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Top job
Shine, Remote
£31,672 per year
We are looking for an experienced, skilled, organised and dedicated person to join Shine to develop and lead our new NPH / Dementia service
Posted 2 days ago Quick Apply
Closing in 2 days
Neighbourhood Watch Network, Remote
£26,000 - £28,000 per year
Looking for an opportunity to empower volunteers to help their communities? This role could be perfect!
Posted 1 week ago Quick Apply
Closing in 2 days
Neighbourhood Watch Network, Remote
£26,000 - £28,000 per year
Looking for an opportunity to empower volunteers to help their communities? This role could be perfect!
Posted 1 week ago Quick Apply
Housing Justice, Bristol (Hybrid)
£33,786 per year
Citadel is volunteer-led service that supports people who have experienced homelessness to build a community and find a home.
Posted today
Housing Justice, Bristol (Hybrid)
Citadel is volunteer-led service that supports people who have experienced homelessness to build a community and find a home.
Posted today
BNSSG VCSE Alliance (Role hosted by Voscur), Bristol (Hybrid)
£28,383 per year (FTE): £17,259.93 (pro rata)
Posted 2 weeks ago
Page 1 of 1
£31,672 per year
Job description

We are hiring! We have a job vacancy for a Normal Pressure Hydrocephalus (NPH) / Dementia Coordinator.

Shine has a membership of over 13,500 members living with SpinaBifida and/or Hydrocephalus and associated conditions and over 6,000 associated members.

In the last year we have seen a 25% increase in members who are living with NPH across England, Wales and Northern Ireland. There are currently just under 600 members with NPH, plus their carers registered, but we are expecting this to continue to rise as awareness and diagnosis of the condition grows.

We are looking for an experienced, skilled, organised and dedicated new staff member to join Shine’s Services team to develop and lead our new NPH service.

Job title: Normal Pressure Hydrocephalus (NPH)/ Dementia Coordinator


Reports to: Director of Services

Location: Home Based or Hybrid * 

(dependent on proximity to our Head Office in Peterborough, with travel across England, Wales & Northern Ireland as required)                                                               

Hours: 35 hours per week (willingness to work outside of office hours, evenings and weekends when required)

Salary:                £31,672 pa

Closing Date:      21st July 2024 at 11pm

Purpose of Job 

To provide the foundations for improved health, social and emotional outcomes for adults living with NPH and to support their families/carers.

To focus primarily on delivering 3 of Shine’s 7 Strategic Goals all of which drive Shine’s ambitions:

·  Goal 3: Adults of all ages with spina bifida and/or hydrocephalus have the choices and opportunities to live healthy and independent lives

· Goal 4: A connected community

· Goal 7: Transforming attitudes and improving access to health and care services through engagement, partnerships, research and campaigning   

And contributing to delivery of other strategic goals as appropriate.


Staff management:

1. Shine is committed to providing quality advice and support. As service lead you will provide supervision, training, guidance and support in line with Shine’s HR processes and procedures to other members of staff who are involved in the delivery of work for the NPH service.


Project management:

1. Evaluate existing support for members living with NPH and their families/ carers within Shine

2. Develop and grow the service based on the needs and voice of our members

3. Lead the support of members living with NPH and their families/ carers across England, Wales & Northern Ireland

4. Develop annual work plans, which will enable continued development and delivery of the NPH service

5. Create a framework for the service and develop Shine colleagues to support delivery in key areas

6. To provide training to upskill colleagues in dementia

7. Create greater consistency across all Nations by developing strong working relationships with key colleagues in England, Wales and Northern Ireland

8. Drive collaborative working with the National Programmes and Engagement Manager and the National roles – particularly Health and Benefits

9. To manage any specific project budgets, ensuring spend is planned, within budget and allocated to the appropriate cost centre 

10.  Maintain an oversight on data capture and data management for the work on NPH, alongside the Director of Services develop outcome measures to demonstrate impact

11.  Work in line with GDPR, maintaining confidential member records providing clear and accurate record keeping for monitoring and evaluation

12.  Identify new potential sources of funding as the project develops and contribute to funding bids as requested. 

13.  Working with colleagues in Services, Fundraising, Marketing, Trust and Foundations colleagues and Shine’s membership to identify opportunities for long-term sustainability of the work.


To manage all enquiries from our members living with NPH and their carers, providing direct one to one support and advice including-

·  Welfare benefit/ income maximisation advice

·  Condition specific support to enable the person living with NPH to have choice and control over their current and future care needs.

·  Signposting /referring to more specialist information and support, internally or to other local, regional or national organisations 

You will also:

· In collaboration with Shine’s National Programmes & Membership Engagement Manager, Health and Services colleagues and external partners, lead the delivery of the NPH awareness week once a year

· Review existing and develop new resources for members with NPH alongside the Health team

· Develop and deliver an annual programme of events and peer support groups for members with NPH and their families and carers

· Oversee social media, Facebook and WhatsApp support groups

· Organise steering groups, providing opportunities for Shine members to guide the development of the service, and engage in consultations and research

· Develop partnership opportunities and closer working relationships with health professionals, statutory organisations and charities

· Identify key campaigns to improve the rights of members with NPH, improving access to statutory services, access to NHS care, awareness regarding diagnosis and treatment.

Other core requirements of working for Shine:

· To work with Shine’s national and regionally based colleagues to ensure that all work is complementary, coordinated and beneficial to our members

· To maintain the high standards of respect, communication, professionalism, empathy and sensitivity conducive with working for an organisation that represents 13,500+ members living with spina bifida and/or hydrocephalus or associated conditions.

· To ensure that Shine’s safeguarding policies and processes are followed, and are ‘everyone’s responsibility’

· To actively take part in the annual staff residential



To undertake any other duties in line with the job role. 




Person Specification 


Experience – essential 

· A minimum of 3 years' experience of working with older people living with dementia

· Experience of project management and delivery

· At least two years’ experience of delivering support and advice services for older people.


Knowledge, skills and abilities – essential 

· Excellent verbal and written communication skills

· Ability to build strong relationships both with internal and external stakeholders

· Ability to develop and deliver professional presentations and training in a variety of settings 

· IT literate with a good knowledge of Microsoft 365 and confident in the use of CRM Database systems

· A non-judgmental approach to working with people 

· A good knowledge of adult safeguarding policy, procedures and reporting 

Qualification- essential

§  Relevant qualification in health or social care


Experience – desirable 

· Welfare benefits: Experience of supporting older people to maximise their income

· Experience of providing supervision, guidance and support to others as a lead

· Developing and delivering opportunities to enable and empower disabled people

· Organising information sessions and social events 

· Multi-disciplinary working and advocacy

· Evidence of successfully developing a base of local, regional and national contacts/partners who can provide specialised support to our members/ families

· Working in the third sector in a paid or unpaid capacity 

· Working with, and supporting, volunteers 

Qualifications - desirable 

Relevant qualification in:

§  Information, Advice & Guidance

§  Management

§  Project management 


In return, Shine will offer you:

· A competitive salary

· 35 hour working week

· 25 days annual leave plus additional discretionary leave between Christmas and New Year

· Support to learn and develop

· Opportunity to purchase additional annual leave

· Additional annual leave due to length of service

· Defined contribution pension

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.

If you would like to have a chat about the role in more detail or have any questions, please give us a call and ask to speak to Gill Valentine, our Director of Services.

Interviews will be held on Monday 12th August in our Head Office, Peterborough

Application resources
Posted by
Refreshed on: 19 June 2024
Closing date: 21 July 2024 at 23:00
Tags: Advice, Information,Social Care/Development,Management,Project Management,Support Worker

The client requests no contact from agencies or media sales.