Research volunteer roles

WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.

Are you a savvy online shopper with an eye for detail? Do you love the thrill of a "Sold!" notification? We are looking for a tech-savvy, organised volunteer to help us turn donated treasures into vital funds by supporting our eBay shop.

What you’ll be doing:

• Researching: Identifying unique or high-value items and finding their market value.
• Photography: Taking clear, appealing photos of clothing, collectibles, and homeware.
• Listing: Writing engaging descriptions and managing the end-to-end listing process.
• Dispatch: Carefully packaging items and preparing them for postage.

What we’re looking for:

• Familiarity with the eBay platform (training provided).
• Basic photography skills.
• Great written communication and attention to detail.
• A few hours a week to spare (flexible timings).

 Why join us?

• Help us raise more money for our partner charity Rafiki Thabo Foundation.
• Gain experience in e-commerce and digital retail.
• Work in a friendly, supportive environment.

How to apply:
Ready to help us clear our shelves and raise some funds? Contact us please.

Support our mission to bring vital funding to adult carers in Solihull.
Your work helps keep services running and opens new opportunities for people who care for others.

As an Adult Carers Fundraiser Admin & Support Volunteer, you will play a key part in helping Carers Trust Solihull secure funding that enables us to continue and expand our vital services for adult carers across the borough.

Working alongside the manager, you will help identify and apply for funding opportunities, assist with administrative and community-based fundraising activities, and represent the charity in local events. Your support will directly contribute to improving the quality of life for carers by enabling new services, resources, and opportunities.

This role is ideal for someone with good communication and organisational skills who enjoys building connections and making a tangible difference in the community.

Key Roles and Responsibilities

• Research and help identify funding opportunities relevant to our work with carers.
• Support the manager with administrative tasks linked to grant applications and fundraising.
• Represent Carers Trust Solihull as a friendly and professional ambassador at fundraising events.
• Keep accurate records of fundraising activity, donations, and outcomes.
• Attend and help organise fundraising events that support our mission.
• Present pre-prepared presentations or films to funders and partners to raise awareness of our work.
• Assist or lead in writing small grant applications (and larger ones where confident).
• Collect and log donated items for our service (e.g., gift vouchers, tickets, Easter eggs, and Christmas selection boxes).
• Monitor when key funding streams renew or reopen, ensuring timely applications.
• Work collaboratively with the manager to assess the viability of opportunities within our available resources.
• Carry out any other agreed tasks related to fundraising and community engagement.

Preferred Skills and Qualities

• Good understanding of marketing and community engagement.
• Excellent written and verbal communication skills.
• Confident when approaching potential funders or representing the charity in public.
• Organised, reliable, and able to manage multiple priorities effectively.
• Experience writing small, medium, or large funding applications (desirable).
• Willingness to travel across the borough to attend events (expenses reimbursed).
• Comfortable working both independently and as part of a team.
• Able to understand and work within resource and role boundaries.
• Passionate about achieving a high-quality service for adult carers in Solihull.

What You Will Gain

• Purpose and fulfilment: Contribute directly to sustaining and growing services that support unpaid carers.
• Professional experience: Gain valuable insight into charity fundraising, marketing, and community partnerships.
• Skill development: Strengthen your communication, writing, and organisational skills.
• Confidence building: Engage with funders, local businesses, and the public in meaningful ways.
• Training and support: Receive full induction and ongoing guidance from experienced staff.
• Recognition: Be part of a supportive team, attend volunteer celebrations, and receive references or certificates for your contribution.

Additional Notes / Special Requirements

• Flexible working hours and days, with some evening or weekend events required.
• An enhanced DBS check and references will be required before commencing the role.
• Travel expenses reimbursed in line with Carers Trust Solihull’s volunteer policy.

Support our mission to bring vital funding to adult carers in Solihull.
Your work helps keep services running and opens new opportunities for people who care for others.

As an Adult Carers Fundraiser Admin & Support Volunteer, you will play a key part in helping Carers Trust Solihull secure funding that enables us to continue and expand our vital services for adult carers across the borough.

Working alongside the manager, you will help identify and apply for funding opportunities, assist with administrative and community-based fundraising activities, and represent the charity in local events. Your support will directly contribute to improving the quality of life for carers by enabling new services, resources, and opportunities.

This role is ideal for someone with good communication and organisational skills who enjoys building connections and making a tangible difference in the community.

Key Roles and Responsibilities

• Research and help identify funding opportunities relevant to our work with carers.
• Support the manager with administrative tasks linked to grant applications and fundraising.
• Represent Carers Trust Solihull as a friendly and professional ambassador at fundraising events.
• Keep accurate records of fundraising activity, donations, and outcomes.
• Attend and help organise fundraising events that support our mission.
• Present pre-prepared presentations or films to funders and partners to raise awareness of our work.
• Assist or lead in writing small grant applications (and larger ones where confident).
• Collect and log donated items for our service (e.g., gift vouchers, tickets, Easter eggs, and Christmas selection boxes).
• Monitor when key funding streams renew or reopen, ensuring timely applications.
• Work collaboratively with the manager to assess the viability of opportunities within our available resources.
• Carry out any other agreed tasks related to fundraising and community engagement.

Preferred Skills and Qualities

• Good understanding of marketing and community engagement.
• Excellent written and verbal communication skills.
• Confident when approaching potential funders or representing the charity in public.
• Organised, reliable, and able to manage multiple priorities effectively.
• Experience writing small, medium, or large funding applications (desirable).
• Willingness to travel across the borough to attend events (expenses reimbursed).
• Comfortable working both independently and as part of a team.
• Able to understand and work within resource and role boundaries.
• Passionate about achieving a high-quality service for adult carers in Solihull.

What You Will Gain

• Purpose and fulfilment: Contribute directly to sustaining and growing services that support unpaid carers.
• Professional experience: Gain valuable insight into charity fundraising, marketing, and community partnerships.
• Skill development: Strengthen your communication, writing, and organisational skills.
• Confidence building: Engage with funders, local businesses, and the public in meaningful ways.
• Training and support: Receive full induction and ongoing guidance from experienced staff.
• Recognition: Be part of a supportive team, attend volunteer celebrations, and receive references or certificates for your contribution.

Additional Notes / Special Requirements

• Flexible working hours and days, with some evening or weekend events required.
• An enhanced DBS check and references will be required before commencing the role.
• Travel expenses reimbursed in line with Carers Trust Solihull’s volunteer policy.

Support our mission to bring vital funding to adult carers in Solihull.
Your work helps keep services running and opens new opportunities for people who care for others.

As an Adult Carers Fundraiser Admin & Support Volunteer, you will play a key part in helping Carers Trust Solihull secure funding that enables us to continue and expand our vital services for adult carers across the borough.

Working alongside the manager, you will help identify and apply for funding opportunities, assist with administrative and community-based fundraising activities, and represent the charity in local events. Your support will directly contribute to improving the quality of life for carers by enabling new services, resources, and opportunities.

This role is ideal for someone with good communication and organisational skills who enjoys building connections and making a tangible difference in the community.

Key Roles and Responsibilities

• Research and help identify funding opportunities relevant to our work with carers.
• Support the manager with administrative tasks linked to grant applications and fundraising.
• Represent Carers Trust Solihull as a friendly and professional ambassador at fundraising events.
• Keep accurate records of fundraising activity, donations, and outcomes.
• Attend and help organise fundraising events that support our mission.
• Present pre-prepared presentations or films to funders and partners to raise awareness of our work.
• Assist or lead in writing small grant applications (and larger ones where confident).
• Collect and log donated items for our service (e.g., gift vouchers, tickets, Easter eggs, and Christmas selection boxes).
• Monitor when key funding streams renew or reopen, ensuring timely applications.
• Work collaboratively with the manager to assess the viability of opportunities within our available resources.
• Carry out any other agreed tasks related to fundraising and community engagement.

Preferred Skills and Qualities

• Good understanding of marketing and community engagement.
• Excellent written and verbal communication skills.
• Confident when approaching potential funders or representing the charity in public.
• Organised, reliable, and able to manage multiple priorities effectively.
• Experience writing small, medium, or large funding applications (desirable).
• Willingness to travel across the borough to attend events (expenses reimbursed).
• Comfortable working both independently and as part of a team.
• Able to understand and work within resource and role boundaries.
• Passionate about achieving a high-quality service for adult carers in Solihull.

What You Will Gain

• Purpose and fulfilment: Contribute directly to sustaining and growing services that support unpaid carers.
• Professional experience: Gain valuable insight into charity fundraising, marketing, and community partnerships.
• Skill development: Strengthen your communication, writing, and organisational skills.
• Confidence building: Engage with funders, local businesses, and the public in meaningful ways.
• Training and support: Receive full induction and ongoing guidance from experienced staff.
• Recognition: Be part of a supportive team, attend volunteer celebrations, and receive references or certificates for your contribution.

Additional Notes / Special Requirements

• Flexible working hours and days, with some evening or weekend events required.
• An enhanced DBS check and references will be required before commencing the role.
• Travel expenses reimbursed in line with Carers Trust Solihull’s volunteer policy.

Support our mission to bring vital funding to adult carers in Solihull.
Your work helps keep services running and opens new opportunities for people who care for others.

As an Adult Carers Fundraiser Admin & Support Volunteer, you will play a key part in helping Carers Trust Solihull secure funding that enables us to continue and expand our vital services for adult carers across the borough.

Working alongside the manager, you will help identify and apply for funding opportunities, assist with administrative and community-based fundraising activities, and represent the charity in local events. Your support will directly contribute to improving the quality of life for carers by enabling new services, resources, and opportunities.

This role is ideal for someone with good communication and organisational skills who enjoys building connections and making a tangible difference in the community.

Key Roles and Responsibilities

• Research and help identify funding opportunities relevant to our work with carers.
• Support the manager with administrative tasks linked to grant applications and fundraising.
• Represent Carers Trust Solihull as a friendly and professional ambassador at fundraising events.
• Keep accurate records of fundraising activity, donations, and outcomes.
• Attend and help organise fundraising events that support our mission.
• Present pre-prepared presentations or films to funders and partners to raise awareness of our work.
• Assist or lead in writing small grant applications (and larger ones where confident).
• Collect and log donated items for our service (e.g., gift vouchers, tickets, Easter eggs, and Christmas selection boxes).
• Monitor when key funding streams renew or reopen, ensuring timely applications.
• Work collaboratively with the manager to assess the viability of opportunities within our available resources.
• Carry out any other agreed tasks related to fundraising and community engagement.

Preferred Skills and Qualities

• Good understanding of marketing and community engagement.
• Excellent written and verbal communication skills.
• Confident when approaching potential funders or representing the charity in public.
• Organised, reliable, and able to manage multiple priorities effectively.
• Experience writing small, medium, or large funding applications (desirable).
• Willingness to travel across the borough to attend events (expenses reimbursed).
• Comfortable working both independently and as part of a team.
• Able to understand and work within resource and role boundaries.
• Passionate about achieving a high-quality service for adult carers in Solihull.

What You Will Gain

• Purpose and fulfilment: Contribute directly to sustaining and growing services that support unpaid carers.
• Professional experience: Gain valuable insight into charity fundraising, marketing, and community partnerships.
• Skill development: Strengthen your communication, writing, and organisational skills.
• Confidence building: Engage with funders, local businesses, and the public in meaningful ways.
• Training and support: Receive full induction and ongoing guidance from experienced staff.
• Recognition: Be part of a supportive team, attend volunteer celebrations, and receive references or certificates for your contribution.

Additional Notes / Special Requirements

• Flexible working hours and days, with some evening or weekend events required.
• An enhanced DBS check and references will be required before commencing the role.
• Travel expenses reimbursed in line with Carers Trust Solihull’s volunteer policy.