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WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.
Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.
About us
We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.
What are we looking for?
We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work. As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.
We are keen to recruit people with skills and knowledge in one or more of the following areas:
● Business development and income generation
● Human resources and people management
● Fundraising and philanthropy
● Media, communications and public relations
● Reproductive choice techniques and ethics
● Research in genetics or rare conditions.
What will you be doing?
Trustees play a key role in leading and supporting the charity. We ask them to:
● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)
● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)
● Attend the one-hour Annual General Meeting in autumn each year
● Consider joining one of our sub-committees, with up to four online meetings each year.
The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities.
Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.
We will provide full induction for successful candidates.
All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job description
The Pastoral and Environmental Network in the Horn of Africa (PENHA) is an African-led and inspired charity, established in 1989. Its mission is to reduce poverty among the pastoralists in the Horn of Africa through the empowerment of communities and to foster sustainable and dignified livestock-based and non-livestock-based livelihoods. In the UK, it works with the Horn diaspora community through youth mentoring and leadership programmes.
PENHA’s Aims and Objectives
PENHA has a team in the London Office and country chapters in the Horn of Africa region – in Ethiopia and Somaliland but works with partners in Sudan, Eritrea and Uganda as well as international partners outside the Horn of Africa.
In the UK, PENHA has a Board of Trustees, a number of research associates, volunteers and an international Advisory Group. PENHA Board of Trustees is looking for three trustees to join the London-based Board with experience in one of the following areas:
In addition, candidates should have an understanding of the context within which charities operate, ideally with some experience of the Horn of Africa region.
The post is unpaid and the time commitment is four to six meetings per year, with attendance at other occasional meetings and events as a representative of the charity.
The Board is responsible for submitting the Annual Report and Accounts to the Charity Commission and to Companies House. As a small charity, trustees contribute actively as part of a team in giving firm strategic direction to the organisation, setting overall policy, defining goals, setting targets and evaluating performance against agreed targets. PENHA is currently undergoing a new strategy development process and the candidate will help steer the organisation through the challenges ahead.
In addition, Board members are responsible for:
Application Instructions
Are you interested in the causes we stand for and in joining the PENHA Board of Trustees? Please send your CV and cover letter to our UK Office Manager before 10 August 2026. If deemed necessary, we may start actioning applications/interviewing before the closing date.
PENHA is a charity registered in England in 1992 with the Charity Commission Registration Number
1038957
The client requests no contact from agencies or media sales.
Treasurer
Terms of Reference
Introduction
Emergency Nutrition Network (ENN) is a UK-registered charity dedicated to reducing global malnutrition through knowledge exchange, research, and advocacy. Since its founding, ENN has worked at the forefront of nutrition thought leadership, enabling evidence-based programming and policy development to improve nutrition outcomes in low- and middle-income countries and crisis settings.
We work in close partnership with national governments, UN bodies, NGOs, academic institutions, and funders to strengthen the design and delivery of nutrition interventions. Our areas of expertise include infant and young child feeding in emergencies, the management of wasting and stunting, adolescent nutrition, and maternal and infant care for at-risk groups, including through our MAMI initiative. ENN also publishes Field Exchange, a globally recognised technical publication in humanitarian nutrition.
Our vision is a world where ‘Every individual confronted by malnutrition has access to the knowledge, tools, services and resources they require to meet their needs’.
ENN is governed by a diverse and skilled Board of Trustees, who provide strategic direction and ensure that the organisation operates in line with its charitable objectives and legal obligations. Our trustees play a vital role in upholding ENN’s values: independence, integrity, collaboration, and field-driven insight.
We are now seeking a Treasurer to join our Board of Trustees, oversee financial governance, and support ENN’s strategic direction as we enter our next phase of growth and impact.
For more information about ENN, visit our website.
The Treasurer Role
Being an ENN Trustee is an important, influential and valuable role and as well as ensuring that we are an accountable and well governed organisation you will make an important contribution to our current work and future direction.
The Treasurer plays a vital role in overseeing the charity’s financial performance and sustainability; leading the Finance sub-committee (FSC) to inform the board in its decision making.
Specific responsibilities include:
· Attend quarterly Board and finance sub-committee meetings and contribute to strategic development
· Safeguard, respect and demonstrate ENNs values, policies and reputation
Required Knowledge and Skills
· Extensive senior management experience in finance, with relevant qualifications (AAT / ACCA or
· equivalent)
· Experience in overseeing annual audits, identifying and managing auditors
· Understanding of the role of a Trustee and how Trustees can interact with ENN’s Management Team to best
· effect.
· Experience of multiple income/project organisations.
· Experience in the not-for-profit sector is desirable.
· Prior experience of working with or on a board is desirable.
· Strong inter-personal and relationship-building skills
Time Commitment – And our Commitment to You
Your commitment in an average year is likely to be 3 pre-fixed board meetings, each of half a day. Each of these are preceded by sub-committee meetings, usually of ninety-minutes, and each trustee is expected to allocate time to prepare for all meeting and participate in one sub-committee. The Treasurer chairs the Finance sub-committee. Other committee and ad hoc meetings and additional support will be arranged as agreed. We encourage active participation and engagement, and Trustees often give more time outside of this, on their own terms.
Trustees serve a four-year term, renewable once.
Board meetings are held virtually, with an intention to hold one facilitated face to face meeting at, or near, the ENN office in Kidlington, Oxfordshire, every two years. Sub-committee meetings are convened remotely.
Ideally you will join the Board in 2026, though we can show some flexibility for the right candidate, and in your first few months you should allow for additional time for induction and orientation (including meeting a number of the Leadership Team).
Remuneration
This is an unpaid, voluntary position. Reasonable expenses will be reimbursed for attendance at Board meetings and other Trustee activities in line with ENN’s policies. Some employers encourage and enable trusteeship as part of wider career development and corporate social responsibility; please check with your organisation and their relevant policies.
Our Values and Commitment to Equality, Diversity & Inclusion
ENN is committed to diversity and inclusion, and to building a culture where every staff member and volunteer is recognised and valued as an individual. We actively encourage applications from a broad range of experiences and backgrounds and are particularly interested in improving representation of younger people and minority ethnic groups on our Board.
To Apply
If you believe you’re the candidate we’re looking for, please submit a CV and a covering letter of no more than 2 pages describing your motivation for applying and how your skills and experience match the role requirements.
If you would like to discuss the role and ENN’s wider remit, you are welcome to visit our website and contact Nigel Tricks, ENN’s CEO. For more day-to-day questions regarding the recruitment process, please contact our HR team.
Closing date for applications: 23:00 Hrs. 20th June 2026
Screening Checks
All candidates who we progress will be screened through Accuity World Compliance to comply with counter terrorism and financial sanctions regulations. Appointment will be subject to a satisfactory enhanced DBS check (or equivalent criminal records check where available, for non-UK citizens) and 2 satisfactory references. If you already have a transferrable enhanced DBS, please state this in your application.
Useful Information
Further information, including the ENN Strategy 2024 - 2028 and our latest Annual Report, is available via the ENN website.
Additional Information About ENN
A Letter from the Board of Trustees
At ENN we are truly passionate about what we do. Over the past 30 years ENN has become a powerful and recognised name in the nutrition sector, working with others to influence outcomes around the world. We produce highly regarded research and publications that inform and inspire practitioners worldwide and we convene technical interest groups and communities of practice who are the ‘go to’ networks for their specialisms. Our partners know and trust ENN for quality, rigour and impartiality. Our work makes a real difference in the lives of children in some of the most difficult parts of the world. The ENN-led Operational Guidance on Infant Feeding in Emergencies has become the key global policy guidance and has been endorsed by the World Health Assembly, and our technical leadership and convening has facilitated real change in awareness and a new narrative, challenging siloed approaches to Wasting and Stunting management.
Our work has never been more important. Nutritional challenges are growing across the world; undernutrition rates may be slowly decreasing but other forms of malnutrition are on the rise. The positive progress that is being made is unequal and many countries are now facing the double burden of both under and over nutrition. Crises around the world are increasingly protracted and the historical and artificial silos of ‘humanitarian’ and ‘development’ don’t reflect real needs which are much more fluid. Emerging threats, such as the broader impact on nutrition of the COVID-19 pandemic bring new challenges to address.
At present our annual turnover is around £1.5m, we employ 20+ staff and engage up to a dozen consultants. With our 2024-28 strategy, we are keen to drive even greater impact by exploring new and innovative approaches and increasing our reach further still. We do so with funding in place from a range of institutional partners and private foundations.
As an organisation working across numerous technical areas relevant for countries experiencing high burden of malnutrition, we look to the board, and those trustees with a more technical focus in particular, to discuss new opportunities and challenges to ensure we maintain a responsive and balanced portfolio. Trustees help us further develop our network, funding and connections, and help us navigate the important work we do to influence structural and impactful change in the sector, including advising in situations where there is potential for strategic risk. We are looking for a Finance professional to join the board, who can bring their knowledge and extensive experience to this role.
We hope the enclosed information helps you to explore ENN and the role.
With best wishes,
The ENN Board of Trustees
Vision
Our vision is: ‘Every individual confronted by malnutrition has access to the knowledge, tools, services and resources they require to meet their needs’
Our History
Founded in 1996 in Ireland, ENN has a long and rich history in global nutrition. Following an evaluation of the Great Lakes Emergency in 1995, implementing agencies identified an urgent need to establish a vehicle for capturing programming experiences and preserving institutional memory in the emergency food and nutrition sector. This gave rise to ENN’s publication, Field Exchange, which was first produced in 1996, designed to stimulate critical thinking and learning, influence research agendas and cross-fertilise information and exchange. ENN was generously hosted by Trinity College Dublin for its first eight years, before relocating to Oxfordshire in 2004 and is now a UK registered Charity.
"To me, ENN is one of the most long-standing focal points for emergency nutrition technical information and coordination." (ENN partner)
Who We Are Now
Our Strategy aims to enhance the effectiveness of nutrition policy and programming by improving knowledge, stimulating learning, building evidence and providing support and encouragement to practitioners and decision-makers involved in nutrition and related interventions. We take a particular lens on fragile and conflict affected, and high burden, states. We have three core principles guiding our work:
· Independent, neutral and impartial
ENN is not bound by the views or positions of any one institution and is not a nutrition implementing agency. Any opinions expressed are based on the available evidence and the experience of our rich and diverse network.
· Driven by our network
ENN’s network is made up of practitioners, decision-makers and academics working on nutrition and associated fields all over the world. By supporting their learning and sharing their knowledge, ENN is able to make a unique contribution to turning knowledge into practice.
· Based on experiential learning and evidence
ENN believes that policy and practice can, and should be, informed by evidence and experience. Where this exists, ENN seeks to share the learning from this evidence and experience; where it is missing, ENN advocates for it to be developed or directly supports, and often brokers, its development.
Our People
ENN’s team is made up of a range of technical experts in nutrition, with decades of collective experience, and a small operational team. ENN’s Management Team comprises of the CEO, 1 (of two) Technical Director, a Finance Manager, the HR Manager, the Communications and Digital Manager and a Projects Coordinator Lead. As well as our staff, we engage a significant number of experienced specialist consultants on our projects. ENN is highly committed to diversity and inclusion, to enabling and promoting flexible working for our staff, and to supporting continued professional development.
Our Governance
ENN is a UK-registered charity (Charity Registration Number: 1115156) governed by the Board of Trustees and a set of ‘Articles of Association’. The Board is currently comprised of 8 Trustees and meets regularly throughout the year, with full board meetings on a quarterly basis. The Board currently has three sub-committees: the Governance & People SC, the Technical SC and the Finance sub-committee, which are responsible for ensuring the highest standards in terms of finance, personnel, and technical expertise and application.
As a UK-registered Charity, ENN also files accounts as a UK-registered Company with Companies House (Company Registration Number 04889844).
Our Finances
ENN is financially supported by a range of institutional donors (including the Irish Government, the EU), charitable foundations (including the Bill and Melinda Gates Foundation and the Eleanor Crook Foundation), as well as UN agencies and INGOs.
Emergency Nutrition Network works to reduce undernutrition globally.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Basis Yorkshire is seeking a committed and values-driven individual to join our Board of Trustees as Treasurer. This is an opportunity to support a long-standing, specialist organisation working alongside sex workers and people experiencing sexual exploitation across Yorkshire.
Basis has over three decades of experience delivering trauma-informed, non-judgemental support, advocacy, outreach and education. We work with people across all sectors of the sex industry, as well as young people and adults at risk of or experiencing sexual exploitation. Our approach is rooted in dignity, agency, social justice and harm reduction, with the voices and experiences of the people we support at the centre of everything we do.
As Treasurer Trustee, you will play a key role in supporting the Board’s oversight of the charity’s financial health, sustainability and governance. While professional financial qualifications are not required, we are looking for someone who is confident in scrutinising financial information, asking constructive questions, and contributing to strategic decision-making.
We are particularly interested in individuals who share our commitment to challenging stigma and inequality, and who can bring thoughtful, independent judgment to Board discussions. Previous experience in the voluntary or community sector, safeguarding, or connections to strategic networks in Leeds would be welcomed.
Trustees are expected to attend quarterly Board meetings, contribute to working groups where possible, and engage with role-specific matters between meetings. An enhanced DBS check will be required and arranged by Basis.
We warmly encourage applications from people with diverse lived and professional experiences, particularly those currently underrepresented at the Board level.
Basis works with women and nonbinary people who work in the sex industry and women and young people who are sexually exploited
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are looking to grow our Board of Trustees to help to increase our reach, enhance our profile, spread our message and continue to develop sustainably.
We are seeking Trustees who will bring creative vision champion the role art plays in public cohesion and transforming people’s lives.We would like to recruit up to three new Trustees during 2026, ideally with experience of Finance, Fundraising or Artistic Programming.Arts at the Old Fire Station (AOFS) is known and respected for its values-led approach and passion for social change, and all Trustees are expected to share that commitment.
The Old Fire Station is a centre for creativity in Oxford housing 3 organisations: charity Crisis, Arts at the Old Fire Station& Damascus Rose Kitchen
The client requests no contact from agencies or media sales.