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Top job
Genetic Alliance UK, Remote
£55,167 - £63,654 per year
Director of Engagement and Impact
Posted 3 days ago
Barrow Cadbury Trust, London (Hybrid)
£47,500 - £55,000 per year
Leading Fair By Design's engagement with political stakeholders, regulators and industry bodies to influence policy and regulatory change.
Posted 3 days ago
Social Interest Group, London (On-site)
£38,700 per year
This is an exciting opportunity to take on a new challenge, either as a development and progression opportunity.
Posted 3 days ago
Closing in 7 days
Blood Cancer UK, Holborn (Hybrid)
£34,950 - £37,950 per year (dependent on experience)
Digital Support Services Officer
Posted 3 days ago
Immigration Law Practitioners' Association, London (Hybrid)
£35,000 - £40,000 per year FTE
We are a human-rights-focused professional association needing someone to engage with and support our members (flexible part-time role)
Posted 3 days ago
Closing tomorrow
NCVO, London (On-site)
£37,613 per annum
You will ensure everything runs smoothly on the day, proactively solving problems and creating a welcoming, professional experience
Posted 3 days ago
Closing in 5 days
Bridge Renewal Trust, London (On-site)
£27,527 - £30,831 per year
Care Navigator (MACC/Frailty Service)
Posted 3 days ago Apply Now
Hopscotch Homecare, London (On-site)
£38,000 - £42,000 per year
In this great role will be an integral part of our Homecare Service and part of the full management team of our charity!
Posted 4 days ago Apply Now
Closing today at 23:30
Save the Children, Farringdon (Hybrid)
£33,200 pa + generous benefits
An exciting opportunity for an individual with experience in retention marketing and supporter engagement to join us as Marketing Executive
Posted 4 days ago
Closing in 4 days
Pancreatic Cancer UK, EC3R, London (Hybrid)
£48,919 per year inclusive of London weighting plus benefits
Are you looking for a new role? We are seeking a Senior Events Manager to join our dynamic and high-achieving Events team!
Posted 4 days ago
Closing in 7 days
Learning on Screen - The British Universities and Colleges Film and Video Council, Remote
£ 41,600 (£52,000 per year FTE)
Posted 4 days ago
Closing in 4 days
Single Homeless Project, Lewisham (On-site)
Starting at £27,007.50, increasing at 6 months to £27,413.19 (and then further increases as detailed below)
This is your chance to begin a career that changes lives – starting with your own.
Posted 4 days ago
Page 15 of 71
Remote
£55,167 - £63,654 per year
Full-time
Permanent
Job description

Shape the future of the voice of the rare condition community.

Genetic Alliance UK is looking for an exceptional Director of Engagement and Impact to transform how we connect with our 220+ member organisations, communicate our mission, and foster a thriving, supportive team culture.

If you’re a strategic leader with a gift for building relationships, crafting compelling messages, and creating positive change, this is your opportunity to make a lasting difference for the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. 

Director of Engagement and Impact
Salary: £55,167 – £63,654 (with new starters usually starting at the lower end of the range)
Location: Home-based, UK (occasional travel required)
Contract: Permanent, full-time (35 hours per week) with applications for up to 28 hours per week considered.
Closing date: 09:00 on Monday 22 Sept 2025 

About Genetic Alliance UK
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, bringing together patient voices to campaign for timely diagnosis, better care, and improved access to treatments. We host Rare Disease UK and SWAN UK, and lead national activity for Rare Disease Day.

About the role
This is a new senior leadership position designed to strengthen our membership engagement, amplify our communications impact, and support a positive, collaborative working culture.

As part of our Senior Management Team, you will:

  • Lead and develop our approach to engaging and supporting our diverse membership.

  • Provide strategic oversight for all communications, ensuring our messages are clear, consistent and impactful across multiple audiences.

  • Champion and embed systems for staff performance, development and wellbeing, ensuring our culture is inclusive, supportive, and sustainable.

You will oversee the Head of Membership and Communications, the Communications and Engagement Manager (SWAN UK), and two new posts (Communications Officer and Project Support Officer). You will also provide operational oversight of SWAN UK, and work closely with the Policy, Public Affairs and Research teams to maximise impact.

About you
We are looking for a strategic leader who combines a talent for building relationships with outstanding communication skills. You will bring experience of leading teams, delivering organisational change, and working effectively with diverse stakeholders. You will be comfortable navigating the needs of a membership organisation, and passionate about making a tangible difference for people living with rare conditions.

What we offer

  • Generous pension (5% employer, 3% employee)

  • 25 days annual leave plus bank holidays and full office closure over Christmas/New Year

  • Flexible, home-based working with occasional UK travel. 

  • The opportunity to lead work that has a direct and lasting impact for people affected by rare conditions

Application resources
Posted by
Genetic Alliance UK View profile Organisation type Registered Charity Company size 11 - 20
Posted on: 24 August 2025
Closing date: 22 September 2025 at 09:00
Tags: Communications, Strategy

The client requests no contact from agencies or media sales.