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WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.

Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis? 

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.

Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.

We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.

The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.

1. Treasurer

We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.

In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board. 

2. Young Trustee

• Recent personal experience of the impact of living with endometriosis whilst at school
• Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
  May 2026
• Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
• Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.

3. Endometriosis UK Trustee

• Personal or professional experience of diversity and inclusion issues
• Currently living in England, Northern Ireland, Scotland or Wales
• Charity Trustee experience
• Charity Senior Management experience
• HR expertise
• NED experience
• Experience of grant making / philanthropy

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

Do you have experence of fundraising reserach and/or writing grants applications? Want to put those skills to use and make  a difference for those whose lives are affected by cancer?

This role would suit those with experience or interest in research, bid writing, charity fundraising, marketing, creative writing, commissioning, public sector tenders or grant assessment who is looking for a meaningful, regular volunteering commitment. Anyone with expertise or transferable skills in the area of research and/or writing compelling proposals/marketing who is interested in volunteering is encouraged to have a chat with us as we can be flexible.

The Mulberry Centre is looking for opportunities to identify and apply for relevant grants, trust and foundations funding in a competitive market. Grant requests will be on average £500-£10,000 for specific services as well as core Centre costs. This Fundraising Volunteer (the role can be undertaken by one volunteer or split into two parts and shared) will work closely with the Fundraising and Engagement Team to help streamline the research and application process. The first part of the role is to research and check grants and trust funding lists and databases for current opportunities and deadlines for applications to determine which are relevant, where we meet the necessary criteria, and how quickly we need to apply. The second part of the role is to draft and adapt application information to inspire and appeal positively to specific funders. 

Role Summary

If you have a senior financial background and a passion for global justice and disability inclusion, we’d love to hear from you. The role will serve on both our Board and our Finance and Audit Committee. Experience working with UK charities, either in finance, governance or audit, is desirable, but not essential. The role would suit an experienced Trustee, or someone considering their first Trustee role. This role will oversee the charity’s financial performance and position, financial governance, and investment management. 

Please note that we will review applications as they are received, so early applications
are encouraged.

About Us

For over 115 years, CBM has been transforming lives around the world. We work with local partners, making sure people with disabilities in some of the world’s poorest communities have access to healthcare, education and a future where they can thrive. As an organisation based on Christian values, we welcome staff of all faiths and none in our work to build an inclusive world in which all people with disabilities enjoy their human rights and achieve their full potential.

Please download the Recruitment Pack for full details and how to apply.

About CSE

The Centre for Sustainable Energy (CSE) supports people and organisations across the UK to tackle the climate emergency and end the suffering caused by cold homes. We undertake practical work to support households and communities to act on energy, alongside original research and analysis to inform local and national policy.

We are one of the UK’s leading sustainable energy charities, with a 45-year track record of award-winning impact, innovation and influence, as most recently detailed in our 2024–25 Impact Report available on our website.

About the role

Our Board of Trustees is critical to our continuing success. Trustees work collaboratively, providing support, insight and constructive challenge to help shape CSE’s strategy and ambition, and enhance our effectiveness and charitable impact.

Due to the planned stepping down of some of our board members, we are recruiting up to four new trustees to join the board and provide effective governance and support in the next phase of CSE’s development.

Who we’re looking for

All applicants should be able to demonstrate a strong interest in and commitment to CSE’s work and charitable objectives.

We are particularly seeking new trustees who bring expertise in at least one of the following areas:

• Knowledge and understanding of the community energy sector, including the challenges and opportunities of delivering local or community energy projects, and how these connect to national policy
• Expertise in organisational development, with a good appreciation of issues associated with employment law
• Experience of finance, accounting and audit, for example through holding a role with financial responsibility in an organisation or from having set up, grown or led a business
• Strong knowledge of voluntary and community sector (VCS) networks, including practical experience of community organising and an understanding of the role grassroots organisations play in affecting social change

We would also welcome applicants who bring:

• Broader expertise directly associated with at least one of CSE’s work programmes (fuel poverty advice and support, housing energy retrofit, community action on energy, local net zero delivery, future generations, or fairness in the energy system)
• Understanding of the causes and impacts of fuel poverty, and the solutions required to tackle it
• Knowledge of the UK energy system, including the policy and regulatory environment, and the transition to a fairer, more flexible, decarbonised energy system
• An understanding of the national policy environment underpinning CSE’s work, including experience of influencing national energy policy

We are keen to widen the range of perspectives represented on the board and welcome applications from young people, people from under-represented groups, disabled people, and people with lived experience of CSE’s work.

If you are interested but unsure whether you meet all of the criteria, we would encourage you to apply or get in touch for an informal conversation.

Find out more and apply

For more information on the role, including the full person specification and how to apply, please see the trustee candidate pack on our website. 

Closing date: Midday on Wednesday 10 June 2026.

Help shape the future of nature in Herefordshire. We’re recruiting Trustees to help guide and strengthen our charity. Apply Online button to submit your application.

Herefordshire Wildlife Trust has been standing up for wildlife and wild places for more than 60 years. We need Trustees with energy, enthusiasm, and commitment to help us accelerate our influence on wildlife and nature recovery issues in the county and beyond. We work to recover nature at scale through deeper collaborations, working with local community organisations and networks, and Herefordshire Council, to develop a clear plan for nature’s recovery. We are also working with neighbouring Wildlife Trusts, river partnerships and national partners such as the Woodland Trust, National Trust, and Duchy of Cornwall. We are just beginning the process of developing our strategic plan for the next three years. So, with lots happening, it’s an exciting if challenging time for the Trust. Urgent action is needed to address the decline of wildlife in our beautiful county – and we need to muster all the resources and skills we can to succeed. We are a welcoming board who support and challenge each other to do better for wildlife. We look to recruit trustees from a range of backgrounds, life stages and skills to join us. At this time, we are looking for up to three Trustees. W

e would be particularly interested in candidates with good experience in:

• ecology and the environment;

• the law relevant to our work; and

• the management of estates and land.

You would also need the following skills and qualities:

• A strong commitment to wildlife conservation and the Vision of the Trust;

• A good understanding of governance, gained either as a Trustee of another charity, a director of a company, or as a manager who has worked with Boards;

• The ability to apply clear logical thinking and creativity to developing our strategy

If you are successful, you will be welcomed and supported by a talented and committed board of trustees, a strong and experienced staff team and an active and expanding band of volunteers and by the wider Wildlife Trust movement. We hope you are inspired to apply, and we look forward to hearing from you.