Data entry volunteer volunteer jobs in Largs, north ayrshire council

Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.

Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!

Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.

You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.

Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.

Who are we?

Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist  welfare rights advisor. 

Myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Discretionary £1,000 increase after successful completion of probationary period

Application Instructions

Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026

Initial screening chats will take place on Thursday 14th May 2026

Interviews will be week commencing 25th May 2026

Interviews will be held over Microsoft Teams

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

Dataro are looking for a Customer Success Manager to help grow their presence across the UK charity sector. This is a role focussed on providing excellent client satisfaction to the post holders UK and Europe based charity and not for profit portfolio. You will spend your time meeting clients, following up on queries and IT tickets, and supporting them in a consultative way to get the best impact from Dataro. This role is ideal for someone who enjoys building relationships, spotting opportunities to deliver great customer service and maintaining great channels of communications.

Dataro is a growing company that has retained a start up midset and ethos, so colleagues work with high levels of agency, are solutions focussed and happy delivering at pace.

You’ll work closely with other Customer Success Managers in the UK, as well as colleagues across the USA and Australia. This role would suit someone with experience of customer service and relationship management with a charity setting, who understands fundraising and what tools such as Dataro can do to help support income generation. Candidates don’t need to know Dataro’s product inside out, training will be provided, but an understanding of charity CRMs would be useful.

This is a great opportunity to join a growing organisation that still retains the energy and ownership of a startup environment, while working with charities across the UK to help them strengthen their fundraising and supporter engagement. 

Application notes

Please download the Candidate Info Pack provided for further information about the role, timelines and next steps.

To progress your application, please contact THINK Recruitment to organise an informal screening call. Please note, we cannot shortlist candidates who have not had a screening call so please allow enough time to speak to us before the closing date.

Timeframes 

Closing date for applications: Midday Thursday 19th May 

Candidates will be notified of outcomes by EOD Friday 22nd May

Interviews will be two stages, see dates within the Candidate Pack 

This is a vital role for the Bikeability Trust in leading the management of over £78 million of Active Travel England grant funding to 2029 for the provisiion of Bikeability training and management of the grants programme. We are also launching a new fundraising and income generation strategy for the next three years. You will have significant experience of charity finance and reporting. An established leader with excellent financial acumen, you will have used these abilities to establish and maintain effective relationships with colleagues, external stakeholders and networks.