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This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Application deadline: 24th November at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Pathways Advisor
Salary: £17,500 (0.5 FTE)
Location: Midlands
Contract Type: Part-Time, fixed term (2-years)
Reports To: Regional Manager
Service Area: The Skill Mill
Place of Work: Remote with the expectation of some regional travel
About The Skill Mill
The Skill Mill is a multi-award-winning social enterprise providing employment opportunities for young people aged 16–18 involved in the criminal justice system. We deliver environmental and community improvement projects that build skills, improve life chances, and reduce reoffending.
Young people aged 16-18 will be employed by The Skill Mill for 6-months, working in small cohorts of four, under the direct supervision of a dedicated Supervisor. During this period, the programme integrates practical skills training, offering short courses and on-the-job instruction in areas like environmental management, construction, and recycling, using tools such as trimmers and lawnmowers. The goal is for participants to achieve recognized qualifications like the CSCS card and an AQA Level 2 qualification, all while receiving comprehensive support, in collaboration with youth offending services.
Following the six-month employment phase, young people receive three months of dedicated support designed to facilitate their transition into new employment, training, or educational opportunities. This support includes individualised assistance with career development and job progression, practical aid such as creating action plans, crafting CVs, and practicing interview skills. Furthermore, The Skill Mill advocates for young people facing significant barriers to employment, ensuring they receive tailored guidance to secure their next steps.
Purpose of the Role:
To support young people aged 16+, particularly those involved with The Skill Mill programme, by delivering tailored, person-centered pathways into education, training, and long-term employment. The postholder will act as a trusted advisor, helping young people overcome barriers, build confidence, and transition successfully into sustainable opportunities with partner organisation and local employers.
Support for young people from the Pathway Advisor will begin in the 6-month employment phase, with liaison with the young person, Supervisors and Commercial Sales Manager, to begin to build relationships, understand aspirations and identify potential opportunities.
After the 6-month employment phase, key support will transition from the Supervisor to the Pathway Advisor role, with 3-months of person-led support offered to prepare for, enter, and sustain further employment, training, or educational opportunities. Support will be tailored to each young person’s needs and is likely to be a combination of remote/ in-person throughout the 9-months.
Key Responsibilities
Deliver intensive 1:1 employability and progression support to young people on The Skill Mill programme, focusing on post-placement career development, training and sustained employment outcomes.
Work in partnership with Youth Justice Services and employer networks to identify and promote routes into education, apprenticeships, employment and volunteering.
Co-produce personalised action plans with young people, based on individual strengths, goals and support needs, reviewing progress and adapting interventions as required.
Provide practical employability support including CV development, interview preparation, job search guidance, and workplace readiness.
Build trusted, motivational relationships with young people using a trauma-informed and strengths-based approach.
Act as a key link between young people and partner organisations, including employers, training providers, FE colleges and specialist support services.
Advocate for young people with complex or multiple barriers to ensure equitable access to opportunities and remove systemic obstacles.
Maintain accurate records, track progress, and contribute to outcome reporting for funders and commissioners.
Promote equality, diversity, and inclusion, recognising barriers such as discrimination, offending history, housing instability and mental health needs.
Collaborate closely with Youth Justice caseworkers, internal teams, local authorities, and external agencies to deliver coordinated, wraparound support.
Stay informed on labour market trends, skills pathways, and funding opportunities to enhance progression options for young people.
Person Specification
Essential Criteria:
Experience providing employability and progression support to young people, with a focus on accessing education, training, and sustained employment.
Strong understanding of the challenges faced by young people with offending histories.
Excellent interpersonal and motivational skills, with the ability to build trust and rapport quickly.
Ability to design and deliver effective action plans that lead to employment, training, or further education outcomes.
Knowledge of local labour market, training providers, and employability services.
Proficient IT skills and ability to maintain accurate case records and outcomes data.
Ability to work independently and manage a dynamic caseload.
Commitment to equality, diversity and inclusion in employment and service delivery.
A flexible and collaborative approach to partnership working.
Desirable Criteria:
Direct experience working with The Skill Mill or similar social enterprise programmes.
Lived experience of youth justice, care, or NEET pathways.
Knowledge of trauma-informed practice.
Experience collaborating with employers or brokering placements.
Knowledge of relevant legislation (e.g., safeguarding, GDPR).
Familiarity with case management systems or youth work platforms.
Qualification in careers guidance, youth work, or coaching.
Understanding of supported employment models (e.g., IPS, Youth Hubs).
Additional Requirements:
Enhanced DBS check required.
Willingness to work flexible hours, including occasional evenings/weekends.
Travel between partner sites or outreach locations may be required.
How to Apply:
The Skill Mill is an equal opportunities employer and welcomes applications from all suitably qualified individuals, regardless of background.
To apply please send a CV and cover letter setting out your experience, qualifications and how you meet the requirements of the person specification.
To apply please send a CV and cover letter setting out your experience, qualifications and how you meet the requirements of the person specification
The Skill Mill is a multi-award-winning social enterprise which provides employment opportunities for young ex-offenders between sixteen and eighteen
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Pathways Advisor
Salary: £17,500 (0.5 FTE)
Location: South of England / London
Contract Type: Part-Time, fixed term (2-years)
Reports To: Regional Manager
Service Area: The Skill Mill
Place of Work: Remote with the expectation of some regional travel
About The Skill Mill
The Skill Mill is a multi-award-winning social enterprise providing employment opportunities for young people aged 16–18 involved in the criminal justice system. We deliver environmental and community improvement projects that build skills, improve life chances, and reduce reoffending.
Young people aged 16-18 will be employed by The Skill Mill for 6-months, working in small cohorts of four, under the direct supervision of a dedicated Supervisor. During this period, the programme integrates practical skills training, offering short courses and on-the-job instruction in areas like environmental management, construction, and recycling, using tools such as trimmers and lawnmowers. The goal is for participants to achieve recognized qualifications like the CSCS card and an AQA Level 2 qualification, all while receiving comprehensive support, in collaboration with youth offending services.
Following the six-month employment phase, young people receive three months of dedicated support designed to facilitate their transition into new employment, training, or educational opportunities. This support includes individualised assistance with career development and job progression, practical aid such as creating action plans, crafting CVs, and practicing interview skills. Furthermore, The Skill Mill advocates for young people facing significant barriers to employment, ensuring they receive tailored guidance to secure their next steps.
Purpose of the Role:
To support young people aged 16+, particularly those involved with The Skill Mill programme, by delivering tailored, person-centered pathways into education, training, and long-term employment. The postholder will act as a trusted advisor, helping young people overcome barriers, build confidence, and transition successfully into sustainable opportunities with partner organisation and local employers.
Support for young people from the Pathway Advisor will begin in the 6-month employment phase, with liaison with the young person, Supervisors and Commercial Sales Manager, to begin to build relationships, understand aspirations and identify potential opportunities.
After the 6-month employment phase, key support will transition from the Supervisor to the Pathway Advisor role, with 3-months of person-led support offered to prepare for, enter, and sustain further employment, training, or educational opportunities. Support will be tailored to each young person’s needs and is likely to be a combination of remote/ in-person throughout the 9-months.
Key Responsibilities
Deliver intensive 1:1 employability and progression support to young people on The Skill Mill programme, focusing on post-placement career development, training and sustained employment outcomes.
Work in partnership with Youth Justice Services and employer networks to identify and promote routes into education, apprenticeships, employment and volunteering.
Co-produce personalised action plans with young people, based on individual strengths, goals and support needs, reviewing progress and adapting interventions as required.
Provide practical employability support including CV development, interview preparation, job search guidance, and workplace readiness.
Build trusted, motivational relationships with young people using a trauma-informed and strengths-based approach.
Act as a key link between young people and partner organisations, including employers, training providers, FE colleges and specialist support services.
Advocate for young people with complex or multiple barriers to ensure equitable access to opportunities and remove systemic obstacles.
Maintain accurate records, track progress, and contribute to outcome reporting for funders and commissioners.
Promote equality, diversity, and inclusion, recognising barriers such as discrimination, offending history, housing instability and mental health needs.
Collaborate closely with Youth Justice caseworkers, internal teams, local authorities, and external agencies to deliver coordinated, wraparound support.
Stay informed on labour market trends, skills pathways, and funding opportunities to enhance progression options for young people.
Person Specification
Essential Criteria:
Experience providing employability and progression support to young people, with a focus on accessing education, training, and sustained employment.
Strong understanding of the challenges faced by young people with offending histories.
Excellent interpersonal and motivational skills, with the ability to build trust and rapport quickly.
Ability to design and deliver effective action plans that lead to employment, training, or further education outcomes.
Knowledge of local labour market, training providers, and employability services.
Proficient IT skills and ability to maintain accurate case records and outcomes data.
Ability to work independently and manage a dynamic caseload.
Commitment to equality, diversity and inclusion in employment and service delivery.
A flexible and collaborative approach to partnership working.
Desirable Criteria:
Direct experience working with The Skill Mill or similar social enterprise programmes.
Lived experience of youth justice, care, or NEET pathways.
Knowledge of trauma-informed practice.
Experience collaborating with employers or brokering placements.
Knowledge of relevant legislation (e.g., safeguarding, GDPR).
Familiarity with case management systems or youth work platforms.
Qualification in careers guidance, youth work, or coaching.
Understanding of supported employment models (e.g., IPS, Youth Hubs).
Additional Requirements:
Enhanced DBS check required.
Willingness to work flexible hours, including occasional evenings/weekends.
Travel between partner sites or outreach locations may be required.
How to Apply:
The Skill Mill is an equal opportunities employer and welcomes applications from all suitably qualified individuals, regardless of background.
To apply please send a CV and cover letter setting out your experience, qualifications and how you meet the requirements of the person specification.
To apply please send the CV and cover letter.
The Skill Mill is a multi-award-winning social enterprise which provides employment opportunities for young ex-offenders between sixteen and eighteen
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Pathways Advisor
Salary: £17,500 (0.5 FTE)
Location: Northeast/ Yorkshire/Northwest
Contract Type: Part-Time, fixed term (2-years)
Reports To: Regional Manager
Service Area: The Skill Mill
Place of Work: Remote with the expectation of some regional travel
About The Skill Mill
The Skill Mill is a multi-award-winning social enterprise providing employment opportunities for young people aged 16–18 involved in the criminal justice system. We deliver environmental and community improvement projects that build skills, improve life chances, and reduce reoffending.
Young people aged 16-18 will be employed by The Skill Mill for 6-months, working in small cohorts of four, under the direct supervision of a dedicated Supervisor. During this period, the programme integrates practical skills training, offering short courses and on-the-job instruction in areas like environmental management, construction, and recycling, using tools such as trimmers and lawnmowers. The goal is for participants to achieve recognized qualifications like the CSCS card and an AQA Level 2 qualification, all while receiving comprehensive support, in collaboration with youth offending services.
Following the six-month employment phase, young people receive three months of dedicated support designed to facilitate their transition into new employment, training, or educational opportunities. This support includes individualised assistance with career development and job progression, practical aid such as creating action plans, crafting CVs, and practicing interview skills. Furthermore, The Skill Mill advocates for young people facing significant barriers to employment, ensuring they receive tailored guidance to secure their next steps.
Purpose of the Role:
To support young people aged 16+, particularly those involved with The Skill Mill programme, by delivering tailored, person-centered pathways into education, training, and long-term employment. The postholder will act as a trusted advisor, helping young people overcome barriers, build confidence, and transition successfully into sustainable opportunities with partner organisation and local employers.
Support for young people from the Pathway Advisor will begin in the 6-month employment phase, with liaison with the young person, Supervisors and Commercial Sales Manager, to begin to build relationships, understand aspirations and identify potential opportunities.
After the 6-month employment phase, key support will transition from the Supervisor to the Pathway Advisor role, with 3-months of person-led support offered to prepare for, enter, and sustain further employment, training, or educational opportunities. Support will be tailored to each young person’s needs and is likely to be a combination of remote/ in-person throughout the 9-months.
Key Responsibilities
Deliver intensive 1:1 employability and progression support to young people on The Skill Mill programme, focusing on post-placement career development, training and sustained employment outcomes.
Work in partnership with Youth Justice Services and employer networks to identify and promote routes into education, apprenticeships, employment and volunteering.
Co-produce personalised action plans with young people, based on individual strengths, goals and support needs, reviewing progress and adapting interventions as required.
Provide practical employability support including CV development, interview preparation, job search guidance, and workplace readiness.
Build trusted, motivational relationships with young people using a trauma-informed and strengths-based approach.
Act as a key link between young people and partner organisations, including employers, training providers, FE colleges and specialist support services.
Advocate for young people with complex or multiple barriers to ensure equitable access to opportunities and remove systemic obstacles.
Maintain accurate records, track progress, and contribute to outcome reporting for funders and commissioners.
Promote equality, diversity, and inclusion, recognising barriers such as discrimination, offending history, housing instability and mental health needs.
Collaborate closely with Youth Justice caseworkers, internal teams, local authorities, and external agencies to deliver coordinated, wraparound support.
Stay informed on labour market trends, skills pathways, and funding opportunities to enhance progression options for young people.
Person Specification
Essential Criteria:
Experience providing employability and progression support to young people, with a focus on accessing education, training, and sustained employment.
Strong understanding of the challenges faced by young people with offending histories.
Excellent interpersonal and motivational skills, with the ability to build trust and rapport quickly.
Ability to design and deliver effective action plans that lead to employment, training, or further education outcomes.
Knowledge of local labour market, training providers, and employability services.
Proficient IT skills and ability to maintain accurate case records and outcomes data.
Ability to work independently and manage a dynamic caseload.
Commitment to equality, diversity and inclusion in employment and service delivery.
A flexible and collaborative approach to partnership working.
Desirable Criteria:
Direct experience working with The Skill Mill or similar social enterprise programmes.
Lived experience of youth justice, care, or NEET pathways.
Knowledge of trauma-informed practice.
Experience collaborating with employers or brokering placements.
Knowledge of relevant legislation (e.g., safeguarding, GDPR).
Familiarity with case management systems or youth work platforms.
Qualification in careers guidance, youth work, or coaching.
Understanding of supported employment models (e.g., IPS, Youth Hubs).
Additional Requirements:
Enhanced DBS check required.
Willingness to work flexible hours, including occasional evenings/weekends.
Travel between partner sites or outreach locations may be required.
How to Apply:
The Skill Mill is an equal opportunities employer and welcomes applications from all suitably qualified individuals, regardless of background.
To apply please send a CV and cover letter setting out your experience, qualifications and how you meet the requirements of the person specification.
The Skill Mill is a multi-award-winning social enterprise which provides employment opportunities for young ex-offenders between sixteen and eighteen
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.


