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Family Support Coordinator
Dravet Syndrome UK
Key Information
- Location: Home-based/remote, with travel to national events throughout the year both for the Family Services and occasional travel for the wider needs of the organisation
- Salary: £28,000 - £32,000 per annum
- Hours: 40 hours per week
- Contract: Permanent
- Working Pattern: Monday-Friday, 9am-5.30pm, with occasional evenings and weekends (TOIL provided)
About Us
Dravet Syndrome UK (DSUK) is the leading UK charity supporting people affected by Dravet Syndrome, a rare and severe form of epilepsy that impacts the whole family. Founded by parents in 2008, we provide family support, professional education and fund vital research to improve lives and create hope for the future. [Family Sup...JD v1 (1) | Word]
About the Role
We're looking for a compassionate and organised Family Support Coordinator to help deliver practical, emotional and financial support to families affected by Dravet Syndrome.
Working closely with the Head of Family Services, you'll be a key point of contact for families, supporting enquiries, coordinating grants, managing online communities, helping organise family events, and ensuring families can access the information and support they need.
This is a varied and rewarding role combining family support, community engagement, event coordination and administration.
Key Responsibilities
Family Support
- Manage a caseload of families, providing practical and emotional support.
- Respond to enquiries and signpost families to appropriate services.
- Support newly diagnosed families, bereaved families, and those navigating transition to adulthood.
- Maintain accurate records using the charity's CRM system.
Grants & Community Support
- Coordinate family grant applications and payments.
- Moderate and support the charity's private Facebook community.
- Collect feedback and help improve family services.
- Escalate safeguarding concerns in line with policy.
Events & Engagement
- Support the delivery of the Annual Family Weekend Away and other family events.
- Assist with webinars, support programmes and educational activities.
- Build positive relationships with families and volunteers.
- Attend key family-facing events across the year.
Administration
- Support reporting, record management and service administration.
- Ensure compliance with safeguarding, GDPR and organisational policies.
- Attend team meetings, training and charity events.
About You
Essential
- Experience supporting children, adults and families.
- Experience supporting people with complex medical, learning or additional needs.
- Strong communication, organisational and relationship-building skills.
- Ability to provide empathetic, person-centred support.
- Experience using Microsoft Office and CRM/database systems.
- Understanding of safeguarding, confidentiality and GDPR.
- Ability to work independently and manage competing priorities.
- Willingness to travel and work occasional evenings and weekends.
Desirable
- Background in Health & Social Care, Mental Health, Community Development, Counselling or Education.
- Experience organising events or community activities.
- Knowledge of Dravet Syndrome or other neurological conditions.
- Full UK driving licence and access to a vehicle.
Why Join Us?
- Make a meaningful difference to families affected by a rare and life-limiting condition.
- Join a supportive and flexible remote-working charity.
- Play a key role in delivering services that support hundreds of families across the UK.
- Be part of a passionate team committed to improving lives through support, education and research.
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About Us
UKATA is the leading professional body in the UK for those learning and practicing Transactional Analysis (TA). Founded in 1974, UKATA has grown into a vibrant community of over 1100 members, from curious learners to advanced practitioners, all dedicated to the growth of TA theory and practice. UKATA is an organisational member of the UK Council for Psychotherapy (UKCP) and the European Association of Transactional Analysis (EATA).
The Opportunity
This is a key operational role at the heart of UKATA. You’ll combine day-to-day operational coordination with responsibility for agreed projects and organisational improvements. You’ll also support members, governance, communications and events, working closely with the Managing Director, contractors and volunteers to help deliver an excellent experience for our members.
No two days are the same. One day you might be coordinating an online event, updating our website or producing reports from our membership management system to support decision-making. The next you could be designing an internal process, supporting our National Conference or leading a new organisational project.
What You'll Do
- Play a central role in the smooth day-to-day running of UKATA and helping improve how we work
- Lead key projects to improve systems, processes and the member experience
- Support members, governance and UKCP registration processes
- Maintain and develop our CRM, website and digital systems
- Help deliver communications, events and member engagement
- Work closely with trustees, volunteers and contractors to support the organisation
- Build relationships with members, registered training providers and other stakeholders
About You
We’re looking for an organised, proactive and collaborative professional to join our small team – someone who:
- enjoys bringing structure to a busy and varied workload
- is proactive and confident using their initiative
- likes turning ideas into practical action
- builds positive working relationships with a wide range of people
- communicates clearly and professionally
- enjoys balancing day-to-day administration with longer-term projects and improvements.
What We Offer
This role offers the chance to work with a respected organisation while making a genuine difference to our members and the wider TA community. You'll have:
- Flexible, remote working arrangements, with regular UK travel
- A varied role with genuine ownership and opportunity to shape how we work
- A supportive, collaborative team, working closely with members and volunteers across the UK
- Ongoing learning and professional development
- Employer sick pay scheme
- Employer pension contribution
- Reasonable travel and accommodation expenses for work-related travel.
- 33 days annual leave per annum (FTE), including bank holidays
Location and Working Hours
This is a home-based role with flexible remote working arrangements. Regular travel across the UK is required to support conferences, trustee and committee meetings, planning days, and other organisational activities. On average, this is expected to be around once a month, although the level of travel will go up and down, with some periods busier than others. Reasonable travel and accommodation expenses will be reimbursed in line with UKATA policies.
We are looking for someone who can work 30 hours across at least four days a week, primarily during normal weekday office hours. Some flexibility will be required to attend occasional evening meetings and weekend events.
Salary
The full-time equivalent salary for this role is £40,000. The pro rata salary is £32,000.
Thank you for your interest in working with UKATA. We look forward to reading your application.
Registered Charity
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UKATA is an association and professional body for people interested in, studying and practicing Transactional Analysis within the United Kingdom.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Os ydych yn drefnydd sy’n canolbwyntio ar bobl ac yn mwynhau meithrin cysylltiadau a chreu effaith, byddem wrth ein bodd yn clywed gennych.
Volunteers are at the heart of our work. Each year, they support over 70,000 young people to build confidence, develop skills and explore their futures through insight talks, workshops and events.
We’re looking for a Volunteer Coordinator to grow and support our network across Wales. This is a new role, created as we invest in strengthening how we recruit, prepare and engage our volunteers, with the opportunity to shape how this work develops.
In this role, you’ll build relationships with employers, public sector organisations and community groups to recruit volunteers from a wide range of industries. You’ll manage onboarding, support volunteers to feel confident and well-prepared to work with young people, and work closely with our Volunteer Manager and Programme Team to match volunteers to opportunities across Wales.
You’ll play a key part in ensuring volunteers have a positive, high-quality experience – providing ongoing support, responding to feedback, and helping us continuously improve how we engage and retain our network. Alongside this, you’ll track activity, maintain accurate records, and contribute to understanding our reach and impact.
We’re looking for someone who is highly organised, proactive and great with people, confident building relationships, managing multiple priorities and communicating clearly. You’ll bring experience of working with volunteers, or in a coordination or partnership-focused role, and have a genuine motivation to support young people to achieve their potential. And, we'd love someone who is confident communicating in the medium of Welsh.
This role would suit someone who enjoys working collaboratively, is comfortable working across a wide geography, and is motivated by creating opportunities and delivering impact.
If you’re motivated by purpose, confident bringing people together, and want to play a key role in expanding our impact across Wales, we’d love to hear from you.
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We carry out social media checks on shortlisted candidates as part of our recruitment process, using only publicly available information and in line with our data protection responsibilities.
While we don’t specify this in our person specification, we are particularly interested to hear from applicants who have experienced some of the challenges that young people across Wales face today.
The client requests no contact from agencies or media sales.