Advisory board member with fundraising expertise jobs
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This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The International Prader-Willi Syndrome Organisation (IPWSO) is seeking a talented and motivated CEO who will deliver our organisational strategy which aims to improve the lives of all those affected by a rare genetically determined disorder called Prader-Willi syndrome (PWS).
The role of CEO at IPWSO is both challenging and rewarding. You can help deliver change for people affected by PWS from across the globe by helping us build solidarity, promoting scientific reasoning and research, helping to foster new relationships, supporting our members, and striving for equality for everyone affected by the syndrome.
You will work alongside passionate volunteers and experts in PWS from across all continents and with a skilled and small staff team based in the UK. We are all dedicated to making a tangible difference!
For the full person specification and the JD, please refer to the attachment below.
#CEO #Chief Executive #Chief Executive Officer
Please see the application pack for the full Job Description and Person Specification.
Apply on the Charity Job website and submit a copy of your CV with a covering letter of no more than two A4 pages, describing how you meet the requirements of the role and the criteria outlined in the Person Specification. Include in your covering letter the names, position, organisation, email, and telephone contact of two referees, one of whom should be your current/most recent employer. References will only be sought once your express permission has been granted.
We will be reviewing applications and interviewing applicants on a rolling basis. We encourage you to apply early, as the advertisement may close before the 19 February 2026.
Registered Charity
1 - 5
To unite the global PWS community to collectively find solutions to the challenges of the syndrome.
The client requests no contact from agencies or media sales.
Thank you!
Head of Governance
£50,718 - £58,726 plus London weighing if applicable
Location , Hybrid, with travel needed
The WEA is the UK’s largest voluntary sector provider of adult education, a charity dedicated to bringing high quality, professional education into the heart of communities.
We are looking for talented individuals to help us deliver our mission – to bring lifelong learning within reach fighting inequality and promoting social justice.
Job Description
WEA are looking for talented individuals to help us deliver our mission – to bring education within reach. If that sounds like you, then please read on.
As the Head of Governance, you will work closely with the Director of Governance & Purpose (Company Secretary) to support the Chair of the Board of Trustees and the Chairs of committees with advice and support on standards of good governance, and compliance - particularly around or SDI status.
Reporting to the Director of Governance and Purpose, the successful candidate will also ensure ongoing monitoring of governance effectiveness and continuous improvement, and the efficient and effective administration of governance process, including trustee and committee member recruitment and onboarding, tracking appointment terms, and annual skills audits. Along with other members of the corporate governance team, you will support the Board of Trustees and its committees, including the creation and retention of proper meeting records, and the appropriate support, training and development of Trustees and senior volunteers serving on committees of the Board.
Together with the team, you will also provide support to ad hoc working groups and volunteer committees that may arise from time to time to provide important local insight and input to governance decision-making.
We have attached the full role profile, that lists the key deliverables, performance measures and experience/qualifications needed for this role. Please take your time to read through this, and if you’d like to apply, hit that button!
We are working hard to create a workplace that reflects the communities we seek to serve and in which everyone feels empowered to be themselves and work together to drive positive change. We strongly encourage applicants from a diverse range of candidates and encourage everyone with the appropriate skills, experiences and potential to apply.
Should you need any support with your application, then please get in touch. We reserve the right to close this vacancy early if we receive sufficient applications for the role. Therefore, if you are interested, please submit your application as early as possible
In our recent OFSTED inspection, we received a GOOD overall grade, with an OUTSTANDING rating for Behaviour and Attitudes and Personal Development.
You can read more about our benefits and what it’s like to work here, on our website .
The client requests no contact from agencies or media sales.
Thank you!
Open Rights Group (ORG) is recruiting for a Pre-Crime Programme Manager
The Pre-Crime Programme Manager leads our work on predictive policing and surveillance within the criminal legal system and counter-terrorism policy, with a particular focus on raising awareness of, and challenging, the impact on over-policed and over-surveilled communities.
They are responsible for the development and implementation of the Pre-Crime programme, working with the Senior Management Team (SMT) and other staff to expand the programme’s profile, network and funding opportunities.
As a Programme Lead, they will also be responsible for working with the SMT and other Area or Programme leads to further develop and uphold ORG’s values and collaborative working culture. They will be recognised as an issue-expert and senior leader within the organisation.
Activities
This is a permanent position at Open Rights Group, and we have secured a number of project grants to deliver the following activities:
- Lead and manage the Safety Not Surveillance (SNS) Coalition, the UK’s only coalition fighting to prohibit AI- and data-driven predictive policing. SNS brings together grassroots partners with national organisations to build power in communities, secure media coverage, engage decision-makers and mobilise those with lived experience.
- Develop detailed policy positions on the deployment of AI and data-driven technologies by private and public actors in criminal justice, immigration and national security.
- Advocacy to encourage decision makers, including MPs, Lords, Government departments and the Information Commissioner’s Office, to adopt ORG’s and the coalition’s recommendations.
- Conduct campaigns that raise awareness of the threats posed to people’s digital rights by the data-driven technologies in policing and counter-terrorism, as well as more broadly.
- Through research and FOIs, help build a legal case with our partners against covert Police-led pathways under Prevent, the UK’s counter-terrorism programme.
- Opportunities to campaign against digital ID, the Online Safety Act and to protect freedom of expression.
What we’re looking for
Above all else, we need a passionate and effective advocate. And as regards the rest, we’re more interested in your skills, rather than your knowledge.
You might be knowledgeable on the current and emerging technologies impacting policing and the criminal justice system.
You will likely have experiencing managing multiple projects addressing harms impacting communities that are marginalised and made vulnerable by society.
You might have a strong policy background with an interest in human rights, policing, surveillance or draconian technology.
You will have the capacity to perform simultaneous roles such as research, project planning and creating communication outputs and have the creativity and lateral thinking skills to ideate interventions and disrupt harms.
You may be bringing a wide range of contacts to the role or have the skills to build relationships with diverse stakeholders with sensitivity to their aims and values.
What the job will involve
- Research: for example on the impact of current data processing practices under the Prevent Duty on individuals and targeted communities.
- Drafting policy documents: including public-facing documents such as consultation responses and reports.
- Outreach to policy-makers: including engagement with UK MPs, Lords and councillors.
- Feeding into our campaigning work: through collaboration with our Campaigns Manager, to ensure that your policy research is fed into our campaigning and grassroots activism.
- Coalition building: through collaborating with other team-members to expand our coalition of cross-sectoral allies.
- Creating comms outputs: such as blog and video posts summarising policy submissions and campaign materials.
- Some public speaking: such as giving press quotes and interviews, as well as representing ORG at external events.
- Programme management: for example, setting goals, objectives and key performance indicators for the programme to deliver.
- Project planning: including identifying further opportunities and partnerships for programme growth.
What we’re like
ORG is a vibrant digital rights campaigning organisation. Founded in 2005, we have over 20,000 members and supporters and 10 local groups across the UK.
We uphold our human rights to free expression and privacy. We condemn and work against repressive laws or systems that deny people these rights.
We campaign, lobby, go to court – whatever it takes to build and support a movement for freedom in the digital age.
Our remote team is spread across the UK. We’re a supportive, flexible group with high standards. We’re innovative and agile. You’ll work hard but be rewarded by the impact you collaboratively achieve.
We take staff well-being seriously and meet up regularly for in-person work and social events.
How to Apply
To apply, please submit a CV and a completed application form (downloadable when you click 'how to apply') by 9am on Monday 2 February 2026.
Please ensure that your email has the subject heading ‘Pre-Crime Programme Manager Application’ and that all attachments are sent in PDF or ODT format.
Interviews for short-listed candidates will be held online in the week commencing 9 February 2026, with the second and final interview taking place in-person the following week, starting from the 16 February 2026.
If you require any of these documents in an alternate format please contact us.
Candidates must be eligible to work in the UK.
ORG is an equal opportunity employer. We believe that a diverse and inclusive team working in a supportive environment is vital to the success of our work. We particularly welcome applications from candidates from marginalised and racialised backgrounds, as well as applications from disabled and LGBTQIA+ candidates.
The client requests no contact from agencies or media sales.