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SHINE - Spina bifida • Hydrocephalus • Information • Networking • Equality, Remote
£29,041 per year FTE (pro rata for part-time)
High-quality support and opportunities for children and young people living with spina bifida and/or hydrocephalus and their families/carers
Posted today Apply Now
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Remote
£29,041 per year FTE (pro rata for part-time)
Part-time (21 hours per week over Wednesday, Thursday plus Friday or Monday - Core Hours 9am-5pm )
Permanent

Actively Interviewing

This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!

Job description

Shine supports a community of over 15,000 members living with spina bifida and/or hydrocephalus, including 5,000 children and young people (0–25).

You will be delivering high-quality support and creating opportunities for children and young people living with spina bifida and/or hydrocephalus and their families/carers. Supporting Shine members to lead healthy, independent, and fulfilling lives by improving condition management and fostering connections within the Shine community. 

This role will focus on children and young people (0–25), you will be primarily working within the Children, Young People and Families team. However, there will be occasions when you will work across age groups to ensure the best outcomes for our members. 

The role is home-based but you will be required to attend regular clinics in London including GOSH (Great Ormond Street Hospital). Other travel across Southern England including Bristol, Devon and Hampshire may be required. There will be occasional travel required across wider areas and nationally including attendance at events, conferences and meetings at our head office in Peterborough. 

Benefits: 

  • Competitive salary: Review due April 2027 

  • Regular working hours, and no shift work (some very occasional weekends or evenings)   

  • 3% pension contribution 

  • 25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year 

  • Additional annual leave awarded for ‘long service’ 

  • Opportunity to purchase additional annual leave 

  • Broadband allowance for home-based roles 

  • Life insurance after 12 months’ employment   

  • Access to our Employee Support Programme and Mental Health First Aiders  

  • Support to learn and develop  

How to apply  

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.  

  

If you would like to discuss the role please email Gill Valentine, Deputy CEO, to arrange a convenient time for a call.  

  

To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.

*Please note applications without a supporting statement will not be accepted*

We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.  

  

Closing date:  Monday 17th May 2026 at 11pm  

Interviews:  Tuesday 26th May 2026 (Virtual) 

Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.  

Please see full details on the Job Description and Person Specification document below and on our website.

Application resources
Organisation
SHINE - Spina bifida • Hydrocephalus • Information • Networking • Equality View profile Organisation type Registered Charity Company size 51 - 100

Providing specialist advice and support for spina bifida and hydrocephalus

family_conference__fay_and_sharon__img_6199(2).jpgsummer_rez_2015__062v3__resized.jpgfun_and_games_for_the_under_10s__img_6306.jpgshine40plus_conference_img_5745.jpg
Posted on: 17 April 2026
Closing date: 17 May 2026 at 13:31
Tags: Advice / Information, Social Care / Development, Advocacy, Business Development, Customer Service, Customer support, Delivery, Early Years, Engagement / Outreach, Information Management, Learning Disability, Mental Health, Partnerships, Public Health, Safeguarding, Students / School, Wellbeing, Youth / Children, Events / Activities, Social / Support Work

The client requests no contact from agencies or media sales.