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As a Research Engagement and Involvement Co-ordinator, you will support public and patient involvement and engagement activities across the MND Association's research programme. You will help coordinate key initiatives, including the Community Research Advisory Network and EnCouRage, ensuring people affected by motor neurone disease (MND) can contribute to research in meaningful and inclusive ways.
Key Responsibilities
- Coordinate webinars, workshops, events, podcasts and other engagement activities that connect researchers and the MND community
- Support the delivery of public and patient involvement and engagement activities across the research programme
- Help coordinate research participation opportunities through the Take Part in Research webpage
- Provide administrative support for meetings, communications and documentation
- Co-produce engagement resources with people affected by MND
- Support focus groups, surveys and other activities that gather community perspectives
- Work with colleagues across teams to promote consistent and accessible communications
- Maintain accurate records, evaluation data and reports, ensuring compliance with data protection requirements
About You
Essential
- Graduate calibre or equivalent experience, ideally in biological sciences, public engagement or communications
- Experience supporting public engagement or involvement activities
- Experience working with diverse communities or in people-focused roles
- Strong written and verbal communication skills
- Strong organisational skills with the ability to manage multiple priorities
- Confidence using a range of digital tools, systems and online platforms
- Knowledge of public and patient involvement and engagement practices
Desirable
- Ability to communicate scientific or technical information clearly and accurately
- Experience coordinating events or delivering workshops
- Understanding of health research or neuroscience
Hybrid working Expectations: 1 day per week in our Northampton office
Further information about working for the MND Association and full job description is available in the attached Candidate Pack.
We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.
As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.
What We Offer
- 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
- Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
- 24/7 GP access via phone and video
- Life assurance and confidential counselling helplines
- Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
- Access to Benefit Hub for discounts on everyday shopping
- Enhanced pension scheme
- Opportunities for training and personal development
- Hybrid working
About Us
Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.
Registered Charity
101 - 500
We support people affected by Motor Neurone Disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.
The client requests no contact from agencies or media sales.
Thank you!
Support Coordinator
This is an exciting opportunity to work with stroke survivors and their families to support them following stroke.
We are looking for an innovative, passionate, and professional individual with excellent interpersonal and organisational skills to join our Stroke Recovery Service based in Macclesfield.
Position: 000052 Stroke Association Support Coordinator
Location: Home-based, Macclesfield, Cheshire. However, extensive travel will be required as part of this role (may include team meetings or other work-related meetings)
Hours: Part-time, 28 hours per week
Salary: Circa £22,600 per annum (FTE circa £28,300 per annum)
Contract: Fixed term contract until 31 March 2027. Our services are contracted. We currently have funding for this contract until 31 March 2027.
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Health Cash Plan, flexible working opportunities available.
Closing Date: Sunday 11 October 2026
Interview Date: First round interviews 16 October 2026. Second round interviews 22 October 2026. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.
The Role
Reporting to the Service Delivery Coach, you will have the ability to support stroke survivors to identify their goals. Using strong assessment skills and a person-centred approach enabling them to maximise their recovery and improve communication.
Key responsibilities will include:
- Supporting new stroke survivors and their carers from hospital discharge into the community.
- Provide personalised information, advice and support.
- Supporting stroke survivors to make informed lifestyle changes which will help them to prevent further strokes.
- Work collaboratively with NHS colleagues and other areas of the community to make a difference in the lives of people affected by stroke.
About You
You will have experience in:
- Experience/background in a caring profession, ideally supporting people with disabilities
- Excellent IT skills and an ability to maintain accurate records.
- An affinity with the values of the Stroke Association.
- A flexible approach and an ability to effectively manage a caseload.
This role requires extensive travel across a large geographical locality to visit people at home and in community settings. Candidates must be able to demonstrate how they can meet this requirement of the role
To fulfil the role, you must be a resident of the UK and have the right to work in the UK.
Applications
To apply you’ll be redirected to the organisation website where you can download the full role profile. You’ll need to submit a CV and cover letter demonstrating how you meet the person specification detailed in the role profile, and what you bring to the role in terms of your skills and experience.
If you are applying under the Disability Confident scheme, please indicate this in your supporting statement when applying for the role.
Stroke Association
Finding strength through support
The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
We’re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of our supporters and donors that we can provide vital support.
Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.
We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.
We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.
You may also have experience in areas such as Engagement Officer, Community Engagement Officer, Peer Support, Health Support Officer, Community Support.
Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP
