Youth officer jobs in europe

As our HyPE Manager you will set up, embed and lead the implementation of Voyage’s Horizons Youth Programme for the Environment, a pioneering employability, mentoring and wellbeing programme combining a weekly Job Club, renewable energy and green-skills training, construction pathways and embedded therapeutic support linked to employment opportunities delivered in partnership with Repowering London, New city College and Talking Quest. 

The postholder will oversee recruitment, delivery and progression impact and outcomes for young people (16–21) from New City College, PRUs, Youth Offending Teams, courts, social workers and local schools, ensuring they are supported into education, apprenticeships, training or work. We are currently exploring expansion possibilities for the long term unemployed, as an alternative to custody and for refugee communities. We seek someone who can help embed the programme in the community college and assist our plans to expand.

About the Project

The National Lottery funded Meddwl Ymlaen Mind Our Future project is led by The Venture on behalf of the North East Wales partnership. The aim is to empower young people aged 11 to 24 to shape mental health services across Wrexham and Flintshire. Young people will co develop and influence policy, processes and services that affect their mental wellbeing.

Overview of the Role

The Senior Youth Engagement Officer will lead the youth engagement and co production elements of the project. A key part of the role is to lead and facilitate the Young Leaders Advisory Board (YLAB), made up of 11 to 24 year olds who guide the direction of the project. The post holder will support their leadership development, confidence and decision making.

The role also includes developing a strategy to recruit and engage more young people, delivering a calendar of youth led events, and ensuring young voices shape all aspects of the project. The officer will represent Mind Our Future in meetings with stakeholders and support young people recruited into paid roles within the project.

Main Duties

• Lead and facilitate the YLAB, plan and chair meetings, and support members to take an active leadership role.
• Recruit and engage a diverse group of young people to join the YLAB and ensure the group reflects the communities of Wrexham and Flintshire.
• Provide mentoring, coaching and personal development opportunities for young people involved.
• Co design project activities with young people, ensuring their voices guide decisions, planning and evaluation.
• Organise workshops, events and activities and ensure all logistics are managed effectively.
• Build strong relationships with stakeholders and communicate project updates.
• Recruit and support young people in paid roles within the project, including training, mentoring and ongoing support.
• Act as the designated safeguarding lead for the project including implementing safeguarding procedures, providing guidance, and liaising with authorities when required.
• Contribute to overall project success through planning, evaluation and collaborative teamwork.
• Maintain high standards of professionalism, confidentiality and equality across all work.

Person Specification

Qualifications

Essential
• Minimum Level 3 qualification in Youth Work
• Clean UK driving licence
• Level 3 safeguarding children in Wales qualification
• Significant experience in a Safeguarding Lead or equivalent role

Desirable
• Diploma or degree in mental health, particularly relating to children and young people
• Health and Safety training

Skills and Abilities

Essential
• Strong communication skills in English
• Experience working with young people and young adults
• Empathy and ability to connect with young people
• Strong verbal and written communication skills
• Excellent planning and organisational skills
• Good IT skills including digital communication and online working
• Ability to produce quality reports and presentations
• Ability to engage effectively with stakeholders and motivate young people
• Ability to work collaboratively and create a positive environment
• Ability to travel throughout Wrexham, Flintshire and occasionally across Wales
• Ability to meet deadlines and targets

Desirable
• Welsh language skills
• Ability to adapt communication styles for different needs (for example Makaton)

Experience and Knowledge

Essential
• Significant safeguarding experience
• Knowledge of youth work and youth development
• Understanding of monitoring and evaluation in a youth work setting
• Awareness of youth sub cultures and social media
• Experience of youth participation or consultation
• Understanding of professional boundaries
• Experience implementing Health and Safety and Equalities processes
• Knowledge of Youth Work in Wales: Principles and Purposes and related frameworks
• Knowledge of Data Protection and GDPR
• Understanding of the importance of Welsh language and culture

Desirable
• Experience of co production
• Experience working with diverse groups of young people
• Experience working with varied abilities
• Partnership working experience
• Project management experience or transferable skills

Personal Qualities

Essential
• Trustworthiness
• Commitment to professional development
• Commitment to equality and challenging discrimination
• Integrity, discretion and strong personal drive
• Ability to problem solve and work under pressure
• Compassion and patience
• Strong interpersonal and listening skills
• Genuine care for supporting others
• Fun, engaging and adventurous attitude

Other Requirements

• Ability to carry equipment between locations
• Frequent evening and weekend work will be required
• Enhanced DBS check required

This is a fantastic opportunity to build and grow Molly Rose Foundation's lived engagement and youth programmes, and to push for a safer online world driven by the needs and perspectives of lived experience.

Working at the intersect of tech accountability, online safety and suicide prevention, Molly Rose Foundation was founded following the death of 14-year old Molly Russell.

Today we’re committed to building and amplifying the voices of those with lived experiences of online harm – and to challenging government, regulators and tech firms to listen to and act decisively on what they have to say.

MRF is grounded in youth and lived experience, and we will always ensure the lessons of Molly's death act as a catalyst for positive change. You’ll help us maintain and grow our networks to build and amplify the voices of youth, bereaved parents and young people directly impacted by harms, and have a track record in working in partnership across the sector.

As Lived Engagement and Youth Manager you'll build strong internal and external relationships and ensure lived experience and youth runs through everything we do.

You'll manage day-to-day relationships with youth and lived experience advocates and have a strong focus on safeguarding and trauma-informed practice.

This is a rare opportunity to build a lived experience programme that really counts. We’re looking for an exceptional individual who’s motivated by the chance to really make a difference. Your work will help to ensure that tomorrow’s young people live long and stay strong.

MRF is committed to flexible working and we know that a diverse team makes us stronger. While we are recruiting for a full-time position, we will actively consider part-time and flexible working requests.

Please submit your CV and a cover letter, no more than two sides each, to apply for this role. Please refrain from overly relying on AI in your application. 

Are you passionate about supporting young asylum-seekers and refugees to make change happen? Do you understand campaigning and how to achieve change in the British political system? You could be our new Campaigning Youthworker! 

About Young Roots 

At Young Roots, we want to see a compassionate and welcoming society for young refugees and asylum seekers in the UK. We work alongside young people seeking safety in the UK, building trusted relationships, providing practical and emotional support and promoting young people’s rights and power.  

About the role 

The Campaigning Youth Worker (CPW) will work with young people who are seeking asylum or who are refugees in London to support them to seek change to laws and policies on the issues that matter to them. This role will be located in Croydon and King’s Cross, with regular attendance at our service delivery venues across London as required, including one evening activity per week. 

The role will involve building relationships with young people who attend Young Roots activities and through outreach, having ongoing conversations about the issues that young people say matter to them, working with young people to understand how change to laws and policies happens and supporting young people to take campaigning action to achieve that change.

Please see the job description and person specification for full details. 

Young Roots and recruitment 

Young Roots recognises the positive value of diversity, promotes equity and challenges discrimination. We welcome and encourage applications from people of all backgrounds, particularly those who can face disadvantage in employment, such as people from Black, Asian and minority ethnic backgrounds, LGBTQ+ individuals and people with disabilities. As an organisation that supports refugees, asylum seekers and migrants, we particularly welcome applications from people within these communities. We offer a guaranteed interview for those with lived experience of the asylum system and those with disabilities, where they meet the essential elements of the person specification.

If aspects of the application process create barriers to you applying and you’d like any adjustment to the process or you’d like an informal discussion or advice on your application, please get in touch. We would also like to alert you to the existence of organisations which supporting people from under-represented groups to access employment, who can advise you on applying for this role. For example, Scope, Young Women’s Trust and Experts by Experience. 

Young Roots is committed to safeguarding and promoting the welfare of children and young people and expects all staff to share this commitment. We take this duty very seriously. 

Our work is underpinned by policies and procedures which promote safe working practices. We have a framework of training and supervision which everyone is expected to comply with and systems for monitoring, quality assurance and gaining service user feedback. On joining you will be expected to be part of this approach to safeguard our service users. 

All posts are subject to a safer recruitment process which includes vetting checks such as enhanced criminal records and barring, scrutiny of employment history, references and other checks. 

To apply 

To apply, please submit your CV alongside a personal statement by the closing date outlining how you would be a great fit for the role. 

Your personal statement should be no more than 800 words, answering the following questions: 

1. What is your motivation for working with Young Roots? 

2. What is your motivation for applying for this role specifically? 

3. What skills and experience would you bring that will enable you to be successful in this role?Please ensure you refer to the essential criteria on the person specification and provide examples to demonstrate how and where you meet the criteria. Your skills and experience could be gained through work, community involvement, or personal and family experiences. 

Please submit your application via Charity Jobs. 

No agencies, please. 

Closing date: 10am on Monday 5 January 2026 

Interview date: 19 or 20 January (you will be able to indicate a preference if you are shortlisted). Successful applicants will then have a second interview round - a young person panel on the evening of Thursday 22 January at our Brent project. 

We are seeking an experienced, community-minded Office Manager / Mentor to join us three days per week. This role is ideal for someone who combines strong organisational and systems-building skills with a genuine passion for helping young people grow.

You’ll ensure our office runs efficiently by maintaining and improving admin systems, supporting project delivery and strengthening our communication with partners, parents and governance structures. Alongside these operational duties, you’ll also play a supportive mentoring role guiding young people joining Voyage for placements and work experience, modelling professionalism and helping them develop workplace confidence whilst imparting your knowledge.

Voyage is seeking a part‑time, income‑focused and results‑driven Head of Fundraising and Strategic Partnerships to help secure long‑term, diversified investment for our youth leadership programmes, with a particular emphasis on trusts and foundations, business development and strategic partnerships in the CSR youth, heritage and environmental space.

We are therefore seeking an experience professional who has a great production understanding of the role fund raising plays in shaping applications and grants. We therefore seek someone who can equally sit across trusts and foundations, business development and partnership building and help Voyage move from “opportunity‑led” to strategic, long‑term income growth.

The Senior Evidence & Evaluation Manager sits within the Impact & Evidence directorate at the heart of Youth Futures Foundation.

You will play a central role in building the evidence base on what works to support young people into good jobs.

Working with three Heads of Evaluation, the Deputy Director and the Director, you will help ensure our evaluations are designed to generate credible evidence of what works.

• You will work closely with independent evaluators and delivery partners and colleagues in our Programmes & Grants and Policy & Communications directorates, you will assess the evaluability of interventions, and lead the design and delivery of large-scale, complex impact evaluations.
• You will manage a portfolio of projects, leading some directly, and overseeing others while supporting more junior colleagues.
• You will also contribute to strengthening our ‘evaluation architecture’, leading projects that enhance data infrastructure and access to administrative datasets, and set standards for methodological rigour in the sector.

This role can be based at our Birmingham, Leeds or London hub. We currently operate a hybrid model of two-days per week in the office and three-days from home.

For more information on this role, please download our recruitment pack.

Due to receiving high volumes of interest in our opportunities, this vacancy may close earlier than the advertised deadline. To ensure your application is considered, please submit it as soon as possible.

The Funding and Development Officer will play a key role in identifying, securing, and managing income streams through grants, partnerships, donations, and fundraising initiatives. This role will also support organisational growth by developing strategic relationships, improving funding processes, and enhancing the charity’s visibility and impact.

The Funding & Development Officer will work closely with the Centre Manager to identify a strategic funding & finance plan to ensure sustainability for all the charities projects.

LYCC is a youth and community organisation (registered charity) dedicated to empowering young people, adults and strengthening local communities. We provide inclusive programmes, opportunities, and support that help individuals develop confidence, skills, and a sense of belonging. Our name change in 2011, to Litherland Youth & Community Centre, and our building redevelopment in 2014/2015 reflects how our organisation had shifted from a traditional “boys club” and “youth centre” to now a youth and community centre. Taking a holistic approach in relation to our services facilitated and support offered. LYCC identified the need for this holistic approach and has worked since to provide services and support for individuals of all ages within our community. The Funding & Development Officer, will help LYCC be proactive to local identified need and help to source and secure funds to faciltiate support. 

Current charity turnover approx. £300k. 

This exciting new project has emerged following consultation and engagement work in 2025 across central government, Local Authorities, regional London-wide partners, Young Camden, Young Brent and Young Westminster Foundations, and the local voluntary sectors.

The result is an innovative, co-funded project, seeking to work in new ways for the benefit of young people at risk of serious youth violence in this part of NW London. This role will coordinate all aspects of the management of this programme, driving high quality delivery and outcomes. 

The focus of this collaboration is to tackle Serious Youth Violence and promote youth safety across the stretch of NW London from Kilburn High Road (Brent & Camden), through Queen’s Park (Brent & Westminster) which covers three boroughs. This part of London has been a hotspot for serious youth violence for many years, for young people both based in these communities and passing through. Tackling the issues in this part of North West London has always been a challenge, as the area is split across Local Authority lines. The area also features high levels of serious violence involving young people, both committing offences and also being victims of them (often interlinked). This is coupled with high levels of poverty and inequality, and also features relatively fewer youth opportunities than elsewhere in these boroughs.

As part of the project, the Local Authorities of each area are contributing funds over the next three years to fund collaborative and cross-borough projects that will support the safety of children and young people in this community. The project is funded by John Lyon’s Charity.

The project recognises that many of the challenges in this part of London are structural, but is motivated by the hope that key partners working together in new and different ways can help to breakdown some of the barriers that interrupt effective intervention and prevention.

The project does not seek to reinvent the wheel, and instead seeks to leverage the existing connections, expertise, partnerships and projects already happening within local areas.

Please see summary details below: 

Job title: Programme Director, Youth Safety Programme (NW London)

Location: YCF office, with travel across central and North West London

Reporting to: CEO, Young Camden Foundation  

Hours: Full time (37.5 hours per week), with some out of hours work / visits occasionally required, at least 3-4 days pw required in person

Salary: £46,000-£46,000 p.a. (depending on experience)

Start date: ASAP, ideally January 2026

Contract type: Fixed term (three years)

Please download the application pack for full details of this role. 

Chief Executive Officer

Salary: £49, 282 - £54,495 per annum

Location: Gorse Hill Studios, Trafford, Manchester (Some remote working will be considered)

Contract Type: Full time, permanent

About Gorse Hill Studios

Gorse Hill Studios is a dynamic and ambitious youth and community arts charity. At the heart of our organisation is a belief that all young people deserve to feel valued, supported and inspired. We work with young people to build confidence, creativity and community connections, ensuring they have the opportunities and encouragement they need to thrive.

We believe that creativity can transform lives, and we are committed to placing young people at the centre of everything we do. Their voices, ideas and experiences help shape our programmes, partnerships and strategic direction.

We are entering an exciting phase of growth and development. Our team currently includes 20 core staff and a wider network of volunteers and creative practitioners, delivering a diverse portfolio of youth arts sessions, community engagement projects, creative wellbeing initiatives and partnership-led activity with local schools and organisations. The CEO will play a pivotal role in leading this portfolio, strengthening our impact, championing youth voice and ensuring young people continue to shape our future direction as we move into the next chapter of our development.

About the Role

As CEO, you will provide strategic, compassionate and visionary leadership, ensuring Gorse Hill Studios delivers its mission to empower and inspire young people. Reporting to the Board of Trustees, you will hold overall responsibility for the organisation’s performance, culture, operations and long-term sustainability. This role calls for someone who demonstrates strong strategic insight with the ability to influence and inspire others, using emotional intelligence and collaborative leadership to build positive internal and external relationships.

A fundamental part of this role is your commitment to embedding young people’s voice in decision making. You will champion their perspectives, ensuring programme development, strategy and organisational culture reflect the needs and aspirations of the young people we serve.

You will also be an ambassador for the charity, building trusted relationships with young people, partners, funders and the wider community. This role requires a leader who is values led, resilient and passionate about supporting young people through the arts and creative engagement.

Roles and Responsibilities

Strategic Leadership and Governance

• Lead on the development and delivery of the charity’s long-term strategy, with young people meaningfully involved
• Ensure compliance with all statutory, regulatory and governance requirements, including Charity Commission expectations and safeguarding duties
• Provide clear, timely reporting to the Board
• Support the Board to operate effectively

Financial Management and Income Generation

• Oversee budgeting, financial planning and responsible management of all funds
• Lead a diverse income generation strategy
• Identify sustainable opportunities for organisational growth

Operational Management and Programme Delivery

• Oversee day to day operations and ensure systems are effective
• Ensure programmes are high quality, inclusive and reflective of young people’s needs and feedback
• Act as Designated Safeguarding Lead, or ensure robust safeguarding practices across the organisation

People Leadership and Culture

• Inspire, support and lead a dedicated staff and volunteer team
• Champion a positive, inclusive and collaborative working culture
• Oversee recruitment, wellbeing and performance management

External Relations and Advocacy

• Act as the primary spokesperson and ambassador for Gorse Hill Studios
• Build strong relationships with partners, funders and stakeholders
• Advocate for and with young people locally and nationally
• Represent the charity confidently at events and in the media

Skills and Experience

Essential:

• Senior leadership experience in the charity, youth, arts or wider non-profit sector
• Strong financial management skills
• Proven success in fundraising or income generation
• Excellent communication and stakeholder engagement
• Knowledge of safeguarding practices in youth settings
• Experience leading teams and developing positive organisational cultures
• Strategic leadership experience

Desirable

• Experience in the youth arts or creative community sector
• Understanding of the Trafford community landscape

Values and Commitment

We are committed to promoting equity, diversity and inclusion. We welcome applications from individuals who share these values and are passionate about empowering young people.

An enhanced DBS check will be required.

Application Details

To apply, please submit your CV and covering letter.

Closing date: 19 January

Interview date: 23 January at Gorse Hill Studios

Interviews will include a stakeholder panel and a formal interview.

REF-225 658

In2STEM Alumni Officer

Job Description 

Reports to: Head of Programmes

Part Time (0.6) - £27,675 FTE 

As the Alumni Officer, you will be someone who enjoys working with young people and is passionate about supporting them to progress to vibrant degrees and careers in STEM. The post holder will have strong knowledge and understanding of the barriers facing young people from low socioeconomic backgrounds accessing STEM education and careers across the UK.

The Alumni Officer will deliver the continuation of support for hundreds young people who complete the In2STEM programme every year, supporting them with continued support throughout year 13/S6 as they progress to post FE education, apprenticeships and training, and providing long term careers opportunities.

The post holder will be an organised and motivated self-starter who thrives in the face of change, enjoys creative problem solving, working in a team and can achieve deadlines on a tight timescale.

In2scienceUK is a remote-based organisation, that requires occasional travel across the UK for events, internal & external meetings and staff co-working days.

Your specific duties will include:

• Evaluate existing alumni activities to recommend and implement improvements and new initiatives to support the delivery of a high quality programme experience to support In2STEM alumni, aligning with learning objectives, feedback and our theory of change.

• Develop and deliver engaging alumni communications e.g. newsletters & email updates, to keep In2STEM alumni informed of news, opportunities and events.

• Plan, organise and support the delivery of online workshops aligned to support In2STEM alumni progression milestones. 

• Maintaining up to date alumni records, in accordance with data protection, as well as working closely with the Data, Impact and Evaluation Manager to evaluate In2STEM participant progression.

• Support with the collection and creation of case studies and alumni stories to promote alumni achievements and strengthen the community.

• Support the planning and delivery of organisational in-person events e.g. celebration days/conferences.

• Work closely with the In2STEM programme and fundraising teams to ensure funder requirements are met.

As duties and responsibilities change, the job description will be reviewed and amended in consultation with the post holder. The post holder will carry out any other duties that are within the scope, spirit and purpose of the job as requested by the line manager. All staff must undertake all mandatory training, checks and compliance as instructed by the organisation.

Essential: 

• Prior experience managing alumni communities.

• Prior experience of working with students transitioning from further education (particularly year 13/S6) into STEM degrees and careers.

• Excellent organisational skills, able to multitask and manage a varied workload while paying attention to the tiny details

• Experience delivering programmes and/or projects within the education, career development and/or employability sector.

• An understanding of the social and economic barriers that prevent some people from progressing into STEM degrees and careers.

• Experience working with one or more of the following groups: young people, people from low-socioeconomic backgrounds, volunteers, universities or STEM professionals/employers.

• Experience developing and maintaining strong working relationships with internal and external stakeholders at various levels.

• Experience designing and delivering events, both online and in-person, such as workshops and networking events.

• Excellent written and verbal communication skills, with strong presentation skills and an ability to adapt to a range of audiences.

• Flexible and adaptable, with an ability to pick up new tasks quickly, showing resilience when faced with challenges.

• Knowledge, understanding or experience of programme or project evaluation. 

• Working collaboratively and supporting fostering a collegiate workplace environment.

• Upholds the values of our code of conduct and is respectful to all.

• Competent user of Google Suite, Word, Excel, Canva, Powerpoint, Gmail, email marketing software.

Desirable: 

• Level 6 qualification or higher in careers guidance and development from the CDI.

• Prior experience of working with Gatsby Benchmarks of good careers guidance.

• Prior knowledge or experience of GDPR and safeguarding.

• Experience of using task/project management software and databases.

Benefits: 

At In2scienceUK we practise what we preach by giving all staff opportunities to progress in their careers. You will have the opportunity to develop your career with guidance from your line manager to get you to the next level from day one. 

Although we take our career development seriously we also value work life balance. You will have the opportunity to work flexibly from home, balancing your caring responsibilities, volunteer commitments, hobbies and anything else that makes you happy. 

In2scienceUK offers a Pension Salary Sacrifice Scheme along with other staff benefits. These include financial and wellbeing support through our employee assistance programme (EAP) and 100’s of retail and high street discounts.

You will have 28 days of annual leave per annum (pro rated to 0.6 FTE equivalent), plus bank holidays. 

Commitment to Safeguarding: 

In2scienceUK is committed to our responsibilities for safeguarding and promoting the welfare of children, young people and vulnerable adults as outlined in Working Together to Safeguard Children. We are committed to recruiting candidates who share this commitment to safeguarding, and therefore we apply robust recruitment and selection procedures to ensure that the people selected are right for the job, and that all candidates are appropriately screened prior to appointment. 

The following pre-employment checks will be undertaken as applicable:

• References 

• DBS check and/or Overseas criminal records check where applicable

• Self-Disclosure 

• Identity check 

• Right to work in the UK 

• Evidence of qualifications applicable to the role 

• Confirmation of registration with applicable registered body where applicable 

Many of our roles involve working with children and we will therefore take up references prior to your appointment. You should provide details of referees including your current and previous employers, covering the last 5 years. Your current or previous employer will be asked about disciplinary offences relating to children, if the role involved working with children, including any in which the penalty is time expired. We will also ask if you have been the subject of any child protection concerns and if so, the outcome of any enquiry or disciplinary procedure.

We are seeking a proactive and detail-oriented Grants and Fundraiser Officer to help secure vital funding for Chelmsford Cathedral’s mission and outreach.

This role focuses on raising income from UK trusts, foundations, and statutory funders, ensuring sustainable support for our work.

As part of our team, you will:

• Research and identify potential funders and grant opportunities.
• Develop compelling proposals and applications that clearly communicate our needs.
• Build and maintain strong relationships with donors and stakeholders.
• Work closely with senior leadership and colleagues across departments to gather information and align funding strategies with our mission.

If you have excellent research, writing, and interpersonal skills, a creative approach to fundraising we’d love to hear from you.

Live Unlimited are passionate about empowering care-experienced children and care-leavers in Barnet and our opportunities really do make a difference; from helping care-experienced children and young people feel more confident and positive about themselves, supporting them into meaningful new jobs, developing new skills, reducing stress and anxiety and making their feel equal to their peers. 

We are seeking a highly organised and passionate Project Officer to help deliver and co-ordinate four of our key programmes: 

• Driving Ahead – supporting care-experienced young people to learn to drive
• Peer Lives – a new peer mentoring scheme co-designed with young people
• Friends of Live Unlimited – our supporter engagement and fundraising community
• Imagination Unlimited – providing care-experienced young people with items that spark creativity, joy, and personal growth

As our range of schemes evolve over time, the Project Officer will have an opportunity to work on new projects as they are developed.

Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

Main Purpose of the Role: 

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.   
  
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

Specific Tasks: 

1. Proactive Family Support  

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)  

• Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear   

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care  

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern  

2. Advanced and End-of-Life Care Support 

• Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care. 

• Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

• Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing. 

• Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making. 

• Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations. 

• Offer signposting to bereavement support and follow-up services for families after loss. 

3. Wellbeing Tracking and Outcome Measurement  

• Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)  

• Collaborate with families to co-create action plans and track progress  

• Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.  

4. Community Engagement and Event Delivery  

• Organise and deliver regional meetups (minimum one per quarter)  

• Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)  

• Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)  

• Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne 

5. Stakeholder Collaboration  

• Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities  

• Represent Action Duchenne in across your regions and build relationships with local networks  

6. Administration and Reporting  

• Maintain accurate records of all interactions and support provided  

• Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact  

• Support development of CRM processes and service delivery improvements  

7. Key Performance Indicators (KPIs):  

• New contact acknowledgement email: within 3 working days

• New contact follow-up call: within 7–10 working days 

• Families contacted per week: 12–15 hours of direct contact

• Regional meetups: 1 per quarter

• Support groups delivered: 9–12 per year

• CRM data entry: within the same day of interaction

• Family outcomes tracked: via wellbeing questionnaire and action plan 

• Number of families receiving end-of-life care guidance or resources per quarter. 

• Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request. 

• Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services. 

• Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Please find the job specification, including required skills and qualifications below.

Application deadline: 22nd December at 9am GMT.