94 Major donor volunteer jobs

We are looking for a senior partnerships officer who will ensure our vital work to address the
environmental crisis is well funded, working to secure new partnerships and stewarding existing
funder relationships.

This multifaceted role works across teams to coordinate and deliver Green Alliance’s fundraising
activities and grant management. Collaborating with the organisation’s policy and political
experts, you support the creation of creative and impactful new project proposals that address
environmental problems and support the organisation’s strategy. You will identify funders for this
through prospecting and relationship building and will guide proposals through processes to
secure funds. You will monitor the organisation’s progress against fundraising targets and lead on
management of our funding pipeline.

Stewardship of existing funding relationships is a significant part of this role which means
ensuring we have excellent communication with our funders, making sure they receive high
quality reports on Green Alliance’s impact and supporting the team to see our funders as partners.
You will manage our Business Circle and maintain relationships with its members and support
efforts to recruit new business members into Green Alliance Task Forces.

Excellent communication skills are at the heart of this role, both written and verbal. You will be
confident, efficient, and resourceful; calm under pressure and enjoy building strong relationships
with a variety of senior stakeholders, as well as working independently. Strong skills in relation to
organisation, administration and prioritisation are essential.

You will need to understand, or be willing to learn about, the political and environmental policy
contexts we work in.

Please note that we reserve the right to close this vacancy early and interview suitable candidates as applications are received. You are encouraged to apply as soon as possible.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.  

Lead the next chapter for liver health in the UK

This is a unique opportunity to lead a respected and financially stable health charity at a pivotal moment of transformation.
Following a successful merger, the organisation has proudly just completed a full rebrand to Liver UK, bringing together services, information and advocacy across all ages. With a clear, trustee-approved strategy for 2026–2032 already in place, the next Chief Executive will focus on delivery, growth and national influence.

A strong platform and a planned transition

This role comes at a natural and positive point within a planned leadership transition.Our current Chief Executive has provided long-standing, successful leadership and is excited to hand over the rebranded charity for it to be led into its next phase of strategic development, sustainability and growth.
The incoming CEO will inherit a well-led organisation with strong governance, a clear strategic direction, and real momentum.

About the role

As Chief Executive, you will lead delivery of an established strategy, ensuring the organisation continues to grow its reach, impact and income.You will work closely with an engaged and supportive Board of Trustees to maintain high standards of governance, regulatory compliance and risk management, while strengthening the charity’s voice in national policy and public affairs.
This is a role that balances external influence with internal leadership, ensuring both impact and organisational resilience.

Key responsibilities

• Deliver a trustee-approved long-term strategy, refining priorities as needed
• Ensure robust governance, legal and regulatory compliance
• Lead policy, public affairs and national influencing activity
• Maintain financial sustainability and drive income growth
• Lead and develop a high-performing Senior Management Team
• Oversee delivery of high-quality services and information

About you

You are a credible and values-driven leader with senior experience in the charity, health or related sectors.
You will bring:

• Proven senior leadership experience at Director or Chief Executive Officer level
• Strong understanding of governance, finance and regulatory compliance
• Experience influencing policy and working with senior stakeholders
• A track record of delivering organisational growth and impact
• Excellent communication and relationship-building skills

You will be confident working with a Board of Trustees, able to build strong relationships, provide clear advice, and operate effectively in a governance-led environment. 

You will be motivated by improving health outcomes and confident leading an organisation with both national influence and strong operational delivery.

Why join us?

• A clear, trustee-approved strategy ready for delivery
• Strong governance, financial stability and organisational foundations
• A positive and well-managed leadership transition
• The opportunity to shape a newly unified, UK-wide charity
• A chance to make a meaningful difference in an under-recognised area of health
• A strong, engaged and motivated Board

A competitive salary will be offered, reflecting the experience, skills and leadership qualities of the successful candidate.

We are grateful for all interest shown in leading Liver UK. However, as our resources are currently focused on supporting our newly rebranded organisation, we are unable to provide individual feedback to applicants.

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