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Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted today Apply Now
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The Executive Assistant will provide principle administration and project support to the Executive Director and Leadership Team.
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Independent Society of Musicians, Multiple Locations (Hybrid)
28 hours per week – Circa £45K pro rata
The ISM is now looking for a highly experienced Administrator and Secretary to work alongside the Chief Executive.
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Closing in 7 days
Making Music, London (Hybrid)
£60,000 per year
We are looking for a part-time (2 days per week) Finance Director to be responsible for all aspects of the group’s finances.
Posted 2 days ago
LimbPower, Multiple Locations (On-site)
£27,000 - £28,000 per year
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Closing tomorrow
Cerebra, Remote
£60,000 - £65,000 per year
We are entering an exciting chapter. With an ambitious new strategy, we are seeking an exceptional COO to help shape and deliver our vision.
Posted 1 week ago
West London Centre for Counselling, Hammersmith (On-site)
£29,500 per year
Posted 1 week ago Apply Now
Page 1 of 7
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.