isn’t just a job, it’s a chance to walk alongside people at one of the hardest points in their lives and offer light, steadiness and support.

We’re looking for someone who brings:

• A warm, person-centred approach
• Experience working with children and families
• Emotional resilience and a strong sense of purpose
• The ability to travel across Surrey and attend some evening/weekend sessions

We offer:

• Flexible working
• TOIL and supervision
• Ongoing training and personal growth
• A supportive, values-led team who genuinely care

If you believe in the power of kindness and want to help children feel seen, safe and supported, we’d love to hear from you.

View our recruitment pack for more information including a full job description and person specification: