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Closing tomorrow
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 2 weeks ago Apply Now
Closing in 5 days
The Royal College of Anaesthetists, London (Hybrid)
£42,343 per year
We are seeking an organised and proactive Executive Assistant to provide confidential, high-quality support to the President and CEO.
Posted 4 days ago Apply Now

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Woodland Heritage, United Kingdom (Hybrid)
£50,000 - £70,000 per year
Posted 2 weeks ago
Sheldrick Wildlife Trust UK, Billingshurst (Hybrid)
£55,000 - £60,000 per year
Lead our UK fundraising strategy and build the individual giving and major donor programmes that will take SWT to the next level.
Posted 2 days ago Apply Now
Closing in 3 days
Pellipar Services - The Worshipful Company of Skinners, London (On-site)
£45,000 - £50,000 per year
Join The Skinners' Company as Personal Assistant to the Chairman & CEO at the heart of governance, charity and civic life
Posted 4 days ago Apply Now
Carney's Community, London (Hybrid)
£45,000 - £55,000 pa, FTE
Senior role in a high impact and influential youth charity in London, overseeing fundraising, HR and operations.
Posted 1 week ago Apply Now
Age UK Wandsworth, Multiple Locations (On-site)
£29,286
Age UK Wandsworth are creating this new role to support our CEO with social media, marketing and organising events.
Posted 1 week ago
Closing in 4 days
The Gurkha Welfare Trust, Salisbury, Wiltshire (Hybrid)
£65,000 per year
The Gurkha Welfare Trust seeks a Chief of Staff to support the CEO and ensure efficient, effective delivery of operations and strategy
Posted 1 week ago Apply Now
Closing today at 08:00
Conway Hall, London (Hybrid)
£21,600 per year (£36,00 pro rata)
Posted 1 week ago
Theatr Iolo, Cardiff, Cardiff (Hybrid)
£30,000 per year
Posted 5 days ago
Closing in 5 days
QCCA Ltd, NW5, London (Hybrid)
£45,000 per year (pro rata)
We’re looking for an exceptional Finance, Systems & Business Manager to help lead the next chapter of our journey.
Posted 1 week ago Apply Now
Kingston Carers' Network, Multiple Locations (Hybrid)
£14,400 pro rata for 14 hours per week
Posted 2 weeks ago
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Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Refreshed on: 21 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.