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WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.
Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.
About us
We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.
What are we looking for?
We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work. As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.
We are keen to recruit people with skills and knowledge in one or more of the following areas:
● Business development and income generation
● Human resources and people management
● Fundraising and philanthropy
● Media, communications and public relations
● Reproductive choice techniques and ethics
● Research in genetics or rare conditions.
What will you be doing?
Trustees play a key role in leading and supporting the charity. We ask them to:
● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)
● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)
● Attend the one-hour Annual General Meeting in autumn each year
● Consider joining one of our sub-committees, with up to four online meetings each year.
The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities.
Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.
We will provide full induction for successful candidates.
All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are seeking a passionate and strategic Head of Communications to lead our communication efforts and enhance our visibility. The role involves working closely with the CEO and collaborating with other members of the operations team to develop and implement effective communication strategies that resonate with our stakeholders, support our growth and amplify our charity's impact. This individual will have a budget to conduct campaigns and work with our partners in communications to ultimately grow our donor base.
We are looking for someone based in the UK only.
The client requests no contact from agencies or media sales.
Trustee Opportunities
Hodan is a small but long-established voluntary organisation in North Kensington, focusing on advice, support and wellbeing for the Somali community and other racially minoritised groups in West London. It is a registered charity operated as a company limited by guarantee.
We are looking for two new Trustees who can help us increase our reach, attract new funding, and continue to develop our services. We are particularly keen to recruit members of the local community in West London who have one or more of the following:
· Lived experience of issues faced by our service users, e.g., economic disadvantage, unemployment or unstable employment, migration, racism / discrimination, digital exclusion, and/or social isolation
· Experience in marketing, PR, or event management
· Experience in fundraising, especially non-grant approaches (e.g., corporate social responsibility, individual philanthropy, or building a supporter base)
· Experience of working with children and young people from racially minoritised backgrounds and/or in disadvantaged neighbourhoods.
· Experience in charity leadership and governance
Board meetings are held every three months at Canalside House, Ladbroke Grove. The Board is responsible for setting the strategy and policies of Hodan, and guides and supports the Executive Director and staff.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
PUBLICITY & MARKETING VOLUNTEER
Across the UK, our 65 local branches work with disabled people to help them live the lives they choose. Our network of skilled volunteers respond to thousands of requests each year to design and make customised equipment free of charge.
Our Publicity & Marketing volunteers play an essential role in publicising and raising awareness of their local branch’s activities.
What the role involves
This is a varied role that each branch tends to do a bit differently, but it will involve:
• Collecting case studies from the clients we help
• Writing stories for the local press
• Distributing literature
• Arranging talks
• Working with the Central Team to promote panel activities
We can support you to develop the skills you need for this role, and there’s an induction that covers all the areas above. You’ll also have chance to discuss your role and any additional needs with us.
What you’ll need for this role
• Confident using Microsoft Office, the internet and email
• Confident using social media platforms
• Warm, approachable and confident to engage with clients to gather their story
• Able to follow REMAP policies and procedures
• Able to apply disability, equality, and inclusion practices
• Able to keep people’s personal details safe
• A commitment to our values
You’ll also need to complete the induction checklist and some online training.
If it works better for you, there’s a possibility this role could be done remotely.
Why volunteer
When you volunteer with us, you join a community of committed people with a passion for helping to improve the lives of others. We’re a volunteer led organisation and we couldn’t do what we do without your hard work, skills and commitment.
N.B. We’ll reimburse any out-of-pocket expenses during your time with us.
REMAP exists to improve the quality of life for people who experience short or long-term disability through infirmity, illness or ageing.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
PUBLICITY & MARKETING VOLUNTEER
Across the UK, our 65 local branches work with disabled people to help them live the lives they choose. Our network of skilled volunteers respond to thousands of requests each year to design and make customised equipment free of charge.
Our Publicity & Marketing volunteers play an essential role in publicising and raising awareness of their local branch’s activities.
What the role involves
This is a varied role that each branch tends to do a bit differently, but it will involve:
• Collecting case studies from the clients we help
• Writing stories for the local press
• Distributing literature
• Arranging talks
• Working with the Central Team to promote panel activities
We can support you to develop the skills you need for this role, and there’s an induction that covers all the areas above. You’ll also have chance to discuss your role and any additional needs with us.
What you’ll need for this role
• Confident using Microsoft Office, the internet and email
• Confident using social media platforms
• Warm, approachable and confident to engage with clients to gather their story
• Able to follow REMAP policies and procedures
• Able to apply disability, equality, and inclusion practices
• Able to keep people’s personal details safe
• A commitment to our values
You’ll also need to complete the induction checklist and some online training.
If it works better for you, there’s a possibility this role could be done remotely.
Why volunteer
When you volunteer with us, you join a community of committed people with a passion for helping to improve the lives of others. We’re a volunteer led organisation and we couldn’t do what we do without your hard work, skills and commitment.
N.B. We’ll reimburse any out-of-pocket expenses during your time with us.
REMAP exists to improve the quality of life for people who experience short or long-term disability through infirmity, illness or ageing.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About YAUK
Youth Advantage UK is a charitable organization that uses a research-led approach to inform policy work and projects that aim to promote and further the human rights of young people aged 11 to 25 across the United Kingdom.
Please note that this is a remote VOLUNTEER role.
We won't accept applications from individuals residing outside of the UK as we operate on the principle of bettering the lives of young people in the UK. Therefore, we require our volunteers to have an understanding of what it is like to live in the UK.
We are looking to recruit four people who can commit their time and effort on a voluntary basis. We are recruiting Communications Officers to join either our Social Media team or our Website Development Team.
Responsibilities
To input into a regular flow of communications activity in either the website or social media team
To work with others to design content and design strategy
To take part in regular team meetings
To carry out tasks as assigned
Requirements
To have an interest in social media, marketing, website development or public relations
To have strong communication and people skills
To have strong IT and digital working skills
To be competent in the use of Canva, Wix and social media
Benefits
This is a UK-based, 100% fully remote and flexible role.
Supportive team and management to enhance your skills and build on your experience.
Your work will help transform and empower many young people’s lives, rights, and interests and assist in promoting equality for all young people.
Why Volunteer with Us?
We are a supportive and friendly organization that takes pride in developing and nurturing our volunteers and providing them with excellent opportunities to thrive and further encourage their career growth and future aspirations.
We offer a fully remote working environment and a flexible and adaptable working schedule. This is an excellent opportunity to join a growing organization, enhance your skills, and gain valuable experience. If this sounds like you and you are interested in applying for this position, please submit your CV.
We look forward to hearing from you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About Us
Tell My Truth and Shame the Devil C.I.C is a pioneering podcast, YouTube channel, and healing membership organisation dedicated to creating a safe platform for survivors and whistleblowers to share lived experiences, expose systemic failures, and promote healing through culturally trauma-informed care.
Our organisation combines healing, education, advocacy, and empowerment through honest storytelling and community transformation. We provide opportunities for young people and survivors to develop digital skills, participate in our interactive Alchemic 369 Book Club, and engage in transformative discussions around African, Caribbean, and world history, political thought, classics, and Ifa studies.
Our content focuses on:
Our mission is to challenge generational cycles, expose hidden truths, advocate for justice, and create a movement rooted in healing, authenticity, and transformation.
Job Purpose
The Volunteer Whistleblower Relations & Booking Officer will play a vital role in identifying, connecting with, and booking whistleblowers, former insiders, survivors, and experts linked to child abuse and institutional failures for podcast interviews and discussions.
The successful candidate will conduct research, outreach, relationship building, and guest coordination while professionally representing the organisation’s mission and values.
This role requires persistence, emotional intelligence, professionalism, confidence, resilience, and strong communication skills.
Key Responsibilities
Research & Outreach
Relationship Management
Coordination & Administration
Skills, Experience & Requirements
Essential Skills & Qualities
Communication & Outreach
Relationship Building
Organisation & Systems
Personal Attributes
Desirable Experience
Experience in any of the following areas is beneficial but not essential:
Lived experience, passion, determination, and alignment with our mission are equally valued.
What You Will Gain
We believe in collectivism over individualism. As the platform grows, your opportunities, influence, and impact grow with it.
Additional Notes
This role may not be suitable for individuals who:
Next Steps
Shortlisted applicants will be invited to participate in a practical discussion focused on event planning, coordination, outreach strategy, and execution.
The client requests no contact from agencies or media sales.
We're looking for new Board Members who are interested in making a real difference to the future of Graeae.
A pivotal member who is recruited for their specialist skills or knowledge and because they are representative of those with a stake or interest in Graeae’s work. In law, Trustees of Graeae have three particular duties – compliance, care and prudence – which are set out in the recruitment pack.
We are interested in hearing from Deaf, Disabled and neurodivergent individuals and looking to recruit 3-4 people with experience in one or more of the following:
Being a Graeae Board Member can be stimulating, challenging and rewarding. It offers the chance to work with a dedicated, committed, resourceful and professional group of people (staff team, Board and advisers) in an innovative and challenging environment.
The client requests no contact from agencies or media sales.