Patient advocacy and policy officer jobs in Belfast

Head of Mass Supporter Fundraising

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland.  

Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Are you an experienced fundraising leader who wants to be part of creating a future where nobody dies of bowel cancer? This could be the role for you!

Bowel Cancer UK is seeking an exceptional, growth-driven Head of Mass Supporter Fundraising to join our team. We have set a bold ambition to significantly increase income over the next five years, ensuring everyone diagnosed with bowel cancer in the UK receives the support they need.

This is a rare opportunity to build and scale a data-led fundraising programme, increase our visibility in a competitive landscape, and develop a high-performing talented team capable of delivering sustained, multi-million-pound income growth. You will lead the development of transformational strategies and play a critical role in the management of the charities CRM to significantly scale revenue while ensuring digital innovation is at the heart of all strategic decision-making. You will take full ownership of mass supporter fundraising budgets and provide visionary leadership by directly managing team managers to foster a culture of professional growth.

The salary is £51,241, plus £2,000 London Weighting if applicable and a contributory pension scheme. The position is home-based UK-wide, with required travel to our London-based Hub space in Kennington. We offer 27 days of holiday, plus three discretionary days between Christmas and New Year in addition to statutory holidays, complimented by a range of brilliant staff benefits.

If you have a proven track record in digital acquisition, harnessing data to support decision-making, managing multi-million-pound budgets, and know what it takes to motivate and lead a brilliant team, we want to hear from you.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

ABOUT THE ROLE

We are looking for a part time governance and compliance officer to oversee our governance and risk framework as a non-profit regulated by the Charities Commission (England and Wales) and OSCR (Scotland).

You will identify, develop, maintain and implement policies and procedures to ensure compliance and risk mitigation with the various regulations that we must adhere to such as Charities Commission, OSCR, Fundraising Regulator, Companies House, UK Data Protection and Safeguarding.

As governance and compliance officer, you will deliver high quality, professional and compliant governance across the charity, nationally and in supporting our network of support groups (see About IA) ensuring we comply with statutory regulations, that protect our members and the charity itself while applying best practice principles.

KEY RESPONSIBILITIES

• Developing and documenting a detailed understanding of charity practices, paying specific attention to areas where IA is bound by statutory regulations
• Developing robust policies and procedures that ensure charity compliance and best practice
• Remaining up to date with current regulations that IA is bound by and ensuring any changes are implemented within any imposed deadlines
• Regularly review and maintain policies and procedures auditing your findings to ensure exemplary record keeping following up with implementing changes
• Implementing policies and procedures amongst staff, volunteers and the Board of Trustees with robust record keeping introducing governance cycles to keep everyone updated with current policy and communicating changes where necessary
• Identifying risks, recommending mitigating actions and reporting your findings to the management team and Board of Trustees
• Reviewing and updating IA’s risk register
• Recommending and monitoring recommended training among staff and volunteers especially where IA is bound by statutory regulations
• Liaise with third-party suppliers to IA who are responsible for providing services to the charity that support our governance and risk framework
• Supporting Trustee recruitment, induction, training, and evaluation processes

PERSON SPECIFICATION

ESSENTIAL EXPERIENCE 

• Demonstrable experience of at least 12m in governance and risk management within a not for profit environment with working knowledge of UK charity regulations. Exceptional candidates from a commercial background would be considered
• A thorough working knowledge of risk management
• Development, implementation, monitoring and maintenance of governance and risk frameworks
• Documenting, reviewing and mitigating risk
• Demonstrable experience of regular reporting to management
• Strong working knowledge of UK data protection regulation
• Working knowledge of safeguarding requirements
• Exceptional record keeping skills to satisfy audit requirements
• Management of third-party relationships including suppliers to IA and volunteers who are carrying out their volunteering role in line with IA’s policies and procedures
• Team player

DESIRABLE EXPERIENCE

• Experience across the not-for-profit sector
• Working with volunteers
• Basic understanding of AI and the benefits of using it within the not-for-profit sector
• Experience supporting Boards or Trustees
• Regulations governing charity fundraising

SKILLS AND QUALITIES

• Highly organised
• Excellent communication and interpersonal skills
• Flexible, adaptable in approach, creative thinker to manage the balance between governance and continuing to provide a personal approach to vulnerable adults
• Commitment to equity, diversity and inclusion.
• Proactive and solution-focused

APPLICATION SUBMISSION

To apply, please submit:

1. Your CV (up to 3 pages)
2. A covering letter outlining your suitability to the role (max 500 words)

Interviews will be two-stage for successful candidates. Initial interviews will be held via video conferencing (such as Zoom) discussing previous experience and role fit with successful candidates going through to a second round. This includes alignment to IA’s values. Please allow up to 1 hour for this stage.

Second round interviews are expected to be via video conference. Successful candidates will, in advance of the second round, be given a short brief and asked to present at interview their understanding of a governance issue  facing charities. Please allow up to 1 hour for this stage.

Applications should be submitted via the advertising platform including your CV and covering letter. See attached role profile for recruitment timetable and further details about us/the role, including contact details for an informal chat, if required, before applying. Applicants are encouraged to ensure availability in line with the recruitment timetable in the attached job specification.

While IA recognises the value of AI technology in the current climate, IA reserves the right to ignore applications where we have reason to believe that they have been wholly produced using generative AI tools.

Please let us know if you require any additional support to attend or undertake an interview or if there is anything we should consider as part of the interview process

About The Role

 Are you passionate about using evidence and data for good? As a new role, you will have the exciting opportunity to support and transform how we use health related dementia data in the development and curation of our strategic evidence base. Clear and impactful data is key to understanding the scale and impact of dementia in the UK and this role will be pivotal to ensuring we’ve got what we need.

Your role will be critical to informing research, influencing and engagement activity through deep-dive analysis healthcare data, identification of potential data gaps and the most effective ways to fill them, and the production of jargon-free engaging interpretation and information for both internal and external use.

You will work alongside the Dementia Data and Intelligence Lead and a Dementia Data and Intelligence Officer, together providing expertise on evidence, data and insight in the context of dementia, ensuring that the Society’s decisions and interpretation of dementia and the system is based on the highest quality of dementia evidence. You’ll also work closely with other members of the Strategic Evidence team - our in-house experts for dementia data, economics, care and clinical research evidence, responsible for gathering and generating evidence on the scale and impact of dementia across the UK; contributing authoritative, impactful evidence to inform policy making and strategic decision-making.

You will be part of an even larger Evidence, Policy & Influencing (EP&I) function which is laser-focused on ending the devastation of dementia through changing policy. Teamwork and communication are key in this role – with colleagues internally and within the system externally to help make dementia the priority it needs to be.

This is an exciting opportunity to join the Strategic Evidence team and shape how we use data and intelligence to inform what we know about dementia.

About you

You’re a data analyst with previous experience of analysing data to inform policy and/or strategic decision making who thrives on bringing clarity to complex questions using data. You understand the importance of clear communication when it comes to sharing data and intelligence with technical and non-technical audiences. You’re passionate about using data and evidence for good and you can understand the need for impactful data and evidence in the current health and social care landscape. You’re a trusted expert and critical friend, always considering the impact of your work on people affected by dementia.

You will have:

- A qualification in discipline relevant to data analysis or equivalent demonstrable work experience.
- Skills in using statistical analysis techniques to draw impactful conclusions from complex data sets (for example patient level health records).
- Skills in data visualisation with the ability to tailor the communication of your findings to different audiences, using tools such as Power BI or ArcGIS.
- Experience of using software packages or coding languages to efficiently process data and produce shareable outputs (at least one of: R Studio, SQL, Python).
- Experience of preparing briefings, reports and other creative assets to support the sharing and mobilisation of data insights with non-technical audiences.
- Experience of providing advice and guidance on how to use data insights to both technical and non-technical audiences.
- Experience of analysing and appraising data to inform policy and/or strategic decision making.
- Experience of using project and stakeholder management skills to deliver and monitor projects of work that require internal and external collaboration.

What you’ll focus on:

- Informing data advocacy, helping us demonstrate a case for change around the need for improvements in dementia data, by building a deep understanding of the quality and quantity of health-related dementia data.
- Supporting the development and implementation of a strategic approach that enables the use of dementia specific and other relevant data in our strategic evidence base.
- Combining datasets from various sources externally, generating actionable insights on the scale and impact of dementia that are understandable and impactful for different audiences and purposes.
- Creating engaging content for internal and external use, using appropriate data visualisations to present data in engaging and easily interpretable ways for non-data professionals.
- Supporting the development and management of a more robust single point of truth to ensure correct usage and communication of data and statistics internally and externally.

Interviews for this role have been provisionally scheduled to take place (via MS Teams) on Tuesday 31st March and Wednesday 1st April.

Location:  Flexible: remote, hybrid or office-based (Horsforth, Leeds) 

At the Bone Cancer Research Trust, we exist because families refused to accept a world where primary bone cancer had no hope, no answers and almost no research. Today, we’re the UK’s leading bone cancer charity and every supporter you engage helps push vital research forward and provides comfort to families who need us. 

About the role 

As Relationship Manager, you’ll build genuine, lasting connections with our Special Funds - our named funds created in honour or memory of someone affected by primary bone cancer, community supporters and local businesses. Your relationship-led approach will help create the family feel connections we’re known for, inspiring long-term support and raising vital income for people affected by primary bone cancer 

You will: 

• Grow and manage Special Funds, our named funds created in honour or memory of someone affected by primary bone cancer. 

• Build strong, meaningful relationships with all our supporters, ensuring every person feels valued and connected. 

• Secure and steward regional corporate partnerships 

• Meet a regional income target of approx. £300,000 

• Represent BCRT in your region, strengthening awareness and community connections at meetings and events. 

About you: 

• A natural relationship builder with 3+ years’ fundraising experience and a genuine passion for supporter care. 

• Compassionate and professional, especially when working with families personally affected by primary bone cancer. 

• Organised, proactive and confident working independently, able to balance a varied workload. 

• A clear and engaging communicator, bringing warmth and positivity to every interaction. 

• Able to travel across the region (car required). 

Why you’ll love working with us 

You’ll join a small team that works collaboratively and keeps our community at the centre of everything we do. We’re supportive, friendly and you’ll have the flexibility to manage your work while seeing the direct impact of the relationships you build. 

What we offer 

• Flexible approach to working hours

• 30 days annual leave per calendar year (Pro-rata for part time staff) plus bank holidays 

• Private Health Insurance (following successful probation) 

• 6% employer pension contributions

• Life Assurance of 4x annual salary