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An exciting opportunity!
This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.
As our next Chief Executive, you will
About you
Why join us?
A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.
Benefits
Join us and you will be working for a caring charity offering:
Further information
The successful candidate must be eligible to work in the UK.
The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.
Salary to be agreed depending on experience and will be pro-rata for part time hours.
This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.
This senior role requires flexibility in working hours and location. It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.
This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.
For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart. Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.
Please include your CV with a supporting statement of no more than 800 words. Your supporting statement should include an answer to the question below:
The MPS Society supports individuals and families affected by mucopolysaccharidoses (MPS) and related disorders. What interests you about coming to work in this area, and what motivates you to contribute to supporting individuals and families affected by these conditions?
To transform lives through specialist knowledge, support and advocacy, and research.
The client requests no contact from agencies or media sales.
Are you an exceptional philanthropy leader with a track record of securing transformational seven-figure gifts? Do you combine outstanding relationship-building with the ability to lead talented fundraising teams and turn ambitious strategy into results?
We’re creating two new Principal Philanthropy Lead roles at GOSH Charity: Principal Philanthropy Lead – Best Chance and Principal Philanthropy Lead – Best Childhood.
These pivotal new positions will strengthen the leadership of our growing Philanthropy programme as we enter an exciting new chapter for fundraising at GOSH Charity.
As a Principal Philanthropy Lead, you’ll join the Philanthropy leadership team, lead a team of eight colleagues including three Senior Managers, personally secure significant philanthropic investment and act as a deputy to the Head of Philanthropy.
Principal Philanthropy Lead – Best Chance will lead philanthropy across pioneering medical research, innovation and new treatments, as well as our growing US Giving programme. The role will help shape our next major fundraising campaign, significantly increasing our ambition for philanthropic investment in research and innovation. It will also offer senior leadership for Fundraising Research, our prospecting, insight and due diligence service across Relationship Fundraising.
Principal Philanthropy Lead – Best Childhood will lead philanthropy across our hospital environment, capital infrastructure and patient and family experience, including senior leadership of the final phase of our £300m Build It. Beat It. appeal and the transition towards our next major campaign. The role will also offer senior leadership for Stewardship across Relationship Fundraising, supporting exceptional supporter experiences, impact reporting, recognition and engagement.
Salary
The salary for these positions is £71,831 per annum.
In line with our EDI strategy and Total Reward policy, we calculate our salaries based on benchmarking data across the charity sector. To ensure fairness for existing staff and new joiners, we do not offer salaries above the advertised rate.
We operate a hybrid working policy of a minimum of 2 days per week in the office with Monday as the fixed in-person Philanthropy team day.
Key Responsibilities
For Best Chance: the transition to our next major campaign, US Giving and Fundraising Research across Relationship Fundraising;
For Best Childhood: the final phase of Build It. Beat It., transition to next campaign and Stewardship across Relationship Fundraising.
Skills, Knowledge and Expertise
About the team
You’ll join our ambitious Philanthropy team, working with high-net-worth individuals, charitable foundations and other influential supporters to secure transformational investment in the research, innovation, capital and patient experience projects at the heart of GOSH Charity’s work.
The team secures a significant number of £1m+ gifts and is at the forefront of delivering some of the Charity’s most ambitious fundraising priorities.
This is a particularly exciting time to join us. Alongside completing the £300m Build It. Beat It. appeal to help deliver the world-leading Children’s Cancer Centre at Great Ormond Street Hospital, we are shaping the next chapter of philanthropy fundraising.
Our new strategy is centred around two pillars – Best Chance and Best Childhood – which will form the foundation of an exciting new fundraising appeal. Our Philanthropy team will play a central role in bringing this ambition to life and securing the transformational support that helps give every seriously ill child the best chance, and the best childhood, possible.
The creation of these two Principal Philanthropy Lead roles represents an important investment in the team’s future: increasing our leadership capacity, strengthening day-to-day leadership and creating clearer development and succession pathways as our programme grows.
DBS - note a basic DBS check is required for this role
How to Apply
Please click on the apply button in the top right-hand corner where you will be taken to a short application form to complete.
Closing date: 23 September 2026
First interviews will be held: Tues 6 / Wed 7 October
Applications will be reviewed on an ongoing basis and we reserve the right to close the roles prior to the closing date should suitable applicants be found. Therefore, you are encouraged to apply early to avoid disappointment.
We are Great Ormond Street Hospital Charity. We stop at nothing to help give seriously ill children childhoods that are fuller, funner and longer.
The client requests no contact from agencies or media sales.
Citizens UK
Location Hybrid · UK Hybrid · Home-based with some travel around the South East region and to London for team meetings.
Citizens UK is the UK’s biggest, most diverse and most effective people-powered alliance. We bring communities and local organisations together to work on issues that matter; from campaigning for zebra crossings on dangerous roads, to reforming the immigration system, to the Living Wage campaign. We have a track record of winning change through hundreds of local and national campaigns. We know everyday people have the ability to shape the world around them. We believe that through developing local leaders, we can drive nationwide change and create community-led solutions to big and small problems.
Living Wage Foundation
The Living Wage movement began in 2001, after Citizens UK brought together communities in East London to discuss poverty and low pay. The campaign grew in momentum and soon required a mechanism to recognise employers who wanted to join the movement, which saw the establishment of the Living Wage Foundation in 2011.
Still part of Citizens UK today, the Living Wage Foundation continues to work with community organisations to make sure the voices of both workers and businesses are part of the Living Wage movement. We now work with over 16,000 employers, benefitting over 475,000 people and winning over £3bn of better wages for people who need it most.
Citizens UK works with a broad base of institutions across the political spectrum. At the Living Wage Foundation, we take the same deliberately broad-based approach and accredit all organisations who pay the real Living Wage to their directly and indirectly employed staff and are committed to tackling in work poverty. As a team we work across a range of industries and sectors to achieve this mission. We seek pragmatic coalitions in order to progress specific campaigns, and partnership around a particular issue such as Living Wage, does not imply an endorsement of broader purpose and policies.
Purpose
At Citizens UK, our organisers and project staff work within communities to develop leaders, strengthen organisations, campaign for change and organise across difference. There are various project roles and operational, communication, finance and HR roles that support the organisation and project staff and organisers to deliver on this mission and work. This work is rewarding and can be challenging; it requires a personal commitment to inclusion, a willingness to listen and disagree respectfully, and an interest in working in an organisation where our staff, member institutions and leaders will come from a diversity of backgrounds and often hold views that may be very different from our own. More information about how we operate within this context and build trusted relationships across difference can be found on our website and is covered in induction. Onboarding and navigating this relational culture, and type of work, is supported by line managers and further training.
Main Responsibilities
We are looking for a highly motivated and organised individual to coordinate our accreditation scheme. The role will work with our network of employers, and support new organisations through the accreditation process.
The Programme Officer will support our work across the South East and support our managers to grow and deepen engagement with Living Wage Employers through our associated schemes. You will help to ensure our resources and publicity materials are well written and up-to-date, and to coordinate events to grow our employer network.
Working as the Programme Officer for Citizens UK, reporting to a Programme Manager, your main responsibilities will include:
Contribute towards the achievement of CUK and LWF’s strategic objectives
Understand how the role contributes to LWF’s purpose and the core mission of CUK
Reliably implement CUK’s and LWF’s policies, procedures, and values in own work
Work with CUK community organisers and leaders to promote civic engagement with and ownership of the Living Wage campaign
Feed into the LWF strategy and objectives development
Living Wage Accreditation
Support key contacts at potential LW Employers through the accreditation process, from dealing with initial enquiries to guiding them through the employer journey, to checking and processing their accreditation
Develop rewarding relationships with key employers, industry, and campaign partners within our networks to build interest in the Living Wage and deliver a high-quality experience to our accredited employers
With support from the wider team, develop plans and strategies to grow the number of accreditations in specific regions or industries
Collate and disseminate Living Wage criteria and policy issues through both internal and external facing guidance, whilst reviewing and monitoring its suitability
Support the development and implementation of projects to promote and grow Living Wage accreditations and develop the quality of service offered
Build and manage projects and achieve work targets effectively
Successfully progress projects and tasks incl. tracking performance and expenditure
Deliver agreed areas of the LWF’s work plan and leading on agenda items to report into team meetings.
Support the growth and development of new and existing Living Wage schemes incl. Recognised Service Providers, LW Funders, LW Places, Living Hours, Global Living Wage and Living Work Consultancy
Deliver personal work targets on time and to standard:
Respond to telephone and web-based enquiries by providing advice and support to employers and supporters
Provide administrative support for all aspects of the accreditation journey, incl. processing accreditations, recognitions, and renewals
Maintain LWF data on systems, incl. Salesforce employer database
Support the maintenance of our systems to ensure efficient processes and develop reporting mechanisms for effective monitoring and evaluation of our impact and progress against plans
Coordinate and administrate Steering, Advisory or Leadership Groups as required, incl. coordinating agendas, sending out timely papers, taking minutes and following up on actions
Learning &expertise
Keep abreast of new developments in the accreditation space
Apply new learning to work and respond effectively to feedback
Work collaboratively with the LWF and franchise teams to share learnings and experience and ensure that we are meeting the expectations of our network and stakeholders
Develop and manage external relationships
Effectively develop and support a range of external relationships
Respond effectively to queries or requests from stakeholders
Engage with a diverse range of external stakeholders to support and develop projects as required
Communications
Communicate effectively within the LWF; ensuring that messages are reliably passed to those who need to know
Represent the LWF coherently in writing and verbally
Events and Communications
Plan and organise events to celebrate and grow our network of LW Employers, incl. playing an active role in the delivery of LW Week and assisting colleagues with event logistics
Represent and speak on behalf of the LWF at internal and external meetings and events
Develop or feed into employer resources incl. marketing materials, blogs, reports, templates, and guides
Develop and manage internal relationships
Work effectively with colleagues across Citizens UK
Work collaboratively within the LWF team and actively participate in the team to ensure we meet the expectations of our network and stakeholders
Generate income and resources
Contribute to plans and proposals to grow sources of income/resource.
Take personal responsibility for the careful stewardship of LWF’s resources
Personal Specification
(D) Desirable, (E) Essential
Experience
Comprehensive experience in an administrative role (E)
Experience of building positive relationships (E)
Experience of learning, managing and updating Salesforce or similar databases (D)
Key skills and knowledge
Excellent time management skills with the ability to juggle a wide range of competing demands (E)
Understanding of database and systems management (E)
Ability to take in and interpret information and present in a succinct manner(E)
Excellent communication skills, both verbally and written, combined with the ability to liaise with senior stakeholders, both online and in-person (E)
Ability to act on own initiative to introduce and develop new systems as appropriate (E)
Strong attention to detail (E)
Strong IT skills to include MS Office and database software (E)
Understanding of the policy and campaign landscape in the UK (D)
Personal qualities & values
A strong commitment to social justice and alignment with the Living Wage Foundation’s mission and Citizens UK’s values (E).
A proactive approach to all areas of work with a ‘can do’ attitude and a flexible approach to work demands (E)
About the application process
We work within diverse communities bringing people together. In line with our Inclusion value, we would love to see applications from LGBTQIA+ people, people from racialised communities, people living with disabilities and people of faith, all to better represent the communities we work in. We want our employees to have the working conditions that allows them to fully participate, be able to be their best authentic selves and thrive doing so, and we have employee networks to support staff. Even if you don’t quite meet all the required criteria still consider applying, as we invest in our employees and support them to develop the skills and knowledge required to deliver their role.
For questions and reasonable adjustments regarding your application including information in a different format, or our recruitment process, please email us.
Interviews will be in person in the South of England region, week commencing 5th October – in person most likely at Head Office in Whitechapel.
We’re the movement at the heart of fairer, better work. Fair pay, secure hours & enough to live on in retirement.



The client requests no contact from agencies or media sales.
The Diocese of Leicester is committed to reducing the overall diocesan Carbon emissions by 2030; aiming to reduce the emissions from energy consumption year on year and to incorporate sustainable working practices across all of our operations.
Are you passionate about sustainability and supporting churches to be open for future generations? We are looking for somebody relational, committed to carbon reduction and adaptable to be our Net Zero Carbon Programme Officer to work with our parishes and their communities, helping to reduce their carbon footprint and ensure church buildings remain sustainable as a place of worship and a resource for the local community.
This is a new fixed-term post made possible by a grant from of The Church of England through their Net Zero Carbon Capacity Building Programme.
In this rewarding role, you will:
What we are looking for
Why Join Us?
For an informal conversation about the role see contact details in general info document.
Closing Date: Sunday 20th September
Shortlisting date: Wednesday 23rd September
Interview Date: Thursday 8th October
We particularly welcome applications from UK Minority Ethnic / Global Majority Heritage candidates, who are currently underrepresented in our organisation.
The Diocese of Leicester, part of the Church of England, is committed to the safeguarding, care and nurture of everyone within our church community. We follow the Church of England’s Safeguarding Policies and relevant statutory guidance. We believe that safeguarding is everybody’s business.
This post is subject to a Basic DBS check and proof of right to work in the UK. The Diocese is unable to offer a Certificate of Sponsorship.
The client requests no contact from agencies or media sales.
KEY INFORMATION
Location: Bristol, Newcastle, Nottingham, Manchester or London
Hours: 37.5 hours
Start date: We will work with notice periods
Duration: Permanent
Salary: £35,175 - £40,675 per annum if based in Bristol, Newcastle, Nottingham or Manchester. £37,905 - £43,405 per annum if based in London
Application deadline:Thursday 10th September, 11:55pm
Application Process: written applications > assessment centre (interview & written task)
ROLE SUMMARY
upReach is seeking to hire an Organisational Initiatives and Governance Manager. This is an exciting opportunity to work directly with upReach’s Senior Leadership Team (SLT) on strategic projects, internal communication, governance, and other internal and external initiatives.
The role will provide direct support to the SLT, building their capacity and enabling the charity to continue to grow and increase its impact. They will support the collection of key data for strategic decision making and take responsibility for regular and accurate reporting to our Boards, whilst also leading on the planning and delivery of several key projects. Projects they work on will include exploring how to best to deliver on upReach’s national development, and coordinating the cohesive delivery of work that falls under the umbrella of our ‘Double Benefit’ approach.
Whilst Governance and the support provided to the SLT will remain consistent in this role, organisational initiatives will change over time, depending on where it is agreed with the SLT that the ROI is greatest and can best achieve upReach’s overarching mission.
CORE RESPONSIBILITIES
The Organisational Initiatives and Governance Manager will report to the Director of People and Strategy and work on initiatives and projects that the SLT believe will help us to best achieve our mission. In addition to this, the Organisational Initiatives and Governance Manager will also work closely with the SLT to provide governance and operational support. This will include coordinating with Trustees to organise the yearly calendar of governance events and preparing papers for Trustees, Advisory Board and Services meetings, including the Annual Report.
This role will require influencing and collaboration in order to deliver upReach’s mission through a range of stakeholders across the team.
Core responsibilities will include:
1) Strategic Projects & Organisational Initiatives
Be the operational driver of organisational initiatives, as agreed on by SLT, that have an impact on the success of upReach’s mission and our impact on Associates across the country.
Projects may be outward facing or operational in scope, depending on what is deemed to be of most importance at the time. They may also be at different stages in their life cycle, and as such, the role may require initial exploration phases, creation of implementation plans and the coordination of different teams to complete and assess success, as required by the specific initiative.
Attending meetings and following up with key stakeholders to ensure the completion of relevant projects to a high standard.
Collaborating with a variety of stakeholders to gather and report key information, along with recommendations, to the SLT or other senior managers.
2) Governance & Leadership Support
Preparing papers and required documents for Trustees, Advisory Board and Services meetings, including the yearly Annual Report.
This may also include supporting internal communications and calendar management for the SLT (for example, organising the yearly governance calendar).
3) National Development & Expansion
Be the champion for upReach’s national development strategy, ensuring there is understanding and buy-in across the team regarding the importance of upReach’s growth outside of London with respect to social mobility coldspots and existing regional presence and tracking OKRs related to this.
Drive plans regarding how best upReach can expand its work in Scotland. Having recently successfully registered as a Scottish charity we are exploring what expansion could and should look like, and this role will work on the practicalities regarding how upReach can sustainably support more students in Scotland. Pending approval of plans from the SLT and Board, the role would lead on enacting the agreed upon approach.
Liaison with relevant departments to collaborate on prospect fundraising, university and employer partnerships, as well as student attraction and onboarding activities, will be required as part of this initiative.
4) Double Benefit Approach
Have oversight of a cohesive, deliberate programme of Double Benefit effective practice at upReach, working across teams to do so. This will include:
Supporting the Events team in the creation of the agenda and delivery of the annual Championing Change event in collaboration with Bank of America, bringing together employers across industries to promote inclusion and social mobility.
Support work on policy being led by the Marketing and Communications Team to ensure it is cohesive with our wider Double Benefit approach.
Coordinating with the Partnerships team regarding use of our Employer Engagement Toolkit and any bespoke consultancy or training requested.
This role will also provide line management for 1-2 members of our Future Charity Leaders Programme one day per week, as they work on a six month ‘rotation’ in the areas described above.
Please note that it is not possible for the job description to cover the exhaustive list of responsibilities of your role due to the varied nature of the role, especially given the nature of this role to work on a range of projects and initiatives. As such, the job description aims to provide an overview of your remit and core responsibilities.
EXPERIENCE
To be successful, it is anticipated that you would have experience:
Working in a project management role, ideally within a charity
Working with a variety of stakeholders and a demonstrated ability to influence and coordinate with different teams
Researching and the ability to create a business case based on the research results
Creating project plans and completing end to end project work
Working in a fast-paced environment and working independently
Previous experience working in charity governance or supporting senior leaders would be desirable, but is not essential.
COMPETENCIES
upReach have created a Behaviours and Competency Framework to ensure the team have full visibility on the key capabilities required for effective performance, how these connect to our organisational values, and the level required for each band within the organisation. We would expect this role to be demonstrating mainly level 3 competencies, with some level 4 competencies displayed.
Below you will find a detailed summary of the key attributes required:
Essential skills and competency level:
Motivation – 3
Leadership – 3
Continuous improvement – 3
Planning and organising – 4
Problem solving and decision making – 3
Innovative – 3
Management – 3
Commitment to social mobility – 4
Communication – 3
TEAM CULTURE & BENEFITS:
By joining the upReach team, you will be joining a team who are committed to supporting you in your career journey and fostering an inclusive culture.
We offer:
Flexible and hybrid working
Statutory Holiday Entitlement of 25 days, plus bank holidays. This increases to 27 days 2.5 years and then to 30 days after 5 years of working with us.
Birthday leave and volunteering leave
Enhanced Parental Leave beyond statutory requirements for all team members.
3% Pension Contribution, which increases to 5% after 5 years of working with us.
Cycle-to-work and tech buying schemes.
Monthly socials
Dedication to Staff Wellbeing through our Employee Assistance Programme, Mental Health First Aid Training and annual wellbeing days
Summer Hours (early Friday finishes from June to Aug)
Personal Development Budget, activated after 6 months in the role
The opportunity to participate in our fantastic staff networks:
Disability and Inclusion Network
Diverse Roots Network
Green Network
LGBTQ+ Network
Mindfulness Network
Parents and Carers Network
Socio-economic Background Network
(Im)Migrants Network
READY TO APPLY?
We are committed to making our recruitment process inclusive. All applications will be blind screened, and our job packs are available in Braille, large text or another format upon request. We can provide reasonable adjustments throughout our recruitment application process and on the job, and we'll always endeavour to be as accommodating as possible.
Applications close on: Thursday 10th September 2026, 11:55pm
EQUAL OPPORTUNITIES
At upReach, we are committed to being an equal opportunities employer and do not discriminate in employment matters on the basis of race, ethnicity, religion, gender, age, disability, social background or any other protected class. We celebrate and value the diverse perspectives that people from all backgrounds bring to our team. We are passionate about creating a workplace that is inclusive and reflects the diversity of communities across the UK. Diversity in the workplace creates dynamic and effective organisations and we are actively working to build a more inclusive workforce by continuously improving our recruitment, retention, and development practices. We particularly encourage applications from individuals from underrepresented groups, including Black, Asian and other ethnic minority backgrounds, those with disabilities , those who are care-experienced, those from low socio-economic backgrounds, and those who are LGBTQIA+.
Award-winning social mobility charity supporting undergraduates from less-advantaged backgrounds to secure top jobs.


The client requests no contact from agencies or media sales.