Patient advocacy and policy officer jobs in belfast
About us
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.
We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign.
About the role
This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.
You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.
This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.
You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.
About you
We’re looking for someone who is:
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A strong communicator with at least two years’ experience in a communications role.
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Skilled in producing visual and written content for websites, social media and newsletters.
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Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).
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Organised, creative, and comfortable working both independently and collaboratively.
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Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.
Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.
What we offer
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Generous pension (5% employer, 3% employee)
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25 days annual leave (pro rata) plus bank holidays
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Full office closure over Christmas and New Year
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Flexible, home-based working with supportive team culture
Location: Home-based (UK) – occasional travel required
Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025
Registered Charity 
11 - 20
The client requests no contact from agencies or media sales.
Thank you!
We’re excited to recruit our first Major Donors and Partnerships Coordinator to lead on securing and managing key relationships with corporate partners and major donors. This is a brilliant opportunity for someone with proven experience in corporate fundraising and major donor engagement to help shape CLAPA’s high value fundraising strategy from the ground up. If you're passionate about building meaningful partnerships and making a lasting impact, we’d love to hear from you.
You will play an active part in shaping and delivering corporate fundraising campaigns and stewardship activities, with a good level of ownership balanced by the support of an experienced income generation team.
As Major Donors and Partnerships Coordinator, you will contribute significantly to diversifying and sustaining CLAPA’s income. With an ambitious Income Generation Strategy in place, this is a timely opportunity to help strengthen CLAPA’s profile in corporate fundraising and partnerships. Building and maintaining strong, long-term relationships with donors and partners will be a core part of your role.
Working in a small and collaborative income generation team, you will need to be organised, proactive, and able to manage multiple priorities in a fast-paced environment. This position offers a supportive environment where you can grow your skills while making a meaningful contribution.
The Link to apply is listed in the attached Recruitment Pack or can be accessed via the Redirect to recruiter button.
The client requests no contact from agencies or media sales.