Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.
Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.
If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.
As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
About Dravet Syndrome UK
Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.
The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.
What you will bring
Essential
· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.
· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.
· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)
· Demonstrable experience of working in charity, patient advocacy or healthcare sectors
· Ability to deal with people at all levels with empathy, tact and credibility
· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences
· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website
· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively
· Strong organisational and project management skills, with the ability to prioritise
· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)
Desirable
· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development
Why join Dravet Syndrome UK?
Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.
The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.
Our commitment to diversity
As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.
The client requests no contact from agencies or media sales.
Thank you!
Why work for Kids Matter?
- Generous annual leave – 25 days (plus bank holidays) per year pro rata, with time off between Christmas and New Year's additional to this allowance.
- Remote working contribution – receive £26/month pro rata towards the costs of working from home and/or using a co-working space.
- Access to coaching sessions, training opportunities and our Employee Assistance Programme (a confidential support service for staff).
- Flexible working across weekdays to suit your schedule.
About us
Kids Matter is one of the UK’s fastest growing children’s charities.
Our vision is to see every child in need raised in a strong family. Our mission is to reduce the impact of poverty on children through community-based parenting programmes.
Research shows that group-based early intervention parenting groups are the most effective way to support children in need. We train peer facilitators in local churches - the largest voluntary body in the country - to run our affordable, accessible and highly effective parenting programmes, written by Clinical Psychologists. They come alongside parents and carers, building long-lasting community in addition to encouraging confidence and learning positive parenting skills.
We value difference and diversity, and we want our workplace to be built on shared values of equality and mutual trust, with team members representing the wide range of backgrounds and experiences that exist within the UK. We therefore actively encourage applications from people of diverse backgrounds and varied experiences, particularly those who are African, Afro-Caribbean, Asian or part of other minority ethnic communities, who have lived experience of the impact of low-income/low-support circumstances, and who are living with a disability or identify as being neurodivergent.
About the role
The Research and Programmes Coordinator role involves:
- Overseeing administrative tasks for all research projects
- Supporting the Programme Development Team Lead in management of all research projects
- Liaising with the Support Coach team to connect with facilitators/parents for data collection e.g. supporting with the running of focus groups
- Using Kids Matter’s CRM to confidently record communication with consultants and Research Assistants
- Supporting the data gathering process for all our evaluation data including maintaining data integrity by performing regular data audits and cleaning parent data ready for the Research Assistants to analyse
About you
Are you organised with good attention to detail? Do you enjoy supporting others and having a varied workload? Can you prioritise and manage your time effectively? Are you a Christian with an active faith in Jesus? Do you have a passion for Kids Matter’s vision of seeing every child in need raised in a strong family?
Then we would love to hear from you!
How to apply
You can apply for the Research and Programmes Coordinator position by clicking ‘Apply via Website’ and completing a copy of our online application form.
The deadline for applications is 4pm on Monday 29th September 2025. All successful and unsuccessful applicants will be notified by email.
We also ask for all applicants to submit an Equal Opportunities Monitoring Form, which will be sent to you to complete following the submission of your application. This form will be used for anonymous analysis to ensure our overall recruitment procedures are fair and transparent. It will never be viewed or used as part of the selection process. It is optional to submit this form.
If you would like any application/interview support or you need any reasonable adjustments throughout the application process, or if you would like an informal phone call to ask questions or discuss the role, please contact Katie Washington (HR & Systems Manager).
Please see the job pack for more details on the role and application process.
Registered Charity
11 - 20
We exist to reduce the impact of poverty on children in need across the UK.
The client requests no contact from agencies or media sales.
Thank you!
Having adopted a new and ambitious strategy, and embarked on a period of transformational change, Two Saints are now looking to ensure they are in the strongest position to deliver their vision in what are difficult times. This vision is ‘to be a safety net for people in tough times and the springboard to a brighter future.’ The organisation delivers a full range of services to clients across Hampshire, Dorset, Berkshire and the Isle of Wight, and the role of the Two Saints Board is to guide, direct and challenge the plans and strategic decisions relating to these services.
So we’re looking for people who can help Two Saints deliver their vision, with a background and experience in either:
- Asset management, perhaps with experience of the net-zero agenda
- Supported housing services or social care
We’re interested in hearing from talented people who may be looking for their first governance role, and you may have had lived experience.
If you’re interested in what Two Saints do and feel you can make a contribution, we’d like to hear from you so take a look at the candidate pack here https://bit.ly/45U1yDX.
