Supporter care jobs

We're the UK's specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research; provide information and support to patients and their loved ones; and raise awareness of blood cancer.

We are looking for a CRM Specialist to maintain and develop Blood Cancer UK’s CRM, ensuring high-quality, reliable and compliant data that enables teams across the organisation to deliver against our strategy. You will play a key role in improving data integrity, managing data flows, and strengthening the systems and processes that underpin supporter engagement, fundraising activity and reporting. Working closely with colleagues across ICT, Data and Innovation, Fundraising, Supporter Relations and Finance, you will help ensure our CRM is effective, well-governed and continuously improving.

The successful candidate will be confident working with relational databases and CRM systems, with strong SQL and Excel skills and a keen eye for detail. You will combine technical expertise with a problem-solving mindset, supporting users across the organisation, troubleshooting data issues, and identifying opportunities to improve processes through automation and better ways of working. You will also contribute to documentation, governance and training, helping build confidence and capability in CRM use across teams.

Regular travel to our London office will be required, typically once per month or as the role demands.

We welcome applications for part-time or full-time working patterns. The minimum part-time hours for this role are 21 hours per week, with 28 hours also available, up to full-time. Please clearly state your preferred working hours in your cover letter.

We are committed to actively promoting equality, diversity, and inclusivity. In line with our strategy we welcome approaches from individuals from underrepresented groups, including minority communities, and applicants with a disability, to better reflect the community we serve and help broaden our perspectives.

An exciting and unique opportunity has arisen to join Your City & Metropolitan Hospitals Charity, working in partnership with Dudley Group NHS Charity, in a newly created role during a period of growth.

We are seeking a Legacy & In‑Memory Fundraising Officer to lead the day‑to‑day delivery of legacy and in‑memory fundraising across both charities. This is a vital role focused on growing sustainable long‑term income while providing compassionate, sensitive support to donors and bereaved families.

Oxford Hospitals Charity is seeking an organised, collaborative and engaging individual to join our Major Gifts Team working across the Oxford University Hospitals NHS Foundation Trust to make a tangible impact on the lives of patients and staff.

The Major Gifts & Trusts team plays a key role in securing significant income from individuals, charitable trusts and foundations to support transformational projects across our hospitals.

The role is central to ensuring fundraising activity runs smoothly and efficiently, helping to coordinate projects, maintain accurate records, manage donor and internal queries, and support engagement across the wider charity and NHS teams.

Join our small but impactful team to support our donors in funding projects that significantly improve patient care, and contribute to groundbreaking research, staff development, and training.

Support Worker

We're looking for a kind, compassionate and resilient Support Worker to join our Mental Health Care Service in Newham. No personal care or experience required, just the right values.

£30,784.00 per annum, working 40 hours per week.

Fixed term contract for one year from 6^th June 2026.

Want to feel valued? You'll feel at home here.

Our benefits include:

• Annual leave increasing up to 30 days with length of service
• Free DBS

The Support Worker will be part of a team that operates Monday to Friday, 9am to 5pm.

They will provide support to customers with complex mental health needs.

What you'll do:

This is not an exhaustive list of all the duties and responsibilities that may be required from time to time and is subject to change in accordance with the needs of Look Ahead .

• Building supportive, trusting relationships with customers and creating a positive atmosphere
• Carrying out holistic assessments of new customers which incorporate relevant statutory referral information
• Conducting regular key work sessions that are innovative and engaging in order to achieve Support Plan goals
• Create support plans for providing appropriate services based on on-going assessment and reflecting the services and resources available to enable customer to progress in their recovery
• Ensuring ongoing assessment and management of risks associated with customers within an attitude of 'positive risk taking

About you:

• Enjoys social interaction and the company of others, joins in local activities to encourage customer involvement
• Exudes a warm friendly presence and open behaviour
• Prefers working as part of a group or team

What you'll bring:

Essential:

NVQ Level 2/3 or equivalent with some or equivalent sector work experience

Desirable:

A good understanding of mental health issues and how it affects people and experience of supporting customers to manage this and lead independent lives.

About us:

Look Ahead is committed to safeguarding and promoting the welfare of children and adults at risk, and expects all employees, workers and volunteers to share this commitment.

We reserve the right to close this advert early if we are able to appoint to the vacancy before the advertised closed date.

We are opening a new detox centre and are looking for Support Workers to provide safe, compassionate, and practical support to individuals undergoing detoxification in a structured, trauma-informed environment.

Key responsibilities:

• Provide day-to-day support to clients during detox, ensuring safety, dignity, and wellbeing
• Recognise and respond to signs of withdrawal, deterioration, or crisis, escalating concerns appropriately in line with protocol
• Act as a keyworker for allocated clients, offering consistent support and engagement
• Carry out regular welfare checks and monitor clients’ physical and emotional presentation
• Support safeguarding practices and report concerns in line with policy
• Assist with drug and alcohol testing in line with training and procedures
• Support safe medication administration in line with policy and competency assessment, and report any side effects or concerns.
• Follow health & safety, infection control, and lone working procedures at all times.
• Work collaboratively with multidisciplinary professionals (e.g. nurses, clinicians, therapists) to ensure safe and effective care.
• Liaise with community services and professionals (e.g. housing, probation, recovery services) to support move-on following detox
• Maintain accurate electronic records and contribute to handovers and team communication
• Support with practical tasks as required, including maintaining clean and safe communal environments

Essential criteria:

• Experience in a support, care, or people-focused role
• Strong verbal and communication skills
• Understanding of safeguarding and willingness to follow safeguarding procedures
• Ability to recognise risk and respond appropriately, including escalation of safeguarding or medical concerns.
• Ability to build professional and supportive relationships with vulnerable individuals
• Willingness to complete mandatory training (e.g. safeguarding, first aid, de-escalation, substance misuse).
• Basic computer literacy and confidence using electronic systems
• Calm, reliable, and compassionate approach, including in challenging situations
• Willingness and ability to work across different shift patterns, including some weekends, as required by the service

Desirable:

• Experience in mental health, substance use, recovery, or related services
• Understanding of trauma-informed approaches
• Experience of key-working or supporting individuals with complex needs
• Knowledge of detox or recovery pathways
• Experience liaising with community or statutory services
• Experience working in a multidisciplinary team

We offer:

• Full training and ongoing development with scope for progression
• Supportive team environment
• Regular supervision and reflective practice
• Opportunity to be part of a new and developing detox service

This role requires working shifts, including evenings, weekends, and potentially nights.

Enhanced DBS required.

We have an exciting opportunity for a Caseworker (known internally as an Integrated Support Service Worker) working for New Era Domestic abuse service, 37.5 hours a week.

Do you want to make a difference every day? Do you want to contribute to change & improvement for those who need it?

Do you have resilience & adaptability? Can you work effectively with a focus on customer service and care?

If yes, then we'd love to hear from you…

What we offer

At Victim Support, we are committed to attracting and retaining the best talent. Our competitive rewards and benefits package includes:

• Flexible Working Options: Including hybrid working.
• Generous Annual Leave: 28 days plus Bank Holidays, increasing to 33 days plus Bank Holidays, with options to buy or sell annual leave.
• Birthday Leave: An extra day off for your birthday.
• Pension Plan: 5% employer contribution.
• Enhanced Allowances: Enhanced sick pay, maternity, and paternity payments.
• Exclusive Discounts: High Street, retail, holiday, gym, entertainment, and leisure discounts.
• Financial Wellbeing: Access to our financial wellbeing hub and salary-deducted finance.
• Wellbeing Support: Employee assistance programme and wellbeing support.
• Inclusive Networks: Access to EDI networks and colleague cafes.
• Sustainable Travel: Cycle to work scheme and season ticket loans.
• Career Development: Ongoing training and support with opportunities for career progression.

About the role

This role is based in Stafford but will operate across Staffordshire and Stoke-on-Trent. Travel is expected; as is providing victim support in person, usually at VS offices or at community venues.

As an ISS you will be:

• the link worker between the behaviour change service and the victim service;
• ensuring risk information is shared appropriately and used to inform internal and external actions;
• communicating between the two services; exchanging referrals and information; contacting victims and liaising with them
• delivering support to victims during programme intervention and beyond, where necessary, holding a caseload and providing direct support to partners/ex partners in accordance with their wishes and needs;
• ensuring partner agencies are aware of the integrated service and have due regard to its purpose
• delivering partner training and/or awareness sessions for enhancing relationships with partners and other stakeholders.

Please see attached Job Description and Person Specification for further details.

About Us

Victim Support is an independent charity dedicated to supporting people affected by crime and traumatic incidents in England and Wales. We put them at the heart of our organisation and our support and campaigns are informed and shaped by them and their experiences.

Victim Support are committed to recruiting with care and to safeguarding and promoting the welfare of children, young people and vulnerable adults and expects all staff and volunteers to share this commitment. Background checks and Disclosed Barring Service checks may be required.

At Victim Support, we're proud to celebrate diversity and create a workplace where everyone feels they belong. We're committed to being an antiracist organisation, and we actively welcome applications from people of all backgrounds, including those from Black and Asian and other minoritised communities.

As a Disability Confident Employer, we will offer an interview to disabled candidates who meet all essential criteria for a job where it is practicable to do so. We are also happy to make reasonable adjustments during the recruitment and selection process.

How to apply

To apply for this role please follow the link below to the Jobs page on our website and complete the application form demonstrating how you meet the essential shortlisting criteria.

We reserve the right to close this vacancy early, if we receive enough suitable applications to take forward to interview prior to the published closing date. If you have already registered & started an application, then we will contact you to advise of the amended closing date wherever possible.

As our Fundraising Officer (Corporate) you will be a key member of the income generation team for Winchester Hospice Fundraising Charity, joining at an exciting time following significant growth in revenue generation. You'll be driving our corporate fundraising efforts, delivering our ambitious plans and meeting financial targets.

You will lead innovative fundraising campaigns, foster and manage corporate relationships and ensure exceptional supporter experiences. Your role will encompass corporate campaigning and working with local and regional businesses to maximise support and donations to the charity.

In this role you will collaborate with the wider team to ensure a unified and effective approach to fundraising to ensure that the charity is financially sustainable and widely recognised by local organisations. You will support the promotion and delivery of significant events, provide excellent stewardship and enhance supporter journeys. Your proactive, can-do attitude and dedication will play a crucial role in achieving substantial revenue growth and driving the success of our strategic initiatives.

Job Title – Senior Fundraising Executive

Contract - Permanent

Hours - 35 hours per week

Salary – £30,000 - £33,000 per annum (depending on experience) (including London weighting)

Location - London

About Coram

Coram is the UK’s longest-serving children’s charity, having been established in 1739 as the Foundling Hospital by Captain Thomas Coram. We aim to give children the best possible start in life and have been finding new ways to help them for over 280 years. Today, we are a group of charities and charitable companies and have a strong reputation within the children’s care sector. Coram is a leader in adoption and fostering, children’s health education, therapy, child and family law, and advocacy for those in and leaving care. We also have an in-house academic team and we promote best practice to government, local authorities, other children’s organisations and professionals.

About the role

Coram’s Fundraising Team raises over £4 million of voluntary income across the Coram Group. The Individual Giving team has responsibility for supporter care, customer service and administration of individual supporters on our database. Coram has been growing its investment in Individual Giving for a number of years, has a loyal and very generous supporter base and an ambition to see this grow and develop further by embracing new ideas. The team has an exciting future and this role will play a key part in its success.

We are now seeking a highly motivated individual with an interest in communicating our work and building our supporter base to join the team. This is an ideal opportunity for someone to develop their fundraising and communications skills in both print and digital media.

To apply for this role, please click on the 'apply now' button below to complete the application.

Closing date: 27th May 2026

Interview date: W/c 1st June 2026

Coram is an equal opportunities employer and we believe a diverse workforce enables us to improve the services to the children and families we help. We are genuinely committed to encouraging candidates from all sections of the community we seek to support. This includes those from global majority ethnic backgrounds, those that identify as LGBQT+, those with disabilities, those with lived experience of care, those with neuro-diversity, and those from other groups who are underrepresented at Coram.

If applicants feel comfortable, we would encourage them to draw on lived experience as well as professional experience in their personal statement as part of their application.

We are committed to the safeguarding of children and where appropriate will require the successful applicant to undertake a check from the Disclosure and Barring Service.

Registered Charity No. 312278.

We're looking for a kind, compassionate and resilient Support Worker to join our Mental Health Social Care Service in Lambeth. No personal care or experience is required, just the right values.

£30,784.00 per annum, working 40 hours per week.

Want to feel in control of your career? You'll feel at home here.

Our benefits include:

• Annual leave increasing up to 30 days with length of service
• Free DBS
• Exclusive discounts and cashback via Reward Gateway® and opportunity to buy a Blue Light Card
• A generous pension - we will contribute up to 8% and life assurance cover up to 3x pensionable salary (T&Cs apply)
• Quarterly Staff Awards to reward & recognise our amazing staff's commitment and contribution

All applicants must be legally eligible to work in the UK by the start of employment as Look Ahead are not able to offer sponsorship.

LSFRC is an accommodation-based service, set across Lambeth including hub sites situated in Brixton and West Norwood. The service provides care and support to over 60 customers living with enduring long term mental health. We also provide a service for two short-term post hospital discharge schemes for customers, who need support following hospital admission. The role of our Support Worker plays a crucial role in fulfilling our customers' expectations, making a positive difference and where appropriate supporting customers to step down to a lower level of support.

What you'll do:

This is not an exhaustive list of all the duties and responsibilities that may be required from time to time and is subject to change in accordance with the needs of Look Ahead

• Undertake key-working responsibilities for a caseload assigned by Management staff
• Meet customers regularly for support sessions, providing emotional and practical support
• Undertake initial and continuous assessment of needs and potential risks and agree levels of support and actions
• Develop support plans with customers to identify their goals, ensuring a person centred approach, enabling the customer to establish positive change
• Support customers to take care of their living environment, providing emotional and
• practical support to ensure customers enjoy a high-quality accommodation

About you:

• Enjoys social interaction and the company of others, join in local activities to encourage customer involvement
• Approachable and open to others
• Enjoy working as part of a group or team

What you'll bring:

Essential:

• Good Listening and Communication skills
• Good organisational skills § Ability to learn and develop within your role

About us:

We have a strong social purpose and we live and work by our values:

Look Ahead is committed to safeguarding and promoting the welfare of children and adults at risk, and expects all employees, workers and volunteers to share this commitment.

We reserve the right to close this advert early if we are able to appoint to the vacancy before the advertised closed date.

Money & Energy Advice Service Lead

Pro rata salary: £39,825 (35 hour week)

Home-based, with travel as required

Up to 35 hours per week with occasional evenings and / or weekend work will be required

Permanent (subject to external funding)

Responsible for: 2.0 FTE Money & Energy Advisers

About the role

This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.

With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.

We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.

Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.

This role is made possible thanks to the support of British Gas Energy Trust.

About Kidney Care UK

Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.

Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease. 

About the Money & Energy Advice Service

The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.

What we offer

Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:

• Flexi-time – we are flexible about start and finish times, and flexible about your location.
• Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
• Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
• Health cashback plan – ability to claim back a wide variety of routine medical treatments.
• Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
• Cycle2Work scheme

Specialist Support Worker

We're looking for a kind, compassionate and resilient Specialist Support Worker to join our Mental Health Service in Newham. No personal care or experience required, just the right values.

£31,593.00 per annum, working 40 hours per week.

Want to feel valued? You'll feel at home here.

Our benefits include:

• Annual leave increasing up to 30 days with length of service
• Free DBS

All applicants must be legally eligible to work in the UK by the start of employment as Look Ahead are not able to offer sponsorship.

Specialist Support Workers within Look Ahead are required to have either an extra dimension of experience or a higher qualification level as determined relevant for the particular post.

What you'll do:

This is not an exhaustive list of all the duties and responsibilities that may be required from time to time and is subject to change in accordance with the needs of Look Ahead .

• Work in partnership with our external partners
• Building supportive, trusting relationships with customers and creating a positive atmosphere
• Carrying out holistic assessments of new customers which incorporate relevant statutory referral information
• Conducting regular key work sessions that are innovative and engaging in order to achieve Support Plan goals
• Create support plans for providing appropriate services based on on-going assessment and reflecting the services and resources available to enable customer to progress in their recovery
• Ensuring ongoing assessment and management of risks associated with customers within an attitude of 'positive risk taking

About you:

• Enjoys social interaction and the company of others, joins in local activities to encourage customer involvement
• Exudes a warm friendly presence and open behaviour * Prefers working as part of a group or team
• Is fundamentally calm and resilient, does not let emotion adversely affect them or obscure their judgement

What you'll bring:

Essential:

• NVQ Level 2/3 or equivalent with some or equivalent sector work experience

Desirable:

• Other relevant professional memberships and/or specialist qualifications and languages

About us:

Look Ahead is a leading, not-for-profit care and support provider in London and the South East. Our vision is to build better lives through social care and housing in local communities. As an organisation we deliver over 100 services, providing support to thousands of customers each year.

We reserve the right to close this advert early if we are able to appoint to the vacancy before the advertised closed date.

We're looking for a kind, compassionate and resilient Support Worker to join our Complex Mental Health Social Care Service in Tower Hamlets

£20,009.60 per annum, working 26 hours per week.
2x 13 hour shifts per week, including weekends and bank holidays with team meetings on a Friday.

Want to feel like you're making a difference? You'll feel at home here.

Making you feel at home here means helping you thrive in every way. That's why we offer a wide range of benefits, award-winning Learning & Development and a culture that welcomes all. These aren't token gestures - we've thought long and hard about how best to support our team. After all, our people are doing something amazing: helping to transform lives every day.

Our benefits include:

• Annual leave increasing up to 30 days with length of service
• Free DBS
• Exclusive discounts and cashback via Reward Gateway® and opportunity to buy a Blue Light Card
• Fully paid induction programme and further training
• ILM courses and Apprenticeship Programmes
• Cycle to work scheme
• Employee Assistance Programme for 24-7 confidential support
• Online wellbeing resources
• A generous pension - we will contribute up to 4% and life assurance cover up to £10,000 (T&Cs apply)
• Quarterly Staff Awards to reward & recognise our amazing staff's commitment and contribution
• All applicants must be legally eligible to work in the UK by the start of employment as Look Ahead are not able to offer sponsorship.

The Barnsley Street Project is a pilot service funded by NHS money following a bid by East London NHS Foundation Trust (ELFT). The service comprises of Look Ahead staff, ELFT staff, and Tower Hamlets Mental Health VCSE Alliance, formed of 17 local VCSE organisations. The Barnsley Street Project operates 24 hours a day, 7 days a week to provide support for people in the catchment area of one primary care network in Bethnal Green, Tower Hamlets. It provides a variety of psychosocial and clinical interventions, including the provision of 6 Hospitality Beds for short term support and intervention.

Support Workers within the Barnsley Street Project will be expected to support individuals requiring support from the local community that walk in to the service and those staying in our hospitality beds. This support may include providing tailored and co-produced practical, emotional, trauma-informed support to individuals with a variety of challenges relating to their mental health. This may include the management of symptoms, social support, navigating benefits and welfare systems, practical skills and signposting to specialist services in the local authority for intensive or specific support as required.

What you'll do:

• Building supportive, trusting relationships with customers and creating a positive atmosphere
• Working proactively with other members of the team to handle the service caseload and administrative responsibilities
• Conducting key work sessions as required, that are innovative and engaging in order to achieve individual goals
• Ensuring ongoing assessment and management of risks associated with customers within an attitude of 'positive risk taking'
• Providing support with daily living activities, including practical assistance to support customers to independent living e.g. budgeting, cooking, establishing a night time routine
• Supporting customers to maintain a healthy environment and where appropriate assisting them to clean their accommodation and maintain good personal hygiene
• Assisting in the recording and reporting of customer incidents
• Managing customer referrals, completing assessments and obtaining and maintaining all relevant paperwork
• Developing productive relationships with partner organisations to improve service outcomes
• Adhering to lone working protocols and maintaining high levels of awareness in relation to the health and safety of yourself and colleagues
• Involving customers in the design, development and delivery of the service
• Ensuring Look Ahead Health and Safety policies and local protocols are adhered to at all times e.g. fire risk assessments, fire alarm checks etc
• Taking on shift leading responsibilities by coordinating and leading shifts in the absence of a manager
• Being responsible for the handover of key information between shifts
• Adhering to all other Look Ahead's policies and procedures
• Engaging in learning and development activity to increase knowledge and skills
• Undertaking any other duties consistent with the grade and nature of the post as assigned by the Team Leader/Manager Undertake any other duties consistent with the grade and nature of the post as may be reasonably assigned

This is not an exhaustive list of all the duties and responsibilities that may be required from time to time and is subject to change in accordance with the needs of Look Ahead

Please see our website for the full job description.

A fantastic opportunity has arisen within our award-winning fundraising team, to join us in an exciting new role of Legacy and In Memory Manager (Lead).

At Birmingham Women’s and Children’s Hospital Charity, we believe there’s always more we can do for our sick kids and women, and that’s why we will always strive to do more for our patients and families. It’s our mission to raise the vital funds needed to make a real difference to all who use our hospitals, and to make our hospital feel just like home. 

This role requires someone with experience in legacy administration and promotion and/or in memory fundraising, as well as excellent communication skills and a strategic mindset. We need someone with previous experience in relationship management and income generation - ideally within a legacy and/or in memory setting - who is able to lead and inspire our supporters and staff in order to generate long term income and awareness for the charity.

To be successful in this role you will: 

• Lead the development and delivery of legacy marketing and in-memory fundraising strategies to drive sustained income growth and supporter retention
• Be self-motivated, independent and target-driven
• Act as the subject matter expert on legacy administration and in-memory giving, providing guidance, training, and mentoring while promoting a strong culture of philanthropy
• Manage all aspects of legacy casework, including complex and contentious cases, ensuring effective stakeholder relationships and full compliance with legal, regulatory, and best practice standards
• Oversee data management, reporting, and analysis to generate insights, improve processes, and support accurate forecasting and long-term financial planning
• Collaborate across teams to maximise fundraising opportunities, enhance donor engagement across channels, and deliver impactful events and integrated giving initiatives
• Posses a natural confidence in talking to people with high emotional intelligence and resilience due to the sensitive nature of the role, with excellent communication and relationship building skills.

What we offer: 

• Flexible and hybrid working to support work-life balance 

• Generous annual leave entitlement with additional leave for long service  

• Enhanced sick pay 

• Enhanced Maternity Pay 
• Employee Assistance Program and Lifestyle Savings

• Free flu jabs 

• Cycle to work scheme 

• Charity events throughout the year 

• Employer enhanced auto-enrolment pension scheme with 8% employer contribution 

• Ongoing commitment to education and professional development 

The Charity is committed to equal opportunities and welcomes applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation or age.  

Successful candidates will have access to vulnerable beneficiaries therefore the role is subject to Disclosure and Barring Service (DBS) clearance.  

If you think you have the qualities we are looking for and the desire to contribute, please download the Job Vacancy Pack and then send us a CV and covering letter explaining how you meet the criteria for the role and making clear why you would like to be considered for it. 

PLEASE NOTE: Within our organisation, this role is titled Legacy and In Memory Lead. This reflects our internal structure and does not change the scope or responsibilities described in this advert.

We will conduct interviews as suitable candidates apply and we're ready to hire if we find the right person before the job ad closes.

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.