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Closing in 2 days
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 1 week ago Apply Now
Closing in 6 days
Alzheimer's Research UK, CB21, Cambridge (Hybrid)
£25,000 per year
Posted 3 days ago

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Astra Foundation, London (Hybrid)
£75,000 - £85,000 per year
Posted 5 days ago
Closing in 7 days
JustMoney Movement, London (Hybrid)
£61,866 per year, (pro rata to £49,493 for 4 days per week)
Posted 2 weeks ago Apply Now
SAT-7 UK Ltd, Chippenham (On-site)
£27,500 - £32,000 per annum pro rata
Exciting opportunity for a skilled writer and communicator to tell stories of SAT-7 and the people of the MENA in fresh and powerful ways.
Posted 1 week ago
Closing in 4 days
Hull KR Foundation, Hull (On-site)
£50,000 per year
Posted 1 week ago
York Travellers Trust, York (On-site)
£45,000 - £53,000 per year
Lead an organisation where community voice shapes everything we do
Posted 1 week ago Apply Now
Closing in 5 days
League Against Cruel Sports, Godalming, Surrey (Hybrid)
£25,000 - £27,000 per year, plus 8% employer pension contribution and 28 days annual leave (in addition to public holidays)
Posted 1 week ago Apply Now
Closing in 7 days
The Talent Set, London (Hybrid)
£35,000 per year
Posted today
Kingston Street Pastors, Kingston upon Thames (On-site)
£34,000 - £36,000 per year
Posted 6 days ago Apply Now
Closing today at 23:59
James' Place Charity, City Of London (On-site)
£19800 per annum
Posted 1 week ago
Page 12 of 13
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Refreshed on: 21 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.