Research information manager jobs in kingston upon hull, city of, east riding of yorkshire

Call for expression of interest 

End-Term Evaluation Consultancy 

Project name: Strengthening Civil Society Representation of Women with Disabilities in Ghana 

Location: Ghana/Remote Global (at least 1-2 team members must be based in Ghana for data collection purposes) 

Length of consultancy: 8-9 months 

About the project 

The Strengthening Civil Society Representation of Women with Disabilities in Ghana project is a two-year project funded by the European Commission. The project aims to strengthen the capacity of two co-applicants (Women with Disability Development and Advocacy Organisation (WODAO) and the Alliance for Better Advocacy and Knowledge (ABAK) Foundation) in the areas of management, communication, fundraising, coordination, advocacy, gender, climate change, networking, and financial accountability.

The overall objective of the project is to strengthen both co-applicant organisations, their partners and their members to effectively participate in development and decision-making processes. 

About the consultancy 

The purpose of this end of term evaluation (ETE) is to assess performance of the project and to understand what specific learnings can be taken forward in future project design and implementation. It is also intended that the evaluation will contribute evidence and/or insight towards some of Sightsavers’ thematic learning questions. An external ETE, to be conducted by the end of the project, is also a requirement by the donor.  

The evaluation will also be designed to collect endline data for three project indicators, as specified in the project MEL plan. It is intended that the findings, learnings and recommendations from the evaluation will be used to inform the design and delivery of similar projects and programmes. 

The evaluation will employ a collaborative and participatory approach to ensure that the evaluation takes into account the complex nature of how capacity is strengthened. It will use a mixed methods approach, triangulating secondary project documentation and data with some qualitative primary data collection. This is likely to include key informant interviews (KIIs) and focus group discussions (FGDs) with various project stakeholders. The appointed consultant will further define the methods and tools and may wish to consider elements of outcome harvesting if deemed appropriate.

Skills and Experience 

The evaluation will be contracted to an external independent consultant or consultancy company. It would be beneficial if the consultant or team is at least partly located in Ghana. The evaluation team members should have the following core competencies and experience: 

• Extensive experience in monitoring and evaluation for international development project/programmes, with strong skills in both qualitative and quantitative approaches.

• Thematic expertise in disability inclusion, Climate Action, advocacy, and/or capacity development of women’s organisations is essential. Comprehensive understanding of preferred practices/policy issues at global and national level is desirable. 

• Prior experience working in Ghana is essential, including data collection experience. A consultant or team with members located in Ghana is preferred. 

• Must have experience of carrying out evaluations of an appropriate scope and scale. 

• Ability to travel within Ghana is required. 

• Proven ability to produce concise, readable and analytical reports. 

• Excellent communication skills, both written and spoken, in English. Fluency in other relevant local languages is highly desirable. 

• Proven ability to work independently, manage resources, and deliver work within agreed timeframes. 

In particular, the Team Leader (to be identified in the offer) is expected to possess a demonstrable senior evaluation expertise coherent with the requirements of this assignment and not provide less than 20 working days. 

This is a highly varied and involved consultancy position, and the above is not an exhaustive list of duties, required professional skills, project information, or expected scope of work. Please ensure you read the full Terms of Reference (ToR) for all details.  

Next Steps 

To apply for this exciting new opportunity, please complete an application via our recruitment portal. 

All applications must include: 

Budget Template (link here) – Please complete and upload this as part of your application 

CVs of all proposed consultants 

Completion of our online Expression of Interest from (EOI): Please ensure that Section 3 (Addressing the requirements) of the EoI form covers the following two points : 

1. Please describe your proposed design for the evaluation/learning exercise with particular reference to the key questions from the ToRs (Max 500 words). 

• Task conceptualisation

• Approach, framework 

• Methods, tools

• Etc.

1. Please describe your approach to addressing equity and inclusion, including gender, disability, marginalised communities etc. (Max 300 words) 

We anticipate that remote interviews will take place during the weeks of 6 October or 13 October 2025 and the evaluation process will include a 1 stage oral interview to be completed by shortlisted candidates.

Closing date: 28 September 2025 

As a global equal opportunities employer, Sightsavers is committed to embracing diversity throughout our workforce by creating an inclusive environment that reflects the many cultures and locations where we work. Our workforce will be truly representative of all sections of society and we will actively promote the inclusion of individuals with a disability. Sightsavers is a Disability Confident Leader and qualified people with a disability are particularly encouraged to apply.

Sightsavers is an employer that does not tolerate any form of harassment and has zero tolerance for sexual exploitation and abuse. All potential candidates will be subjected to rigorous background checks and controls. 

Are you a creative fundraiser who loves writing compelling proposals and building meaningful relationships with funders? Join Let Me Know’s small, ambitious team as a Trusts and Foundations Fundraiser and help us secure vital funds to educate thousands more young people about the signs of healthy and unhealthy relationships, supporting them to live happy, healthy lives, free from abuse.

This role is perfect for you if:

• You love crafting engaging, persuasive funding proposals and reports that inspire support.

• You enjoy building and nurturing strong relationships with funders who share our vision.

• You value a mix of independent and collaborative working.

• You're looking for an organisation that embraces flexibility; this role’s 17.5 hours can be spread over the week to fit your home life.

• You enjoy being part of a small team, and an organisation where you feel close to the impact you’re making.

So, if you’re passionate about ending relationship abuse and domestic violence, and have a track record of success in Trusts & Foundations fundraising, we’d love to hear from you.

Role Summary

• 17.5 hours per week (ideally spread over 3-4 days)

• £35,400 pro-rata (£17,700 for 17.5 hours)

• Working from home with some travel to Central London, including one day per month for an in-person team meeting / work day. 

About Let Me Know (LMK)

Good relationships shape our health and happiness, yet we are taught so little about them. LMK (Let Me Know) is on a mission to change that. We are a young and thriving charity providing education about healthy and unhealthy behaviours so that young people have the knowledge and skills to avoid abuse and thrive in their relationships. We work in schools, community organisations and workplaces across London. 

LMK is growing at pace and we are ambitious in our plans for the future. We’ve already engaged 21,000 young people and professionals in our workshops in our first five years and we want to reach 18,000 young people over the next two years. We will achieve this by engaging new schools, community groups and workplaces in our offer, whilst also continuing to provide a high-quality service to those who have already experienced LMK workshops. 

Key to our success is raising the funds to support our work. Our fundraising is primarily from grants received from charitable trusts and foundations, but we have a focus on diversifying income to include major donors, individual giving, and corporate fundraising.

We have:

✔ A clear plan for our workshop delivery over the next three years, and a fundraising plan to support it

✔ An engaged leadership team and Board of Trustees

✔ Evidenced outcomes, rich data/statistics and compelling case studies

✔ Diversity and strong social purpose

✔ A new organisational strategy that sets our vision from 2024-2027

✔ A new CRM system that has been built to support our ambitions

Job Description

This is a new role, joining a small and growing fundraising team. The purpose of this Trusts and Foundations Fundraising Manager role is to grow LMK’s income generation from Charitable Trusts and Foundations, to support delivery of LMK’s mission. 

The role is a true combination of independent and collaborative working. Independent in the writing of bespoke funding applications and reports, maintaining accurate records on LMK’s CRM, and researching to continually build LMK’s pipeline of Trusts & Foundation prospects. 

And collaborative in the close working with LMK’s core team to monitor and report on restricted grants, and working together with the wider fundraising team on creative projects such as: maintaining an updated library of cases for support, implementation of fresh and creative stewardship strategies that bring LMK supporters closer to our work, and cultivation strategies that engage supporters to whom LMK is brand new. 

The role requires strong relationship building skills, which will be drawn upon in your direct working with Trust & Foundation supporters and internally with LMK colleagues. 

Key Responsibilities

• Writing bespoke funding applications: you will be responsible for maintaining a regular pipeline of applications, writing and submitting proposals to new and existing Trust & Foundation supporters, including six-figure and multi-year grants, working to targets for both income generated and outputs (e.g. number of proposals per month).

• Grant reporting: using LMK’s CRM system and working collaboratively with the core team to produce high quality, timely reports for both restricted and unrestricted grants.

• Providing excellent relationship management: to build trusted and lasting relationships with existing and new supporters, including delivery of stewardship and cultivation strategies.

• Case for support development: with support from the wider fundraising team, you will maintain a library of creative and compelling cases for support for use in Trusts & Foundations fundraising. 

• Researching Prospects: identifying suitable new Trusts & Foundations for LMK to approach, and developing and delivering approaches to cultivate early, new relationships. 

• Maintaining accurate, data-compliant records on LMK’s CRM: ensuring all grant records are stored securely, and delivery commitments are effectively communicated to relevant staff members in a timely manner.

Other responsibilities

• Comply with LMK’s policies and procedures, including those relating to safeguarding, bullying and harassment, health & safety, confidentiality, complaints and data protection

• Work in a way that celebrates diversity, upholds LMK values and respects everyone LMK interacts with (including freelancers, staff members, volunteers and workshop participants)

Reporting to LMK’s Head of Fundraising & Development, you will work collaboratively with LMK’s core team, including three fundraising colleagues: one part-time Fundraising Manager, one freelance Grants Fundraiser and one full-time Head of Fundraising & Development.

Person Specification 

• Proven experience of leading on Trust & Foundation applications generating  high 5-figure and multi-year grants.

• Experience of working with colleagues to provide financial information to funders e.g. developing budgets for grant requests and financial reporting at the end of a grant.

• At least 3 years’ experience in successfully delivering and/or supporting a grant fundraising programme, including demonstrable experience of working to targets and managing multiple deadlines, and understanding the trust & foundations fundraising landscape.

• Successfully managing a portfolio of at least 15 Trusts and Foundation relationships, with evidence of providing excellent relationship management and stewardship strategies resulting in renewed and/or increased levels of financial support from partners.

• Experience of using a CRM system to manage all aspects of grant fundraising, including maintaining a pipeline of grant prospects, managing live grants, and regular data input that helps to store a full picture of our funder relationships.

• Excellent written skills, with proven experience of developing a compelling case for support that connects prospective funders with the charity’s mission and is grounded in the charity’s strategic priorities and funding needs.

• Highly organised to manage a diverse workload with excellent time management and attention to detail. 

• Strong MS Office/Google knowledge, numerate, comfortable with data

Safeguarding

This role is subject to a Basic DBS check

In return for your dedication, we will offer you

✔ The opportunity to help prevent relationship abuse and domestic violence in young people

✔ A competitive salary

✔ Working from home

✔ A genuinely flexible working environment 

✔ Pension of 6%

✔ 32 Days of annual leave, (including bank holidays), prorated for part time roles

✔ Employee Assistance Programme

✔ Wellbeing perks

✔ A diverse, bold and collaborative culture with two social meet-ups annually in London

Reasons for applying for this post

We need you to give us specific information to support your application so that we can shortlist in a fair and unbiased way. We recommend that you use a covering letter to provide as much evidence as possible to show how your skills, abilities, knowledge and experience meet each of the selection criteria in the person specification for the role. Please provide examples which are relevant to the role you are applying for (if you prefer, you can provide us with a video of no longer than 3 mins - please email this to us once you have submitted your application)

Interviews will be held in person (London) on Wednesday, 1st October

18 month FTC | Full Time (Monday - Friday 37.5 hours per week) | up to £36,483 per annum plus benefits | Location: Fully Remote

We’re a dedicated, inspiring, and forward-thinking healthcare charity and our mission is to improve the bone health of the nation and prevent osteoporosis by influencing healthcare providers and professionals; supporting services to help our beneficiaries; and drive research.

We’re also proud to have a committed, highly engaged workforce, as shown by our employee engagement rating, which puts us comfortably above the charity benchmark and we want to attract the brightest and the best to help us beat this condition and change society for the better.

Can you:

Develop accessible online health information?

Research and interpret complex health research, with the ability to judge the quality of a research study and write evidence-based information?

Use content management systems to upload digital content?

If this is you, and you’re looking to join a fantastic organisation and team where you can really make a difference, we’d love to hear from you.

How to apply

To apply, applicants should provide a comprehensive CV, including details of relevant experience and achievements. This should be supplemented by answers to the competency-based application questions, demonstrating how your skills and experience meet the person specification.

Want to know more? For more details on this exciting role, please download the job description.

This role will close on 23/09/2025 at 9:00am with interviews taking place 1st - 3rd October 2025

REF-223862

Worldwide Veterinary Service is searching for an experienced manager to support the growth of our global education programme.

 This is an ideal role for an experienced project manager who wants to make lasting improvements to the lives of children and animals around the world.

Reporting to the Head of Education at global animal welfare charity, Worldwide Veterinary Service (WVS), you will help grow and develop education programmes that protect children from key zoonotic disease and improve the relationship between animals and people.

One child dies from rabies every 10 minutes. Most victims are under the age of 15. Rabies is 100% fatal, but entirely vaccine preventable. Children just need the right information to protect themselves. WVS established Mission Rabies, a campaign that aims to eliminate rabies for good, in 2013. We have worked hard to reach 9.6 million children worldwide, but around half of the world’s 2 billion children at this age still live in rabies endemic countries. You will manage national education managers based across Sub-Saharan Africa, Southeast Asia, and Latin America to spread our core messages to a wider audience. This is essential if we are to deliver our goal to halve the number of people dying from rabies in the next 5 years.

We are looking for somebody who is proactive, driven and has a history of making things happen. The ideal candidate will have a results-oriented mindset, be comfortable working with ambiguity and adaptable to change. As an organisation we are embracing hybrid working, and remote working within the UK could be considered for this role. There is an expectation that employees will attend monthly meetings at our Dorset office in Cranborne if practical, and for this role regular international travel to global project sites will be required.

About Us

At Worldwide Veterinary Service (WVS) we champion animal welfare around the world. We send vets where they are needed most, provide expert veterinary training in hard-to-reach places, and ship urgent aid supplies worldwide, every day of the year.

We deploy teams of vets and vet nurses, send equipment and supplies to help struggling organisations on the front line of animal welfare, and train vets at our international training centres in India, Thailand, Malawi and the Galápagos Islands.  We also work on strategic one health projects such as rabies elimination campaigns with Governments and NGOs all over the world.

Last year, WVS treated over 103,000 animals, trained over 2,800 vets, deployed teams of vets all over the world, and sent over 1,042 parcels of veterinary supplies to 231 charities in 65 countries. Over 1.2 m dogs were vaccinated against rabies last year as part of our Mission Rabies campaign.

Main Duties & Responsibilities

•  Support with the development of our education and behaviour change campaigns in Asia, Africa and Latin America.
• Develop robust monitoring and data collection systems and build capacity in the team to adhere to these mechanisms.
• Work with country teams to research the effectiveness of pedagogical approaches in terms of impact and behaviour change across various contexts and for different age groups.  
• Work closely with colleagues to provide technical advice and implementation assistance to Mission Rabies and WVS projects around the world.
• Write strong project reports and proposals.
• Undertake international field visits in support of this work.
• Any other duties as required.

 Essential Skills & Experience

• 7+ years in project management in an education, animal welfare, public health, humanitarian and/or international development capacity.
• Experience in monitoring, evaluation, research and learning (MERL).
• Ability to tailor communication to a range of audiences, particularly making research findings accessible to a non-academic audience.
• Experience in working with diverse teams in low resource environments.
• A strong team player.
• Strong report and proposal writing skills.
• A passion for animal welfare.
• Proficient in Microsoft packages - Word, Excel, and PowerPoint.
• The ability and willingness to be flexible and work irregular hours, including evenings and weekends occasionally when the charity requires.
• Qualified to degree level or with a relevant recognised qualification.
• Proficiency in English (mother tongue or C2 level equivalent).

 Desired Skills & Experience

• A background in qualitative research.
• Experience in delivering public health or behaviour change campaigns.
• Experience working on education programmes.
• Experience working on international programmes.
• Experience in taking projects to scale.
• Experience in working with government stakeholders.
• Experience in business development/proposal writing.
• A full driving licence.
• The right to work in the UK.

Candidates with a right to work in the UK are preferred, however exceptional candidates outside of the UK may be considered on a contract basis. Please include this in your cover letter if this is your preference.

Please note, we are unable to respond to individual queries regarding the role.

Why work for Kids Matter?

• Generous annual leave – 25 days (plus bank holidays) per year pro rata, with time off between Christmas and New Year's additional to this allowance.
• Remote working contribution – receive £26/month pro rata towards the costs of working from home and/or using a co-working space.
• Access to coaching sessions, training opportunities and our Employee Assistance Programme (a confidential support service for staff).
• Flexible working across weekdays to suit your schedule.

About us

Kids Matter is one of the UK’s fastest growing children’s charities.

Our vision is to see every child in need raised in a strong family. Our mission is to reduce the impact of poverty on children through community-based parenting programmes.

Research shows that group-based early intervention parenting groups are the most effective way to support children in need. We train peer facilitators in local churches - the largest voluntary body in the country - to run our affordable, accessible and highly effective parenting programmes, written by Clinical Psychologists. They come alongside parents and carers, building long-lasting community in addition to encouraging confidence and learning positive parenting skills.

We value difference and diversity, and we want our workplace to be built on shared values of equality and mutual trust, with team members representing the wide range of backgrounds and experiences that exist within the UK. We therefore actively encourage applications from people of diverse backgrounds and varied experiences, particularly those who are African, Afro-Caribbean, Asian or part of other minority ethnic communities, who have lived experience of the impact of low-income/low-support circumstances, and who are living with a disability or identify as being neurodivergent.

About the role

The Research and Programmes Coordinator role involves:

• Overseeing administrative tasks for all research projects
• Supporting the Programme Development Team Lead in management of all research projects
• Liaising with the Support Coach team to connect with facilitators/parents for data collection e.g. supporting with the running of focus groups
• Using Kids Matter’s CRM to confidently record communication with consultants and Research Assistants
• Supporting the data gathering process for all our evaluation data including maintaining data integrity by performing regular data audits and cleaning parent data ready for the Research Assistants to analyse

About you

Are you organised with good attention to detail? Do you enjoy supporting others and having a varied workload? Can you prioritise and manage your time effectively? Are you a Christian with an active faith in Jesus? Do you have a passion for Kids Matter’s vision of seeing every child in need raised in a strong family?

Then we would love to hear from you!

How to apply

You can apply for the Research and Programmes Coordinator position by clicking ‘Apply via Website’ and completing a copy of our online application form.

The deadline for applications is 4pm on Monday 29th September 2025. All successful and unsuccessful applicants will be notified by email.

We also ask for all applicants to submit an Equal Opportunities Monitoring Form, which will be sent to you to complete following the submission of your application. This form will be used for anonymous analysis to ensure our overall recruitment procedures are fair and transparent. It will never be viewed or used as part of the selection process. It is optional to submit this form.

If you would like any application/interview support or you need any reasonable adjustments throughout the application process, or if you would like an informal phone call to ask questions or discuss the role, please contact Katie Washington (HR & Systems Manager).

Please see the job pack for more details on the role and application process.

Job title: Website and UX Manager

Service: Digital Marketing

Salary: Grade 4 point 29: £36,842 FTE per annum + £480 home working allowance

Hours: 37 hours per week (full time)

Location: Home-based

Contract: Permanent

Responsible to: Website and Digital Content Manager

Family Action & the Role’s Impact:

Family Action is a national charity that supports people through change, challenge and crisis across England and Wales. On 1st January 2025, Relate, the largest provider of relationship support, joined the organisation helping us reach even more people and support the creation of secure foundations for children and young people, and safe, supportive relationships for all. 

For over 150 years Family Action has seen first-hand the power of family and relationships to shape lives, for better or worse. That's why we speak up for the importance of family in national and local policymaking, amplify family voices and represent the changing needs of families in the UK today.

Whatever family means or looks like to us, it's relationships that matter. With Relate at Family Action, we are able to extend the support we provide with counselling, information, mediation and support to individuals, couples and families from all backgrounds and sexualities, as well as provide expert training for relationship support practitioners.

This is an exciting opportunity to join our organisation and help shape the future of Relate’s website and online presence as part of Family Action.

Job Summary:

As part of the Website and Digital Content Team and wider Digital Marketing Department you will oversee Relate at Family Action’s website and online client experience, driving brand awareness and sales of products and services.

You will be responsible for the day-to-day management of Relate’s website and the writing of digital content, and support the brand’s long term transformation as part of the adaptive change programme, working closely with the Website and Digital Content Manager, Head of Digital Marketing, Brand and Marketing Manager and other key stakeholders.

This is an exciting opportunity to join our organisation and help shape the future of Relate’s website and online presence as part of Family Action.

Key Tasks & Responsibilities:

1. Manage and optimise Relate at Family Action’s website and online user experience, driving traffic, engagement and sales of products and services.

2. Work closely with key colleagues including the Brand and Marketing Manager, Website and Digital Content Manager and Social Media Team to position and market Relate’s services and plan content.

3. Work closely with B2C and B2B teams, and other internal stakeholders to understand website requirements and improve representation online.

4. Manage digitally delivered products such as Toolkits and Relate’s AI chatbot, including re-marketing and upgrade activity to drive clients to further services on the website.

5. Support the creation of new Toolkits for sale, working closely with the Brand and Marketing Manager and service delivery colleagues to research and test new topics and write content.

6. Develop and write keyword rich content including stories, and support articles on often sensitive subjects, to build brand awareness, improve findability and warm up audiences.

7. Monitor and improve SEO across the Relate website.

8. Support Relate’s adaptive change programme including the website review workstream, working closely with the Website and Digital Content Manager, Head of Digital Marketing and other key stakeholders.

9. Support the development of a new CRM for Relate, working closely with the Systems and Technology Team and Service Delivery Team to ensure a seamless front end client experience.

10. Manage existing infrastructure and systems integrated across the website client journey such as Acuity Scheduling, Typeform and Stripe.

11. Maintain and improve Relate’s website accessibility ensuring it meets WCAG 2.1 AA standard wherever possible.

12. Use sophisticated data and insight tools to test, measure and evaluate content, and website performance, and monitor emerging trends in the wider market.

13. Produce regular reports for senior stakeholders including data and commentary around website performance.

14. Work with external agencies to deliver effective PPC search and display ad campaigns.

15. Manage relationships with external suppliers, contractors, and service providers involved in digital initiatives at Relate.

16. Embrace and implement Family Action’s Equality, Diversity & Inclusion Policy in every aspect of your work and positively promote its principles amongst colleagues, service users and other members of the community.

17. Comply with Family Action’s Health and Safety and Data Protection policies and protect your own and others’ health, safety and welfare.

18. Work flexibly as may be required by the needs of the organisation and carry out other reasonable duties as required.  

Main Responsibilities (check the job description and person specification for further details):

· Manage and optimise Relate at Family Action’s website and online user experience, driving traffic, engagement and sales of products and services.

· Work closely with key colleagues including the Brand and Marketing Manager, Website and Digital Content Manager and Social Media Team to position and market Relate’s services and plan content.

· Develop and write keyword rich content including stories, and support articles on often sensitive subjects, to build brand awareness, improve findability and warm up audiences.

· Support the creation of new Toolkits for sale, working closely with the Brand and Marketing Manager and service delivery colleagues to research and test new topics and write content.

· Support Relate’s adaptive change programme including the website review workstream, working closely with the Website and Digital Content Manager, Head of Digital Marketing and other key stakeholders.

Main Requirements (check the job description and person specification for further details):

· Extensive experience of managing and developing a website within a complex organisation.

· Experience of developing complex user journeys and improving user experience.

· Extensive experience of writing keyword rich website copy and digital content and an excellent knowledge of SEO best practice.

· Good understanding of online and offline marketing strategies, including sales funnels, particularly in a commercial context.

Benefits:

- an annual paid leave entitlement of 30 working days plus bank holidays

- up to 6% matched-pension contributions

- flexible working arrangements and new starters have the right to make flexible working requests from day one of employment

- enhanced paid sick leave and paid family leave provisions

- eye care and winter flu jabs vouchers

- cycle to work scheme

- investing in your professional development with ongoing quality training and career development opportunities

We are forward looking, ambitious and committed to continuous improvement. We are a people focused, can-do organisation, which strives for excellence in all we do and operates with mutual respect.

To Apply:

· Click the “Apply Now” link below and fill out our digital application form

· Closing Date: Sunday 21st September at 23:59

· To learn more about Family Action: Careers

Interviews are likely to take place virtually on 29th and 30th September.

For direct queries or if you would like to discuss any aspect of the selection process or flexible working requests, please email: Matthew Dennis (full email address located in advert document)

Our commitment to Equality, Diversity & Inclusion:

We are happy to consider any reasonable adjustments that candidates may need during the recruitment process and you will be asked whether you require any adjustments if shortlisted for interview. We also make reasonable adjustments on the job, where required.

Community Fundraiser - Home Counties

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Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research? ​

Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex. 

​​

Key Responsibilities: ​

• ​Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects 
• Steward supporters to help drive the charity’s fundraising activities and growth 
• ​Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders ​
• Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research ​

​

Requirements: ​​

• At least one year of fundraising experience, with a proven track record in income generation 
• Strong experience in supporter stewardship  
• Excellent communication skills, with the ability to engage and inspire supporters and partners alike ​
• Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure 

​

If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.

​

​

​We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.​​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

Closing Date: 26th September 2025

​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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Position title: Communications Manager

Reports to: Director of Operations

Direct reports: None currently

Key stakeholders: UKMSA staff, members and volunteers, Board of Trustees, Sheds and Shedders, the public

Location: Remote (with occasional UK travel)

Salary: Level 4 – £35,000-£45,000

The Communications Manager plays a vital role in shaping how UK Men’s Sheds Association (UKMSA) communicates, both internally and externally, and with the community at its heart. Operating with a high degree of autonomy and professional expertise, the postholder leads the development and delivery of communication strategies that connect, inform, and inspire.

This is not just a messaging role. Rather, it’s about building trust, clarity, and connection across UKMSA communities. Internally, the Communications Manager helps staff feel informed, included, and united across a remote-working environment. The post holder will coordinate internal communications, shape the tone and culture of how information flows, and ensure the brand is consistently and professionally represented.

With volunteers, especially UKMSA’s Ambassadors, the Communications Manager plays a key part in ensuring people feel heard, valued, and kept in the loop, especially during moments of change or challenge. They will work closely with the Head of Volunteering and the wider team to keep the voices and experiences of Shedders, Sheds and Shed Networks at the centre of UKMSA’s communications.

Externally, the postholder curates and amplifies the stories, impact, and energy of the Shedding movement. They manage the website and social media channels, support the CEO and Chair in their digital visibility, and respond to external enquiries with professionalism and purpose.

This is a mission-driven role that sits at the heart of how UKMSA connects with the world. It requires emotional intelligence, editorial judgement, and a deep appreciation for the unique volunteer-led spirit of the movement. The postholder will be confident working across staff, volunteers, trustees, and media, joining the dots, finding the story, and ensuring communications always reflect UKMSA’s values and community.

Key responsibilities:

1. Internal communications

· Develop and deliver internal communication approaches that ensure staff across a remote-working environment are kept informed, connected, and engaged.

· Coordinate and facilitate regular team meetings, updates, and communications, including all-staff briefings, newsletters, and shared messaging.

· Work with the CEO and senior team to plan in-person staff meetings, designing the content, format and approach so the sessions align with staff and organisational requirements.

· Design and implement mechanisms that foster internal cohesion and trust, drawing on ideas and good practice for remote working teams.

· Work closely with the senior team to ensure that important updates - strategic, operational, or cultural - are communicated in a timely, consistent, and accessible way.

· Uphold and promote a consistent tone of voice across all internal messaging, ensuring that staff understand and reflect UKMSA’s values and identity in how they communicate.

· Working with the Operations Officer, support the creation and internal rollout of branded materials and ensure consistency in logo use, templates, formatting, and professional standards across the organisation.

2. Community and organisational communications

· Act as a key link between staff, trustees, volunteers (particularly Ambassadors), and other internal stakeholders to ensure information is shared clearly, consistently, and inclusively.

· Collaborate with the Head of Volunteering to ensure that UKMSA’s volunteers are kept informed and involved, particularly during organisational updates, change, or key moments.

· Help embed a culture of openness and two-way communication, ensuring volunteers and trustees feel heard, recognised, and informed, and that their contributions are visible and valued.

· Coordinate messaging across staff and teams so that different groups across UKMSA receive the right information, in the right way, at the right time.

· Support senior leaders in maintaining effective communication with the Board of Trustees, including updates, briefings, and key documents.

3. External communications

· Manage and maintain the UKMSA website and social media channels, working with our external web designer to ensure content is accurate, up to date, and aligned with the organisation’s values and tone.

· Source, shape, and share stories from Shedders, volunteers, and communities to celebrate and amplify the impact of the Shedding movement.

· Lead on the production of UKMSA’s regular newsletter Shoulder2Shoulder, Review and develop the newsletter on a regular basis, in collaboration with staff and volunteers.

· Collaborate with staff and volunteers to collect and develop case studies and lived experience content and ensure these are shared meaningfully and respectfully.

· Support the Membership Manager and Director of Income and Investments to ensure any promotional activity for external partners is aligned with UKMSA’s communications strategy, delivers clear value, and is proportionate.

· Support Director of Income and Investments to shape and deliver marketing campaigns and communications aimed at generating income and supporter engagement

· Support the CEO and Chair in their digital communications - drafting content, advising on tone and timing, and increasing the visibility of their leadership voices, in the service of UKMSA.

· Respond to media and external communications queries, draft press releases where appropriate, and act as the first point of contact for general communications enquiries.

· Monitor UKMSA’s external presence and ensure consistency in messaging, tone and branding, across platforms and partners.

Key expertise required:

· Professional communications experience, with a strong track record in planning and delivering internal and external communications in a mission-led or purpose-driven organisation.

· Excellent writing and editing skills, with the ability to tailor tone, structure, and content for different audiences: from staff and volunteers to trustees, partners, and the wider public.

· Confidence leading internal communications across a remote or distributed team, including experience developing engaging formats, regular updates, and a shared organisational voice.

· Experience working with or alongside volunteers, trustees, or community stakeholders, and a strong appreciation for the importance of inclusive, two-way communication.

· Brand and tone-of-voice awareness, with the ability to maintain consistency and quality across channels, platforms, and contributors.

· Digital confidence, with experience managing websites (e.g. WordPress), social media channels, and email communications tools (e.g. Mailchimp), and using them strategically to reach different audiences.

· Storytelling and content development skills, with the ability to source, sensitively shape, and amplify stories that reflect lived experience and community impact.

· Strong organisational and planning skills, able to manage multiple priorities, coordinate with colleagues across teams, and deliver work to deadline with attention to detail.

· Collaborative mindset, with the confidence to influence tone, content, and strategy while also being hands-on in delivery and responsive to others’ needs and input.

· Judgement and discretion, with experience handling sensitive information, managing risk in communications, and supporting senior leaders with professional external representation.

· Genuine connection to UKMSA’s mission, with a respectful, values-led approach that centres the role of volunteers and champions the voice of the Shedding movement.

What success looks like:

· Staff feel informed, connected, and part of a shared organisational culture, even while working remotely. Internal updates are timely, engaging, and reflect a consistent tone that supports clarity, trust, and inclusion.

· Volunteers and trustees feel included and valued; they know what’s happening, understand UKMSA’s direction, and feel that communication is a two-way conversation, not a broadcast.

· The organisation’s public-facing communications are professional, values-led, and consistent. Social media, the website, and external content reflect the tone, mission, and energy of the Shedding movement.

· The CEO and Chair have visible, coherent digital profiles, supported with high-quality content and strategic messaging that reflects the voice and values of UKMSA.

· Good news stories from Shedders and communities are regularly shared, boosting the visibility of the movement and building pride and momentum across the network.

· Communications activity is intentional and well-prioritised. There is a clear rhythm to communications, and reactive work is handled without pulling focus from core messaging and strategy.

· The Communications Manager is seen as a trusted and thoughtful voice, able to advise colleagues, manage sensitive messaging, and champion quality and consistency in how UKMSA speaks.

· Volunteers remain central, not just as recipients of messages, but as contributors to and shapers of UKMSA’s communication story.

This job is not:

· This is not a campaigning or advocacy role. The Communications Manager will not be responsible for policy development, public affairs, political engagement, or influencing strategy.

· This is not a research or insight role. While storytelling and community voice are central to this role, the postholder will not be responsible for conducting research, writing reports (although the post-holder will support staff to get their reports right), or managing evaluation processes.

· This is not a marketing or income generation role. Although the postholder will support the visibility and professionalism of UKMSA’s public-facing presence, they will not lead fundraising, product marketing, or commercial campaigns. They will work with the Membership Manager and Director of Income and Investment if this is required.

· This is not a senior strategic leadership role. While the postholder contributes to strategy within their area and works closely with senior colleagues, they are not expected to set or lead cross-organisational strategy.

· This is not a purely reactive or administrative role. The Communications Manager is expected to take initiative, bring ideas, and shape how UKMSA communicates - internally and externally - in proactive and creative ways.

Closing date:-9th October 1200hrs
Interview: 22nd October

You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025. 

Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.

Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising. 

This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.

Key duties

Major Donor Fundraising

• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+

• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.

• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships

• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.

• Be responsible for our Breakthrough-ME Group with high quality proposition development.  Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.

• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.

• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.

• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.

• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.

• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.

• Create adequate systems and processes to support the major donor programme.

• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.

• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.

• Provide regular feedback and internal reporting to line management.

• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.

• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.

• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity

• Occasional travel to London, Bristol & events

Other duties

• To positively promote the work and activities of Action for M.E. at all times.

• To contribute to the team’s overall, ongoing and annual planning and budgeting.

• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.

• Act as an advocate for the Charity and its work.

• To work in accordance with Action for ME’s values of collaboration, equity and empathy.

AMR Action UK is the UK patient organisation for people impacted by antimicrobial resistance (AMR). Our focus is on engagement with patients and their families, delivering direct support through our information service, peer-support through patient panels, and small-scale research projects.

AMR Action UK seeks to empower patients, families, and carers to have their voices heard on matters that affect their lives and to be able to influence research priorities, policy and implementation changes at government level, and changes in NHS practices, across the four nations of the UK.

About this role 

AMR is a global problem which many believe is bigger than climate change in terms of both potential impact (the end of modern medicine as we know it) and urgency. While many of the solutions are long-term in nature, in the UK we can address many issues right now which will reduce the harm from AMR, meaning that less people die and many more people will avoid reduced quality of life. 

In 2025 Antibiotic Research UK changed its name to AMR Action UK, with an ambitious strategy to address the harm from AMR across all four nations of the UK. This post plays a vital role in a passionate and driven team generating sustainable fundraising income and building the foundations for AMR Action UK’s vision and long-term impact. 

Purpose of the role 

To shape and deliver a balanced, strategic and proactive programme of trusts and foundations fundraising, achieving immediate targets whilst cultivating and developing partnerships for the future.

We are seeking an energetic and proactive Corporate Partnerships Executive to help us strengthen and expand our partnerships. You will be at the heart of growing our corporate portfolio, ensuring we maximise opportunities to secure new business and nurture long-term, high-impact partnerships.

This role is both outward-facing and highly collaborative. You’ll work with colleagues across teams to deliver excellent partnership experiences, while also taking initiative to spot opportunities, drive forward proposals, and build relationships that support Future First’s mission.

If you have first class people and communication skills, creativity and energy in abundance and an insatiable eye for opportunity, and would like to work for a small but ambitious charity, we’d love to hear from you.

For more details about the role and information on how to apply, please download the recruitment pack.

Key dates to be aware of:

Tuesday 16 September 2025, 12:00pm – Information and Q&A session 

This is an optional session where you can hear more about the role and ask any questions you may have.

Please see details in the attached recruitment pack for how to register for this session.

We recommend attending to help you prepare the strongest possible application.

Monday 29th September 2025 (09:00am) – Applications close

Tuesday 7th September – Interviews will take place in-person in London

About Future First

We are a mission-driven, innovative social mobility charity that believes a young person’s start in life shouldn’t limit their future. We work with state schools and colleges to develop and build their alumni and employee volunteer communities, helping young people ‘see who they can be’ and helping to open up genuine routes to previously gatekept sectors. Our partners have a key role to play in this. We celebrate our 15th anniversary this year, and over that time have supported over 465,000 young people and built 1,250 alumni networks.

Our core team comes from a variety of backgrounds including partnership development, fundraising, delivery, teaching, programmes and communications. We gain additional support from a strong network of experienced and passionate long-term freelancers. We value all contributions and offer the possibility to expand and grow the role based on interests.

UK-based/ Colchester or Home-based with monthly travel to Colchester office. Overseas travel with trips lasting from 10-14 days. 

This post requires the candidates to have independent rights to live and work in the UK

Background

Lepra is dedicated to addressing leprosy and lymphatic filariasis (LF) and their consequences through direct support, advocacy, and the promotion of inclusive communities. We work in Bangladesh and in India, through our sister organisation, LEPRA Society. We work in partnership with people affected by leprosy and LF to improve detection, ensure access to treatment and care, and promote inclusion and wellbeing. Last year we finalised our new Global Strategy for 2024-30, which will guide us in our efforts to accelerate progress towards global targets for leprosy and LF, and towards our vision of a world free from leprosy and LF.

Job Context

Our Global Strategy marks a significant evolution in our organisational direction, introducing innovative approaches and renewed priorities. This includes our first-ever global Theory of Change (ToC), our most comprehensive Monitoring, Evaluation, Accountability and Learning (MEAL) framework to date, a Research and Innovation strategy, and a dedicated Advocacy sub-strategy to guide our influencing efforts.

With the Lepra Advocacy Strategy, we will be working over the next 6 years to strengthen our approaches to our advocacy efforts. The post holder will play a key role in supporting the roll out of the Advocacy strategy working closely with the Director of Programmes and Advocacy, the Head of Research, the Senior Programme Manager, the Programme Officer and the teams where we work.

Job Purpose

This role is an exciting role within the programmes team in response to evolving needs. The incoming post holder will work within the 5 person UK’s Programme and Advocacy team and will drive, advise and support the team in relation to Lepra’s advocacy profile. We are looking for an enthusiastic, motivated, strategic and creative person who has outstanding skills to engage and work with a diverse team. We are looking for someone to work with a clear strategy and then develop, grow and successfully shape the future of Lepra’s advocacy efforts.

Working Relationships

Reports to Lepra UK’s Director of Programmes and Advocacy (DPA)

Works closely with the Programmes and Advocacy Team

Close working links with colleagues in India and in Bangladesh and the UK’s communications team

International travel as needed for programmes oversight and support, and external representation.

Key responsibilities

Advocacy Delivery (50%)

Under the supervision of the DPA implement Lepra’s global Advocacy strategy and coordinate advocacy initiatives.

Serve as the driver of advocacy efforts, facilitating the transitional year of implementation including coordinating the Advocacy Steering Group; advocacy toolkit development; action planning.

Represent Lepra in specific fora and advocacy networks and within the broader leprosy and NTD community in close coordination with the DPA.

Produce quarterly advocacy newsletters

Maintain quarterly reports on flagging areas of concern and actioning steering committee advice.

Assist in the preparation of policy documents and the presentation of papers for publication, conferences, or specific institutions and/or individuals - identifying and targeting the most appropriate audiences.

Support and contribute to the development and implementation of initiatives that foster an inclusive, equitable, and diverse environment across organisational programmes, policies, and advocacy efforts.

Support and contribute to initiatives that promote inclusion and equity, with a strong focus on developing the leadership and advocacy capacity of people with lived experience of leprosy, ensuring their voices are central in decision-making and programme design.

Knowledge management / Learning and Development (20%)

Support the preparation of Lepra advocacy and policy documents.

Disseminate knowledge so that it is integrated into Lepra’s portfolio to amplify the impact for target audiences and improve their outcomes.

Facilitate the new knowledge and learning hub and forge a clear path for its evolution.

Facilitate knowledge sharing through updating the communications team with relevant materials for the new programme folder on the website.

Organise and develop advocacy training.

Develop and take ownership of the new programme’ s team knowledge sharing approaches.

Develop a workplan of knowledge sharing events. 

Support annual review meetings.

Communications (10%)

Assist the programmes team with the documentation of Lepra examples and models of best practice, at the same time identifying and developing mechanisms and avenues for the effective dissemination of this knowledge – internally and externally.

Assist the programmes team, DPO, Chief Executive and Country Programme staff in the synthesis of complex technical/scientific information adapting it to language and formats easily used by target audiences.

Contribute to content development of community engagement materials (public information, brochures, leaflets) that help explain the operations and impact of Lepra’s work to LF and/or leprosy affected communities.

Maintain good working links with Lepra’s UK Fundraising and Communications Team, contributing towards UK facing communications materials as and when required.

Prepare updates, papers, and reports for trustee meetings, funding partners, and wherever else applicable.

External representation (10%)

Support the Chief Executive, DPA and programmes team to maintain and expand existing strategic relationships with key international stakeholders to further Lepra’s advocacy strategy and advance Lepra’s agenda.

Ensure Lepra’s external profile is raised and become the go-to organisation for the leprosy community in terms of advocacy and policy briefings.

Support the preparation of documents for presentation, publication or dissemination at international fora.

Develop/support the development of country specific briefing notes/press kits with the communications team.

Represent Lepra at key events, conferences, and meetings to enhance our visibility and opportunity for impact.

Safeguarding (5%)

Promote a culture of respect, transparency, and accountability within Lepra’s implemented projects.

Ensuring that safeguarding mechanisms are in place and remain at the heart of all activities.

Support the integration of strong safeguarding and PSEA practices into project design and delivery.

Monitoring, evaluation, and impact (5%)

Ensure that all advocacy and knowledge transfer efforts are captured and embedded in appropriate results frameworks, objectives, outputs, indicators and Key Performance Indicators (KPIs). Provide inputs to Lepra’s reports, according to Lepra’s needs.

Person Specification

Qualifications

Essential

Relevant degree level of education in Public Health, Social Sciences, Global Health, Human Rights, Political Sciences or equivalent experience.

Desirable

Relevant post-graduate qualification

Relevant professional health-related qualification

Knowledge and Experience

Essential

Minimum of 2 yrs experience of advocacy/campaigning/policy work with an overseas development organisation

Experience of working to advance the rights of excluded populations

Extensive knowledge of global health issues and an up-to-date familiarity with issues and practice in the international development sector

Experience in planning and implementing successful strategies/campaigns/advocacy in Asia.

Experience in programme/project planning, budgeting, M&E and reporting, within a non-governmental organisation, including the preparation of reports for institutional donors.

Ability to analyse and act on data.

Experience of working on issues in relation to disability, mental health, gender, human rights and social inclusion.

Experience in project coordination and management.

Desirable

At least two years’ experience as an advocacy manager, preferably gained with an overseas development organisation or in academia, in a similar health focused role.

Familiarity with data visualisation tools and packages.

Proficiency in one or more Indian languages (e.g., Hindi, Tamil, Bengali, Telugu, etc.) is an asset.

Skills, Attitudes and Personal Qualities

Highly motivated individual with excellent interpersonal and communication skills, both written and verbal to build strong relationships, negotiate and persuade a wide range of audiences, with confidence at presenting and representing.

Proven strength in both written and verbal communication

Able to reach, network with and communicate to a wide range of stakeholders and potential stakeholders.

Excellent attention to detail, and organisational and time management skills

Ability to manipulate and analyse data to draw useful conclusions to improve programme delivery.

Ability to use databases, Word, excel, PowerPoint and other Office packages

Ability to work independently, be flexible and prioritise workload.

Ability to travel within the UK and overseas.

The right to work in the UK.

We operate a non-bias recruitment process and run our job advertisements through anonymous recruitment methods.

We offer a lot of flexibility in working practices and there is free reserved parking available at our Colchester office. We also offer 26 days annual leave plus public holidays (pro-rated), pension, Employee Assistance Programme and support from an in-house well-being team.

Only shortlisted candidates will be contacted and invited for interview. Please check your email inbox and spam/junk mail folder for any email correspondence for this vacancy.

If you require any reasonable considerations such as access or information in an alternative format, please inform us soon as you are able so that we can make the appropriate adjustments.

Please do not use AI to help you write cover letters, CVs and responses to any screening questions.  We want to hear your original voice.

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.

Location: Home-based, Midlands region (with regular travel and monthly visits to the London office near Old Street)

Hours: Full-Time (37.5 hours per week)

Salary: £25,000 - £28,000

Reporting to: Services Manager

Closing Date: 25th September 2025 at 12:00

Start Date: November 2025 

About the Role

This is an exciting and varied opportunity to join Arthritis Action at a pivotal time as we deliver our 2024–2026 strategy. As our Engagement and Events Co-ordinator (Midlands), you’ll play a key role in expanding our reach and impact across the region, ensuring more people have access to our support, resources, and information.

You'll engage with a wide range of communities and professionals and support the delivery of online groups and outreach projects. From working with underrepresented communities to helping us connect with younger adults living with arthritis, this role offers scope to make a real difference.

Key Responsibilities

Community Outreach & Engagement

• Build and maintain relationships with local organisations, healthcare professionals, and community leaders.
• Organise and deliver presentations and outreach activities to promote Arthritis Action's services.
• Actively support the delivery of our Equality, Diversity and Inclusion (EDI) Strategy by engaging with diverse and underrepresented communities across the Midlands, including ethnic minority groups and people in low-income areas.

Online Groups & Events

• Facilitate and support Online Arthritis Action Groups and Self-Management Events, including managing group logistics, promotion, and administration.
• Identify and coordinate guest speakers for group sessions.
• Gather and report feedback to improve service delivery.
• Ensure confidentiality and safeguarding policies are upheld.

Networking & Relationship Building

• Identify and pursue new networking opportunities with community, healthcare, and voluntary sector partners.
• Represent Arthritis Action at regional and national events.
• Support collaboration across projects and teams to maximise impact.

General Duties

• Work closely with the Communications Team to ensure effective promotion of groups and events via social media and the website.
• Maintain up-to-date records, including inputting data into the organisation’s database (eTapestry).
• Attend and contribute to the internal Equality, Diversity and Inclusion Working Group.
• Carry out other duties appropriate to the role as required.

Person Specification

Experience & Skills

Proven experience in community engagement or outreach: Essential 

Strong project management and organisational skills: Essential 

Excellent verbal and written communication skills: Essential 

Proficiency with Microsoft Office: Essential 

Confident in group facilitation and public speaking: Essential 

Ability to research and establish partnerships: Essential 

Proficiency with video conferencing tools (e.g., zoom/Teams): Desirable

Experience using a charity database (e.g., eTapestry): Desirable

Experience delivering training content: Desirable

Experience working as part of a small team: Desirable

Fluency in a second language (e.g., Urdu, Punjabi, Bengali): Desirable

Essential Personal Attributes

• Excellent interpersonal and customer service skills
• Self-starter with the ability to work independently
• Collaborative team player with a positive, proactive attitude

Location & Travel

This is a home-based role located within the Midlands region. The post requires frequent travel throughout the Midlands, and candidates must have access to their own vehicle. Monthly travel to our London office is required. All reasonable travel expenses will be reimbursed.

What We Offer

• 25 days annual leave (rising to 30 days after 5 years), plus Bank Holidays and 3 additional days for Christmas office closure
• 7.5% employer pension contribution (with 2.5% employee contribution)
• 24/7 access to an Employee Assistance Programme
• Cycle to Work Scheme
• Annual Eye Tests

How to Apply

Applications should be in the form of a CV and a covering letter explaining your interest in the role and how your skills and experience meet the requirements. Please include your email address, telephone number and location within the Midlands region. 

Deadline for applications: 25th September 2025 at 12.00 p.m.

We may close applications early if sufficient interest is received, so we encourage early submissions.

• First interviews will be held via Zoom on 30th September 2025
• Second interviews (TBC) will be held in-person at our London office
  Reasonable travel expenses for the second stage will be reimbursed.

Equality, Diversity & Inclusion

Arthritis Action is committed to building a diverse and inclusive workplace. We actively welcome applications from underrepresented groups and individuals with lived experience of arthritis or similar conditions.

Arthritis Action is an equal opportunities employer. We treat employees and applicants in the same way regardless of age, disability, marital status, gender reassignment, race, colour, nationality, ethnic origin, sexual orientation, religion, or belief.