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Cerebra is the national charity dedicated to improving the lives of children with neurological conditions and their families. We provide vital research, support, and practical solutions that empower families facing complex challenges.
With an annual income of £3 million and a headcount of 68 employees, we have ambitious plans to double our income between 2025 and 2027, ensuring we can extend our impact, reach more families, and drive real change. To achieve this, we are investing in fundraising innovation, income generating ventures, and strategic partnerships, alongside enhancing our brand to increase our national recognition.
Our work is underpinned by our values ensuring that everything we do aligns with our mission to create a better world for children with neurological conditions.
This is an incredibly exciting time to join Cerebra, as we are preparing to launch our new strategy and brand. The COO is a vital leadership role that will support the drive towards even greater impact for children and families across the UK.
Our Services
Sleep Advice Service
Cerebra understands that if you have a child that doesn’t sleep, the whole family suffers. Many children with neurological conditions suffer from disrupted sleep. Our sleep advice service provides bespoke advice and support so that everyone can get a good night’s sleep.
Legal Rights Service
Our Legal Rights Service provides help and support to families of children with neurological conditions when they are faced with barriers and difficulties in accessing statutory support services they are entitled to. The service provides information on their legal entitlements.
Book and Toy Library Service
Our specialist postal lending library contains a wide range of books for both adults and children, plus a selection of sensory toys specifically chosen for children with a neurological condition.
Innovation and Product Design Service
Our Innovation Service designs and builds bespoke products that cater to the specific needs of children with neurological conditions. The aim of the service is to make products that are desirable and exciting, therefore promoting social inclusion, peer acceptance and enabling children to participate in everyday activities that are so often close to them.
Information Products
Cerebra publishes different information products to help families with a child with a neurological condition. Our information products offer comprehensive, up-to-date support and research-driven strategies to assist families with a wide range of issues.
Buzgi and Toy Adaptation Service
Cerebra designs and builds bespoke assistive equipment for disabled children, this includes creating custom mobility aids, switch‑adapted toys, and other innovative solutions to help children access play, learning, and independence.
The Bugzi - a mini powered wheelchair for children offers many children their first experience of independent mobility. It uses either a joystick or switches and adaptable seating for complex needs, and helps develop spatial awareness, confidence, and early mobility skills. The Bugzi is available through a national loan scheme.
Additionally, we operate commercial services (including a web shop) to supplement our income to support children and their families.
Our services are provided to families free of charge.
Job Title:
Chief Operating Officer
Reports To:
Chief Executive Officer
Direct reports:
3 senior managers (Finance (headcount of 3), HR (headcount of 1), IT (headcount of 5))
Purpose of the Role:
The Chief Operating Officer will play a vital role in supporting the Chief Executive Officer, Board and Leadership Team to deliver Cerebra’s vision and ambitious strategic aims. The Chief Operating Officer will provide strategic leadership and operational management across key areas within Cerebra including:
- Operational Systems
- Governance
- Compliance
- Finance and Growth
This is a pivotal executive leadership role, responsible for driving organisational performance, sustainability and growth. The COO will translate Cerebra’s strategic ambitions into effective operational delivery, ensuring robust governance, financial stewardship and a high-performing, values-led culture.
As a trusted advisor to the CEO and Board, the COO will lead core operational services and commercial activity, enabling the charity to maximise impact and generate sustainable income in support of its charitable objectives.
Key Responsibilities
Strategic & Executive Leadership
- Partner with the CEO and Board to deliver strategic priorities, growth and long-term sustainability
- Collaboration with the Director’s Group to ensure strategic alignment across the charity. The Director’s Group consists of:
Chief Executive Officer
Chief Operating Officer
Director of Fundraising, Marketing and Communications
Director of Research and Support Services
- Provide expert advice on finance, operations, commercial performance and organisational risk
- Lead organisational planning, business continuity, and operational resilience
- Foster a culture of continuous improvement, accountability and inclusion
Finance, Commercial & Sustainability
- Lead financial strategy, planning and performance, ensuring long-term sustainability
- Oversee budgeting, forecasting, cashflow and financial controls
- Lead and develop Cerebra’s strategy for commercial income , ensuring alignment with charitable objectives
- Support funding growth through strong financial insight and business case development
- Ensure robust financial governance, audit and compliance
Operations & Infrastructure
- Lead and strengthen operational functions including HR, IT, governance and administration
- Ensure effective systems, processes and infrastructure that enable growth, efficiency and impact
- Oversee procurement, contracts, facilities, and organisational compliance
- Drive innovation and value for money across operations
People & Culture
- Champion a positive, inclusive and high-performing organisational culture
- Oversee HR strategy, workforce planning and leadership development
- Ensure compliance with employment law and best practice
- Promote wellbeing, engagement and organisational effectiveness
Digital & Technology
- Provide strategic oversight of IT, data and digital development
- Ensure systems are secure, resilient and aligned to organisational needs
- Leverage data and technology to improve insight, decision-making and organisational impact
Governance, Risk & Compliance
- Ensure effective governance frameworks, risk management and regulatory compliance
- Support the CEO and Board with high-quality reporting and strategic insight
- Lead safeguarding, data protection and organisational risk strategy
- Drive a strong culture of accountability and ethical practice
Leadership & Management
- Lead and develop a small senior team across finance, HR and IT
- Build capability, strengthen performance, and embed a collaborative culture
- Model Cerebra’s values and leadership behaviours
Key Attributes
- Strategic and commercially minded leader with strong operational delivery experience
- Strong financial leadership and business acumen
- Proven track record of driving income growth, sustainability and organisational performance
- Skilled in governance, risk and stakeholder engagement
Please see attached job description for the Person Specification.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are looking for someone who is a qualified or part-qualified accountant (including qualified by experience) to take responsibiity for the full day-to-day running of the finance function, ensuring accurate financial records, strong controls and timely reporting.
You will have experience in a hands-on finance role and in producing management accounts and charity statutory returns. You'll have a strong accounting knowledge and good excel and accounting systems capability. Ideally, you'll have experience in small organisations in the charity or social impact sector and of business partnering.
Very importantly, you'll be collaborative and team oriented, able to manage competing priorities effectively and be adaptable and comfortable working in a fast paced and entrepreneurial environment.
You'll work closely with our part-time Finance Director to:
- deliver all core financial operations
- produce high quality management information
- maintain compliance with charity regulations
- support financial planning and decision making
- manage and analyse the financial performance of the charity's trading arm
Key responsibilities:
- day to day financial management
- management accounts and reporting
- support of budgeting and forecasting processes
- financial control and compliance
- year end audit preparation and liaison
- compliance with fund and grant accounting requirements
- payroll
- HMRC compliance including gift aid returns
- trading financial management and analysis
- system and process improvements
- stakeholder suport
- support to Finance Director
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Lead a national charity at a pivotal moment of change and make a life‑changing impact for individuals and families affected by rare craniofacial conditions.
Headlines Craniofacial Support is a UK-based charity providing information, advice and support to individuals and families affected by craniosynostosis and other rare craniofacial conditions. The charity works closely with professional partners, including the 5 NHS Designated Specialist Craniofacial Units across the UK.
Craniosynostosis is a condition where two or more of the plates in the skull fuse prematurely, requiring medical support from a young age. Around 350 children are born with craniosynostosis each year in the UK.
Established by group of parents in 1993, Headlines now has over 2,500 members. Within our charity offer we send out regular newsletters and an annual magazine, Headline News. We also support families to connect through events such as an annual Family Weekend, conferences and Days Out, and provide information through our helpline and access to psychological support. We have private social media groups and specific groups within our membership who meet regularly including Cranio Dads, Young Persons Network and a Teens Group.
After 8 successful years, our current Director will be retiring in 2026 and we are now seeking an enthusiastic, inspirational and proactive individual to take up the reins.This is a rare opportunity to lead a well-established, respected national charity at an important moment of transition.
Strategic priorities for us, moving forward, include increasing our fundraising activities to ensure sustainability of the charity alongside the smooth running of our core activities in providing support, facilitating research and raising awareness.
Key responsibilities
The Executive Director will hold day-to-day responsibilities, working closely with the Chair and Trustee Board to provide effective leadership and operational management of the charity. Specifically, they will:
- Act as an ambassador for the charity, liaising with members, health professionals and with wider community and provide day-to-day management of Headlines staff and activities, setting objectives in line with the operational plan.
- Ensure compliance with safeguarding, data protection and other legal, statutory and regulatory requirements and responsibilities.
- Work on behalf of and with the Trustees to deliver the charity’s mission, goals, operational plans and long-term strategy, and act as a positive leader and role model, managing and motivating Headlines staff,
- Ensure effective financial management of Headlines working closely with trustees and the treasurer to ensure financial security and appropriate allocation of funds.
- Manage and enhance the event programme to meet charity objectives, including identifying and meeting members’ priorities and raising awareness of craniofacial conditions.
- Develop opportunities for collaborative working and partnerships with other organisations for the benefit of people with craniosynostosis and rare craniofacial conditions. This also includes work overseas, predominantly in Europe with our medical and charity partners.
- Oversee communications and marketing activities to raise the profile of Headlines, its work and the needs of its members.
- Identify opportunities for growth, developing projects and keeping policies relevant, to enhance and expand the work of Headlines.
- Be responsible for generating funds through innovative and cost-effective fundraising activities and grant applications to maintain the long-term success of the charity.
Person specification
Essential criteria
- An understanding of the importance of the charity’s values and priorities.
- Evidence of inclusive, innovative and proactive leadership, with demonstrable experience of fundraising and income generation.
- Excellent organisational and interpersonal skills with experience organising events and activities.
- Experience of successfully managing budgets and developing new and sustainable funding streams.
- Excellent organisational, presentation and communication skills and the ability to write reports for public consumption and for statutory obligations.
- A high level of digital literacy skills with an understanding of online technology and the application of social media.
- Proven track record in managing, leading and motivating staff and volunteers.
- Willingness to operate a hybrid model of working with most work taking place from home, working remotely with stakeholders and across the UK/ internationally for specific events.
- Experience of working within the charity sector, ideally at a management level and/or within financial management of the charitable sector, with sound knowledge of the relevant legal requirements and regulations applicable to a charitable organisation.
Desirable criteria
- Experience of working effectively with a Chair and Board of Trustees.
- Experience of working for a health-related organisation.
- An awareness of the principles of inclusivity, accessibility or experience of working with individuals with visible differences.
- Degree or equivalent.
- Experience of commissioning research and liaising with research bodies.
Other information
Headlines hosts events and fundraising activities throughout the whole of the UK. All Headlines staff are expected to work flexibly to support those activities as required, e.g. attendance at Annual Family Weekend, conferences, member events, supporter receptions and other related scientific meetings and conferences. This may occasionally require travel and overnight stays. In addition, all staff are expected to be self-servicing in terms of administration and basic digital skills. Please note that the list of duties is not exhaustive and additional responsibilities might occasionally arise and the workload can vary across the year
Applicants need to submit the following:
• CV outlining your employment history and any relevant academic, professional or other
qualifications.
• Name and addresses of two referees, with at least one coming from your most recent employer.
• A supporting document demonstrating how you meet the essential and/or desirable criteria set out in the person
specification, and why you are interested in working for Headlines.
Shortlist interviews will take place online via videocall, with successful candidates progressing to an in-person interview in London, on a date to be confirmed.
Closing date for applications: Saturday 20th June at midnight
Headlines is the leading UK charity supporting people with craniosynostosis and other rare craniofacial conditions.
The client requests no contact from agencies or media sales.