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Chief Executive, Cavernoma Alliance UK
Home-based within the UK
28 hours (including some evening and occasional weekend work)
Actual salary: £35,840 to £38,079
Equivalent full-time salary: £48,000 to £51,000
Cavernoma Alliance UK is a well-established UK charity supporting people affected by cavernoma, a rare condition involving clusters of abnormal blood vessels in the brain or spinal cord.
Founded in 2005 by people with lived experience of cavernoma, we provide peer support, trusted information, awareness raising and research advocacy for the cavernoma community. We also work closely with leading neurologists, neurosurgeons and researchers across the UK to help improve clinical care, information and research for people affected.
We are now looking for a new Chief Executive to lead and be an ambassador for the work of CAUK. This is a meaningful and varied role in a small charity where your contribution will be visible. It would suit someone looking for a senior charity role with real purpose, flexibility and a close connection to the community they support.
You will be joining an organisation with a supportive Board of Trustees, a staff team that cares deeply about the community we serve, highly committed volunteers, and strong clinical and research partnerships.
We are in the second year of our five-year strategy, ‘Together For a Cure - 2025 to 2030’, and are making good progress across our priorities. The current Chief Executive is leaving after three and a half years in post to take up a new opportunity, and the charity is in a positive and stable position.
A major focus for the role over the coming years will be supporting delivery of a five-year UK-wide clinical trial starting in August 2026. This study could potentially identify the first medication treatment for cavernoma.
Alongside this, the role will focus on maintaining sustainable income, supporting high quality peer-led services through our Head of Volunteering and Member Services and volunteer team, and continuing to grow CAUK’s reach and awareness, particularly online.
We would particularly welcome applications from people with previous charity management experience, whether within a small charity or in a more senior role within a larger organisation. We are also open to applicants who can demonstrate a strong understanding of the charity sector through trustee, professional or voluntary experience.
This is a home-based role with flexibility, although there will be occasional travel across the UK, typically every 1 to 2 months, including meetings in London.
If you would like an informal conversation about the role before applying, we would be happy to arrange this with the current Chief Executive and/or Chair of Trustees.
Key dates
Applications open: 27 May 2026
Closing date: 9am, 22 June 2026
Stage 1 interviews will be held virtually during the last week of June.
Stage 2 interviews will be held in person shortly afterwards.
How to apply
To apply, please read our Recruitment Pack carefully and then complete our online application form using the link below. You will also need to email your CV to us using the contact details provided in the Recruitment Pack.
Please note that applications submitted without both a completed application form and CV will not be considered.
We are unable to accept enquiries or applications from recruitment agencies.
To have a cure for cavernoma that people living in the UK can access.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are seeking a fantastic corporate partnerships manager to join our Income Generation team. This is a key role for the organisation, proactively leading on new business; delivering mid and high-value partnerships and maintaining a healthy and active pipeline of new prospects to support the long-term sustainability of our work. The successful candidate will develop compelling proposals and pitches to build new relationships and provide excellent stewardship for existing corporate partners. They will manage and deliver the Income Generation strategy, annual operational plan, and income forecasting and develop accurate annual budgets and forecasts, monitoring performance against plan and meeting KPIs and targets.
We are looking for an individual able to demonstrate a good track record of success in achieving and exceeding set income targets in corporate fundraising as well as devising, driving and delivering corporate fundraising plans. Excellent written and creative skills, with experience in developing relationships is crucial as is the ability to organise, prioritise, and deliver high-quality work to tight deadlines. Strong networking skills with the ability to manage high-profile relationships professionally and tactfully are essential.
You will work to forge and sustain long-term, constructive partnerships with new and existing partners that help us grow funds and achieve our charitable goals. You will:
· quickly learn and be able to articulate well our campaigns and victim service and their evidence base, our funding need, and the actions that corporates can and should take to prioritise safe and green use of roads, through funding us and supporting our campaigns
· find and unlock access to senior leads within companies not already working with us (e.g., public affairs, communications and corporate social relationship teams) as well as taking up the reins of stewarding relationships with some of the companies already working with us
· listen and understand corporates’ priorities, understanding their budgets, potential to fundraise within their teams and networks, and their safety, sustainability, policy and pr priorities; and articulate what Brake does and our need for help
· forge, together, actionable joint plans that generate funds for Brake from a company, directly or through their supply chain / customers. You will achieve six figure funding targets, by generating five figure funds from new and existing partners
· Work alongside team members in public affairs, PR, and public engagement to understand our programmes of work in campaigns and seek the engagement of new and existing corporate supporters in those programmes, for example through participation and sponsorship
· Be responsible for developing your own pipeline of leads and accurately forecasting income you will fundraise from this pipeline and listing partnership activities that will be delivered
· Operate within Brake’s Ethical Partnership Policy and other policies, which enables us to sustain our charity values and work alongside corporations safely.
· Be a team player and able to step up to the plate and speak up for the charity, for example giving speeches or undertaking interviews on the charity’s behalf.
Have a look at our comprehensive job description
If writing a cover letter isn't your thing, why not send us a short video telling us why you think you'd be a great fit for our team.
We work to stop road deaths and injuries, support people affected by road crashes and campaign for safe and healthy mobility for all.

The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
FTWW is looking for a Communications Coordinator! The successful candidate will develop and grow the organisation’s online platform, including sharing information, resources and signposting within FTWW’s pan-Wales virtual peer support community and beyond.
The role is full-time (0.8 FTE considered for the right candidate), home-based within Wales, with occasional travel to events and meetings, so a driving licence and access to a car would be an advantage. We work flexibly, but core working hours are between 10am-4pm, and the successful candidate will be expected to work some evening and weekends, as required.
We are a small but mighty charity where no two days are the same. You may be involved in promoting a focus group to our members one day and meeting with a journalist the next. We currently have over 100 registered volunteers and over 2000 members of our online community, and you will work closely with our Volunteer & Community Coordinator to ensure that our members are at the heart of what we do.
The ability to speak Welsh, or a willingness to learn, is desirable.
Successful applicants will need to complete a basic DBS check and provide references before any offer of employment is made.
As a Disabled People’s Organisation, we recognise that AI can be a helpful tool for structuring written applications. We ask that, if you choose to use AI, your application remains an accurate and authentic reflection of your own experiences, skills, perspectives, and voice.
For more information, including accessible formats, please see the attached document.
Interviews will be held via Microsoft Teams, in the week commencing 6th July.
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Mae FTWW yn chwilio am Gydlynydd Cyfathrebu! Bydd yr ymgeisydd llwyddiannus yn datblygu ac yn tyfu platfform ar-lein y sefydliad, gan gynnwys rhannu gwybodaeth, adnoddau, a chyfeirio, o fewn cymuned rithwir FTWW sy’n darparu cefnogaeth gan gymheiriaid i bobl ym mhob cwr o Gymru a thu hwnt.
Mae hon yn swydd amser llawn (ystyrir 0.8 FTE ar gyfer yr ymgeisydd iawn), wedi’i lleoli gartref yng Nghymru, â theithio achlysurol i ddigwyddiadau a chyfarfodydd, felly byddai trwydded yrru a mynediad at gar yn fanteisiol. Rydym yn gweithio’n hyblyg, ond yr oriau gwaith craidd yw rhwng 10am a 4pm, a disgwylir i’r ymgeisydd llwyddiannus weithio ambell gyda’r nos a phenwythnos, yn ôl y galw.
Rydym yn elusen fach ond pwerus lle mae pob diwrnod yn wahanol. Gallech fod yn ymwneud â hyrwyddo grŵp ffocws i’n haelodau un diwrnod ac yn cyfarfod newyddiadurwr y diwrnod canlynol. Ar hyn o bryd mae gennym dros 100 o wirfoddolwyr cofrestredig ac mae gan ein cymuned ar-lein dros 2000 o aelodau. Byddwch yn gweithio mewn cysylltiad agos â’n Cydlynydd Gwirfoddolwyr a Chymunedau er mwyn sicrhau bod ein haelodau wrth graidd yr hyn rydym yn ei wneud.
Mae’r gallu i siarad Cymraeg, neu barodrwydd i ddysgu, yn ddymunol.
Bydd angen i’r ymgeisydd llwyddiannus gwblhau gwiriad DBS sylfaenol a darparu geirdaon cyn y byddwn yn cynnig swydd iddo.
Fel Sefydliad Pobl Anabl, rydym yn cydnabod y gall deallusrwydd artiffisial (AI) fod yn ddefnyddiol er mwyn strwythuro ceisiadau ysgrifenedig. Os ydych yn dewis defnyddio AI, gofynnwn i chi sicrhau bod eich cais yn parhau’n adlewyrchiad cywir a dilys o’ch profiadau, sgiliau, persbectifau a’ch llais chi eich hun.
I gael rhagor o wybodaeth, gan gynnwys fformatau hygyrch, gweler y ddogfen ynghlwm.
Cynhelir cyfweliadau drwy Microsoft Teams, yn ystod yr wythnos yn dechrau ar 6 Gorffennaf.
To apply, please answer the questions listed, submit a CV of no more than two pages, and a cover letter of no more than 1000 words, explaining how you meet each aspect of the person specification for the role, with examples, as well as how you would approach delivering accessible, impactful communications that amplify the voices of women and disabled people.
Er mwyn gwneud cais, atebwch y cwestiynau isod, cyflwynwch CV sy’n ddim mwy na dwy dudalen, a llythyr eglurhaol o ddim mwy na 1000 o eiriau, yn egluro sut rydych yn bodloni pob agwedd ar fanyleb y person ar gyfer y rôl, gydag enghreifftiau, yn ogystal â sut y byddech yn mynd ati i ddarparu deunydd cyfathrebu hygyrch ac effeithiol sy’n rhoi sylw i leisiau menywod a phobl anabl.
Our mission is to eliminate health inequalities in Wales for women, girls and people registered female at birth.

The client requests no contact from agencies or media sales.
The Pepper Foundation is a local charity funding children’s hospice care at home, specialised play and family days for children living with life-limiting and life-threatening conditions in Hertfordshire and Buckinghamshire.
The Trusts & Foundations Fundraiser will be joining Pepper at an exciting time as we launch our new three-year fundraising strategy. Backed by committed investment and with full Board approval, we are delighted to be growing the charity to deliver sustainable income that directly supports local children and families with hospice care in the comfort of their own homes.
Working closely with the Head of Trusts & Foundations, you will play a pivotal role in increasing income from trusts and foundations by developing and managing a strong pipeline of funders, securing new grants, and building long-term relationships that lead to increased and multi-year support. You will research and prepare compelling applications to both new and existing funders, alongside producing timely, engaging reports that clearly demonstrate impact.
This role requires a highly organised and motivated individual with a passion for writing, strong attention to detail, and the ability to deliver exceptional cultivation, stewardship and relationship management of trusts and foundations aligned with our mission.
Your work will directly support hospice at home care, specialist play services, and meaningful family days out for children with life-limiting and life-threatening conditions – making a tangible difference to families during the most difficult of times.
Hours: 22.5 hours per week working from home – applicants must live within Hertfordshire or Buckinghamshire (or surrounding counties)
Salary: £19,800 per annum for 22.5 hours per week (£33,000 FTE per annum)
Key requirements:
How to apply: For further details about the role, please download our recruitment pack. Please send your CV with a cover letter explaining why you would make a great candidate for this role and how you meet the job description.
Closing date: 1st June 2026 at 5pm
Interview dates: First-round interviews on 10th and 11th June and second-round interviews on 15th June 2026.
Interviews will take place at our office in Berkhamsted. Please let us know if you have any accessibility requirements or need any adjustments for the interview.
If appointed, an enhanced DBS check will be required.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Help Change the Future of Polycystic Kidney Disease Research
Patient & Public Involvement and Engagement (PPIE) Manager
PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)
The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.
This is not a standard engagement role.
You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.
PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.
We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.
That’s where you come in.
The Opportunity
As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.
You’ll:
We’re Looking For Someone Who:
Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.
Why Join Us?
At the PKD Charity, you’ll join a passionate national charity working to improve lives through:
This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.
What We Offer
✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity
Apply Now
For details on how to apply, please see the application pack.
Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.
The client requests no contact from agencies or media sales.
Lloyds Bank Foundation
Strategic Lead for Systems Change
Starting Salary: £59,098 (if London-based); £55,587 (if not London-based)
Contract: Full-time, 2-year Fixed-Term Contract (we are open to conversations about flexibility - so please ask)
Location: Remote role - can be based anywhere in England or Wales with an expectation of regular travel across England and Wales including overnight trips to London
About Lloyds Bank Foundation
Lloyds Bank Foundation for England and Wales is an independent charitable foundation, backed by Lloyds Banking Group and the people within it. We want everyone to be in a good place - personally, in a home that’s a good place to live, and in a community that’s a good place to belong.
We play our role by connecting and catalysing community-led change, providing the money, time, tools and connections that build organisations’ capacity and capability, to make people’s lives better and their communities stronger.
We back people and communities across England and Wales, to make that happen, because when you back brilliant people, brilliant things happen. Our communities are full of ambitious, energetic and determined people stepping up to make their neighbours’ lives better and their communities grow stronger. Day in, day out.
About the Role
This is a key role strengthening the Foundation’s ability to work confidently within complex local systems and to support systems change across England and Wales. You will play a central role in shaping and developing our systems change approach, ensuring it is practical, consistent and embedded across our work in places.
You will work closely with regional teams and partners to support effective collaboration within local systems, ensuring our work is well-informed by context and lived experience. A key part of the role is enabling others - building confidence, capability and practical understanding of systems change across the organisation.
This is not a delivery-heavy role. Instead, you will focus on enabling, coaching and strengthening practice so that colleagues and partners are better equipped to work within complexity and drive meaningful change.
About You
We are looking for someone with strong, practical experience of working within systems change, place-based work or complex multi-stakeholder environments. You will bring confidence in working across boundaries and supporting others to navigate complexity.
You will be skilled in coaching, facilitation and capability building, with the ability to translate systems thinking into practical approaches others can use. Strong relationship-building skills and the ability to work credibly with a wide range of stakeholders will be essential.
A commitment to equity, diversity, inclusion and belonging is essential.
How to Apply
Please click ‘Apply’ to be redirected to our website, where you can download the Candidate Information Pack and find details of how to apply.
For an informal conversation about the role and application process, please contact our recruitment partner, Atkinson HR via the information available in the Candidate pack.
Our Commitment to Diversity, Equity and Inclusion
We hold Disability Confident Employer status (Level 2) and are working towards full status by 2027. If you are a disabled applicant and your CV and application answers clearly demonstrate that you meet the essential criteria, we will invite you to interview.
We are committed to building a diverse team that reflects the communities we work with. We actively welcome applications from people under-represented in the charity sector, including Black, Asian and minoritised ethnic communities, disabled people, and those with lived experience of the issues our funded charities address.
Key Dates
Closing Date: Midday, Monday 8th June 2026
Optional Q&A Session: Wednesday 6th May 2026 at 09:00-10:00
First Interview: Wednesday 17th June 2026
Second Interview: Friday 26th June 2026
We support small, local and specialist charities across England and Wales.

