19 Senior legacy marketing fundraiser jobs

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.  

Smile Train is the world’s largest cleft-focused organisation, supporting life-changing surgery and comprehensive cleft care for children and adults globally. Through its unique local model, Smile Train has supported more than 2 million surgeries and works with medical partners across 75+ countries to deliver sustainable, high-quality care.

The UK plays a vital role within this global organisation, contributing significant income, insight and strategic input. The UK programme is performing strongly, with income expected to reach c.£14–15m this year, underpinned by a successful individual giving and legacy programme.

Smile Train is now entering its next phase of growth in the UK, with a clear opportunity to build and strengthen high-value income, particularly across major donors and mid-value giving. 

Reporting to and working closely with the Director of UK Fundraising, you will manage a portfolio of donors and prospects, with significant opportunity to deepen relationships and grow supporters into higher-value philanthropy over time. This will be a hands-on, relationship-led role focused on building meaningful engagement and delivering long-term income growth.

This role offers an ambitious, skilled relationship developer the opportunity to build and grow Smile Train UK's major donor programme as part of its new five-year strategy, with strong organisational investment in philanthropy.

Working closely with a highly experienced and collaborative Director of UK Fundraising and broader fundraising team, you will contribute to developing ways of working, testing engagement strategies, tailoring the compelling case for support and working closely with colleagues in the UK and globally.

As Philanthropy Manager, you will:

• Manage and develop a portfolio of c.120–150 donors and prospects, primarily giving at mid-value level (up to c.£5k) with significant headroom for growth
• Build strong, long-term relationships with supporters through tailored cultivation, solicitation and stewardship
• Identify and engage new prospects, developing a sustainable pipeline of future high-value donors
• Develop and deliver individual engagement plans to retain and upgrade donors over time
• Prepare high-quality proposals, reports and communications to support donor engagement
• Support the development of Smile Train’s high-value case for support and fundraising approach in the UK
• Work closely with the Director of UK Fundraising and global colleagues to align activity and maximise opportunities
• Contribute to events, donor visits and wider engagement activity
• Maintain accurate records and support effective pipeline and performance management

Essential skills and experience:

• Experience of relationship fundraising, with exposure to major donors or mid-value giving. Other relationship-driven fundraising experience will be considered, for instance with trusts and foundations or corporate partnerships, where you can evidence income generation via relationship-building with HNWIs or purse-string holders.
• A track record of generating substantial income and securing 5-figure or higher gifts
• Confidence in managing a portfolio and delivering personalised donor engagement
• Strong written and verbal communication skills, including the ability to develop compelling proposals
• A proactive, organised and hands-on approach, with the ability to manage multiple priorities
• The ability to work both independently and collaboratively within a team

Desirable:

• Experience of working within a developing or growing high-value fundraising programme
• Exposure to international development, global health or a similarly mission-led environment
• Knowledge and use of Salesforce CRM
• Experience working within a global or matrix organisation

Smile Train UK offer an excellent employee benefits package, which includes:

• 28 days annual leave plus bank holidays
• Private Medical Insurance
• Life Assurance
• Income Protection
• Up to 7 days paid sick leave per year
• “Sunshine Fridays” early Friday finish across summer months

Community Volunteers Enabling You (COVEY) has been a lifeline for children, young people and families across Lanarkshire since 1992. We provide one-to-one and group-based befriending, mentoring and family support services tailored to those who need it most. Our mission is to help children, young people and families become more resilient, safe and better equipped to reach their full potential.

As Fundraising Manager, you will lead the development of community fundraising, corporate fundraising and fundraising events (either held by us or undertaken by members of the public such as the Kiltwalk), helping COVEY grow sustainable unrestricted income and build long-term relationships with supporters.

This is a brand new role with real scope to build on COVEY’s trusted place in the local community, developing new fundraising opportunities and partnerships, as well as building on our existing relationships with volunteers, staff, trustees, supporters, funders, schools, employers, community partners and local networks.

You will also help shape fundraising activity linked to COVEY’s 35th anniversary in 2027, using this milestone to celebrate the children, young people and families we have supported over this time (and the volunteers and staff that made it happen), in turn raising our profile and build long-term supporter relationships beyond the anniversary year.

This role would suit someone who is confident, proactive and relationship-focused, with the ability to engage people, spot opportunities, make compelling asks, build partnerships and turn interest into meaningful support for COVEY.

What we’re looking for:

• A successful track record of generating income, developing partnerships, identifying new leads and converting opportunities into active support
• Previous experience of fundraising, which could include community fundraising, corporate fundraising, supporter stewardship, sponsorship, challenge events, employee fundraising, Charity of the Year partnerships, etc
• Excellent communication and relationship-building skills, including confidence in networking, presenting and making fundraising asks
• Strong planning and organisational skills, with the ability to manage fundraising activity, events, budgets, supporter communications and CRM records
• A collaborative, supporter-focused approach and a strong commitment to COVEY’s mission, values and outcomes

COVEY is entering an important period of growth. Our 2025-28 Strategy sets out ambitious plans to increase income, grow unrestricted funding, strengthen our external profile and develop wider community support for the charity. The Fundraising Manager will play a key role in achieving this, and will be able to shape exactly how we do this from the ground up.

What We Offer

We offer a rewarding and fulfilling role with the opportunity to develop your skills and career in an enriching environment. Our benefits package includes:

• 6% employer pension contribution
• 22 days annual leave (rising to up to 27 days) and 10 public holidays
• One special leave day to celebrate your birthday
• Flexible working
• HSF Health plan (including dental, optical, physio claim back, personal accident coverage, GP, mental health counselling, legal support, and discounts for gym, cinema, and shopping)
• Quarterly staff wellbeing activities
• Access to ScotWest Credit Union (loans, mortgages, and savings accounts)
• Access to learning and development opportunities