Supported living manager jobs in lee on the solent, hampshire

Role: Healthcare Partnerships Lead

Hours:  22.5hr hrs per week, (3 days)

Location: Homebased within the UK with a requirement to travel and support in person events, conferences and meetings

Reporting to: Director of Programmes and Partnerships

Benefits: Flexible working arrangements, 28 days of annual leave (FTE) + 1 day for your birthday, pension scheme

Key relationships: Managing external relationships with key healthcare professionals and partners and working closely with our Medical Advisor and Information and Research Manager

Salary: £38,000 per annum (FTE)

Essential: Access to own car and full clean driving licence

About The Role

Do you have experience in working collaboratively, establishing meaningful partnerships within the healthcare sector and are looking to make an impact at the world’s leading multiple sclerosis healthy lifestyle charity?

We’re looking for an experienced Healthcare Partnerships Lead to continue to steer the delivery of our Healthcare Engagement Strategy and build upon our Program expertise. With a strong focus on reducing health inequalities, you’ll lead, develop and deliver activities that meet our strategic ambition to ensure that as many people as possible understand that there is hope after an MS diagnosis.

We need to engage with healthcare professionals as, for many people with MS, this group are the first people they seek credible information from and will potentially have a life-long relationship with, given the incurable nature of the condition.

About Us

Overcoming MS is the world’s leading multiple sclerosis healthy lifestyle charity established in 2012. We are unique in our whole person approach and practical evidence-based focus upon self-management of MS, formulated as a holistic program. At Overcoming MS, we are here for everyone with MS who wants to take control of their health and wellbeing.

Although there is currently no cure for MS, we help people with MS to live well by making informed lifestyle choices. They have clear, practical actions to take, by following an evidence-based self-management program. This program uses substantial scientific evidence of how holistic self-care, alongside medical therapies, benefits people’s physical and mental health. Knowing people can change their risk of deterioration through lifestyle choices gives hope to us all.

Our vision is that people with MS feels empowered to take control of their health, are making informed lifestyle choices and living a full and healthy life.

Overcoming MS Strategy

Our strategy for 2024 to 2026 establishes five key objectives:

Raise awareness within the global MS community of the importance of healthy lifestyle and the Overcoming MS Program. 

Deliver world class information, tools and support to the Overcoming MS community, empowering them with the confidence and knowledge to follow, understand and share the Program, wherever they start.

Build the authority of Overcoming MS through developing team expertise, communicating the existing evidence base, building new evidence, and through influencing and working in partnerships. 

Grow a collaborative, knowledgeable, passionate and sustainable team of staff, facilitators and volunteers. 

Develop financial growth and independence through reducing our cost base, increasing fundraising via diversified activity, and generating income through other sources. 

Job Description

The Healthcare Partnerships Lead will be responsible for the delivery of our Healthcare Engagement Strategy, through the development and delivery of projects and activities which embrace collaboration, raise the profile and credibility of both the Overcoming MS charity and Program, and extend supported self- management of MS within the health and social sector. We want to be the go-to charity for lifestyle and living well with MS and to demonstrate the added value we bring through education, resources, community and partnership working.

The past 12 months have seen the laying of a strong foundation for both increasing credibility and collaboration. This has included identifying barriers to supporting self-management in MS, developing education, piloting projects and resources to overcome some of those barriers in partnership with healthcare professionals. Honing datasets and presenting these meaningfully, has added credibility and demonstrated value. We want to see that foundation built on further, and shared more widely, taken forward by the new Healthcare Partnerships Lead.

Key Responsibilities

· The successful delivery of the Healthcare Engagement Strategy, identifying and prioritising engagement with our key audiences and stakeholders.

· Working closely with both our Medical Advisor, Information and Research Manager (new role) and with the existing HCP Advisory Group and wider engaged healthcare partners, to facilitate the development of the relationship, profile and reach between the charity and the health and social care sectors. Around information sharing, service design, and understanding of the role of lifestyle in holistic management of MS.

· Identifying and attending key healthcare events and conferences, building networks, partnerships and other resources to increase knowledge and awareness of how the charity and Overcoming MS Program, benefits people with MS and maximise opportunities for signposting.

· Building frameworks for data gathering and evaluation to effectively review benefit of collaborative interventions and report outcomes widely and meaningfully, in partnership with the Information and Research Manager.

· Maintaining understanding of policy and priorities of healthcare agencies to ensure mutual or aligned priorities from both, in addition to people living with MS, are all factors taken into consideration when developing plans and pathways.

· Identifying opportunities for collaboration and partnership working through engagement with HCP professionals and organisations.

· Lead on healthcare education through our existing partnership with the British Society of Lifestyle Medicine, marketing the education widely, evaluating its benefit to HCPs and strategically reviewing the format, vehicle and content as appropriate.

· Providing clear, responsive and consistent educational content around the importance of lifestyle choices and behaviours to healthcare professionals based on the current evidence-base and the Overcoming MS Program, working closely with the Information & Research Manager to ensure up-to-date and validated content.

 Other Responsibilities

· Creating meaningful engagement with the MS community and healthcare professional partners, widening our reach to support more people with MS.

· Mapping local assets and services to target and test appropriate resources and support to MS clinics, to help HCPs share information and support their patients to self-manage, tracking success.

· Empowering people affected by MS and their healthcare professionals to discuss lifestyle modification and the Overcoming MS Program with confidence, improving self-management and health outcomes.

· Engaging new HCP audiences, reducing barriers and perceptions of lifestyle modification in the treatment of MS. 

· Leading on the delivery, monitoring and evaluation of key programmes, considering key insight, collecting and analysing data to measure impact against project and charity targets.

· Supporting the delivery of key products, services and events both in person and online that reach multiple audiences and budgeting accordingly.

· Identifying opportunities for accessing funding streams, working with Fundraising colleagues to diversify our income base.

· Raising our profile within the healthcare environment so that they recommend the charity and will advocate on our behalf.

· As we are a small, busy charity, all staff help with the general running of the organisation in addition to their specific role activities.

About you
Education or experience in a related field e.g. healthcare management, public health, you’ll have a strong understanding of the NHS, Public Health and the UK health care policy landscape. Knowledge of the global health care landscape would be an advantage but not essential.

You’ll have previous experience as a senior healthcare lead or similar role for example within the NHS or similar medical field or will have experience leading community or public health related engagement programmes.

With excellent communication, presentation and influencing skills, including working with stakeholders at very senior and professional levels, you’ll have strategic analytical skills, able to frame problems and solutions in a logical fashion and demonstrate a high degree of empathy and compassion for health-related issues.

You’ll have intellectual flexibility, able to embrace and deal with ambiguity, complexity and to be open to creativity in leading and bringing about effective change.

You are comfortable working remotely and attending events during evenings and weekends, with a full UK driving licence and access to a car.

What can we offer you?
Our staff benefits include:
• 28 days annual leave (FTE) plus a day off for your birthday and bank holidays
• Flexible working
• Remote working
• Pension
• Employee Assistance Programme

How to apply  

Please send your CV and a covering letter by midnight on Sunday 8th June.

In your covering letter, please let us know:  

• Your motivation for applying for the role

• Why you feel your skills are suitable for the role 

• Your notice period  

• Your current location.  

Please respond ASAP, as we will start screening candidates as soon as we receive applications.  

First stage interviews will be held online on Tuesday 17th June.

Second stage interviews will be held online on Friday 20th June.

We are an equal opportunities employer, committed to diversity and inclusion in the workplace. We make hiring decisions based on merit. If you fill most or all the requirements, please apply.  

No agency contact, please.  

Everyone deserves a decent place to live – join Habitat for Humanity Great Britain as our New Business Manager, and support people to find a decent, safe, affordable home.

We’re excited to be recruiting a new team member who will join our driven Corporate Partnerships team and be responsible for securing new corporate and commercial partnerships, whilst strengthening our brand in the UK.

Reporting to the Head of Corporate Partnerships and working in close collaboration with the New Business Executive, your role will be focus exclusively on new partnerships and with scope to define what sectors are prioritised within the first year of post such as construction, logistics, transport, or manufacturing.

You will be joining us at a really exciting time as this is a new post, and the Fundraising & Partnerships Team are working toward ambitious goals. We are a small but growing team who work collaboratively and creatively to share ideas to grow our fundraising successes. There is also opportunity to collaborate and learn from global fundraising teams across the Habitat for Humanity family as part of our corporate fundraising community of practice.

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About Habitat for Humanity GB

Habitat for Humanity is the leading international organization providing housing solutions for the most vulnerable populations around the world. Habitat for Humanity GB is an independent UK charity and part of the international Habitat network, working in over 60 countries worldwide to tackle housing poverty for the 1.8 billion people living in inadequate housing. We do this by building and improving homes, making them healthier and safer; by responding to shelter needs in disaster, and supporting preparation and rebuild efforts; and by making housing systems and policies work better for more people. We are also drawing on our housing expertise to develop our work here in Great Britain to meet the growing housing need which has been exacerbated by the pandemic and now the cost-of-living crisis. 

About the role

This new role will join our corporate partnerships team to build on our success of working with UK headquartered companies to raise vital funds to support our vision of a decent home for all. The role will focus exclusively on new partnerships and with scope to define what sectors are prioritised within the first year of post such as construction, logistics, transport, or manufacturing.

Key roles and responsibilities include:

• Identifying and engaging with prospective corporate partners, developing, and nurturing relationships to secure new partnerships
• Building and maintaining a robust pipeline of potential corporate supporters, leveraging your existing network, and researching new leads
• Creating compelling and tailored proposals, showcasing the value of partnerships and the positive impact they can have on our mission.
• Collaborating effectively with internal teams, senior leadership, and external stakeholders to drive successful partnerships.
• Providing regular updates on new business activities, pipeline progress, and partnership outcomes
• Representing at relevant events and conferences, expanding our reach within the corporate sector

The role will help to develop and increase income for Habitat GB from corporate partners. Reporting to the Head of Corporate Partnerships and working closely with our new business executive and partnership manager. We are a small but growing team who work collaboratively and creatively to share ideas to grow our fundraising successes. There is also opportunity to collaborate and learn from global fundraising teams across the Habitat for Humanity family as part of our corporate fundraising community of practice.

We favour a proactive, autonomous style of working over micromanagement, and want team members to thrive and develop their skills by meeting challenges, and taking a creative, curious, and propositional approach to their work.

The skills we are looking for:

While this role might suit someone already working in the voluntary sector who wants to progress, we’d equally welcome applications from any candidates who feel they have relevant transferable experience and skill sets. The following knowledge, skills and experience are preferred:

• A good professional networker who actively listens, joins in, and focuses on creating long-term relationships with contacts.
• Experience of building income generation led relationships with prospective partners/clients by identifying and promoting key priorities, benefits and synergies which will resonate, inspire, and lead to powerful early connections.
• Experience of building compelling cases for support that can be translated into pitches and proposals.
•  Experience of pitching and presenting clear, emotive, and compelling content to a wide range of potential audiences, from the reception desk to the boardroom.
•  Experience of cultivating partnerships with clients, from initial connection or introduction to secure long term financial commitment
•  Ability to work collaboratively with diverse global teams, across different time zones.
• Self-motivated and organised, able to work under pressure to deadlines and use own initiative to solve problems and adapt to changes.
• Rudimentary understanding of key corporate fundraising trends and priorities for corporate donors including SDGs, ESG, and employee engagement metrics
• Demonstrable passion for the vision of Habitat for Humanity of decent housing for all.
• Support of Habitat’s values and willingness to be a part of the HFHGB team, contributing to an inclusive, kind and people positive culture.

What we offer

Employee well-being is pivotal to organisational success and HFHGB is committed to supporting its people’s well-being. Our existing offer includes flexible working arrangements, a sabbatical policy, virtual GP services, and “Habitat Day” – an extra day of leave for the whole team. In the next year, we plan to expand our offer further, establishing Mental Health First Aider training, a buddy system for new team members, and burnout training. We want to foster a resilient and well-supported team, and encourage all employees to actively participate in continuous improvement in this endeavour.

A flexible approach

HFHGB is seeking to rapidly scale up its activities and impact to fight poverty across the world. This means that the organisation must be adaptable and flexible and have an ambitious, and dynamic team.  While this is currently a home-based role, it is an expectation that the post holder will be flexible, and able to travel to Greater London and elsewhere on a regular basis. 

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Start your Habitat journey

We want the recruitment process to give you the opportunity to share your skills and experience, and to find out more about Habitat. You are welcome to get in touch and arrange an informal chat with a member of the team before applying (see our website>vacancies for Amber Woods' email address) To apply for the role, please send us your CV and a cover letter telling us about yourself and your motivation for applying – we don’t expect this to be more than two sides of A4. Applications are accepted on a rolling basis, and interviews will take place online.

Please note: this role is not eligible for UK Visa Sponsorship - the successful applicant will need to have a pre-existing Right to Work in the UK.

We’d prefer to hear directly from applicants – we won’t be working with third party recruiters on this role. 

This post profile is not set in stone It gives insight into the main purpose of the role, and expected responsibilities, but it might be reviewed in the future to meet the changing requirements of Habitat for Humanity GB – any changes will be made in discussion with the post-holder.

Habitat for Humanity requires that all employees take seriously their ethical responsibilities to safeguard our intended beneficiaries, their communities, and all those with whom we work.  Managers at all levels have responsibilities to support and develop systems that create and maintain an environment that prevents harassment, sexual exploitation and abuse, safeguards the rights of beneficiaries and community members (especially children), and promotes the implementation of our code of conduct. The employment of this position will be subject to a satisfactory reference check and a Disclosure and Barring Service (DBS) check.

At Habitat for Humanity GB, we aim to build, develop and retain a talented workforce that represents a variety of backgrounds, skills and experiences. We welcome and actively encourage applications from anyone who feels they’d be a good fit for our organisation, regardless of race, religion, colour, age, sex, national origin, sexual orientation, gender identity, disability, neurodiversity or any other protected characteristics.

Unfortunately, because of the high volume of applications, we will not be able to contact unsuccessful applicants. If you haven’t heard from us within a month of the application deadline, please assume that your application has not been successful.

We’d prefer to hear directly from applicants – we won’t be working with third party recruiters on this role. 

Job purpose

The Clinical Lead will play a pivotal role in leading and developing Action for ME’s Healthcare Services with the Operations Director, ensuring the highest standards of clinical care for individuals affected by Myalgic Encephalomyelitis (ME). The postholder will be responsible for clinical oversight, service development, and leadership, working collaboratively with multidisciplinary teams to enhance outcomes for children and adults with ME and will be the CQC Registered Manager for the service.

At present, the Healthcare Services is a small team with two doctors (GPs) and two physios. Our counsellors are overseen by a Counselling Lead Supervisor and our multi-faith Chaplains are supported by our Lead Chaplain.

We are keen to develop and expand our services, building on the small amount of spot purchasing from local commissioning boards and exploring a diagnosing and prescribing offer. We are also keen to explore the potential of increasing the range of disciplines offered within the team. You will play a key role in driving the strategy for our Healthcare Services with the Director of Operations.

Key responsibilities

• Provide clinical support and expertise to Action for ME's Healthcare Services, ensuring evidence-based, person-centred care.

• Act as Registered Manager for CQC (Care Quality Commission) purposes and ensure that the service meets all required standards.

• Lead the development and implementation of clinical policies, protocols, and best practices in line with national guidelines and regulatory requirements.

• Supervise and support healthcare professionals within the service, offering guidance, mentorship, and training.

• Designated safeguarding officer for Healthcare Services.

• Collaborate with external stakeholders, including NHS services, researchers, and others, to enhance healthcare provision for people with ME.

• Ensure the service complies with regulatory and safeguarding standards, including CQC requirements where applicable.

• Monitor and evaluate service delivery, using data-driven insights to improve clinical outcomes and patient experience.

• Provide expert advice on complex cases, supporting staff with clinical decision-making.

• Represent Action for M.E. at external forums, conferences, and policy discussions.

Person specification

• A registered healthcare professional (e.g., doctor, nurse, physiotherapist, or occupational therapist) with active professional registration (GMC, NMC, HCPC or equivalent) OR an experienced commissioner of healthcare services with experience of quality assurance, safeguarding and compliance.

• Extensive clinical experience in chronic illness management OR sound understanding of clinical practice, ideally with expertise in ME or related conditions and a clear understanding of the challenges faced by people with ME.

• An understanding of Care Quality Commission regulatory requirements.

• Proven leadership experience in a healthcare setting, including team management and service development.

• Strong understanding of evidence-based practice and clinical governance.

• A sound understanding and experience of safeguarding children/young people and vulnerable adults.

• Excellent communication and interpersonal skills, with the ability to engage effectively with patients, carers, and healthcare professionals.

• Experience in training and mentoring healthcare professionals.

• Ability to work independently and collaboratively within a multidisciplinary environment.

• Commitment to patient-centred care and advocacy for people with ME.

• Knowledge of NHS structures and commissioning processes.

• An understanding of working within the third sector or charitable organisations.

Introduction

Cystic Fibrosis Trust is the charity uniting people to stop cystic fibrosis (CF). We fund vital research, improve care, speak out and race towards effective treatments for all. We won’t stop until everyone with cystic fibrosis can live without limits.  CF is a genetic condition which causes sticky mucus to build up in the lungs and digestive system.  It affects more than 11,000 people in the UK.

In recent years, improvements in the treatments for CF have transformed the symptoms and quality of life experienced by many, but not all of the community.  The enormous leap forward that has been made is both wonderful and challenging and brings new support needs.

With better health, more people with CF now want to plan careers, but need to balance this with management of their condition.  Others still need support with barriers to work or help to navigate their rights at work when they need to focus on their health.  This led us to create Work Forwards, a dedicated programme of career, work and employment support for the CF community.

More information on the Work Forwards programme can be found on our website here.

Project Brief

We are now looking to work with a freelance digital creative producer/editor to deliver some of the project’s key resources.

Working closely with Cystic Fibrosis Trust throughout, the freelancer will provide creative input to identify the most engaging way to execute these resources within the available budget, and will carry out the design and delivery, giving us a set of impactful resources to support people with CF in work and employment.

These resources represent the culmination of work done over the course of the Work Forwards programme so far, and need to be delivered in mid-August 2025 ahead of a major report to our funder, the National Lottery Community Fund, in September 2025.

Key Deliverables

· 6 x 30-90 second videos to explain CF related employment rights to young people affected by CF (scripts and voice-overs are already arranged)

· An engaging, informative resource to help employers understand cystic fibrosis (information content already available, but we would like the freelancer to offer creative input into how this is presented).

Resources must be high quality, accessible and delivered in line with our brand guidelines.

Indicative Budget

There is budget available to deliver this project and this is in the region of £2,500 - £6,000. This must cover all costs to complete this work, including consultant fees, and any materials and resources needed to undertake the project and deliver these resources.

It is accepted that it may be the responsibility of some other providers (including ourselves) to collect and provide some of the information and content required.

Given the available budget, we do not expect this role to involve filming, but we are looking for the freelancer to bring their creative ideas on how we can amplify the project and make the content accessible and engaging.

Role requirements

The successful person will:

· Be a proactive and creative digital storyteller with a strong track record in video editing and producing content for social media

· Have experience in managing the creation of multimedia content / motion design

· Be able to follow brand guidelines and work collaboratively with our brand team

· Be up to date with accessibility guidelines

· Deliver high-quality work to tight deadlines

· Be based in the UK

Your proposal to undertake this work should include:

1. Details of you/your organisation, core skills, experience and competencies.

2. Portfolio of video/multimedia work or previous examples of similar work

3. Details of availability to undertake work distributed across the project period and through to completion.

4. Confirmation of ability to work as an independent freelancer (e.g. Have your own office/IT equipment and the correct tax and NI status to work as a freelancer), and own software/equipment required for the project.

5. Evidence of any professional indemnity insurance/public liability insurance you have in place.

6. Details of how you would fulfil the project brief, the fees you would charge and the steps you would take to deliver the project to budget and timescale.

Selection Criteria

Proposals will be assessed according to the following criteria:

· Extent to which the tender understands and meets the brief.

· Previous experience of delivering similar resources to a high standard, in an accessible and engaging format

· Overall quality of the submission.

· Availability to deliver to timeline (please note the final delivery date is not flexible).

· Lived experience of cystic fibrosis – this is not essential but will be a distinct advantage (please note that there is no expectation that the freelancer will need to film with people with CF or meet with people with CF in person)

Timeline

We expect you to work with us across a 6-week period as follows:

· Closing date for tender submissions – 15 June 2025

· Tender selection – week commencing 17 June 2025

· Expected project start date – 1 July 2025

· Resources delivered by – 15 August 2025

Closing date and how to submit your Tender

The closing date for submission of proposals is midnight on 15 June 2025

Please visit our website for details on how to apply.

Location: Home based, or office based at Society Building, 8 All Saints Street, London N1, in line with NCVO’s flexible working policy or home working policy.

About NCVO

We are the charities charity. For over 100 years, NCVO has stood shoulder to shoulder with communities, championing and celebrating voluntary action.

Our membership is made up of over 17,000 voluntary organisations across England, from small, grassroots community groups and social enterprises, to large, far-reaching charities.

We believe that communities are strengthened by voluntary action. We therefore want charities to thrive and be empowered to deliver for people and communities.

​​About the Transformation directorate

The Transformation Unit comprises the Strategic Review; People, Culture and Inclusion; Technology, Programmes and Innovation; and Data and Insight teams. It will deliver key strategic projects that have a demonstrable impact on the organisational culture, growth and capabilities.)

About the Insights Hub

The Insights Hub sits within NCVO’s Transformation Directorate and acts as the organisation’s central intelligence engine. Bringing together expertise in research, data, performance and CRM, the team supports strategic decision-making through robust research and data analysis. From delivering flagship research projects like the UK Civil Society Almanac to optimising data systems and supporting internal and external stakeholders, the Hub transforms complex data into clear, actionable insights. The Insights Hub ensures that everything we do is grounded in robust evidence and aligned with real-world impact across the charity and voluntary sectors.

About the role

As a Senior CRM and Data Officer, you’ll play a pivotal role in supporting staff across NCVO in making the most of our Customer Relationship Management (CRM) system. Acting as the go-to expert, you’ll provide guidance, training, and technical support to ensure the CRM is used confidently and effectively across the organisation. Your work will help maintain the quality and integrity of our data through regular imports, cleansing, and quality checks, ensuring compliance with data protection standards. You will also be instrumental in driving the adoption of best practices, empowering colleagues with the tools and knowledge to use data efficiently and responsibly.

You’ll also take the lead on developing and managing our Power BI reporting suite, creating impactful dashboards and visualisations that support data-driven decision-making. Working closely with stakeholders, you’ll translate complex needs into clear, accessible insights, drawing from data across Microsoft Dynamics and other integrated systems. Your role will include supporting ongoing CRM development projects, maintaining system integrations—particularly with Business Central—and contributing to a smooth rollout of new features. This is a hands-on, strategic role for someone who thrives on problem-solving, continuous improvement, and enabling others through data and technology.

Equality, diversity and inclusion

NCVO is fully committed to equity, diversity and inclusion in our sector. We want this to be reflected in the diversity of the people who work for us and we welcome applications from people from all backgrounds and identities. We particularly welcome applications from under-represented groups in the voluntary sector and those with diverse, lived experience. As part of our commitment to employing disabled people, all disabled candidates who meet the minimum requirement for all competencies on the person specification will be guaranteed an interview.

​If you have access needs or require reasonable adjustments as part of the recruitment process, please let us know. Shortlisted candidates will be asked to complete a pre-interview task and will have one week to complete the exercise. Interview questions will be shared in advance. 

NCVO is an equal opportunities employer and we welcome applications from everyone. Charity No. 225922.

How to apply

Please complete both parts of the application, quoting the reference SCDGO(T), and email us.

If you have any queries regarding our vacancies or experience any issues downloading or submitting your application form, please email us.

Benefits for NCVO employees

NCVO offers attractive benefits including:

• 25 days’ annual leave (for full time staff and pro-rata for part-time staff) and office closure between 25 December and 1 January inclusive. After three years' service annual holiday increases to 27 days, and after five years to 30 days, (pro rata for part time staff)
• the option to purchase or sell up to five more days each year
• five days’ volunteering leave (pro rata for part-time staff)
• 2.5 extra ‘wellbeing’ days off during the year
• enhanced pay for sick/maternity/adoption leave
• subsidised gym membership
• season ticket loan
• flexible working, including opportunities to work from home/off site
• monthly homeworking allowance for permanent homeworkers
• monthly office worker allowance for those who have to work from the office on a daily basis
• generous employer pension contribution of up to 8.5% of salary, into our stakeholder pension scheme (linked to employee contribution)
• training and development opportunities.
• The opportunity to join Hospital Saturday Fund health cash plan for free at the basic level of cover, or at a reduced rate for other levels of cover
• 24-hour free and confidential employee assistance programme

We’re located a short walk from London King’s Cross station in a modern accessible building, overlooking Regent’s canal.

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases. 

We are seeking an experienced practitioner with knowledge of the criminal justice system and working in partnership with statutory agencies, and familiar with the role of MAPPA.  The post holder will need to be confident in the assessment and support of those convicted of sexual offences and will hold a case load of service users along with the oversight and management of volunteers who provide interventions to service users in the community.

Circles South East (Circles SE) is a registered charity and leading provider of services that address the damage to society and individuals caused by sexual harm and violence. Circles SE’s primary aim is to provide a comprehensive package of support to all whose lives have been impacted by sexual harm and sexual violence. Its vision is to become essenIally a “one stop shop” for issues relaIng to sexual abuse, and embracing multi-agency working practices. We are a community project addressing some of the most marginalized and neglected areas related to sexual violence and the harm it causes in our communities.

Our Community Fundraising Team are a nationwide team, supporting individuals and groups across the UK to raise vital funds for people living with and affected by diabetes.

It’s an exciting time to be part of Community Fundraising at Diabetes UK, as we continue to reach more people and grow our supporter base.

A key driver within our charity’s strategy is that we fight diabetes together, and we can only achieve our ambitious goals by working with and alongside others. As a Community Fundraiser, you will play a crucial role in building these relationships and delivering our exciting growth plans that will help us achieve this.

This role will be shared with another Community Fundraiser covering the Eastern Region.

We’re looking for someone who can inspire and collaborate, building strong, positive relationship. As one of our regionally dispersed Community Fundraiser’s, you’ll be joining a busy team, where you will manage relationships with our key supporters with the primary purpose of generating income across a geographical area, through community fundraising activities. 

The successful candidate will be responsible for delivering income targets across the region by building strong relationships with individuals, local companies, community groups and volunteers, in line with our community fundraising strategy. You will also be responsible for the management and support of local third-party events in your region and in providing excellent stewardship to those supporters.

This role is home-based with regular travel across the region. There will also be regular travel to Diabetes UK offices for meetings. 

This role will only be suited to candidates living within the Eastern Region (Bedfordshire, Cambridgeshire, Essex, Hertfordshire, Norfolk, and Suffolk).

You’ll be able to demonstrate a track record of meeting income targets through relationship fundraising. You’ll be experienced in building and maintaining relationships with supporters and colleagues. A proactive person, you’ll be self-motivated and able to work independently with a solution focused approach. As an experienced fundraiser, you’ll be confident working towards income and expenditure targets and reporting on financial progress. It is desirable that you have managed and secured corporate partnerships and have event management knowledge, though training will be provided.

You will have a passion for building excellent relationships with your supporters to increase loyalty and life-long relationships with the charity.

Job purpose

This is an exciting time to join Action for ME. With developments in research and policy alongside delivering services which are in high demand, you will enjoy working in a fast-paced and continually changing environment. You will be responsible for overseeing operational programme design and delivery, reporting of progress, and measuring the impact of all Action for ME work to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow. You will also assist the Chief Executive in implementing the organisational strategy, and by adapting and evolving delivery models on the ground. As you will have operational management and oversight for our Healthcare Services and hold the Designated Safeguarding Lead role for the organisation, you will bring considerable services-related experience at a management and leadership level. The Chief Executive will focus predominately on external matters and therefore you must have experience of managing an organisation to achieve high quality programmes with evidenced impact and motivated teams. You will act for the Chief Executive on topics, as agreed, and deputise during their absence.

Key duties

1. Leadership

• Ensure that children and adults with ME are at the heart of everything we do through meaningful engagement and participation to influence all aspects of our work.
• Deputise for the CEO and represent and promote the Charity at national meetings and events.
• Deputise for the CEO during periods of absence, and in relation to specific matters, issues or elements of operation as delegated from time to time by the CEO, ensuring a consistency of approach and decisions aligned with the organisation’s objectives.
• With the CEO and HR Business Partner, lead on implementing the People and Culture Strategy and ensuring our Equity, Diversity, Inclusion and Belonging plan is achieved.
• To provide support, leadership and coaching to the Management Team to ensure the smooth running of the organisation and development of the Charity.
• Contribute to the development of the overall strategy for Action for ME, ensuring that the best use is made of available resources within agreed priorities. Ensure that agreed strategy is delivered to target and in line with agreed budgets.
• Work closely with the Chief Executive and Trustees to ensure effective reporting to the Board and sub-committees.

2. Operations & management

• Manage the day-to-day operations of the Charity ensuring high quality service provision that meets all best practice, legal and regulatory frameworks and internal policies and procedures.
• Hold overall management responsibility for our Healthcare Services including the role of the CQC Nominated Individual, ensuring all regulatory requirements and compliance are met.
• Manage the staff and volunteer team, including holding regular meetings and ensure the efficient running of the office ensuring a culture that supports, inspires and motivates the team while ensuring required standards and quality are met at all times through effective performance management.
• Act as the organisational Designated Safeguarding Lead (children and vulnerable adults), working closely with the Designated Safeguarding Officers, colleagues and the Safeguarding Lead Trustee; facilitate the annual safeguarding audit (led by the Lead Trustee) and ensuring safeguarding standards across the organisation are maintained.
• Contribute to the learning and development of key personnel including coaching support (either directly or through the identification of external coaches) to enhance performance.
• Establish (where not already in place) and maintain a clear performance outcome-focused management system driving positive change and improvement across all teams.
• Ensure that policies and procedures are effectively implemented and kept up-to-date to enable the effective management of operations and support growth.
• Take the lead role for data protection, health and safety, compliance and risk management across the organisation and act as the Designated Safeguarding Lead.

3. Finance & income generation

• Hold financial leadership responsibility, working closely with the Finance Manager and the Fundraising Director to ensure sustainability for our work.
• Ensure effective financial management with procedures in place which are kept up-to-date and implemented accordingly.
• Provide support and engagement, where appropriate, to actively grow our income.

4. Working with others

• Lead, nurture and develop relationships with key stakeholder groups and partner organisations, both locally and nationally, supporting Action for M.’s place as the ‘go to’ organisation for people affected by ME
• Lead on new business ideas and pilot projects in line with the strategic objectives; with colleagues, develop the business case, identify and manage risks, lead implementation across teams, evaluate success and learning and make recommendations for future development.

5. Other key accountabilities

• Be proactive in keeping up to date with developments affecting operations and maintain and improve personal competence through continuous professional development.
• Take direction on projects and priorities from the CEO, which may vary from time to time.
• To ensure best value in all service delivery.

Person specification

Experience and Knowledge

• Proven experience in an operations, leadership, or senior management role, ideally within the charity service delivery or healthcare sector, with the ability to develop and implement strategic plans that drive organisational growth and reporting that demonstrates impact delivered. If you come from outside a support services background, you must demonstrate sound understanding of the regulatory and best practice requirements related to delivering support and/or healthcare services.
• An understanding of ME and associated/overlapping illnesses, the impact on people affected by it or a commitment and ability to understand the illness and lead services to meet the needs of children and adults with ME
• Experience managing multi-disciplinary teams, including remote workers, and fostering a supportive workplace culture where change is a constant.
• Safeguarding understanding at a management/decision-making level.
• Proven experience of building and nurturing strong relationships internally and externally at all levels.
• A sound understanding of outcome-focused, effective performance management, quality assurance and risk management.
• Strong financial acumen, including budgeting, financial planning, and resource management in the voluntary sector.

Skills and Behaviours

• Experience of governance, risk management, and compliance, including within regulated services, ideally within a charity and/or service delivery setting.
• Proven ability to think strategically, balance competing demands, use initiative to solve problems and actively seek innovative approaches to problem solving and delivering results.
• Strong interpersonal skills including motivational, negotiating influencing and networking skills which build strong internal and external relationships.
• An ability to understand, analyse and make effective use of data across all of our work.
• A proven ability to coach and motivate staff and to build and lead teams reflecting organisational culture and values, a respectful, constructive and energetic style.
• Proven, strong MS Office skills that supports writing, email, internet and database use.
• Demonstrable ability to work within our organisational values

Interview: The first round of panel interview scheduled to take place in Bristol on the 24th of June 2025.

Purpose of the post

HDR UK are committed to meaningful involvement and engagement where patients and the public are actively involved in shaping our work and decision-making. Reporting to the Senior Public Involvement and Engagement Manager and matrix managed within the Big Data for Complex Disease team, this is a pivotal role that will maintain and build upon an established strategy and programme of activities embedding the patient and public voice at all stages of work with the Driver Programme.

Your work will also support best practice delivered as part of the Public Engagement in Data Research Initiative (PEDRI), a vital UK-wide multi-stakeholder initiative that aims to facilitate a sector wide shift focused on establishing and advancing good practices for public involvement and engagement (PIE) with data-driven research and statistics.

You will work closely with public members, research and NHS communities, internal colleagues, charity partners, and funders to develop and implement plans for patient and public involvement and engagement.

This is an exciting opportunity for someone who has a passion for meaningful involvement and engagement of patients and the public in research, to shape and influence our work on the safe, ethical and scientifically robust use of data for research into the causes, prevention and treatment of disease.

The successful candidate will have a track record in working with individuals, groups and communities and can communicate complex information in clear, engaging ways. The post holder will have excellent influencing and negotiation skills, experience of working on complex projects with multiple partners and be comfortable with working at pace.  Patient and public involvement and engagement in data-driven research is a growing field. The successful candidate will show a willingness and experience of developing and delivering innovative approaches to involvement where previously opportunities may not have been obvious.

We are particularly interested in candidates who have experience of working with diverse communities and using trauma-informed practices to engage with those having lived experience of a variety of health conditions.

Main responsibilities

Big Data for Complex Disease PPIE strategy and delivery:

• Lead on the delivery of the PPIE strategy for the Big Data for Complex Disease driver programme, with oversight from the Senior PPIE Manager and Senior Programme Manager.
• Develop and deliver training and support best practice for researchers working with patients and the public on involvement and engagment in health data research.
• Support member development and growth of the network of patients and public contributors involved in the Big Data for Complex Disease driver programme, including by providing training and guidance on data science and its use in the programme.

Embedding PPIE in our work:

• Lead and facilitate meetings with public contributors to integrate meaningful PPIE throughout all aspects of our work.
• Undertake and manage specific involvement and engagement activities, including but not limited to focus groups, engagement events, developing and undertaking surveys, supporting the writing of plain English summaries of projects and their outputs. In collaboration with senior colleagues, support involvement of patients and the public in the governance of our work.
• Review and provide advice on PPIE elements of research projects ensuring adequate PPIE is incorporated and provide advice and support where needed to researchers. 
• Develop methods to expand reach and ensure diversity of perspectives and work with the HDR UK Involvement and Engagement team to grow involvement of currently underrepresented and underserved groups in health data science.
• Build and manage relationships with colleagues within the Big Data for Complex Disease driver programme and relevant partners like the British Heart Foundation (BHF) Data Science Centre, working collaboratively to support and manage involvement and engagement across all areas of work.
• Work closely with the internal communications colleagues to create and disseminate engaging content (e.g. news stories on outputs and impact, videos, infographics, case studies) on our work and involvement and engagement activities using a variety of communication tools.
• Horizon scan and liaise with colleagues across HDR UK for opportunities to increase visibility of the institute’s engagement and involvement impact, i.e. through conferences, festivals, journals and other publications.
• Lead on the recruitment of new public contributors as required. Adapt, develop and provide training for public where necessary identifying training requirements as needed.

Developing PPIE best practice and collaborative working:

• Work with the Senior PPIE Programme Delivery Manager and the rest of the PPIE Central team to share best practice and examples of successful PPIE practices that could influence our work, including through the Public Engagement in Data Research Initiative (PEDRI).
• Collaborate with the Senior PPIE Programme Delivery Manager, the PPIE Central team, and the HDR UK’s Institute-Wide PPIE Leads Group to lead public outreach initiatives and other events, ensuring that stakeholders are afforded opportunities to contribute their input and provide feedback. Establish effective working relationships and ‘ways of working’ with strategic partners to maximise opportunities for collaboration in patient and public involvement and engagement.
• Act as an internal and external ambassador for public, patient and practitioner engagement and involvement.
• Monitor and report on performance of PPIE across the Programme, make effective use of digital approaches to maximise the ability to collaborate, communicate and continuously learn.

Knowledge, skills and experience

Experience

• Educated to degree level or equivalent
• Experience of working with patients, carers and members of the public with diverse interests.
• Experience of working with community organisations and diverse voices
• Experience of running patient/public involvement activities
• Experience of developing, implementing and evaluating patient and public engagement and involvement strategies and methodologies, preferably in a research environment
• Experience of promoting the need and value of engagement and involvement to a wide range of stakeholders and acting as an advocate
• Experience of writing / developing content for public and research audiences and delivering presentations
• Experience of demonstrating an understanding of health research and the needs of patients and the public
• Planning and organisational expertise with a proven track record of delivering challenging projects with multiple partners to deadlines
• Experience of organising and facilitating a range of events and meetings including: event preparation, chairing of meetings, delivering presentations, use of tools to gather views and feedback, follow-up communications and evaluation
• An understanding of the public sensitivities of using health data for research

Skills

• Excellent planning and organisational skills, with the ability to manage complex and multiple areas of work with competing priorities in a fast-paced environment.
• Evidence of ability to meet tight and challenging deadlines using a flexible and adaptable approach
• Good influencing and coaching skills.
• Excellent people and interpersonal skills to build collaborative partnerships across diverse groups and the ability to handle sensitive issues positively.
• Excellent written and verbal communication skills with the ability to communicate effectively and confidently with different groups of stakeholders and people at all levels.
• Able to grasp the complexity of work across HDR UK and process complex scientific information to communicate it in a way that is clear, engaging and inspires the public to get involved.
• Strong analytic skills with the ability to frame problems and solutions in a logical manner.
• Ability to work autonomously and make decisions without supervision.
• Ability to work collaboratively and as part of a multi-disciplinary team.

Sands exists to save babies’ lives and ensure that anyone affected by pregnancy loss or baby death receives the support and care they need.

This is an exciting role that will rely on a strong combination of excellent organisational and account management skills to support the Partnerships Team’s ambitious fundraising strategy.

You will support the development and management of relationships with external partners, helping to enhance the team’s outreach, funding opportunities, and collaborative projects. This role involves administrative support, stakeholder communication, and event and volunteer coordination to ensure effective partnership engagement and experience.

Additionally, you will have the opportunity to further develop your skills and understanding of corporate fundraising by supporting the Partnerships Team to develop and launch an exciting portfolio of corporate products and events, paying close attention to the evolving needs of partners in an ever-increasing digital environment. 

You will be involved with flagship events and campaigns such as the globally-recognised Baby Loss Awareness Week, our award-winning Sands United Football Club, Big Give appeals and sector-leading collaborations.

You will also draw upon your expertise and creativity by working on creatives and concepts with the team to increase engagement and further develop communication channels appropriate to a diverse corporate audience.

With experience of managing a corporate partnerships portfolio of at least £75,000, you will have managed corporate fundraisers including Charity of the Year Partnerships, cause-related marketing partnerships and sponsors.

We are looking for someone who has an eye for detail, is able to manage their time effectively and ensure the highest supporter experience. You will need to have strong IT skills including the use of a fundraising database.

This role will also provide support to colleagues within the Income & Engagement Department to optimise income and awareness raising activities.

Contract:  12-month fixed-term maternity cover, full time – 37.5 hours per week 

Salary:  £25,787 - £27,886 per annum 

Location: Southampton, SO30 2HL 

Closing date:  Thursday 12 June 2025 

Interview date:  Thursday 19 & Friday 20 June 2025 

Planned start date: Monday 18 August 2025 

We’re looking for a passionate and driven Assistant Manager – Client Services to join our team at the Southampton rehoming centre and help lead our work supporting people and pets. If you have a talent for delivering outstanding client care, strong people management skills, and a genuine love for animal welfare, this is your opportunity to make a meaningful impact. 

More about the role

Our Southampton Rehoming Centre plays a vital role in supporting animals and their people, with on-site kennels and a cattery providing direct care and rehoming services. As part of a compassionate and dedicated team, you’ll help oversee day-to-day operations, support our clients, and ensure we’re making a positive difference in the lives of pets and their owners every day. 

As Assistant Manager – Client Services, you’ll be at the forefront of this work. You’ll: 

• Lead and line manage the client services team to deliver exceptional care from first enquiry through to adoption or other support 
• Work closely with the team to assess and admit pets, match them with the right adopters, and guide clients through every step of their journey 
• Use data and insights to shape services and continuously improve client experience 
• Collaborate with the local leadership team to meet targets and drive pet welfare outcomes 
• Be hands-on with day-to-day operations including managing enquiries, prioritising admissions and promoting pets in our care 

This is a 12-month maternity cover position, working full time at 37.5 hours per week on a rota that includes 1 in 3 weekends and bank holidays. The working day is from 8.30am to 5.00pm. 

About you

You understand what it takes to match pets with new homes and are passionate about delivering an outstanding client experience. With a sharp eye for detail and a drive for improvement, you know how to assess what’s working – and what’s not. 

As a people manager, you're confident in leading by example, setting expectations, and ensuring your team has the support they need to succeed. 

A natural leader, you bring out the best in your team, supporting and coaching them to grow. You're calm under pressure, thrive in busy environments, and communicate clearly with people from all walks of life. 

Your resilience and empathy shine through in emotional situations, helping you build trust, handle challenges with care, and create a compassionate, high-performing team. 

Knowledge, skills, and experience:

• Experience of working in a rescue welfare environment. 
• Significant experience of managing a team. 
• Experience in delivering high level client service. 
• Experience of working in a fast-paced environment. 
• High standard of verbal and written communication. 
• Proven decision-making ability. 
• Current full driving licence. 
• The ability to demonstrate, understand and apply our Blue Cross Values 

It would be great (but not essential) if you also had:  

• Performance management and improvement experience.  
• Understanding of safeguarding issues. 
• Experience of admission and adoption processes in a rescue environment. 

Want to know more detail? Great! We have attached the job description which hopefully gives you everything you need.  

How to apply  

Click the apply button below and complete the online application process before the closing date Thursday 12 June 2025. 

We reserve the right to close this vacancy early should we receive an overwhelming response.   

Blue Cross benefits

Our people are the most important part of delivering our purpose. If it were not for their amazing efforts and commitment, we would not be able to make the difference that we do today.  

In return, Blue Cross wants to ensure we provide you with the best working environment we can. We want you to be happy working for us and will do everything we can to make sure you are.  

Our generous benefits package includes: 

• Full time equivalent of 38 days holiday rising to 43 with service (including Bank Holidays)  
• Programmes for physical and mental wellbeing support  
• Free access to GP via MetLife- 24/7 GP services, private prescriptions and more for you and your family   
• Free physiotherapy advice and face to face intervention  
• Health cash plan  
• Unlimited access to an employee assistance programme  
• Pension scheme with enhanced employer contribution   
• Professional fees paid with Continuing Professional Development and personal development support.  
• Life assurance   
• 20% discount on Pet Plan pet insurance   
• Enhanced family friendly policies   
• Recognition scheme   
• Annual volunteer days  
• Charity worker discounts across a variety of retailers 

Location: Home-based; with occasional travel to Respect’s office at Voluntary Action Islington (VAI), 200A Pentonville Rd, London N1 9JP; with responsibility for pilot sites in Manchester, London, Cleveland and North Wales.

Responsible to: DAPO Triage Service Manager

Responsible for: DAPO Triage Workers and IDVAs

Salary: Point 35-36  £37,450-38,349 (a London Allowance of £3,299.00 will be applied to employees who live in London).

We are pleased to offer a starting salary at the beginning point of the salary band. This position offers opportunities for salary increases based on performance and tenure. 

Hours: 37.5 hours per week; 5 days a week with flexible working hours and provision of an out-of-hours response as needed.

Travel: You will be required to travel when the requires it.

Job type: Fixed Term Contract until 31st March 2026, with a possibility to extend, subject to funding.

Benefits:

• Friendly and collaborative working environment
• Remote working 
• 25 to 30 days holidays per annum plus bank holidays (depending on length of service and pro-rata for part-time employees) 
• Contributory pension scheme including 6% employer’s contribution (subject to employee’s minimum 2% contribution) 
• Enhanced maternity, adoption and paternity pay 
• Occupational sick pay depending on length of service and pro-rata for part-time employees.
• Access to Employee Assistance Programme 
• Access to staff discounts

Closing date: 6th June 2025, 23:59

Interviews to take place: 17th and 19th June 2025. These will be held virtually via Teams

About the role:

The Team Leader will lead on the delivery of the Triage Model in their pilot area/s, providing support, case management and supervision for the Triage Worker and IDVA roles. They will act as the first point of contact assessing the suitability of initial referrals to be allocated to a Triage Worker for a full assessment. The Team Leader will support the Service Manager and Practice and Development Lead in developing multi agency relationships for the successful implementation of the model and will take a lead role in maintaining these relationships locally to ensure operational success when undertaking assessments to try and ensure the right recommendations for positive requirements are made but also to support the ongoing development of a national delivery model and to support the evaluation of the pilot.

About you:

• At least 3 years’ experience of working on complex cases in a multi-agency environment and working with other professionals/agency to manage risk and safeguard vulnerable adults and children
• An understanding of the root causes of domestic abuse on both an individual and societal level
• Experience of working in a partnership with other organisations and managing the challenges that may arise
• Knowledge of safe and effective interventions with perpetrators of domestic abuse across different risk and needs groups
• To manage a complex workload, across multiple geographic regions, and effectively meet reporting deadlines and the needs of a wide range of stakeholders.
• A commitment to anti-discriminatory practice and an approach that centres survivors. 

About Respect 

Respect is a pioneering UK membership organisation in the domestic abuse sector.  Founded in 2000, we have built our expertise over the last 25 years in what was then a fledgling sector and recently have seen significant and rapid growth.

How to apply 

You must download an application form from Respect's job page, and submit to Operations department in word doc. format only, please. 

For an informal discussion about the role, please contact our HR Team directly. 

Closing date: 6th June 2025, 23:59

Interviews to take place: 17th and 19th June 2025. These will be held virtually via Teams

Job Title: Policy & Research Officer
Location: Remote (with UK and international travel, candidate must be UK-based)
Hours: Full-time  
Salary: £30,000 - £33,000 
Reports to: Head of Insight & Advocacy 

About Us 

Metabolic Support UK is the leading organisation for people living with inherited metabolic disorders (IMDs) and their families. We provide expert support and advocacy, champion research, and work with health services and policy-makers to ensure people with IMDs and their families get the care they need and deserve. 

The Role 

We are looking for a curious and committed Research & Policy Officer to help us build the evidence base to improve the lives of people affected by IMDs. Reporting to the Head of Insight & Advocacy, you will play a key role in delivering our research projects, keeping tabs on relevant policy developments, and helping shape our responses to consultations. 

Key Responsibilities 

Research (under supervision of the Head of Insight & Advocacy): 

• Support the design, planning, and delivery of qualitative and quantitative research projects 

• Conduct literature reviews, stakeholder mapping, and data analysis 

• Contribute to survey development, focus groups, and interviews with people living with IMDs, families, clinicians and other stakeholders 

• Assist with analyses and write up findings in accessible and engaging ways for different audiences 

• Ensure all research is ethical, inclusive, and relevant to the needs of the IMD community 

Policy Monitoring and Response: 

• Track developments in policy relevant to rare diseases and inherited metabolic conditions 

• Summarise key policy updates for internal and external audiences 

• Support the drafting of consultation responses, position statements, and policy briefings 

• Contribute to campaigns, stakeholder engagement, and policy influencing activities 

• Help ensure the voice of the IMD community is reflected in national and local policy discussions 

About You 

We are looking for someone who is: 

• Organised, analytical, and enthusiastic about improving lives through research and policy 

• A strong communicator – able to write clearly and concisely for different audiences 

• Comfortable working with data, both qualitative and quantitative 

• Keen to learn, with some experience in research or policy (academic, charity, health, or public sector settings) 

• A team player who enjoys collaborating and supporting others 

Desirable experience: 

• Background in public health, health policy, social research, or similar 

• Experience working with or for people living with a disorder, carers, or people with rare or long-term conditions 

• Familiarity with the NHS, health inequalities, or rare disease policy 

What We Offer 

• A chance to make a meaningful difference in a growing, agile charity 

• A friendly and supportive team culture 

• Flexible working arrangements 

• Opportunities for learning and professional development