Client service manager jobs in Henley on thames, oxfordshire

Our client is a fantastic organisation that enables local people to support local causes, making grants to small charities and voluntary groups working in communities across Berkshire. They work with individuals, companies and other organisations to assist in delivering their charitable aims and develop longer-term strategic giving programmes.  

For 40 years, they have championed local giving, building partnerships with like-minded people and organisations. Through their tailored philanthropy advice, they help to match their supporters’ aims with the many small, effective local charities offering solutions to local issues. 

In recent years they have made grants in excess of £1 million per annum and the endowment fund has grown to £14 million providingsustainable future support for generations across Berkshire. 

Chief Executive Officer 

c£80,000 + benefits 

Based in Berkshire, with travel and evening engagements. This role is Hybrid with 1-2 days a week working from home each week depending on commitments 

This is a fantastic and unique opportunity for a new ambitious Chief Executive to lead the foundation into its next phase of growth in strategic philanthropy, with a clear emphasis on income generation, external engagement, and strategic expansion. 

As the public face of the organisation, you will champion local philanthropy, build strong relationships with donors and partners to deliver effective support for the local community, and provide inspiring services for donors.

As a leading grant maker in the Royal County of Berkshire, they are committed to developing the financial support it already generates within the voluntary sector. Key responsibilities will include: 

• Develop new opportunities for fund development through new business, Corporates, small to medium size businesses and with individual donors and supporters across Berkshire 

• Contribute to the strategic development of the organisation, setting strategy and overseeing Governance 

• Develop a robust marketing and communications strategy 

The successful candidate will bring a commercial outlook and strong interpersonal and stakeholder management skills, with the ability to work effectively across a wide range of audiences, both collaboratively with a passionate staff team and independently. 

If you are passionate about making Berkshire a better place to live and work, we would love to hear from you.

Further details can be found on the Prospectus website.

How to Apply 
 
To apply for the role, please upload your CV together with a supporting statement (of no more than 1000 words) onto the Prospectus website via the link.
 
Please ensure that you have included a telephone number, as well as any dates when you will not be available or might have difficulty with the recruitment timetable.
 
If you wish to apply using an alternative format, please contact Prospectus.

 
If you would like to have an informal conversation about the role, please contact our retained partners via email with your CV: 
 
At Prospectus we believe passionately that a truly inclusive workplace leads to increased social impact. We are committed to supporting our clients to build more inclusive teams. To understand how we are performing, we ask that you kindly complete the brief equal opportunities questionnaire when you submit your application via our website. Please be assured that your responses are kept confidential, separate from your candidate record, are not part of any application you make, and that the consultants never see individual responses to the questionnaire. 
 
Recruitment Timetable 
Deadline for applications: Sunday 7th June (midnight) 
Interviews with Prospectus online: 16th – 23rd June
Interviews with the organisation, in-person: 8th July

Mass Participation and Events Fundraising Lead

We are seeking an experienced leader to drive forward the development and implementation of the events and mass participation fundraising strategy.

Position: CE405 Mass Participation Lead

Location: Home-based, UK Nationwide. However, frequent travel will be required as part of this role (may include team meetings or other work-related meetings)

Hours: Full-time, 35 hours per week

Salary: Circa £49,000 per annum (inner London weighting £3,950 per annum/pro rata or outer London weighting £2,457 per annum/pro rata may be applied in accordance with where you live)

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 5 June 2026 Midnight

Interview Date: 16 and 17 June 2026. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

Reporting to the Head of Regional Fundraising this is an exciting role leading our ambitious vision for this area of our team. Worth currently over £2m annually we are looking to grow our income from third party and owned products and events.

You will provide strategic leadership to the Mass Participation team (2 direct reports and accountability for a further 6) as well as playing an active leadership role across the Regional Fundraising Team and Mass Engagement department, contributing to the wider directorate goals and objectives.

You will be an innovative thinker with the ability to review our existing programme, the wider market environment and identify opportunities for supporter acquisition, engagement, and retention. You will oversee a customer-centric approach where supporters receive an outstanding experience and feel proud of their continued contribution.

Key responsibilities will include:

· Developing strategy for events and mass participation products

· New fundraising product development

· Strategic leadership of a geographically dispersed team, embedding a culture of high performance

· Setting meaningful income and expenditure budgets and being able to accurately re-forecast putting action plans in place to mitigate shortfalls.

About You

We are looking for someone with experience of:

· Delivering targets with successful outcomes.

· Developing strategy for events and mass participation products

· Project planning and problem solving.

· Delivering formal presentations and public speaking.

· Budget development, planning and forecasting and an understanding of risk, mitigation and contingency planning.

· Achieving annual income and expenditure targets.

· Recruiting, managing, motivating, developing and training staff and/or volunteers.

· Analysing and interpreting data.

You will need a full driving licence and own vehicle (or can demonstrate that you meet the travel requirements of the role which include travelling extensively across the region/country).

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

Applications

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.

You will be able to view the role profile when you apply.

Stroke Association

Finding strength through support

The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

We’re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of our supporters and donors that we can provide vital support. 

Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.

We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.

We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Mass Participation, Mass Participation Manager, Mass Participation Officer, Challenge Events, Events Lead, Fundraising Events Lead, Events Fundraiser, Events Fundraising, Regional Fundraiser, Supporter Engagement, Community Fundraiser, Participation, Individual Giving.

Please note this role is advertised by the recruitment agency acting for the client – Not For Profit People

About us

Foxglove is a non-profit that exists to make the use of technology fair for all. When Big Tech companies abuse their power, their workers or the planet – and when governments use technology to oppress, exclude or discriminate – we litigate and campaign to fix it.  

Big Tech companies have become so large – gobbling up a huge slice of the global marketplace and an unprecedented treasure hoard of user data – that they’re now more powerful than many states. The harmful effects of this concentration of power are everywhere – threats to our democracy, to our privacy, decimated workers’ rights and platforms rife with disinformation and hate. Big Tech and AI data centres are rapidly expanding, resulting in huge strain on energy and water supplies. Worldwide governments are ploughing ahead with the use of algorithms and mass data systems to cut costs and increase efficiency often resulting in digital tools that entrench unfairness and leave the most vulnerable in society in crisis. All these problems are only getting worse with generative AI.

Foxglove works to bring the rule of law to the tech and AI giants who have upended our public square, workplaces, and social lives. We have a strong track record. We’ve launched landmark cases seeking structural changes to big tech’s harmful business models, supported 180+ Facebook content moderators fired for trying to form a union to sue Facebook and their outsourcing company, Sama – winning world-first judgements. We're urging competition regulators worldwide to stop Google’s theft of independent news. We’ve filed the UK’s first legal challenge to a data centre permission decision, forced disclosure of secret contracts between tech giants and the NHS, stopped a racist Home Office visa streaming algorithm, helped make grading fair for UK A-level students and challenged the Department of Work and Pension’s use of an algorithm unfairly flagging disabled people for benefit fraud investigations.   

We are a small but growing team of lawyers, communications experts, and campaigners. We are a CIC, not a practising law firm. We partner with legal firms on cases, directing litigation in multiple jurisdictions. Our work is global, and we work in partnership with lawyers, civil society, unions, and people impacted by Big Tech.

About you

You are a highly experienced lawyer with a strong interest in using the law to hold governments and companies to account. You see the law as a tool for structural change, not just individual wins. You think strategically about how litigation, campaigning, and coalition-building can work together. You appreciate the value and impact of movements and are as comfortable drafting legal arguments as you are speaking to a journalist, or rallying those who've never heard of judicial review to a joint cause. You care about power, meaning who has it, who doesn't, and how to shift it. You follow the ways Big Tech and governments are reshaping society, and you don't just find it interesting: it makes you want to act. You're a sharp, compelling writer who can make complex legal arguments land with different audiences. You're a self-starter who spots opportunities and runs with them, but you're equally invested in the team around you. You share credit generously, help sharpen others' thinking, and understand that lasting change is collective. Most importantly, you believe in making the use of technology fair for all.

If this is you; if you want to take on some of the most powerful companies and governments in the world, and you think the law is one of the tools we have to do it; if you are seeking a role where the work is urgent and the stakes are real, we would love to hear from you.

The role

The post holder will work alongside our Co-Executive Director, Head of Legal and Legal Administrator in developing and managing Foxglove’s legal work. You will develop and drive forward a significant number and range of cases, including the development of case theories, investigating and collecting evidence, drafting correspondence, evidence and submissions. You will also be responsible for coordinating and managing external legal teams, in multiple jurisdictions. This will require you to have the comfort and ability to navigate diverse settings, while also having the insight to weigh up the benefits and challenges of pursuing cases in different jurisdictions. You will serve as an external representative for Foxglove’s work, writing and speaking on topics of relevance. You will also be a sparring partner for others in the team, bringing a creative mindset and political savviness. UK and international travel are required. Flexibility with working hours will sometimes be needed.

Key responsibilities include, but are not limited to:

Case Development and Management

• Build connections, and listen to affected communities, unearth and pursue issues caused by tech injustice, coming up with innovative legal solutions.
• Build and maintain relationships with impacted community members, unions, other lawyers, experts, co-counsel, intervenors, civil society organisations, whistleblowers, and the public.
• Explore and develop new and undiscovered opportunities for Foxglove to be impactful and effective in our work.
• Effectively work with the co-Executive Director and Head of Legal to develop and implement Foxglove’s legal strategy.
• Manage multiple cases at any one time, while also thinking to the future regarding cases that should be explored and developed.
• Draft and comment on technical and legal documents and correspondence.
• Lead evidence gathering.

Compliance and Risk Management

• Manage court deadlines and time limits where applicable.
• Ensure regulatory compliance in all aspects of your work and our cases.
• Always maintain the strictest standards of client confidentiality.
• Always maintain the strictest concern for and awareness of data protection and Foxglove policies.
• Keep up to date with the global political and litigation landscape concerning tech justice.

Other

• Help ensure communities’, workers’ and affected individual’s voices are heard in our campaigns, communications and advocacy work.
• Contribute to external representation and writing, including through media appearances, social media posts, blogs and op-eds.
• Contribute to the development of materials for advocacy purposes including video or audio testimony, photographs etc.
• Support others in our legal team, across Foxglove, and the relevant ecosystem in developing strategies to use the law to hold governments and companies to account.
• Other ad hoc tasks as required.

Person Specification

Essential

• Substantial experience in legal practice and conducting litigation and a demonstrated understanding of litigation strategies.
• Creative thinking and imagination.
• A strong interest in using the law to hold governments and companies to account.
• Qualified lawyer in any jurisdiction with at least 10 years of legal experience.
• Significant experience in legal practice in the UK.  
• Demonstrable commitment to supporting marginalised communities to access justice.
• Ability to learn new areas of law quickly and develop new areas of work.
• Good political antennae and excellent relationship building and management skills.
• Experience conducting cases from initial advice through to trial.
• Relevant experience in analysing complex factual and legal situations and helping to advise clients in accordance with their aims.
• Experience in dealing sensitively with clients, whistleblowers and experts.
• Experience in working on complex matters, which require analysis of large amounts of documents and data.
• Excellent communication skills, demonstrated by the ability to communicate accurately, clearly, concisely and persuasively, both verbally and in writing.
• Excellent time management skills demonstrated by the ability to organise and prioritise a complex workload and work to tight deadlines.
• Experience in working and leading a team environment.
• Comfort with working at both the details-driven operational level and big-picture strategic level, as well as the ability to navigate between the two.

Length and Salary

The role is permanent. The annual salary is £88,400 per annum less any required deductions for income tax and national insurance.

Our team works remotely, and this role can be based anywhere. We would prefer you to work within or close to UK office hours, but this is flexible. Our team travels every two months for team days and twice a year for team retreats. This role will include significant UK and international travel. Only candidates with the right to work in their location will be considered.

How to apply

Please make your application via Applied, answering the application questions and uploading your CV. We will not review applications sent via a job board or to our email. Applications will be reviewed on a rolling basis with first round interviews likely to take place in May for selected candidates.

Foxglove does not use AI in its recruitment processes, except to detect applications for AI use. As a tech- justice organisation, we ask the same of our candidates.

Foxglove is being supported in this search and appointment process by SCHC Advisors. For a confidential conversation to learn more about the role, please contact Sophia Copeman.

Foxglove is growing and we are striving to build a team that is inclusive. We will create a diverse and adaptable environment where we support people to do their best work. We believe an effective and creative team is made up of people from different walks of life. You can read more about how we work and what we offer our staff on our website.

We encourage people from historically disadvantaged or underrepresented groups in the legal profession to apply.

If you require any reasonable adjustments to complete this process, or have any questions, please get in touch with Sophia Copeman.

If you would like to know more about how we process your data as part of the recruitment process you can read our recruitment data use policy.

Associate Director

Do you have senior-level experience in advocacy/influencing; service delivery or community engagement and development?

We’re looking for an exceptional systems leader to drive the work across the East of England and ensure people affected by stroke have the support they need to rebuild their lives.

Position: S11367 Associate Director – East of England

Location: Home-based, East of England. However, travel and overnight stays within the UK will be required as part of this role.

Hours: Full-time, 35 hours per week

Salary: Circa £64,700 per annum (Inner London weighting £3,950 per annum or Outer London weighting £2,457per annum may be applied in accordance to where you live)

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 31 May 2026

First interview Date (online): 9 June 2026

Second interview Date and discussion with team (face to face, London): 17 June 2026

The Role

You’ll lead the Association’s work in East of England, focusing on what matters most to stroke survivors and ensuring this work has real, measurable impact. In this influential role, you’ll build strong relationships across health and social care, Local Government, and the wider stroke community. Influencing local policy and practice, and overseeing the effective delivery of high-quality stroke support.

Key responsibilities will include:

• Lead the Association’s strategic direction and impact in the East of England, ensuring people affected by stroke receive high quality support.
• Build and manage relationships with key health, social care and political stakeholders, acting as a credible and respected systems leader.
• Increase the reach and impact of the locality delivered services to ensure all new stroke survivors in the East of England receive the support they need.
• Lead and develop the East of England team, addressing capacity needs and building volunteer capability to meet local priorities.
• Strengthen partnerships across the stroke community to improve access to support and tackle health inequalities.
• Lead engagement in local policy and pathway development, influencing improvements at health board level.

About You

You’ll have:

• Senior-level experience in advocacy/influencing; service delivery or community engagement and development.
• Senior level experience influencing policy change, ideally in health and social care, at a regional or national level.
• Substantial experience of holding senior-level relationships with partner organisations, ideally in health and social care / the NHS using strong negotiation skills and political judgement.
• Proven experience of leading high performing teams and large geographically distributed teams of paid staff and volunteers, with a strong track record of growing and developing staff and teams.
• Inspiring leadership approach, balancing strategic and operational demands with sound judgement, and strong knowledge of influencing and systems leadership.

The East of England comprises of the areas within the NHS Integrated Care Boards of: Central East (Cambridgeshire and Peterborough, Hertfordshire, Bedfordshire, Luton and Milton Keynes), Norfolk and Suffolk and NHS Essex.

This role requires extensive travel across a large geographical locality. Candidates must be able to demonstrate how they can meet this requirement of the role. To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

Applications

As part of the process you will be asked to submit your CV and a covering letter demonstrating how you meet the person specification set out in the Role Profile and what you bring to the role in terms of your skills and experience.

Please state any preferences for flexible options in your application. Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.

You will be able to view the role profile when you apply.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Advocacy, Influencing, Service Delivery, Community Engagement, Community Development, Policy, Health and Social Care, Health. #INDNFP

Please note this role is advertised by the recruitment agency acting for the client – Not For Profit People.

Are you looking for a dynamic and rewarding role working for an organisation with the feminist agenda at the core of its ethos? Then Advance Charity could be the career choice for you!

We are looking for a Community Keyworker for a part time role (28 hours per week)

Salary: £23,000 - £27,000

Location: This role will be based in our Reading and Oxford offices and will need to travel across the entire Thames Valley region (Oxfordshire, Berkshire & Buckinghamshire)

Contract: Fixed Term until March 2027

Hours p/w 28 hours (part-time)

This post is open to female applicants only as being female is deemed to be a genuine occupational requirement under Schedule 9, Paragraph 1 of the Equality Act 2010.

Please note: Any offer of employment will be made subject to references, confirmation of the right to work in the UK, and satisfactory enhanced DBS check. This role is also subject to Enhanced Level One Vetting (this can take up to 12+ weeks).

About us

Advance is an award-winning and innovative women-only organisation, established in 1998, providing emotional and practical support to women and girls survivors of domestic abuse and supporting women with short-term sentences to reduce offending. We believe in empowering women and girls to lead safe, non-violent, equal lives so that they can flourish and contribute to the community.

We are a community-based organisation who lead in best practice approaches to supporting women in their local community. We achieve this by being available to meet and support women in local settings and at our women’s centres, and by working in close partnership with other agencies.

Our values are to listen and support, to empower and respect, collaboration, innovation, and accountability.

About the role:

Are you an excellent relationship builder who can work with women and a diverse range of delivery partners to ensure that she meets her potential and successfully progresses through and beyond her probation supervision? Can you meet a women wherever she is at in her journey and work with her to create an individualised support package that gives her the best chance of breaking the cycle of offending?

Are you looking for a dynamic and rewarding role working for a feminist organisation who understand that supporting women in the criminal justice system requires a specialist and gendered approach? Do you believe in our values; to listen and support, to empower and respect, collaborate, innovate, and take accountability?

In your role as a Community Keyworker, you will be working with women involved in the Criminal Justice System; those on Probation in the Community and those women being released from Prison as part of their Post Sentence Supervision; providing some in-reach and ‘Through the Gate’ support. You will be working in a team of Community Keyworkers in your region. Each Keyworker will provide holistic one to one community support to women with a variety of needs.

About You:

To be successful as the Community Keyworker you will need the below experience and skills.

You will need to hold a UK driving licence with access to car that can be used for work purposes. A creative self-starter who will support the service and look for innovative solutions to support clients with complex needs. You are confident professional relationship builder with have good awareness of Safeguarding procedures. Strong Administration skills and understanding of compliant behaviours also, experience of supporting. With good knowledge of the criminal justice system and awareness of other support provisions within the region.

How to apply:

Please submit your up-to-date CV with a supporting statement. Please note that only applications made via the job advert on the Advance careers page, and those that include a cover letter will be considered.

Closing Date for Applications: Monday the 25th of May 2026

Interviews are taking place on a rolling basis

*Advance reserves the right to close the advert early, or on the appointment of a candidate

What we can offer you - Employee Benefits:

• A 35-hour working week

• An exceptional 30 days of paid holiday per year (pro rata for part time), PLUS public holidays on top (that's nearly 40 days paid holiday per year!)

• Additional days off to celebrate International Women’s Day, and for religious observance and moving home

• Perkbox - an employee discount platform where you can receive free rewards as well as take advantage of savings on clothes, groceries, travel, leisure and more

• Pension scheme

• Enhanced maternity/adoption provision

• Access to our Employee Assistance Programme

• Employee eye-care scheme

• Clinical supervision for front line staff and first line management roles

• Refer a Friend Scheme - £250 for each referral who passes probation

• Organisation wide away days

• Thorough induction and training

• Career development pathways

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Under the Equality Act 2010, we are required to make any reasonable adjustments. If you have a disability as defined under this act and/or have any additional needs, please email the Talent Team and we will aim to make the necessary arrangements to accommodate your needs.

Diversity, Inclusion and Equal Opportunities

We are committed to providing equality of opportunity and actively seek to recruit people from groups underrepresented in our current team. We have policies and processes in place to ensure that all employees are offered an equal opportunity in recruitment and selection, promotion, training, pay and benefits.

Safeguarding

Advance is committed to safeguarding and creating a culture of zero-tolerance of harm and expects all staff, including volunteers to share this commitment. We believe all individuals have the right to live their life free from violence and abuse and the right to feel and be safe. We have a suite of safeguarding policies, procedures and practice guidance, accessible to all staff, which promotes safeguarding and safer working practices across all our services and activities. When we recruit staff, we follow rigorous safer recruitment practices, this involves carrying out pre-employment checks including references, Disclosure and Barring Service (DBS) checks, and identity checks. We ensure all staff undertake mandatory safeguarding training relevant to their role and responsibilities, to empower them to be competent and feel confident in recognising and responding appropriately to safeguarding issues and promote wellbeing.

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).