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Top job
Children's Heart Surgery Fund, Leeds (On-site)
£26,000 - £29,000 per annum
Inclusion Support Worker to deliver support to families of children with congenital heart disease treated at the Leeds Congenital Heart Unit
Posted 5 days ago Quick Apply
Top job
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£26,437.1 - £30,950.4 per year
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Page 1 of 2
Leeds, West Yorkshire (On-site) 0.29 miles
£26,000 - £29,000 per annum

Using Anonymous Recruitment

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Job description


Congenital Heart Disease (CHD) is the most common birth defect and cause of infant mortality. It affects around 1% of new-born babies annually, 1 baby in 125. 1,600 babies, children and adults undergo surgery/ interventional procedures including 420 open-heart surgeries at Leeds Congenital Heart Unit (LCHU) each year. The majority of these infants will need lifelong care and often multiple surgeries/ procedures.

Each year 17,000 babies, children/adults are treated across the Yorkshire and Humber congenital heart disease network. In 2018/19, 14% of outpatients lived in an area where people experience significant socio-economic disadvantage. Some areas are in the 1% most deprived in the UK. 24% of patients on the ward are from Asian communities, a high proportion with complex heart defects.

Children’s Heart Surgery Fund are committed to delivering inclusive support to children and families. We believe that there is a current need to develop positive multicultural relationships within our network to offer tailored family support through clear communication and engagement from the point of diagnosis and beyond. For this role we seek someone fluent in Urdu and Punjabi.

The aim of this role is to provide support to the South Asian families who may need assistance with English as a second language and may have specific needs due to their faith and cultural background.

The support package will ensure wrap-around, culturally sensitive support which is accessible to the whole family unit.

Job Summary

The Inclusion Support Worker will deliver holistic support to families of children with congenital heart disease from across Yorkshire, Humberside, North Lincolnshire and North Derbyshire treated under the Leeds Congenital Heart Unit.

We will encourage the role to develop outreach across the service catchment areas however we will be implementing the community support within Leeds and Bradford as a starting point.

The need for this role has been identified by the existing family support team, senior management of CHSF, our Ambassador and The Leeds Congenital Heart Unit, to engage with ethnically minoritised communities in a tailored way which respects and is sensitive to cultural and religious requirements. It is therefore very important that the Inclusion Support Worker has a good understanding of religions and cultures among communities of South Asian ethnicity.

The Inclusion Support Worker will be responsible for creating peer support groups, establishing a programme of family events, and offering a well-being package which is bespoke to the individual and cultural needs of the family.

This may involve signposting to medical professionals and to other external service providers to develop a joined-up programme to promote positive outcomes based around their individual circumstances.

This role will also provide culturally sensitive, respectful, and bespoke support to families during and following their child's end-of-life care. This team member will work to support relevant professionals to provide positive experiences and memories of their time with their child in Hospital and will signpost families to services with specific bereavement expertise when required.

CHSF is working to be a flexible employer. We aim to encourage applicants from all backgrounds and value lived experience.

Key Responsibilities

Support for Families

· To be a dedicated resource for all children and their families affected by congenital heart disease, with an additional focus on those families from diverse backgrounds.

· To facilitate clear communications between families and clinical/nursing staff.

· To create and provide essential discharge packs for parents which are culturally tailored to their needs.

· To liaise with the existing CHSF Family Support Team to ensure a smooth transition for pre surgery admissions and offer a joined up coordinated service for all our families.

· To help families access support by completing referrals to other agencies and services when needed.

· To support the referral process to the Cardiac Psychology Service to help families develop coping strategies following or in preparation for their child's surgery.

· To provide practical support to parents following a bereavement and be a point of contact when they leave the Hospital to signpost to external services when needed.

· To organise culturally appropriate family fun and educational events for families affected by congenital heart disease.

Relationship Development and Support

· To build trusting relationships with children and families through attendance at high-risk clinics

· Establish group sessions and events to proactively build new initiatives to meet the needs of ethnically diverse communities.

· To provide practical help and emotional support for children and families, and signpost to specialist agencies where required, particularly during times of stress.

· To support the wishes of families of palliative patients to provide opportunities to create lasting memories.

· To attend clinics which cover Leeds and Bradford patients to engage with families and offer support where needed.

· To establish culturally appropriate peer support networks where families affected by congenital heart disease can support each other.

Professional Relationship Management

· To work closely with your Line Manager, our Family Support Supervisor at CHSF and the clinical and nursing staff within the Leeds Congenital Heart Unit along with the Specialist Cardiac team at the Bradford Clinic.

· To support the rest of the Family Support Team with a range of families through busy periods within the hospital.

· To complete internal and external financial grants when highlighted by the Leeds congenital heart unit professionals and Cardiac Nurse Specialists following our guidelines for support.


· To ensure that all Safeguarding policies and procedures are adhered to at all times and to ensure appropriate safeguarding of children and families by reporting and recording concerns both within the Charity and geographically relevant Hospital Trust.


· To work with the fundraising team to offer information during out-patient appointments.

· To ensure that recording of work with children and families is maintained to a high standard, accurate and up to date

· To work flexibly as required by the needs of the service and carry out any other reasonable duties as required.

· To attend weekly family service meetings with the Senior Family Support Worker.

· To help promote CHSF fundraising opportunities, where appropriate and work with the community fundraising team on new initiatives.

· To identify and send potential family referrals to the marketing and fundraising team as appropriate.

· To support the Marketing Team by introducing them to families where appropriate to raise awareness of the service.

· To provide other support as identified by your line manager and commensurate with purpose of the role.

Annual leave and benefits:

  • 27 days annual leave (not including bank holidays), increasing to 29 days after 5 years service and an additional day off for birthdays

  • Company pension scheme

  • Health care medical insurance

  • Death in Service after successful completion of 12 months’ service

  • Employee Assistance Programme

Interviews will be held week commencing 8th April 2024

Application resources
Application Instructions

Please include a cover letter with your CV explaining why you are suitable for the role.

More about Children's Heart Surgery Fund

Since it was founded in 1988 CHSF has awarded more than £10m in grants to the Leeds Congenital Heart Unit and the region’s supporti...

Read more

Posted on: 28 February 2024
Closing date: 27 March 2024 at 17:00
Tags: Support Worker

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