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Shine supports a community of over 15,000 members living with spina bifida and/or hydrocephalus, including 5,000 children and young people (0–25).
You will be delivering high-quality support and creating opportunities for children and young people living with spina bifida and/or hydrocephalus and their families/carers. Supporting Shine members to lead healthy, independent, and fulfilling lives by improving condition management and fostering connections within the Shine community.
This role will focus on children and young people (0–25), you will be primarily working within the Children, Young People and Families team. However, there will be occasions when you will work across age groups to ensure the best outcomes for our members.
The role is home-based but you will be required to attend regular clinics in London including GOSH (Great Ormond Street Hospital). Other travel across Southern England including Bristol, Devon and Hampshire may be required. There will be occasional travel required across wider areas and nationally including attendance at events, conferences and meetings at our head office in Peterborough.
Benefits:
Competitive salary: Review due April 2027
Regular working hours, and no shift work (some very occasional weekends or evenings)
3% pension contribution
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
Additional annual leave awarded for ‘long service’
Opportunity to purchase additional annual leave
Broadband allowance for home-based roles
Life insurance after 12 months’ employment
Access to our Employee Support Programme and Mental Health First Aiders
Support to learn and develop
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role please email Gill Valentine, Deputy CEO, to arrange a convenient time for a call.
To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 17th May 2026 at 11pm
Interviews: Tuesday 26th May 2026 (Virtual)
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Please see full details on the Job Description and Person Specification document below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
Job Description
Job Title: Digital Content Officer – SEND
Responsible To: Senior Parent Adviser - SEND
Team Membership: Helpline/IAS- (Information, Advice and Family Support Directorate)
Hours: 14 hours a week
Salary scale:
Scale point 26
£32,168.00 FTE
£12,867.20 – actual (14 hours a week) plus £26.00 a month home working allowance
Contract: Fixed – until 31 March 2027
Location: Home based - UK
Job Purpose:
To write engaging plain English website copy on SEND law and related education law matters in England.
To help ensure the provision of quality information, advice and support to parent carers.
Main Duties:
To write quality plain English copy for the Contact website.
To review, edit and update existing SEND and education related copy on the Contact website.
To work with the education helpline team to identify and prioritise the information and advice needs of parent advisers and parent carers.
To write and develop content to respond to common SEND and related education law concerns of parent carers.
To help ensure our information and advice reaches more families by working with the comms team to promote our IAS through social media, and digital channels.
To build positive working relationships with colleagues, contributing to a culture of mutual respect, trust, and shared responsibility.
To respect diverse experiences and perspectives within the team and contribute constructively to problem‑solving and decision‑making.
Demonstrates awareness of education legislation, statutory guidance, and good practice in England.
A commitment to the provision of quality information and advice.
General duties
In common with all Contact staff, the post holder will be expected to work in accordance with the aims of Contact and to observe the policy and procedures set out by the directors of the charity.
The post holder will be expected to assist with any reasonable duty at the request of the line manager for the post.
Staff will be expected to attend and participate in Contact staff meetings and the staff annual conference.
Staff will be expected to attend training events relevant to their specific responsibilities.
Staff will be offered supervision, support and annual review s incorporating their training needs.
The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Do you want to work with a leading advocacy charity organisation supporting those in need?
Do you have experience of successful delivery of safeguarding strategies and initiatives?
Are you keen to make a difference to people who want to be heard through a profound commitment to safeguarding, protection and promoting the welfare of children and vulnerable adults?
Then come and join us here at VoiceAbility.
We have an exciting opportunity for a Designated Safeguarding Lead to join our team to Act as the expert organisational designated safeguarding lead (DSL) for all work
covering children, young people (CYP) and adults in equal measure. Your role will be homebased but may require you to travel to locations such as hospitals and care homes nationally to meet with stakeholders; therefore, a suitable home internet connection is essential.
About us
VoiceAbility is an independent charity and one of the UK’s largest providers of advocacy and involvement services. We deliver a wide range of service contracts funded by local authorities, health trusts and other voluntary and private sector organisations.
We’ve been supporting people to have their say in decisions about their health, care, and wellbeing for over 40 years. We make sure people are heard when it matters most. For more information on what Advocacy is and the services offered then please visit our website.
About you
You will have at least 2 years’ experience of working as a Designated Safeguarding Lead with line management responsibility, developing, implementing and evaluating of CYP and Adult safeguarding policies, procedures, and training programmes, reflecting current legislation and best practices.You will also have demonstrable experience in leading, managing, influencing diverse teams on safeguarding, focusing on developing a positive culture and promoting continuous professional development.
You should have experience in managing complex safeguarding cases, including conducting risk assessments, deciding on immediate actions, and coordinating with external agencies and key stakeholders.
How will you make a difference?
You will be called upon internally and/or by external bodies as a source of organisational expert knowledge.
You will provide leadership and accountability for the advancement of safeguarding best
practices.
You will work resourcefully and collaboratively across agencies and adapt child protection systems to address risks in diverse social environments as part of a contextual safeguarding approach, ensuring the safety and wellbeing of young people, vulnerable groups and adults alike.
Benefits
28 days annual leave plus bank holidays (pro-rata for part-time colleagues) rising to 30 days upon 5 years’ service
5% employer pension & minimum 3% employee contribution
Salary sacrifices pension scheme
Separate Life Assurance Cover (equivalent of two times your annual salary)
Staff discount scheme including retail discounts, entertainment, holidays, gym membership etc
24/7 Employee Assistance programme
Access to remote counselling service
Paid Disability Leave
Paid compassionate Leave
Home Working Allowance
How are staff supported to work remotely?
VoiceAbility has a small number of offices. Employees including Team Leaders are homebased for Administration and meetings will be held online as well as in person in the relevant community.
When you need to travel for work, expenses will be paid (mileage or public transport costs).
VoiceAbility offers the usual regular manager one to ones, Staff forums and communities of practice depending on role. Team meetings with a mix of virtual and in person approach.
Equality and Diversity
VoiceAbility believes in fostering an inclusive workplace which welcomes, values and celebrates the diversity of its staff and partners, treats all on a basis of equality and encourages all to meet their maximum potential.
VoiceAbility are a Disability Confident employer, any applicant that identifies themselves as having a disability and can demonstrate that they meet all the essential criteria for the role will be offered an interview.
The client requests no contact from agencies or media sales.