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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 2 days ago Apply Now
Top job
OCVA, Oxford, Oxfordshire (Hybrid)
£50,240 per year FTE
Inspire, connect and champion Oxfordshire’s voluntary and community sector as Chief Executive of OCVA
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Community Foundation for Calderdale, Halifax (Hybrid)
£60,000 per year
Lead a respected foundation into its next chapter, strengthening local philanthropy, partnership and community impact across Calderdale.
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Religious Life Safeguarding Service, Liverpool (Hybrid)
£75,500 - £80,000 per year
A rare CEO opportunity to lead a respected safeguarding organisation serving Catholic Religious Life groups across England & Wales.
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St Edmundsbury Cathedral, Bury Saint Edmunds (On-site)
£65,000 per year
Lead the operations of a historic Cathedral, driving strategy, governance and growth at the heart of Suffolk’s community.
Posted 2 days ago
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The UK Committee for UNICEF (UNICEF UK), Greater London (Hybrid)
£107,681 per year
This is a great opportunity to join the UK Committee for UNICEF (UNICEF UK) as General Counsel & Company Secretary
Posted 1 day ago
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The Health Foundation, London (Hybrid)
£45,168 per year
We are looking for a Programme Officer to join The Health Foundation
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The General Assembly of Unitarian and Free Christian Churches, London (Hybrid)
£55,000 per year
Seeking an experienced individual to strengthen The General Assembly of Unitarian and Free Christian Churches at an exciting time of change.
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Link to Change, Bedford, Bedford (On-site)
£45,500 - £47,500 per year
Lead Link to Change into its next chapter. Shape strategy, secure sustainability and change young lives.
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LionHeart, Birmingham (Hybrid)
Circa £35,000 (FTE) dependent on hours & experience
We have an exciting opportunity to join the LionHeart management team as Governance Manager
Posted today
The Law Society, London (Hybrid)
Up to £33300 per annum + 3% flex fund after 3 months + bens.
Posted 2 days ago
Closing in 6 days
Independent Age, London (Hybrid)
£40,242 per year
The post holder will provide high-quality support across a broad and impactful portfolio, reporting to the Head of Governance.
Posted 4 days ago
Rochdale and District Mind, Rochdale, England (Hybrid)
£60,000-£65,000 DOE (£48,000-52,000 for 28 hours)
Posted today
Closing in 4 days
Army Cadet Charitable Trust UK, Remote
£40,000 per year
This is an exciting training role in Army Cadet Headquarters responsible for the governance of risk in the Army Cadets.
Posted 6 days ago Apply Now
Page 1 of 11
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.