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This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Legacy Marketing Manager.
Salary: £48,000 - £51,300 per annum dependant on experience.
Location: Remote.
Monthly travel to London will be required.
Contract: Permanent – 35 hours per week.
Benefits:
29 days annual leave PLUS bank holidays, with up to 5 additional days for continuous service and option to buy or sell leave.
Gain professional qualifications and excellent training/development opportunities.
Flexible maternity, adoption, and paternity packages.
Pension with up to 7% employer contribution with included life assurance cover.
Staff discounts and Blue Light Card eligibility with 15,000 national retailer's discounts.
Why Action for Children?
Working here is more than a job. Everyone in the Action for Children family is passionate about protecting and supporting children. It is the sense of purpose that drives us every single day. Because we know that, when we work together, we can make a huge difference to bring lasting improvements to vulnerable children's lives.
Join our Fundraising Team!
We’re looking for an experienced Legacy Marketing Manager with proven expertise across all aspects of legacy marketing to lead and grow our legacy programme, ensuring long‑term sustainable income for the organisation. You’ll be responsible for developing and delivering strategic legacy marketing plans that drive both acquisition and stewardship, combining strong internal relationship‑building with insight‑led marketing to maximise impact.
How you'll help to create brighter futures
Developing Action for Children’s short term and long-term planning of marketing legacy strategies to maximise the potential of legacy income.
Directly manage a team of professional fundraisers.
Effectively manage the legacy acquisition and retention campaigns.
Drive robust and insight-led supporter-centred journeys to maximise engagement.
Lead the Legacy Marketing team to successfully achieve set targets and KPIs.
Produce regular and consistent financial and activity reports for Management and other Senior Managers.
Build effective and efficient relationships with prospective supporters, legacy pledgers, staff, and solicitors.
Let's talk about you
Must have Legacy Marketing experience (including digital) and demonstratable application to drive revenues in a complex organisation collaborating with many stakeholders.
Charity legislation, best practice guidelines and other regulatory requirements to charitable fundraising activity, or the intellectual capacity to acquire it.
Demonstrable understanding of the importance of brand to legacy success – and how to apply through a marketing role.
Intellectual capacity to understand and appreciate the motivations of donors, supporters, and volunteers.
Apply principles of good customer care and the accountabilities of a charity to its donors, supporters, and volunteers.
Proven experience and success of managing & developing fundraisers and or marketing experts to drive income performance.
Please see the Job Description for the full list of accountabilities and requirements.
Closing Date: Friday 15th May 2026.
Interviews will be week commencing 1st June 2026 via MS Teams.
Please note we are unable to offer visa sponsorship for this role.
Diversity, equality, and inclusion
At Action for Children, we're dedicated to building a diverse, inclusive, and authentic workplace.
We actively encourage applications from Black, Asian & Minority Ethnic, and disabled candidates as they are under-represented within Action for Children. We want to take deliberate and purposeful action to ensure equal opportunity to all groups in society and for Action for Children.
Want to know more about Action for Children?
Find us on Linkedin, Facebook or YouTube to get to know us better.
Our vision is that every child and young person has a safe and happy childhood, and the foundations they need to thrive.
The client requests no contact from agencies or media sales.
Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
Job Summary
As the Senior Public Affairs and Campaigns Officer, and with the support of the Senior Public Affairs and Campaigns Manager you will be responsible for the development, implementation and monitoring of public affairs and campaigns activity in order to achieve real change through influencing policy and legislation on health services which impact the lives of people affected by bowel cancer in England, with a particular focus on Westminster.
Safeguarding
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The client requests no contact from agencies or media sales.
The Pepper Foundation is a local charity funding children’s hospice care at home, specialised play and family days for children living with life-limiting and life-threatening conditions in Hertfordshire and Buckinghamshire.
The Trusts & Foundations Fundraiser will be joining Pepper at an exciting time as we launch our new three-year fundraising strategy. Backed by committed investment and with full Board approval, we are delighted to be growing the charity to deliver sustainable income that directly supports local children and families with hospice care in the comfort of their own homes.
Working closely with the Head of Trusts & Foundations, you will play a pivotal role in increasing income from trusts and foundations by developing and managing a strong pipeline of funders, securing new grants, and building long-term relationships that lead to increased and multi-year support. You will research and prepare compelling applications to both new and existing funders, alongside producing timely, engaging reports that clearly demonstrate impact.
This role requires a highly organised and motivated individual with a passion for writing, strong attention to detail, and the ability to deliver exceptional cultivation, stewardship and relationship management of trusts and foundations aligned with our mission.
Your work will directly support hospice at home care, specialist play services, and meaningful family days out for children with life-limiting and life-threatening conditions – making a tangible difference to families during the most difficult of times.
Hours: 22.5 hours per week working from home – applicants must live within Hertfordshire or Buckinghamshire (or surrounding counties)
Salary: £19,800 per annum for 22.5 hours per week (£33,000 FTE per annum)
Key requirements:
How to apply: For further details about the role, please download our recruitment pack. Please send your CV with a cover letter explaining why you would make a great candidate for this role and how you meet the job description.
Closing date: 1st June 2026 at 5pm
Interview dates: First-round interviews on 10th and 11th June and second-round interviews on 15th June 2026.
Interviews will take place at our office in Berkhamsted. Please let us know if you have any accessibility requirements or need any adjustments for the interview.
If appointed, an enhanced DBS check will be required.
The client requests no contact from agencies or media sales.
The South East District are excited to advertise the opening for a full time District Mission Enabler to support the District, its churches, circuits and people, in mission. Home based, own transport is essential. There will be an expectation to attend the District Office in Crawley, Sussex, on occasion, as well as other locations across the South East District.