Stepping out organiser volunteer jobs

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis (APF) is the UK’s leading patient charity dedicated to improving the lives of individuals and families affected by pulmonary fibrosis. Our mission is underpinned by values of compassionate, bold, expert and collaborative. We believe in creating a supportive environment in which both our employees and beneficiaries can thrive.

Founded in 2013 by people affected by PF and clinicians, APF has grown into a respected national charity rooted in community and evidence. We provide trusted information and support, help a growing network of support groups, campaign to improve access to care and invest in research to bring hope of new treatments. APF strives to be an organisation of equity and inclusion, welcoming people from all backgrounds – our team and volunteers aim to reflect the diverse communities we serve.

We have just launched an ambitious five-year strategy (2025–2030), co-created with the PF community, which focuses on expanding support, transforming care, and accelerating research. This strategy marks a step change with a clearer focus, stronger delivery model and greater ambition to ensure no one faces pulmonary fibrosis alone.

Role Purpose

We are looking for a Senior Education and Events Officer to coordinate and deliver our education and events programme for people affected by pulmonary fibrosis, healthcare professionals and wider stakeholders.

This is a hands-on role at the heart of APF’s work. You will plan and deliver education sessions, webinars, conferences and events, making sure they are welcoming, accessible, well organised and shaped around the needs of the people we support.

You will manage the full attendee journey, from registration and communications through to delivery, feedback and follow-up. You will also coordinate APF’s presence at external conferences, work with speakers, clinicians and partners, and help ensure people who engage with our events can easily access wider APF information, support and opportunities.

We are looking for someone with strong experience of organising events, education sessions, webinars, training or similar activity. You will be highly organised, confident working with a wide range of stakeholders and comfortable managing logistics, digital platforms, databases and attendee communications.

You will also be confident hosting or supporting sessions both online and in person, and able to use feedback and data to improve future activity.

This is a great opportunity to help APF deliver high-quality education and events that give people affected by pulmonary fibrosis practical information, reassurance and confidence throughout their journey.

To apply, please submit a CV and a covering letter of no more than two pages outlining your suitability for the role and how your skills and experience meet the requirements of the job description.

Interviews will be held on a rolling basis, so we encourage interested candidates to apply as soon as possible.

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis (APF) is the UK’s leading patient charity dedicated to improving the lives of individuals and families affected by pulmonary fibrosis. Our mission is underpinned by values of compassionate, bold, expert and collaborative. We believe in creating a supportive environment in which both our employees and beneficiaries can thrive.

Founded in 2013 by people affected by PF and clinicians, APF has grown into a respected national charity rooted in community and evidence. We provide trusted information and support, help a growing network of support groups, campaign to improve access to care and invest in research to bring hope of new treatments. APF strives to be an organisation of equity and inclusion, welcoming people from all backgrounds – our team and volunteers aim to reflect the diverse communities we serve.

We have just launched an ambitious five-year strategy (2025–2030), co-created with the PF community, which focuses on expanding support, transforming care, and accelerating research. This strategy marks a step change with a clearer focus, stronger delivery model and greater ambition to ensure no one faces pulmonary fibrosis alone.

Role purpose

The Senior Challenge Fundraising Officer will lead the delivery and growth of APF’s third-party and mass participation challenge events portfolio.

This role exists to significantly grow income and participation by managing end-to-end third-party challenge events, developing community-facing charity-owned fundraising products and delivering excellent supporter stewardship

Working closely with the Head of Fundraising and colleagues across Communications, Services and the Operations Team, you will increase recruitment, empower supporters to raise ambitious funds, and create journeys that encourage long-term engagement with APF.

Success in this role means more people fundraising for APF, raising more income and feeling valued, supported and inspired to stay connected to our mission.

Key Responsibilities

1. Grow participation in third party

• Manage the full lifecycle of third-party and mass participation challenge events, from planning and recruitment through to stewardship and re engagement.
• Develop and execute creative marketing strategies to boost participation and attract new event participants.
• Draft engaging promotional content that inspires and engages our supporters in collaboration with the Communications team.
• Promote third-party events proactively across relevant channels and networks.
• Work with the wider Fundraising team to improve and refine the stewardship journey for challenge participants to maximise the participant experience.
• Identify and pursue opportunities to grow participation in new and existing events.
• Attend key events as required, managing on-the day logistics and volunteer coordination.

2.  Community Product Development

• Work with Head of Fundraising to shape and improve APF’s fundraising offer and remote products.
• Test and refine new fundraising concepts that increase accessibility and broaden participation.
• Work collaboratively across teams to ensure our community fundraising products align with wider campaigns and strategic priorities.

3.  Income growth and fundraiser mpowerment

• Inspire participants to achieve ambitious fundraising targets through engaging, creative communications.
• Develop and enhance fundraising materials, including participant packs and digital resources to support our fundraisers.
• Use insight and sector trends to identify opportunities to boost event visibility and maximise fundraising efforts.
• Monitor fundraising performance to ensure we’re meeting targets and delivering strong ROI on our challenge activities.

4. Stewardship and re-engagement

• Foster personal connections with supporters through thoughtful, tailored stewardship that keeps them engaged and feeling valued.
• Create clear re-engagement plans to encourage repeat participation and long-term loyalty.
• Collaborate with wider Fundraising and Services teams to support acquisition and ensure our supporters have a smooth, high-quality supporter journey.
• Represent APF publicly when required, acting as a confident ambassador for the charity at events and in public settings.

5. Data, insight and compliance

• Support on the management of CRM data to enable accurate segmentation, performance tracking and reporting.
• Monitor recruitment, participation, income and ROI to help inform future planning and improvements.
• Maintain up-to-date knowledge with GDPR regulations and compliance and ensure personal data is handled responsibly and securely.
• Work closely with the Governance and Operations Manager to ensure our fundraising activities are fully compliant with GDPR and the Code of Fundraising Practice.

How to apply

Please apply via CharityJob or submit a CV and a covering letter (maximum of two pages) highlighting your skills and suitability to the role, reflecting the key responsibilities in the job description.

This is a critical, high impact, supporter-facing role within our fundraising team helping to plan and deliver our Events and Community programme. The role is responsible for engaging and growing a community of committed supporters with the goal of growing income across our varied Events portfolio of third-party and DIY challenges, whilst also supporting the team manager across our Community and Virtual challenge programmes. 

About Ovarian Cancer Action  

In the UK, only 1 in 3 women live more than 10 years after an ovarian cancer diagnosis.

As the leading ovarian cancer research charity, we’re working to change that. By finding new and better ways to prevent, treat and detect ovarian cancer, we will ensure a future where no woman dies of ovarian cancer.

Ovarian Cancer Action is a community of changemakers with one purpose: to give ovarian cancer the focus it needs to increase 10-year survival rates. And we know research is the solution. 

We live and breathe this lifesaving, world-leading research. We fund more ovarian cancer research than any other UK gynaecological cancer charity. It’s how we’ve driven some of the biggest breakthroughs of the last 19 years. 

We're also the only charity at the heart of the global ovarian cancer research community and have been for four decades. 

By connecting the world's leading scientists together, we’re creating a powerful hub of experience, expertise and insight so that we confidently fund research that takes us a step closer to our goal: that by 2032 half of women will live more than 10 years after diagnosis. 

Role:   Senior Events and Community Fundraising Officer 

Reports to:Events and Community Fundraising Manager 

Functional team: Fundraising Team 

Main working relationships: 

Community and Events team, Fundraising, Communications, Finance and Database colleagues

Event organisers, challenge providers, fundraising platforms, suppliers, volunteers and supporters 

External stakeholders: 

Supporters, volunteers, agencies, service providers 

Scope of the role

You will manage and successfully deliver key events including the London Marathon, Great North Run and London Landmarks Half Marathon, as well as third party and DIY challenge fundraising. You’ll lead on supporter recruitment and stewardship to meet or exceed agreed targets, while keeping budgets, income and performance on track, as well as maintaining accurate supporter data. You’ll also support on the delivery of Community and Virtual challenge fundraising, including our flagship challenge, Walk in Her Name. 

1)Support planning and delivery of the Events programme

i) Support recruitment, engagement and retention across our event portfolio including London Marathon, Great North Run, London Landmarks as well as third party and DIY challenges to meet or exceed agreed income and engagement targets, while keeping budgets, income and performance on track. 

ii) Responsible for the OCA London Marathon team from sign-up to post-race including delivery of training and fundraising support, on the day cheer point and post-race celebration activities.

iii) Attend events as required. 

iv) Support the team Manager to plan and deliver virtual challenges, including our flagship event, Walk in Her Name and Walk 100, working collaboratively across the team to maximise supporter experience and campaign performance. 

2) Manage delivery of Community Fundraising

i) Manage delivery of community fundraising and engagement

ii) Support the team manager to explore and identify new opportunities for growth.

3) Provide excellent supporter care across the events and community portfolio

i) Deliver excellent supporter care across Events and Community fundraising, ensuring every supporter receives timely, helpful and inspiring communications throughout their fundraising journey

ii) Monitor event performance and supporter feedback, sharing and deploying insight to improve stewardship journeys, recruitment activity and future planning 

iii) Work closely with colleagues across Fundraising, Communications, Finance and Database teams to deliver integrated, supporter-led activity.

4) Provide excellent administrative support

i) Manage and track event budgets, income and expenditure, ensuring accurate forecasting, reporting and post-campaign evaluation.

ii) Maintain accurate supporter and financial records across Raiser’s Edge and fundraising platforms, including data coding, income coding and administrative processes to support excellent supporter care

iii) Ensure all events and fundraising activity is delivered in line with Ovarian Cancer Action’s processes, fundraising best practice, GDPR requirements and relevant legislation.

Person specification

At Ovarian Cancer Action, we have different backgrounds, ways of working and areas of expertise, but we strive to create an environment that lives our values and ambitious mindset.This means that your attitude to your work and fellow team members is as important as skills and abilities.

What experience we're looking for

• Demonstrable experience of planning and delivering a successful events portfolio, challenge events and / or community fundraising activity.
• Understanding of recruiting supporters to events across organic and paid channels.
• Track record of providing excellent supporter care - motivating supporters to achieve agreed goals
• Strong administrative skills with the ability to maintain accurate records and follow agreed processes.
• Familiar with using a CRM database - ideally Raiser’s Edge.
• Experience of tracking and reporting against budgets and targets.
• A working knowledge of fundraising platforms, online giving pages or event registration systems.

Skills And Attributes:

• Confident relationship builder with strong written and verbal communication skills, especially with supporters.
• Strong organisational, planning and prioritisation skills, and able to manage multiple activities and deadlines.
• Accurate attention to detail, particularly when working with financial information, supporter records and reporting processes.
• Confident using Microsoft Office and digital fundraising tools, with a willingness to learn and use new systems and AI tools.
• Able to use initiative, solve problems and take ownership of agreed areas of work.
• A genuine collaborator who works across teams and with external suppliers or event partners.
• Able to evaluate activity, learn from results and make suggestions for improvement.

Attitude and personal qualities:

• Enthusiastic and passionate about our work and women's health.
• Self-motivated with a growth mindset and comfortable working as part of a small, ambitious team.
• Adaptable and flexible, with a positive approach to continuous improvement.
• Warm, friendly and professional, with a genuine commitment to excellent supporter experience.
• Calm and solutions-focused when working under pressure or managing competing priorities.
• Flexible to the needs of the post, including occasional work outside normal working hours, with time off in return.

Don’t meet every single requirement?

Studies have shown that women and people of colour are less likely to apply to jobs unless they meet every single qualification. We are dedicated to building a diverse, inclusive, and authentic workplace, so if you’re excited about this role but your past experience doesn’t align perfectly with every qualification in the role description, we encourage you to apply anyway. You may be just the right candidate for this or other roles that we have.

Additional details

Salary: Between £32,000 to £35,000 per annum (dependent on experience)

Contract type: This is a fixed term contract of 12 months.

Role type:This is a full-time role, however, we’re open to a variety of working patterns and welcome the opportunity to discuss this with candidates. If flexibility or part-time work is your preference, then a paragraph about how this could work well for you in your supporting statement would be helpful.

Location: This role is hybrid with up to 40% office based in City Road, London, EC1V 2PR, near Old Street underground station. The nature of the role may require ad hoc work outside regular office hours (with time off in return).

Our benefits and flexible working

• Flexible working: At Ovarian Cancer Action we strive to be a place where the best people do their best work. We take a proactive approach to conversations with staff and candidates around working patterns and are open to considering a variety of flexible working options.
• Annual leave: In addition to 25 days annual leave and eight public holidays per year, three days are also given to be taken between Christmas and New Year, so in total you can receive up to 36 days paid leave.
• Employer and employee contributory pension: We offer a generous pension scheme above the statutory minimum requirement.
• Healthcare plan: We have partnered with Simplyhealth to offer cashback on a range of healthcare services, as well as access to a 24-hour free GP phone line and counselling service.
• Gym discounts: As part of the healthcare plan you will be able to claim discount on gym membership at participating gyms.
• Eye test: We offer eye tests and financial support with glasses if needed when using a VDU at work.
• Maternity and paternity pay: We offer additional enhanced maternity and paternity pay for eligible employees.
• Training and development opportunities: We want everyone to have a growth mindset and will work on an individualised learning and development plan for you each year.
• Employee Assistance Programme: Employees and their direct family have access to a 24-hour confidential and free Employee Assistance Programme phone line.
• Social events for the team: We believe work should be fun and create opportunities for the team to spend time together.

Our commitment to Equality, Diversity and Inclusion

We are committed to actively promoting equality, diversity and inclusivity and welcome enquiries and applications from underrepresented groups, including minoritised communities and applicants with disabilities. At Ovarian Cancer Action, we believe that embracing diversity, promoting equality and fostering inclusivity are essential values that drive our success.

We understand that a diverse workforce brings together unique perspectives, experiences and talents, which fuels innovation and enhances our ability to better serve the communities we work with.