Research jobs in Cleethorpes, north east lincolnshire

Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast 

Salary: £32,750 per annum
Hours: 35 hours per week 

Closing date: Monday 19 May 2026 at midnight 

Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026 

This is a full time fixed-term position for one year (with possible extension subject to funding). 

Who we are looking for  

Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum. 

The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.  

You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.  

Experience required 

• Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse  

• Experience of leading public affairs delivery in one of more of the devolved nations  

• Experience in analysing Government policy in-depth and creating policy briefings   

• Experience of drafting briefings, reports and policy submissions   

• Experience of communicating across a range of parliamentary and professional stakeholders at all levels  

• Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment  

• Experience of organising stakeholder events  

About Breakthrough T1D 

Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia. 

You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1. 

Employee benefits 

As an employer we offer: 

• Hybrid working arrangements 

• Flexible working and will consider compressed hours 

• Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service 

• Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment 

• Season ticket and cycle loan 

• Pension scheme 

• Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates 

• Personalised training to suit your career aspirations and professional development 

Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age. 

The role 

The Innovation team at Leadership Skills Foundation is responsible for the design and evaluation of learning programmes that give young people life‑changing skill development and leadership opportunities. As Innovation Officer you will provide support to our Innovation Leads across learning development, visual design, and research activities. 

This role is ideal for a creative all-rounder. You don’t need to be an expert in all areas on day one. We are looking for a proactive problem solver who can grow into the role and is energised by the idea of wearing multiple hats to help young people succeed. 

You will directly support a broad range of projects including: 

• Our strategic partnership with Sport England to positively impact a wider diversity of young people through sports leadership opportunities.

• The development of our new youth voice initiative to empower young people to lead positive change. 

• The expansion of our Environment Leaders Programme to raise awareness and equip young people with green skills for their future employment.

What you’ll do 

Learning development 

• Work collaboratively to help create and test new learning programmes, and continuously improve our range of Awards and Qualifications based on research findings e.g. from our Sport England Programme. 

• Support the creation, editing and quality-checking of course content and materials, such as Learner Evidence Records and tutor guidance documents. 

• Support digital learning activity, including content creation, managing online platforms and testing user experience.

Visual design and content 

• Create engaging visual designs for use in course materials and impact reporting, ensuring designs are always accessible and on brand. 

• Manage our library of learning resources, ensuring designs are reviewed regularly and improved based on feedback and research findings e.g. from our Sport England Programme.

Research and evaluation 

• Play a supporting role organising and conducting research interviews, observations, surveys and focus groups.

• Assist with data collection and analysis of qualitative and quantitative insights.

• Support the preparation of engaging impact reports and insight summaries.

What you’ll love 

Remote working with flexible / agile working, with some travel to in-person meetings. 

A small, friendly team committed to making a difference for young people.

Summer and winter team events. 

Optional Vitality Health Care Plan, with option to add family/significant others at reduced rate ((following successful completion of probation period). 

*** Please review the job pack for the full person specification and further information. This is a full-time, two‑year fixed‑term contract, with the ambition to extend subject to funding. *** 

• Travel required: 15 days / year (approx.)
• Location: Home-based in either UK, Germany or Spain.

We are seeking a Researcher to support the activities of the Patient Evidence Department of Myeloma Patients Europe (MPE).

Please send your CV and cover letter at recruitment @mpeurope. org. Applicants must have the right to work in the UK, Germany or Spain. Applications without a cover letter will be rejected. 

The following tasks and core responsibilities are non-exhaustive and subject to change depending on needs of the organisation.

Job Purpose

The Researcher will support the Patient Evidence department in generating, analysing and communicating patient-centred evidence to inform clinical, regulatory, industry, academic and policy decision-making, and to fuel progress across MPE programmes and activities. The role involves working with qualitative and quantitative data, supporting research projects and contributing to evidence-based outputs that amplify patients’ experiences and needs. The Patient Evidence department conducts our own patient-focussed research and collaborates on external projects with patient and medical organisations, universities, clinical teams, industry partners and regulatory bodies.

Main Duties and responsibilities

Perform the following duties in conjunction with and under the guidance of the Head of Patient Research:

• Independently design research projects and develop research protocols aligned with MPE’s research strategy, including surveys, interviews and literature reviews.
• Support the development of proposals to secure public and private funding to support research activities.
• Independently conduct assigned research tasks in accordance with project deliverables and timelines.
• Conduct and analyse qualitative (interviews, focus groups) and quantitative research (surveys).
• Conduct desk research (systematic and non-systematic literature reviews) on topics such as patient experiences, health systems and psychosocial impacts of myeloma.
• Maintain accurate records of participant data, safeguarding the confidentiality of participants and patient data, as necessary.
• Write up research results and prepare visualisations of data for different audiences (including for patients, clinicians, academic journals).
• Disseminate research results including presentations at international and national conferences, internal and external meetings and workshops. Represent MPE at internal/external meetings when needed.
• Collaborate with communications colleagues to design strategies to disseminate our research to wider audiences.
• Collaborate with relevant stakeholders to develop recruitment and involvement strategies to enhance participation from underserved groups and from different parts of Europe.
• Engage with patients, families, clinicians, patient organisations and other stakeholders involved in MPE patient evidence projects and other myeloma research.
• Provide administrative and organisational support for the Research Advisory Committee.
• Contribute to our member research support training programme including delivering workshops and training events on research design and methodology.

Other responsibilities

• Undertake any other reasonable duties as required by the Head of Patient evidence.
• Critically appraise and provide advice to the wider MPE team on research and evidence requests.
• Build good relations with members, internal and external stakeholders (including doctors, researchers and medical representatives within companies).
• Respond to external patient organisations’ requests on research and evidence topics.
• Attend scientific congresses and meetings and stay abreast of important developments related to myeloma patient evidence.
• Develop content for MPE website, social media and other communications.
• Participate in advisory boards for the pharmaceutical industry.
• Engage with training and continuing professional development.

Essential criteria

• An undergraduate degree in a relevant subject (such as psychology, social sciences, health policy, health and social care, public health or related fields)
• Master’s degree in a relevant subject (MRes Health Research, MPH, or health-related subject MSc with substantive research component)
• A minimum of 3 years experience conducting applied health research
• Knowledge and experience of qualitative and quantitative research methodologies including surveys, focus groups and interviews applied to health-related research
• Strong skills in qualitative, quantitative or mixed-methods analysis.
• Understanding of principles of Good Clinical Practice in research.
• Proficient at Office suite – Word, Excel, PowerPoint (or equivalent), and specialist quantitative/qualitative analysis software (e.g. SPSS/R, or Atlas/Nvivo).
• Ability to work from home in a virtual setting with a team spread across Europe.
• Strong listening, communication and presentation skills.
• Rigorous work methods and high attention to detail.
• Demonstrated excellence in writing, proofreading, and editing in English.

Desirable criteria

• A PhD in a related field
• Project management experience
• Experience in cross-national research
• Experience in working with patients, researchers, doctors and representatives from the pharmaceutical industry desirable
• Experience in systematic or non-systematic literature review
• Publications in peer-reviewed journals
• Familiarity with patient-reported outcomes (PROs) and patient experience data
• Knowledge/expertise of cancer patient experience research
• Knowledge of drug development process and clinical trials
• Knowledge and experience of ethical review procedures
• Fluency in additional European languages

Personal attributes

• Organised, with excellent project management and time management skills.
• Ability to lead and work independently on assigned tasks and take appropriate initiative.
• A motivated and self-aware team player, who can work independently or collaboratively with equal success.
• Ability to explain complex scientific terms and knowledge into lay language.

We offer:

• Opportunity to contribute to impactful, patient-centred work at a European level.
• An exciting position in the emerging field of evidence-based patient advocacy, working together with key patient advocacy leaders across Europe.
• Permanent position with flexible hours giving the opportunity to progress and to integrate in a dynamic, friendly and multi-cultural team working from different European cities.

About MPE

Myeloma Patients Europe (MPE) is a pan-European organisation representing 57 myeloma and amyloidosis patient groups from over 35 European countries. It is registered as an international non-profit organisation under Belgian Law. A Board mainly composed of patients and caregivers is elected by the membership to oversee the strategy and governance of the organisation. A team of 14 staff members runs remotely the day-to-day operations, programmes and services within 4 divisions: Access and Policy, Medical Education and Scientific Engagement, Patient Evidence and Member and Patient Community Programmes.

MPE’s vision is a world where every person affected by myeloma has access to the knowledge, diagnostics, treatment and care they need to have the best possible outcomes and quality of life.

Our mission is to drive advocacy by empowering the myeloma community through research, education and collaboration.

Read more about our strategic goals for 2025-2030 here: w ww.mpeurope.or g/about-mpe/our-goals/

About the Patient Evidence department

The MPE Patient Evidence department was established in 2020 to generate evidence to better understand and articulate patients’ perspectives, influence decision-makers and use evidence as a driving force for progress across our strategic goals.  The team is led by Dr Eilidh Duncan and our goal is to lead the development of robust patient evidence to improve experiences, outcomes and access for myeloma patients and their families. We achieve this by spearheading novel patient research initiatives that address gaps in the evidence and ensure the meaningful inclusion of patient perspectives in research design, conduct and interpretation. We use the evidence we generate internally to fuel progress across all MPE programmes and activities and externally by decision-makers including those in clinical, regulatory, industry, academic and policy settings.

The deadline for applications is 1 May 2026 and all applications will be reviewed immediately afterwards. Our hiring team will schedule interviews with successful candidates to take place in the following weeks. We will be in touch following the review period regarding next steps. 

If you have any questions in the meantime, please reach out to us at our recruitment email address.

Research Policy and Partnerships Officer

We’re looking for a Research Policy and Partnerships Officer to join the team.

Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.

Position: CE402 Research Policy and Partnerships Officer

Location: Home-based, UK Nationwide. However, occasional travel will be required as part of this role (may include team meetings or other work related meetings)

Hours: Full-time, 35 hours per week

Salary: Circa £35,500 (inner London weighting £3,950 per annum or outer London weighting £2,457 per annum may be applied in accordance to where you live)

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 8 May 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: 26 May 2026

The Role

The Research Policy and Partnerships Officer monitors UK research policy and governance developments, synthesises evidence and supports preparation of clear internal briefings, policy statements and consultation responses.

Reporting to the Research Policy and Partnerships Manager, the role helps ensure the Association’s research portfolio and the Research Academy remain well aligned to national frameworks and governance standards, and that lived experience is appropriately reflected in system facing outputs.

The role also supports the Research Policy and Partnerships Manager in building and maintain partnerships with research funders, medical research charities, academic institutions and health system leaders.

Key responsibilities will include:

• Conduct structured horizon scanning across NIHR, UKRI, REF, AMRC guidance and other charity funders to identify opportunities.
• Maintain a stakeholder and policy activity map; coordinate inputs for meetings with key partners, funders/sector bodies.
• Collate and integrate lived experience evidence in policy work (with Involvement colleagues).
• Support partnerships with research funders, medical research charities, academic institutions and health system leaders, coordinating meetings, shared resources and monitoring commitments and agreements

About You

You will:

• Be educated to degree level in a science, health, social science or related discipline
• Have experience of collaborative working with senior internal and external stakeholders, supporting partnership building in research, clinical and/or voluntary sectors

To fulfil the role, you must be a resident of the UK and have the right to work in the UK

Please state any preferences for flexible options in your covering letter.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.

You may also have experience in areas such as Research Officer, Research and Policy Officer, Partnerships Officer, Research Policy and Partnerships Officer, Research and Policy, Policy and Partnerships.

Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP

Research Grants Manager

We’re looking for a Research Grants Manager to join the team.

Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.

Position: CE401 Research Grants Manager

Location: Home-based, UK nationwide however, occasional travel will be required as part of this role (may include team meetings or other work-related meetings)

Hours: Full-time, 35 hours per week

Salary: Circa £47,000 per annum (inner London weighting £3,950 per annum or outer London weighting £2,475 per annum may be applied in accordance to where you live)

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 8 May 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: 20 May 2026

The Role

The Research Grants Manager leads the design, delivery and governance of the Association’s research funding portfolio. The role ensures that all Association funded research schemes, including fellowships and project grants, are strategically configured, rigorously governed and effectively delivered in line with the Association’s Research Strategy.

The role will ensure that research funding schemes are aligned with external research developments and designed to maximise long-term impact. The role includes formal accountability for embedding high-quality, inclusive and structured lived experience participation within research funding processes.

The Research Grants Manager is the organisational lead for research funding operations, ensuring the Association maintains a sector-leading, transparent and strategically focused funding programme.

Key responsibilities will include:

• Lead the design and operational delivery of Association research funding, including fellowships and project grant schemes.
• Accountable for the governance of funding mechanisms, ensuring fairness, compliance with governance standards and integration within existing research management systems.
• Management of expert review and award decision processes, ensuring robust scientific assessment, transparent decision-making and strategic alignment with organisational priorities.
• Ensure consistent, high-quality and inclusive lived experience involvement within research funding processes.
• Provide authoritative insight about Association funded research to communications, fundraising, policy and service development colleagues to assist with media and fundraising opportunities.
• Contribute to effective financial planning and budget monitoring across all funding schemes, including forecasting, risk management and reporting.

About You

You will:

• Be educated to post graduate level in a science, health, social science or related discipline
• Have experience of research management in a life science setting, including management of research funding award cycles

To fulfil the role, you must be a resident of the UK and have the right to work in the UK

Please state any preferences for flexible options in your covering letter.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.

You may also have experience in areas such as Research and Grants Manager, Research Manager, Grants Manager, Scientific Research, Health, Social Science, Social Science Research.

Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP

Applicants must be located within 2 hours travelling distance of Cambridge City. 

The Charity and Our Vision.  

For over 15 years, Scotty's Little Soldiers has been supporting children and young people who have been bereaved of a parent who served in the British Armed Forces.  We are about to embark on an exciting journey which will see the charity evolve to support anyone affected by a military-connected bereavement and ultimately empower a community of more than 25,000 bereaved individuals and their families by 2035. 

Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity currently offers a unique blend of emotional, practical, and educational support to over 750 young people.  

We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles, and believe in the power of community, resilience, and connection.   

Role Mission. 

To ensure that Scotty’s understands and demonstrates the impact of its work — through high-quality research, meaningful measurement, and clear reporting. You will lead the development of internal and external research projects, manage beneficiary insight gathering, and oversee the systems and frameworks we use to evaluate and share our effectiveness.  

This role is central to helping us improve what we do and explain why it matters and ensuring that lived experience remains at the heart of everything we do.  

The key responsibilities of this role are:  

Impact Measurement  

• Develop and maintain frameworks to measure the outcomes of all services and programmes.  

• Ensure Success Measures (KPIs) and qualitative feedback tools are aligned to our Theory of Change.  

• Work with the Families (service delivery) team to embed consistent and meaningful data collection across all services.  

• Design simple, automated reporting processes to reduce manual admin and improve data use, making effective use of Scotty’s CRM.  

Research & Insight  

• Lead internal research projects using beneficiary data, surveys, and feedback loops.  

• Scope and manage external research partnerships with academic institutions or sector bodies.  

• Design and deliver surveys to beneficiaries and the wider bereaved military community  

• Produce evidence to support service development, strategic decisions, influence national policy, and funding bids.  

• Lead our existing advisory group (for children and young people) and establish new groups as required (e.g. for adult services).  

• Ensure that lived experience remains at the heart of the charity’s focus on understanding the need.  

• Ensure that Scotty’s have access to the most up to date research within the bereavement, military, Children & Young People and Family Support sectors. 

Communication of Impact  

• Create clear, accessible insight reports and data summaries for internal and external use  

• Lead the delivery of the annual Impact Report (content, structure, coordination with teams).  

• Develop quarterly insight packs for funders and stakeholders, with engaging visuals and stories.  

• Work with the Outreach Squad to ensure impact is integrated into campaigns and storytelling.  

Learning & Collaboration  

• Act as the internal ‘voice of insight’ – bringing beneficiary perspective and data into key conversations.  

• Contribute to team training on evaluation, feedback collection, and outcomes thinking.  

• Participate in cross-functional planning, especially with the Service Delivery and Outreach Squads.  

Policy (Light Touch)  

• Track key developments in bereavement, the Armed Forces, and children, young people and families policy  

• Produce brief summaries or ‘position snapshots’ where relevant to Scotty’s mission  

• Build relationships with other research and impact professionals in the sector  

The 30-day goals for this role are: 

• Build a deep understanding of Scotty’s mission, our audience, the services we provide, and strategic direction. 

• Develop a deep understanding of our current Success Measures, Impact measurements and Theory of Change.  

• Reviewing research and data produced by the charity and related external research previously published.  

• Understand the data structure and reporting capabilities of Salesforce (CRM).  

• Understand existing commitments (e.g. funder report, impact reports etc).  

• Taken ownership of our 2026 Community-wide survey (project will be handed over upon start).  

The 60-day goals for this role are: 

• Audit current data quality and gaps across the F-Team Programmes.  

• Worked with the Families Team to develop the first adult lived experience advisory group.   

• Reached out to relevant impact and research groups to introduce yourself, particularly those attached the military or bereavement charitable sectors.  

• Identified 1-2 relevant conferences or forums for Scotty’s to present at.  

• Build ideas, working with the Head of Service, that can help teams improve current Success Measures and Impact measurements. 

The 90-day goals for this role are: 

• Held at least 1 adult lived experience advisory group session.  

• Created and shared the first quarterly Impact Review for internal use.   

• Fully taken accountability for impact reporting and research projects within the charity and able to demonstrate a clear plan of action for the rest of the year.  

• Proposed an outline for the Annual Family Feedback Survey in September.  

• Start to co-ordinate the 2026 Impact Report 

About You 

Must-Have  

Proven experience in research and impact evaluation, ideally in the charity or public sector  

Strong skills in data collection, survey design, and analysis  

Excellent written communication and reporting skills  

Able to translate data into real-world insight  

Experience of CRM databases and producing reports from them 

Knowledge and experience of the principles of involving those with lived experience, including co-design and co-production 

Nice-to-Have  

Experience working with or around the Armed Forces community  

Understanding of trauma-informed or bereavement support practices  

Experience producing Impact Reports or funding insight packs  

Familiarity with Salesforce or CRM data tools  

Some knowledge of public policy or third sector trends  

Additional Information

• The role may require occasional evening or weekend work

• Enhanced DBS check required

• Travel will be required to events and team training days

The Scotty’s Way

At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:

Families Come First

Everyone a Supporter, Every Supporter a VIP

Love What You Do

Remember, Every Day

Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Take Ownership and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.

Closing date: 15th May 2026. Due to resource and time constraints, we are unfortunately unable to provide feedback for every application received and will only contact candidates shortlisted for interview. 

Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.

We do not discriminate based on race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.

We encourage all qualified individuals to apply for employment within our charity, and we provide a fair and inclusive recruitment process for all candidates.

Job Purpose

 

The Research Programme Manager will have a strong grounding in scientific research, expertise in grant management, and report to the Director of Research. 

The role’s core responsibility will be to lead on the implementation and delivery of large-scale collaborative programmes and funding schemes. The post holder will have a visible presence within the research community acting as an important point of contact between partner organisations, researchers, committee members, peer reviewers and the charity. They will be expected to keep updated with the latest research developments in order to use strategic scientific expertise and judgement in the ongoing development and improvement of the Foundation’s grant funding schemes.

They will be responsible for the successful delivery of a large portfolio of active projects by working closely with others in the team to ensure all awards are expertly administered, monitored, evaluated and reported against, ensuring the outputs are of the highest quality and supporting the charities activities. The post-holder will identify opportunities to communicate the progress or impact of the work we fund and work with the communications team to develop compelling communications for our supporters.

 

Key responsibilities:

 

Grant Funding Programme

● Lead on the setup of large-scale collaborative research programmes ensuring robust peer review, effective contracting and close collaboration with funding partners;

● Lead on the management of multiple grant funding schemes, as well as ad-hoc applications that come to the Foundation;

● Oversee the smooth running of application rounds, peer review and ensure that funding committees function in line with AMRC guidance;

● Be the main point of contact for the AMRC with regards to research management;

● Support the ongoing implementation and development of the Foundation’s Grant Management Software, ensuring the research team are using the platform effectively;

● Manage project set-up including contracting, the development of detailed project plans, including go/no-go milestones and budgets;

● Work with the other Research Programme Managers to oversee the research programme budget including planning, monitoring and forecasting; work with the Directors of Research and Finance to ensure that accurate research finance information is available for organisational budgeting and planning;

● Seek opportunities to improve the Foundation’s grant funding schemes to increase the number and quality of applications received year on year, ensuring funding projects support the delivery of the Foundation’s research strategy;

● Monitor any developments or innovations across the sector and implement changes to maintain a high-quality impactful research funding programme.

 

Project Portfolio and Impact

● Oversee the delivery of large-scale collaborative research programmes including:

• Leading on management on behalf of funding partnerships

● Manage and oversee project delivery of the Foundation’s active project portfolio by:

• Building and managing relationships with award holders and attending site visits;
• Approving grant payments and managing the change process for any project amendments;
• Ensuring project progress is effectively monitored and reported against;
• Identifying opportunities for and approving any project communications.

● Lead on the development and implementation of an Impact Evaluation Framework, to monitor and evaluate the impact of the research we fund.

● Lead on the development of an annual impact report to demonstrate the impact of the research we fund.

Line Management

● Provide line management responsibilities to the Research Officer, supporting their performance and ongoing development.

General Responsibilities

● Support the Director of Research to deliver the Foundation’s research strategy;

● Support more junior members of the team through training and mentoring;

● Contribute to the team being proactive and supportive, and working effectively and efficiently to achieve agreed objectives;

● Support the development of research communications activities, working closely with our communications team.

● Contribute to the development and maintenance of strong internal relationships across the charity, working specifically with the Fundraising Team to support income generation;

● Support the Director of Research in the development of updates for the Board of Trustees and other groups such as our Scientific Advisors;

● Keep updated with the latest scientific developments in the field, attend conferences and build strong relationships with MND experts and other relevant stakeholders;

● Represent the Foundation at external scientific meetings and conferences;

● Undertake other work as required by the Director of Research.

 

Skills and experience required:

● Educated to PhD level or with equivalent experience in a science subject relevant to MND;

● Experience of research management, including the management of grant schemes, preferably with experience of using Flexi-Grant;

● Experience of research communications, including the ability to disseminate complex scientific information and present it to non-technical audiences;

● Experience of liaising with senior individuals in a variety of organisations with an ability to create favourable working relationships;

● Proven project management skills, with the ability to manage multiple projects at the same time;

● A great communicator, with excellent written and oral skills and the ability to maintain relationships with a wide variety of individuals, including those within the Foundation, researchers and clinicians, relevant organisations and industry bodies, MND patients, and other MND charities;

● Self-motivated, proactive and able to work using own initiative;

● Organised, with a proven ability to successfully manage a broad spectrum of tasks, deadlines and individuals;

● Motivated to make a real difference for those living with MND and future generations.

 

Working Pattern: Full time, permanent, home-based with regular travel across the UK

Salary: Circa £45,000 dependent on experience

Direct reports: Research Officer, 1 FTE

Closing date: Friday 8th May

Interviews: Week commencing 11th May

About The Role
Every breakthrough in dementia research starts as an idea. But ideas only change lives when they are understood, shared and championed.
At Alzheimer’s Society, we are funding over £50 million in pioneering research and supporting more than 400 researchers across the UK. Behind every project is a story. Your role will be to help bring those stories to life in ways that are clear, engaging and accessible.
As a Research Communications Assistant, you will join our Research Communications team within the Research and Innovation department, reporting to the Research Information Manager. You will work across teams to make sure our research is understood, valued and impactful.
We welcome applications from people of all backgrounds, especially those underrepresented in research and communications. If this role interests you but you are unsure you meet every requirement, we would still love to hear from you. We are happy to discuss flexible working and can support adjustments throughout the recruitment process.
What you’ll do
You will play a key role in helping our research reach the right people in the right way. This means not only creating and supporting engaging content, but also helping the team stay organised, connected and forward looking.
You will work closely with colleagues across research, media and engagement, building strong relationships and ensuring our communications are joined up and effective. Some days will be creative, others more operational, but all will contribute to helping people better understand dementia research and why it matters.
You will also help us stay responsive. Whether it is tracking new developments, answering enquiries or preparing for upcoming activity, your work will help the team plan ahead while staying flexible in a fast moving environment.
You can expect to:

- Monitor developments in dementia research and share insights with colleagues
- Turn complex information into clear, engaging content across web, social media, press and events
- Respond to enquiries from internal teams, external partners and media
- Support the planning and delivery of events, including conferences and research talks
- Work with researchers and colleagues to gather quotes, images and other materials
- Prepare briefings, presentations and reports
- Maintain workload trackers and support team planning
- Collaborate across teams to deliver joined up communications and maximise impact

This role may involve occasional travel, including overnight stays, with support provided.
About you
You are organised, curious and motivated by meaningful work. You enjoy making complex ideas easier to understand and working with a wide range of people.
You do not need to meet every point below to apply.

- Strong organisation skills and excellent attention to detail
- Interest in or experience of science, health or policy, with curiosity about dementia research
- Ability to work with a range of stakeholders to deliver shared goals
- Experience in a fast paced environment, ideally in communications, though not essential
- Ability to communicate complex information in clear, accessible ways

You will also bring a collaborative, inclusive mindset and a willingness to learn.
This is an opportunity to help shape how research is shared and understood, and to play a part in improving the lives of people affected by dementia.
Interviews are currently planned to take place during the week commencing 11th May via MS Teams.

About Alzheimer's Society
Dementia is the UK's biggest killer. One in three people born in the UK today will develop dementia in their lifetime.

At Alzheimer's Society, we're the UK's leading dementia charity and the only one to tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future. We give vital support to people facing the most frightening times of their lives, while also funding groundbreaking research and campaigning to make dementia the priority it should be.

Together with our supporters, we're working towards a world where dementia no longer devastates lives.

Our values make sure that our focus is clear for the challenges and opportunities ahead and remind us of what we all stand for.

Our commitment to Equity, Diversity, Inclusion & Belonging

We need to ensure the voices around our table better reflect and understand the communities we exist to serve. We strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as Black, Asian or from another minority ethnic background, as these groups are currently under-represented at Alzheimer's Society.  

We want everyone we work with, as a colleague, volunteer, supporter, or someone we support, to feel included and that they belong at Alzheimer's Society. 

Our Equity, Diversity and Inclusion Strategy here along with our internal employee forum and Employee Lived Experience network groups help us promote inclusion and belonging, becoming an engaged and inclusive organisation for all our people. 

Our hiring process

During your recruitment process we want to make sure that you bring your whole self and can be at your best. We are working hard to ensure our recruitment process is as inclusive as possible, so please do inform us of your experience and anything you think we could do better by completing our candidate survey when you apply.  Please also contact Alzheimer's Society Talent Acquisition Team via [email protected] for application support or any adjustments you might need.

To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value it truly adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to showcase them in your own voice.

We try to avoid closing roles early where possible, however if we receive a high volume of applications, we may close earlier than the advertised closing date. Should this occur, we will aim to provide you with at least 48 hours' notice.

We are committed to safer recruitment and ensuring the welfare of those we work with, due to the nature of some of our roles, we might need to carry out a Criminal Record Check at the relevant level. You can read more information via our Website.

Giving back to you

Our employees work hard every day to make a true difference in people's lives. We are proud to support them with a range of benefits, recognition and many options for working agilely, all contributing to a strong work life balance. We also have various learning programmes to support you in your development and help you grow to realise your potential and shape a career with Alzheimer's Society. 

You can also visit our Working for Us pages, which give you more information about what it's like to be an employee at the Society.

Do you have experience working in clinical research, science or health sectors with the ability to lead a team and influence stakeholders? Would you like to help end the devastation caused by dementia by increasing opportunities for people to become aware of, and participate in research?

About the role
We are recruiting for a Research Participation Manager to join on a full-time, permanent contract working 35 hours per week. This is a home-based role, with occasional travel required for in-person stakeholder or team meetings.

As Research Participation Manager you will lead the operational delivery and support the strategic development of the Society’s research participation team. You will line manage and develop the Research Participation team and associated staff, overseeing programme performance and reporting, and ensuring all activity aligns with UK clinical research regulations, data governance requirements, and organisational priorities.

In this role, you will work collaboratively across the Society and with external partners. You will strengthen cross sector relationships, drive inclusive and culturally competent engagement, and enhance awareness of, and participation in, vital dementia research, particularly among underserved communities. Your role will also help to ensure the provision of high quality, safe, and compliant support for people accessing dementia clinical research opportunities.

You will provide leadership, expert guidance and robust programme management to maximise the reach, impact, and visibility of the Society’s research participation initiatives, increasing opportunities for people to become aware of, and participate in research; bringing forward the day when a dementia diagnosis no longer devastates lives.

About you
Joining us, you’ll have experience of working in clinical research, science or health sectors, with a good understanding of the processes and challenges facing the NHS. You’ll have experience of shaping and/or leading significant programmes of work with high exposure, with the ability to remain organised, prioritise effectively and meet deadlines.

Crucially, you’ll have good communication and interpersonal skills, with the ability to influence others and build and maintain positive relationships with a range of internal and external stakeholders. You’ll be able to use your experience of leading and managing a team to inspire and motivate others, creating a positive and proactive work culture.

This position will play a vital role in helping us to end the devastation caused by dementia. To be successful you’ll need to be motivated by our cause and values, and you’ll be able to speak to people affected by dementia with emotional intelligence, empathy and compassion.

What you’ll focus on:

- Leading, line managing and developing the Research Participation team, in addition to managing allocated staff, resources and any assigned budget to ensure all agreed internal and external targets are met.
- Assessing and managing of interdependencies between internal and external stakeholders involved in the Research Participation programme.
- Ensuring all participation support plans and / or awareness raising initiatives comply with the Association of the British Pharmaceutical Industry (ABPI) rules and codes of practice.
- Developing and delivering inclusive and culturally informed initiatives that raise awareness of, and improve equitable access to, clinical research opportunities, with a particular focus on underserved and diverse communities.
- Collaborating with Communications colleagues across the Society to support wider communication activities related to research participation and public research awareness.
- Working with the Lead Research Nurse, Research and Innovation Business Manager, and Project Management Office to ensure robust programme and risk management, and to evaluate the impact of research participation activities.
- Building impactful and sustainable relationships with a range of internal and external stakeholders across the dementia clinical trials landscape, seeking opportunities to collaborate on initiatives to drive increased awareness of, and participation in, dementia clinical research.

About Alzheimer's Society - who are we and what’s our mission?
Dementia is the UK’s biggest killer. One in three people born in the UK today will develop dementia in their lifetime.  

At Alzheimer’s Society, we’re the UK’s leading dementia charity and the only one to tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future. We give vital support to people facing the most frightening times of their lives, while also funding ground-breaking research and campaigning to make dementia the priority it should be.  

Together with our supporters, we’re working towards a world where dementia no longer devastates lives. Our values make sure that our focus is clear for the challenges and opportunities ahead and remind us of what we all stand for. 

Our commitment to Equity, Diversity, Inclusion & Belonging
We need to ensure the voices around our table better reflect and understand the communities we exist to serve. We strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as part of a minority ethnic background, as these groups are currently under-represented at Alzheimer's Society.     

Our hiring process
We want you to bring your whole self to the process. Applications are anonymised until interview stage, and we’re happy to support any adjustments. Share your feedback via our candidate survey when applying to help us improve. We may close early if we receive high interest (with 48 hours’ notice). Some roles may require a DBS check as part of our safer recruitment commitment. Thinking about using AI during the recruitment process? We know this can be helpful in many ways but remember to include your personal and authentic self too. Your voice and experience are what really set you apart. 

Giving back to you
At Alzheimer’s Society, we value our people and take a total reward approach to pay and benefits. You’ll enjoy a generous double-matched pension scheme, 27 days’ annual leave (plus bank holidays and wellbeing days), and access to a free Health Shield Cash Plan, 24/7 EAP, Thrive mental wellbeing support, and virtual GP services. Our Society Plus platform offers exclusive discounts, wellbeing resources, and recognition schemes, while our flexible working, family-friendly policies, and life assurance provide peace of mind and work/life balance. We also offer a free Will-writing service and long service awards to recognise your ongoing commitment.

At Alzheimer’s Society, we are working towards a future where dementia no longer devastates lives. That future depends on research that is ambitious, inclusive, and shaped with the people it is intended to serve.
Across our Research and Innovation directorate, we fund and support world leading dementia research. We work with researchers and NHS partners across the UK. We help turn ideas and discoveries into real change for people affected by dementia.
We are committed to a research culture that is collaborative, accessible and grounded in compassion. We value different perspectives. We want everyone to feel respected and heard.
We are now looking for three Assistants to join our team:

- Research Grants Assistant
- Research Engagement and Participation Assistant
- Research Nurse Programme Assistant

These roles sit within our wider Research and Influencing directorate. They each play an important part in delivering well-coordinated and inclusive research activity.
Each role is different. But they share a common purpose. To make dementia research easier to access, better connected, and more meaningful for everyone involved.
We are looking for people who are motivated by purpose. People who care about fairness in how work is done. People who believe inclusion should be lived, not just stated.
What you’ll do
Each of these roles helps make sure dementia research is well organised, accessible and meaningful. This includes people affected by dementia, researchers and partners.
As a Research Grants Assistant, you will help ensure our research funding processes run smoothly and fairly. You will support funding rounds, maintain accurate systems and records, and help coordinate panels, meetings and communications. Your work will help create a clear and supportive experience for researchers and colleagues, from application through to funded delivery. You will also support events and activities that help make our funding processes more transparent and accessible.
As a Research Engagement and Participation Assistant, you will help open up opportunities for more people to learn about and take part in dementia research. You will support engagement activities that reach diverse communities, helping ensure information is clear, welcoming and easy to understand. You will coordinate events and materials that encourage participation in research, support communication across teams, and help us listen to and reflect the voices of people affected by dementia in how we share opportunities.
As a Research Nurse Programme Assistant, you will support a national programme that is helping more people access dementia clinical trials across the UK. You will work with NHS sites, research nurses and colleagues across the UK Dementia Trials Network to support training, communication and coordination. You will help ensure information, resources and learning are shared consistently, and that people involved in the programme feel supported, informed and connected.
Across all three roles, you will:

- Provide reliable and thoughtful administrative and coordination support across research activity
- Maintain accurate, secure and well organised records and systems
- Support inclusive events, meetings, workshops and training sessions
- Communicate with researchers, NHS colleagues, partners and community members in a clear, respectful and accessible way
- Help ensure information is accurate, consistent and easy to understand
- Contribute to improving how we work so that processes are simpler, fairer and more effective for everyone
- Work collaboratively across teams, recognising and valuing different experiences, perspectives and ways of working

About you
We know people come to this work from many different places. You might have experience in research, health, science, policy or administration. You might come from community work, education, caring roles, the voluntary sector, or bring lived experience. You might be returning to work or changing direction. What matters most is how you work, not where you come from. We are looking for people who want to do meaningful work, who are thoughtful, and who bring care and reliability to what they do.

- Comfortable using IT systems, including databases, and open to learning new tools
- Able to work with a wide range of people with respect and care
- Experience supporting events, coordination or engagement work, or transferable skills from other settings
- Able to organise your time and manage multiple tasks with care and attention
- Interest in science, health, policy or research, and how evidence can improve lives and reduce inequality

Together, these roles offer an opportunity to contribute to dementia research that is shaped by inclusion, compassion and collaboration. You’ll be part of a team that values diverse experiences, listens to different voices, and works to make research more accessible and equitable for everyone involved. If you share our commitment to fairness, respect and meaningful impact, we would welcome your application.
Our commitment to Equity, Diversity, Inclusion & Belonging
We need to ensure the voices around our table better reflect and understand the communities we exist to serve. We strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as Black, Asian or from another minority ethnic background, as these groups are currently under-represented at Alzheimer's Society. We want everyone we work with, as a colleague, volunteer, supporter, or someone we support, to feel included and that they belong at Alzheimer's Society. Our Equity, Diversity and Inclusion Strategy here along with our internal employee forum and Employee Lived Experience network groups help us promote inclusion and belonging, becoming an engaged and inclusive organisation for all our people. 
Our hiring process
During your recruitment process we want to make sure that you bring your whole self and can be at your best. We are working hard to ensure our recruitment process is as inclusive as possible, so please do inform us of your experience and anything you think we could do better by completing our candidate survey when you apply.  Please also contact Alzheimer's Society Talent Acquisition Team via [email protected] for application support or any adjustments you might need. To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We are committed to safer recruitment and ensuring the welfare of those we work with, due to the nature of some of our roles, we might need to carry out a Criminal Record Check at the relevant level. You can read more information via our Website.

Job Description:

We are seeking a Health and Science Information Manager to lead the development of highquality health information and research communications for people affected by polycystic kidney disease (PKD). This is an exciting opportunity to shape how individuals access, understand and engage with trusted information throughout their journey, from diagnosis and day-to-day management, to the latest scientific and clinical research developments. In this role, you will oversee our extensive portfolio of patient information resources, ensuring all content is accurate, accessible, evidence-based and aligned with the PIF TICK quality standard. You will identify opportunities to create new and engaging resources that meet the evolving needs of the PKD community, using innovative approaches to improve how information is delivered across multiple channels. A key part of the role will be translating complex scientific and medical research into clear, compelling and patient-friendly content. You will help increase awareness of clinical research opportunities, communicate emerging developments in PKD science, and support greater understanding of how research can shape future treatments and care. We are looking for someone with strong strategic thinking, excellent editorial judgement, and the ability to communicate complex health and scientific information with clarity and empathy. This role would suit someone passionate about improving lives through trusted health information while helping connect people to the future of PKD research. 

RESPONSIBILITIES:

Health information management and quality:

• Support the development and management of the PKD Charity’s health information portfolio across digital and print platforms

• Ensure all content meets PIF TICK standards, including robust processes for development, review, updating and governance

• Maintain oversight of the full information catalogue, ensuring content is accurate, consistent and aligned with current clinical guidance

• Work with clinicians, researchers, and people with lived experience to co-produce and review content Content development and user need

Content development and user need:

• Identify gaps in current provision and lead the development of new information resources

• Ensure content is clear, accessible, inclusive, and tailored to the needs of different audiences

• Use patient insight, feedback and data to continuously improve the quality and usability of information Innovation in information deliver.

Research and science communication:

• Explore new ways of delivering information beyond written formats (e.g. video, audio, webinars, digital tools)

• Improve how information is presented and accessed across the website and other platforms

• Stay up to date with best practice in health information and digital engagement Research and science communication

• Monitor developments in PKD research, treatments, and clinical trials

• Translate complex scientific and medical information into clear, engaging, and accurate content for non-specialist audiences

• Work with the Communications Manager and wider colleagues to plan integrated campaigns, awareness activity and audience engagement.

• Develop compelling stories, updates and features that bring research to life and show its relevance to people affected by PKD.

• Work with colleagues to increase awareness, understanding and interest in PKD research.

Building engagement with research:

• Help create a culture of interest and engagement in research across the PKD community

• Develop content that builds understanding of how research works and why it matters

• Support communication around studies and clinical trials to ensure patients feel informed.

Collaboration and stakeholder engagement

• Work collaboratively across the organisation to ensure consistency and alignment in messaging

• Build relationships with healthcare professionals, researchers, and external partners

• Involve patients and volunteers meaningfully in content development and review

Quality, monitoring and impact:

• Monitor the reach and effectiveness of health information and research communications

• Maintain accurate records of content review cycles and updates in line with PIF requirements

• Use insight and evaluation to continuously improve content and delivery 

ABOUT YOU:

• Strong Content and Editorial Skills: You have experience producing high-quality written content, with excellent attention to detail and the ability to present complex topics clearly and accurately.

• Health or Science Communicator: You have experience working with health, medical or scientific information and can translate technical material into accessible language for public audiences.

• Collaborative Relationship Builder: You work well with others, build positive working relationships quickly, and enjoy partnering with colleagues across different functions to achieve shared goals.

• Confident Team Player: You are comfortable working closely with colleagues such as communications, fundraising, support and leadership teams, contributing ideas and supporting collective priorities.

• Strategic and Proactive: You can see the bigger picture, identify opportunities for improvement and take initiative to drive projects forward.

• Organised and Self-Motivated: You are comfortable managing your own workload, balancing priorities and delivering high-quality work in a remote setting.

• Values-Driven: You are motivated by improving lives, empowering patients with trusted information and supporting progress in PKD research.

HOW TO APPLY:

For information on how to apply, please read the job pack for further details.

Please see attached Recruitment Pack for full job description and person spec for the Senior Programme and Network Lead.

This role leads our work across Birmingham at an exciting moment. We are developing a participatory, community-centred approach to analysing the city's economy, identifying opportunities for change and coordinating alliances to act on them. This means bringing together mixed groups, including grassroots changemakers, researchers, funders and other partners, and facilitating processes that help people make sense of complex information together, find common ground and make decisions about collective priorities. The role requires someone who can hold these processes well: strong facilitation skills, communicating complex ideas accessibly, building trust across groups, sustaining momentum over time and helping diverse coalitions move from analysis to strategy to action.

The Senior Programme and Network Lead will develop and deliver initiatives that support a growing movement for economic justice across the city, with a particular focus on building support and engagement amongst grassroots changemakers and communities experiencing economic injustice. It will manage projects and resources, conduct programme development and delivery, oversee outreach and partnerships, changemaker recruitment and contribute to fundraising, ultimately playing a key role in shaping our regional impact. This position is crucial in coordinating our work across Birmingham and driving meaningful collaboration with local and national stakeholders, in particular working collaboratively with Economic Justice Brum, a long-standing initiative working on local economic systems change.

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).

Transport for All has a strong reputation for leading the debate and advocating for change to improve the journeys made by disabled people. This role presents an opportunity for a strong leader with the commitment, enthusiasm and expertise to build on our success.

Our Chief Executive will be responsible for continuing to delivering the remainder of our 5-year strategy, whilst horizon-scanning to work with the team and wider DPO community to engage in the opportunities and changes ahead. We’re a small team and this is a wide-ranging role which includes:

• Representing the voice of the 16 million+ people in the disabled community by influencing policy and infrastructure decision-makers through our campaigns.

• Overseeing a highly regarded policy and public affairs function with associated communications and stakeholder engagement, maintaining our high profile and reputation with national and local governments.

• Ensuring the charity’s funding is robust and sustainable, looking at how we can diversify our income and direct it towards what matters through continuing to deliver our strategy and planning for our future.

• Overall responsibility for our successful training, research and consultancy business, building partnerships and further growth. This includes the National Accessible Transport Survey.

• Championing our award-winning support services for disabled people.

• Leading our expert teams through a period of growth and consolidation, embedding a strong organisational culture and matching our structure and systems to our upcoming challenges and increasing size.

You will report to and be supported by a well-functioning and committed Board of Trustees who are professionals with experience of working in the charity and transport sectors, as well as finance, legal and government backgrounds.