- Travel required: 15 days / year (approx.)
- Location: Home-based in either UK, Germany or Spain.
We are seeking a Researcher to support the activities of the Patient Evidence Department of Myeloma Patients Europe (MPE).
Please send your CV and cover letter at recruitment @mpeurope. org. Applicants must have the right to work in the UK, Germany or Spain. Applications without a cover letter will be rejected.
The following tasks and core responsibilities are non-exhaustive and subject to change depending on needs of the organisation.
Job Purpose
The Researcher will support the Patient Evidence department in generating, analysing and communicating patient-centred evidence to inform clinical, regulatory, industry, academic and policy decision-making, and to fuel progress across MPE programmes and activities. The role involves working with qualitative and quantitative data, supporting research projects and contributing to evidence-based outputs that amplify patients’ experiences and needs. The Patient Evidence department conducts our own patient-focussed research and collaborates on external projects with patient and medical organisations, universities, clinical teams, industry partners and regulatory bodies.
Main Duties and responsibilities
Perform the following duties in conjunction with and under the guidance of the Head of Patient Research:
- Independently design research projects and develop research protocols aligned with MPE’s research strategy, including surveys, interviews and literature reviews.
- Support the development of proposals to secure public and private funding to support research activities.
- Independently conduct assigned research tasks in accordance with project deliverables and timelines.
- Conduct and analyse qualitative (interviews, focus groups) and quantitative research (surveys).
- Conduct desk research (systematic and non-systematic literature reviews) on topics such as patient experiences, health systems and psychosocial impacts of myeloma.
- Maintain accurate records of participant data, safeguarding the confidentiality of participants and patient data, as necessary.
- Write up research results and prepare visualisations of data for different audiences (including for patients, clinicians, academic journals).
- Disseminate research results including presentations at international and national conferences, internal and external meetings and workshops. Represent MPE at internal/external meetings when needed.
- Collaborate with communications colleagues to design strategies to disseminate our research to wider audiences.
- Collaborate with relevant stakeholders to develop recruitment and involvement strategies to enhance participation from underserved groups and from different parts of Europe.
- Engage with patients, families, clinicians, patient organisations and other stakeholders involved in MPE patient evidence projects and other myeloma research.
- Provide administrative and organisational support for the Research Advisory Committee.
- Contribute to our member research support training programme including delivering workshops and training events on research design and methodology.
Other responsibilities
- Undertake any other reasonable duties as required by the Head of Patient evidence.
- Critically appraise and provide advice to the wider MPE team on research and evidence requests.
- Build good relations with members, internal and external stakeholders (including doctors, researchers and medical representatives within companies).
- Respond to external patient organisations’ requests on research and evidence topics.
- Attend scientific congresses and meetings and stay abreast of important developments related to myeloma patient evidence.
- Develop content for MPE website, social media and other communications.
- Participate in advisory boards for the pharmaceutical industry.
- Engage with training and continuing professional development.
Essential criteria
- An undergraduate degree in a relevant subject (such as psychology, social sciences, health policy, health and social care, public health or related fields)
- Master’s degree in a relevant subject (MRes Health Research, MPH, or health-related subject MSc with substantive research component)
- A minimum of 3 years experience conducting applied health research
- Knowledge and experience of qualitative and quantitative research methodologies including surveys, focus groups and interviews applied to health-related research
- Strong skills in qualitative, quantitative or mixed-methods analysis.
- Understanding of principles of Good Clinical Practice in research.
- Proficient at Office suite – Word, Excel, PowerPoint (or equivalent), and specialist quantitative/qualitative analysis software (e.g. SPSS/R, or Atlas/Nvivo).
- Ability to work from home in a virtual setting with a team spread across Europe.
- Strong listening, communication and presentation skills.
- Rigorous work methods and high attention to detail.
- Demonstrated excellence in writing, proofreading, and editing in English.
Desirable criteria
- A PhD in a related field
- Project management experience
- Experience in cross-national research
- Experience in working with patients, researchers, doctors and representatives from the pharmaceutical industry desirable
- Experience in systematic or non-systematic literature review
- Publications in peer-reviewed journals
- Familiarity with patient-reported outcomes (PROs) and patient experience data
- Knowledge/expertise of cancer patient experience research
- Knowledge of drug development process and clinical trials
- Knowledge and experience of ethical review procedures
- Fluency in additional European languages
Personal attributes
- Organised, with excellent project management and time management skills.
- Ability to lead and work independently on assigned tasks and take appropriate initiative.
- A motivated and self-aware team player, who can work independently or collaboratively with equal success.
- Ability to explain complex scientific terms and knowledge into lay language.
We offer:
- Opportunity to contribute to impactful, patient-centred work at a European level.
- An exciting position in the emerging field of evidence-based patient advocacy, working together with key patient advocacy leaders across Europe.
- Permanent position with flexible hours giving the opportunity to progress and to integrate in a dynamic, friendly and multi-cultural team working from different European cities.
About MPE
Myeloma Patients Europe (MPE) is a pan-European organisation representing 57 myeloma and amyloidosis patient groups from over 35 European countries. It is registered as an international non-profit organisation under Belgian Law. A Board mainly composed of patients and caregivers is elected by the membership to oversee the strategy and governance of the organisation. A team of 14 staff members runs remotely the day-to-day operations, programmes and services within 4 divisions: Access and Policy, Medical Education and Scientific Engagement, Patient Evidence and Member and Patient Community Programmes.
MPE’s vision is a world where every person affected by myeloma has access to the knowledge, diagnostics, treatment and care they need to have the best possible outcomes and quality of life.
Our mission is to drive advocacy by empowering the myeloma community through research, education and collaboration.
Read more about our strategic goals for 2025-2030 here: w ww.mpeurope.or g/about-mpe/our-goals/
About the Patient Evidence department
The MPE Patient Evidence department was established in 2020 to generate evidence to better understand and articulate patients’ perspectives, influence decision-makers and use evidence as a driving force for progress across our strategic goals. The team is led by Dr Eilidh Duncan and our goal is to lead the development of robust patient evidence to improve experiences, outcomes and access for myeloma patients and their families. We achieve this by spearheading novel patient research initiatives that address gaps in the evidence and ensure the meaningful inclusion of patient perspectives in research design, conduct and interpretation. We use the evidence we generate internally to fuel progress across all MPE programmes and activities and externally by decision-makers including those in clinical, regulatory, industry, academic and policy settings.
The deadline for applications is 1 May 2026 and all applications will be reviewed immediately afterwards. Our hiring team will schedule interviews with successful candidates to take place in the following weeks. We will be in touch following the review period regarding next steps.
If you have any questions in the meantime, please reach out to us at our recruitment email address.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Reports toDirector of External Relations
Hours37.5 hours per week
Salary£56,959.05 - £63,886.54
ContractFixed Term Contract - 12 Months
LocationRemote (with occasional travel across UK)
BenefitsA generous package including 25 days holiday per year plus public holidays, employee pension scheme with 4% employer contribution, Cycle2Work scheme, 365 days a year Employee Assistance Programme
About SafeLives
We are SafeLives, the UK-wide charity dedicated to ending domestic abuse, for everyone, for good.
We work with organisations across the UK to transform the response to domestic abuse. We want what you would want for your best friend. We listen to survivors, putting their voices at the heart of our thinking. We look at the whole picture for each individual and family to get the right help at the right time to make families everywhere safe and well. And we challenge perpetrators to change, asking ‘why doesn’t he stop?’ rather than ‘why doesn’t she leave?’ This applies whatever the gender of the victim or perpetrator and whatever the nature of their relationship.
Last year alone, we delivered more than 700 sessions to over 15,000 learners across the UK in policing, health, housing, justice, education and the specialist sector. And we have reached 90,000 adult and 100,000 child survivors through programmes designed and delivered with partners.
In the last 9 years, close to 7,000 perpetrators have been challenged and supported to change through flagship interventions developed by our Drive Partnership and the programme continues to expand year on year.
Together we can end domestic abuse. Forever. For everyone.
Description
You will provide strong and steady leadership for SafeLives’ communications, marketing and public affairs work over the next year, communicating our Whole Picture Strategy, finding what works and helping it happen to end domestic abuse for everyone for good.
You will shape and deliver strategic communications and influencing work to reach decision-makers, strengthen public trust, and support our mission to drive real change in the UK’s domestic abuse response.
You will be able bring to together robust data, the voice of survivors, and the view of practice experts to position SafeLives at the centre of the conversation with professionals, key policy and decision makers and influencers as a credible and trusted voice.
You’ll lead a cross-functional team of comms, marketing and public affairs colleagues to:
- Strengthen core messaging and consistency around our Whole Picture strategy and the WP Framework, to support delivery and impact
- maintain our communications and marketing and our brand
- provide oversight of our influencing through policy and public affairs, working with senior colleagues where escalation is required
- support income generation through targeted marketing, and support for fundraising
- ensure we are sharing evidence, data and research in support of our strategy
You will connect reactive work with long-term strategic priorities, ensuring our external engagement supports our strategic priorities, policy goals, and income generation ambitions. And you will lead high-quality responses to breaking news and emerging issues, providing clear strategic advice to the Senior Leadership Team and acting as a trusted lead on reputational risk.
You will ensure SafeLives is visible, authoritative and survivor-centred in public and policy conversations, with timely responses, briefings and support, ensuring our communications and influencing are clear, consistent and drive impact.
You will work with our training, practice, and fundraising teams to drive our business development and income generation, as well as helping us to understand all our audiences and better meet their needs.
And as part of the Operational Management Team (OMT), you’ll work closely with colleagues to ensure an inclusive and supportive organisational culture, role modelling our values.
Undertake any other duties as may reasonably be required.
Responsibilities
1. Leadership
·Provide calm, structured and values-led leadership across the Comms, Marketing and Public Affairs team.
·Ensure reliable systems, processes and workflows for communications, marketing and public affairs.
·Set expectations, priorities and working rhythms that bring stability and clarity to the team.
·Promote a supportive, inclusive and collaborative culture with clear communication channels.
2. Core Narrative, Messaging and Evidence Sharing
·Lead the development of SafeLives’ core messages, ensuring they are used consistently across all teams, and the development of our influencing asks.
·Translate SafeLives’ research, data and evidence into accessible, impactful content for external audiences, including practitioners, policy and decision makers.
·Ensure all outputs are survivor‑centred, values‑aligned and evidence‑led
·Develop our brand to reflect our approach to equity, equality, diversity and inclusion and in line with our values - human, rigorous, brave and inclusive.
·Oversee production of communications, marketing and policy materials that help to amplify our Whole Picture strategy and our related priorities.
3. Communications and Media Leadership
·Lead SafeLives’ overall communications strategy and activity.
·Oversee media relations, with strong focus on clear messaging and reputational resilience.
·Implement rapid-response and crisis‑comms protocols with clear escalation to Directors.
·Lead the development and management of our website, digital channels and content strategy.
·Ensure SafeLives is timely, authoritative and survivor‑centred in its external interventions.
4. Marketing and Audience Engagement
·Lead marketing strategy to support:
·Statutory and voluntary income generation
·Training uptake
·Consultancy and practice development
·Fundraising and supporter engagement
·Strengthen audience insight, segmentation and targeting.
·Oversee campaigns that bring SafeLives’ strategy and evidence to life and drive measurable action.
·Ensure that communication and marketing resources are used effectively to support business development.
5. Public Affairs and Policy
·Provide strategic alignment between SafeLives’ core messaging and evidence sharing and our influencing work
·Ensure public affairs activities and outputs (briefings, consultations, correspondence) are clear, accurate and consistent with SafeLives’ communications approach.
·Maintain awareness of political and policy developments relevant to SafeLives’ mission, advising Directors on risks and opportunities for influencing, working with colleagues across the organisation to develop policy.
·Senior level engagement will be led by Directors, as needed, with this role and the public affairs team leading stakeholder engagement and supporting preparation, messaging and follow‑up.
6. Planning, Governance and Performance
·Lead forward planning for all communications, marketing and public affairs activity.
·Set realistic, measurable KPIs that support the delivery of our comms and influencing strategy and our income generation.
·Embed continuous improvement processes and ensure compliance with GDPR and data protection.
·Oversee budgets for communications, marketing and public affairs, ensuring value for money and resource prioritisation.
7. Authentic Voice
·Ensure that the voices, experiences and priorities of survivors remain at the heart of all external communications.
·Support colleagues and Pioneers who use lived experience in SafeLives’ work in a trauma‑informed and respectful way.
Person Specification
Experience
·Strategic communications, including influencing, brand/profile raising, media relations and reputation management in complex, high profile environments (E)
·Media relations, including securing high quality coverage and rapid-response experience (E)
·Developing and delivering effective communications and marketing cmapaigns, including support for fundraising and income generation (E)
·Digital communications across owned, earned and paid media (E)
·Experience using data, research and evidence to inform communications, influencing and storytelling (E)
·Understanding of public affairs or policy environments within the social sector (D/E)
·Leadership and people development, ideally across multi-disciplinary teams (E)
·Influencing professional and policy audiences through clear, impactful communications, information and guidance (E)
·Working with people affected by domestic abuse to support storytelling and influence change (D)
Skills
·Confident in providing strategic communications advice aligned with organisational strategy and policy priorities (E)
·Exceptional written, oral and influencing skills, including excellent writing and editing ability (E)
·Strong political and media awareness
·Excellent judgement under pressure, making sound, values‑led decisions at pace (E)
·Ability to turn complex and fast‑moving information into clear messaging for different audiences, particularly professional and policy maker audiences (E)
·Strong issue and risk management in sensitive public contexts (E)
·Excellent digital and social media skills (E)
·Strong analytical skills to design and deliver campaigns (E)
·Numerate, with experience preparing and managing budgets (E)
·Strong planning, prioritisation and ability to meet multiple deadlines (E)
·Able to identify problems early and propose solutions (E)
·Commitment to equity, equality, diversity and inclusion (E)
·Commitment to ending domestic abuse (E)
Competencies
Leadership, organisational and strategic awareness
·Inspires trust and confidence in others
·Commitment to SafeLives’ values – Human, Rigorous, Inclusive and Brave - underpins all actions and decisions
·Remains calm, decisive and collaborative in fast-moving situations, while maintaining message clarity, survivor focus and organisational credibility
·Demonstrates an understanding of how your own role contributes to achieving SafeLives’ goals
·Is responsive to change which helps achieve goals
·Pursues tasks/goals with energy, drive and need for completion
Teamwork & collaboration
·Fosters an inclusive working environment so that others can contribute effectively
·Supports colleagues in demanding situations, recognises the importance of well-being in self and others, accepts help and support from other team members
·Listens to the views of others and shows flexibility in working with collective decisions
People management and decision making
·Ability to lead and manage effective teams and create an inventive, responsible and generous team culture
·Strong focus on quality, performance and impact
·Coaches staff to reach their full potential
·Makes effective decisions on a timely basis
·Judgement and problem solving is based on identifying outcomes and victim focus
Communications and relationship management
·Communicate with energy and direction
·Ability to build strong and effective relationships with key internal and external stakeholders
·Promote and contribute to cross team working
·Speaks and writes clearly and effectively and in a timely manner, tailoring communication to suit the audience
·Maintains confidentiality
Delivering quality
·Self-starter with the ability to use initiative and judgement to identify problems and propose solutions
·Excellent organisational skills including the ability to manage multiple projects and meet tight deadlines
·Takes responsibility for own workload, acts on own initiative, seeks feedback from others, evaluates own performance and then acts upon it
·Tries out new ideas and ways of working and identifies and shares learning
Influence
·Inspires confidence and trust– demonstrating high standards of integrity, honesty and fairness
·Actively engages the knowledge, ideas and contributions of others
·Uses appropriate techniques to influence others
The client requests no contact from agencies or media sales.
Lloyds Bank Foundation
Head of Programme Design and Organisational Development
Starting Salary: £66,438 (if London-based); £61,872 (if not London-based)
Contract: Full-time, permanent contract (we are open to conversations about flexibility - so please ask)
Location: Remote role - can be based anywhere in England or Wales with an expectation of frequent travel across England and Wales
About Lloyds Bank Foundation
Lloyds Bank Foundation for England and Wales is an independent charitable foundation, backed by Lloyds Banking Group and the people within it. We want everyone to be in a good place - personally, in a home that’s a good place to live, and in a community that’s a good place to belong.
We play our role by connecting and catalysing community-led change, providing the money, time, tools and connections that build organisations’ capacity and capability, to make people’s lives better and their communities stronger.
We back people and communities across England and Wales, to make that happen, because when you back brilliant people, brilliant things happen. Our communities are full of ambitious, energetic and determined people stepping up to make their neighbours’ lives better and their communities grow stronger. Day in, day out.
About the Role
This is a leadership opportunity to shape how the Foundation designs, delivers and strengthens its programmes across England and Wales.
As Head of Programme Design and Organisational Development, you will lead the Foundation’s approach to programme design, organisational development and volunteering, ensuring everything we do is high quality, evidence-informed and grounded in lived experience.
You will set the standards, frameworks and tools that underpin programme design across the organisation, working closely with Programme Leads to design new programmes and strengthen existing ones. You will also lead our organisational development offer, ensuring charities and partners are supported to become stronger, more resilient and better connected.
Alongside this, you will shape how volunteering contributes to our work, embedding it across programmes and ensuring it supports both community capacity and connection.
You will work across teams and directorates to ensure programme design, organisational development and volunteering are fully aligned and working together to deliver meaningful community-led change.
About You
We’re looking for an experienced and credible leader with a strong background in programme or service design, ideally in complex or multi-partner environments.
You will bring a deep understanding of how organisational development builds capacity and resilience, alongside experience of using evidence and insight to improve programmes and outcomes.
You will be confident developing frameworks, standards and approaches that ensure quality and consistency, while also enabling innovation and learning.
You will be a collaborative and relational leader, with strong partnership skills and the ability to work across internal teams and external organisations. A commitment to diversity, equity, inclusion and belonging is essential.
How to Apply
Please click ‘Apply’ to be redirected to our website, where you can download the Candidate Information Pack and find details of how to apply.
For an informal conversation about the role and application process, please contact our recruitment partner, Atkinson HR via the information in the candidate pack.
Our Commitment to Diversity, Equity and Inclusion
We hold Disability Confident Employer status (Level 2) and are working towards full status by 2027. This means that if you're a disabled applicant and your CV and application answers clearly demonstrate that you meet the essential criteria for the role, we will invite you to interview.
More broadly, we are committed to building a diverse team that reflects the communities and people we work with. We believe that diversity of background, experience and perspective makes us stronger and helps us make better decisions. We actively welcome applications from people who are under-represented in the charity sector, including people from Black, Asian and minoritised ethnic communities, disabled people, and those with experience of the issues our funded charities work to address.
Key Dates
Closing Date: Thursday 28th May 2026
Optional Q&A Session: Wednesday 6th May 2026 at 09:00-10:00
First Interview: Tuesday 9th June 2026
Second Interview: Thursday 18th June 2026
We support small, local and specialist charities across England and Wales.

