Carers engagement officer jobs in Leeds

About Scotland's Charity Air Ambulance
Scotland’s Charity Air Ambulance (SCAA) exists so nobody in Scotland suffers or dies because medical help cannot get there in time. People can get sick or have accidents anywhere and anytime. But in Scotland there are places where urgent medical help cannot reach people. Or help gets there too late. And when lives are at risk every minute matters. As a charity we rely on donations from the Scottish public, companies and communities to ensure that urgent medical help gets to the patient when it is needed, wherever they are and at whatever time of day.

The Role

We are looking for a skilled and proactive Data Management Officer to join the charity’s Data and Insights Function. You will be joining the charity at a time of significant opportunity as we continue to strengthen our approach to data, insight and supporter engagement.

The Data Management Officer will mainly be responsible for managing and developing our Customer Relationship Management (CRM) system and supporter data. This is an exciting opportunity for an experienced CRM and data professional who enjoys hands-on responsibility for systems, process improvement and data management, and enabling colleagues to deliver exceptional fundraising, marketing and supporter engagement activity. Working closely with teams across the charity, you will ensure our CRM remains effective, compliant and fit for purpose while helping us better understand and engage our supporters. Your work will directly contribute to our ability to raise funds and support our life-saving mission.

This role can be offered on a fully remote basis, with the option to work from Perth Airport, where SCAA headquarters are located or our Aberdeen base at Aberdeen Airport, if preferred. Occasional travel to our Perth base will be required for the successful candidate. SCAA supports flexible and hybrid working arrangements—our current approach typically includes two office days per week for those working on a hybrid basis. The usual hours and days of work will be Monday to Friday, 9am—5pm.

About You

Essential

• Proven experience managing CRM systems in a charity or fundraising context and being comfortable working with large datasets.

• Experience with data segmentation, ETL processes, transformation and import / export processes.

• Strong understanding of data protection legislation (e.g. GDPR).

• Understanding of Gift Aid regulations and charity fundraising compliance.

• Confident using query tools and an understanding of query-based data extraction.

• Strong IT skills with competency using the MS Office suite and Excel in particular.

• Strong interpersonal skills with the ability to work collaboratively across teams and support non-technical colleagues.

• Ability to analyse and translate data into clear findings for campaigns and reporting, including donor value analysis.

Our Benefits

• Pension: 12% employer’s & 5% employee’s contribution (after 3 months’ service)  
• Annual Leave: 36 days (incl. public holidays) + an extra day for your birthday (and additional days with long service)
• Death in Service benefit: 4 times annual salary
• Optional Private Medical Insurance plan and Cashplan
• Employee Assistance Programme
• Enhanced Maternity/Adoption/Paternity Pay
• Access to Blue Light Card
• Learning and Development Opportunities

Selection Process

Interviews will take place at our base at Perth Airport in Scone, or remotely, during the weeks commencing the 24th or 31st August 2026.

How to apply
Please refer to the full job pack on our website.

Application deadline is 5pm on Sunday 16th August 2026. 

Location: Hybrid working between our office, based in Horsforth, Leeds and home working is preferred, however, remote working will be considered for the right candidate. Nationwide travel will be required. 

We are the leading charity dedicated to fighting primary bone cancer and are uniquely placed to make a difference through research, information, awareness and support.

The Involvement Officer role sits at the junction of lived experience involvement and our charitable objectives and will build meaningful collaborations and alignment between those affected by primary bone cancer, researchers, healthcare professionals and other stakeholders. The successful candidate will be required to build relationships with and contribute to key organisations and initiatives, such as the FOSTER and Euro Ewing consortia, like minded charities and Sarcoma Patients Global Network.

The successful candidate will co-ordinate and grow our Patient and Public Involvement Panel, which currently focuses on bringing lived experience to shape and review primary bone cancer research; however, we are keen for the voices of our community to contribute to our work across all our charitable pillars including our Support & Information service and our Influencing & Advocacy work. You will also support and empower our panel to share the work of Bone Cancer Research Trust more widely to their networks, ensuring a greater awareness of the charity and the impact of our work. 

This is a varied position offering the chance to apply and further develop your expertise in involvement across areas such as the shaping and reviewing of research, the capturing and sharing of lived experience through written and video stories, ensuring our health information is patient focused and understandable, and advocating with and for patients both nationally and globally. 

We are looking for someone with a good grasp of both the scientific and patient landscapes, who can balance attention to detail with big-picture awareness and work confidently in highly collaborative settings with multiple stakeholders and partner organisations.  This role offers a unique opportunity to make a tangible contribution and ensure that our community’s voices drive progress across the UK and further afield.

The successful candidate will be a natural communicator and will excel at building and maintaining relationships with a variety of stakeholders. A background in cancer research or research funding would be advantageous.

If you are excited about joining our team, please read through this job pack to see if you have the right skills we are looking for. We look forward to hearing from you! 

Job Purpose

Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.

Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.

You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.

As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.

You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.

As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.

Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.

Key Duties

• Help monitor inboxes and respond to routine project enquiries in a timely and sensitive manner, escalating more complex matters as appropriate
• Assist the project's management team and other team members with meeting scheduling and diary coordination
• Take accurate minutes at project, management and other project-related meetings, and follow up and track resulting actions to completion
• Prepare, format and proof-read governance documents and papers
• Maintain and update project databases including the Teams channel, ensuring documents are saved correctly, other management information/recording systems to ensure accurate and timely record-keeping. Help with the tracking of expressions of interest from potential study participants.
• Provide administrative support for project events - from planning and logistics through to on-the-day support
• Help prepare presentations, slide decks and briefing materials for internal meetings, funders, partners and participant-facing communications
• Support the drafting, formatting and coordination of project communications, such as updates for partners, funders or the wider ME and Long Covid community
• Support coordination between internal teams and external partners, including research and funding partners
• Maintain project files and documentation in line with agreed communication operating procedures with internal and external partners ensuring information is well organised, up to date and easy for the team to access
• Maintain confidentiality at all times and in line with relevant policies and procedures, ensuring compliance with GDPR and that all data consent processes have been followed in relation to data protection
• Positively promote the work of the Sequence ME & Long Covid project and Action for ME at all times
• Undertake any other reasonable activity in line with the responsibilities of the post, as requested by the CEO, Business Development & Partnerships Manager, Senior Research Manager or the project's Management Team

Person Specification

Essential skills and experience

• Organisational skills - Highly organised with the ability to manage multiple tasks across a fast-moving research project, with attention to detail and accuracy maintained under pressure
• Communication - Excellent verbal and written communication skills, with the ability to interact effectively with diverse audiences including researchers, funders and people affected by ME and Long Covid
• IT literacy - Proficient with common office software, including Microsoft Office (Word, Excel, Outlook, Teams, PowerPoint), and able to quickly learn relevant project management, database or communications systems as needed
• Problem-solving - A creative and solution-focused mindset to address challenges and find innovative ways to improve processes
• Adaptability - Capable of managing changing priorities, working flexibly, and adapting to the needs of a fast-paced, ambitious research programme
• Initiative - A proactive approach, with the ability to work independently and take initiative, while also following clear instructions when given
• Teamwork - A collaborative team player with a proven ability to work effectively as part of a team, including a remote-working team spanning multiple partners and stakeholders
• Interest in the sector - A genuine interest in health research, the Third Sector, and a desire to take action to improve the lives of people with ME and Long Covid
• Experience - Demonstrable ability to be an effective administrator, ideally within a charity, research, or project environment. Experience supporting governance processes, events, or communications would be an advantage but is not essential

Desirable skills and experience

• Experience providing administrative support for scientific or research-related projects
• Experience writing and communicating with non-specialist or general audiences