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Lead a national charity at a pivotal moment of change and make a life‑changing impact for individuals and families affected by rare craniofacial conditions. 

Headlines Craniofacial Support is a UK-based charity providing information, advice and support to individuals and families affected by craniosynostosis and other rare craniofacial conditions.  The charity works closely with professional partners, including the 5 NHS Designated Specialist Craniofacial Units across the UK.

Craniosynostosis is a condition where two or more of the plates in the skull fuse prematurely, requiring medical support from a young age. Around 350 children are born with craniosynostosis each year in the UK.

Established by group of parents in 1993, Headlines now has over 2,500 members.  Within our charity offer we send out regular newsletters and an annual magazine, Headline News.  We also support families to connect through events such as an annual Family Weekend, conferences and Days Out, and provide information through our helpline and access to psychological support.  We have private social media groups and specific groups within our membership who meet regularly including Cranio Dads, Young Persons Network and a Teens Group.

After 8 successful years, our current Director will be retiring in 2026 and we are now seeking an enthusiastic, inspirational and proactive individual to take up the reins.This is a rare opportunity to lead a well-established, respected national charity at an important moment of transition.

Strategic priorities for us, moving forward, include increasing our fundraising activities to ensure sustainability of the charity alongside the smooth running of our core activities in providing support, facilitating research and raising awareness.

Key responsibilities

The Executive Director will hold day-to-day responsibilities, working closely with the Chair and Trustee Board to provide effective leadership and operational management of the charity. Specifically, they will:

• Act as an ambassador for the charity, liaising with members, health professionals and with wider community and provide day-to-day management of Headlines staff and activities, setting objectives in line with the operational plan.
• Ensure compliance with safeguarding, data protection and other legal, statutory and regulatory requirements and responsibilities.
• Work on behalf of and with the Trustees to deliver the charity’s mission, goals, operational plans and long-term strategy,  and act as a positive leader and role model, managing and motivating Headlines staff,
• Ensure effective financial management of Headlines working closely with trustees and the treasurer to ensure financial security and appropriate allocation of funds.
• Manage and enhance the event programme to meet charity objectives, including identifying and meeting members’ priorities and raising awareness of craniofacial conditions.
• Develop opportunities for collaborative working and partnerships with other organisations for the benefit of people with craniosynostosis and rare craniofacial conditions.  This also includes work overseas, predominantly in Europe with our medical and charity partners.
• Oversee communications and marketing activities to raise the profile of Headlines, its work and the needs of its members.
• Identify opportunities for growth, developing projects and keeping policies relevant, to enhance and expand the work of Headlines.
• Be responsible for generating funds through innovative and cost-effective fundraising activities and grant applications to maintain the long-term success of the charity.

Person specification 

Essential criteria

• An understanding of the importance of the charity’s values and priorities.
• Evidence of inclusive, innovative and proactive leadership, with demonstrable experience of fundraising and income generation.
• Excellent organisational and interpersonal skills with experience organising events and activities.
• Experience of successfully managing budgets and developing new and sustainable funding streams.
• Excellent organisational, presentation and communication skills and the ability to write reports for public consumption and for statutory obligations.
• A high level of digital literacy skills with an understanding of online technology and the application of social media.
• Proven track record in managing, leading and motivating staff and volunteers.
• Willingness to operate a hybrid model of working with most work taking place from home, working remotely with stakeholders and across the UK/ internationally for specific events.
• Experience of working within the charity sector, ideally at a management level and/or within  financial management of the charitable sector, with sound knowledge of the relevant legal requirements and regulations applicable to a charitable organisation.

Desirable criteria

• Experience of working effectively with a Chair and Board of Trustees.
• Experience of working for a health-related organisation.
• An awareness of the principles of inclusivity, accessibility or experience of working with individuals with visible differences.
• Degree or equivalent.
• Experience of commissioning research and liaising with research bodies.

Other information

Headlines hosts events and fundraising activities throughout the whole of the UK. All Headlines staff are expected to work flexibly to support those activities as required, e.g. attendance at Annual Family Weekend, conferences, member events, supporter receptions and other related scientific meetings and conferences. This may occasionally require travel and overnight stays. In addition, all staff are expected to be self-servicing in terms of administration and basic digital skills. Please note that the list of duties is not exhaustive and additional responsibilities might occasionally arise and the workload can vary across the year

Community Fundraising Assistant - North 

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?

Brain Tumour Research is an exciting, innovative, and ambitious charity. We are passionate about finding a cure for brain tumours through the establishment of dedicated Brain Tumour Research Centres of Excellence around the UK.​

After a successful 2025, we’re building on our momentum and looking ahead with ambition. As our work continues to expand, so does our impact. We are now looking for passionate people to join us on the next stage of our journey!

It is a fantastic time to be joining us and we are keen to share this with likeminded and talented individuals. We currently have an opening for a Community Fundraising Assistant - North, to join our Community and Digital Fundraising team.

• Do you want to make a difference in one of the most innovative and exciting medical research fundraising charities in the UK?
• Are you able to provide friendly and professional support to fundraisers and supporters?   
• Do you have experience in supporting events or community activities?
• Do you live in either Scotland, North East England, North West England or the East Midlands? 

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Have you answered Yes to these questions?

Does this sound like the opportunity to really take the next step in your career?

Excited to learn more about this position? Then please take a read through our recruitment pack which is included within this advert.​​​

If you have the skills and ambition that we are looking for we are excited to receive your application.  We are really looking forward to welcoming a new member to our team!​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

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We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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We are looking for two Consultants to join our Faith & Society team. These roles will support the delivery of projects focused on public affairs, faith engagement and social change. You will work with partners across politics, civil society, business and faith communities, and will contribute to research, stakeholder engagement, project coordination and client delivery. You will also help build relationships across a wide range of organisations and communities 

Location: The role is based primarily remotely, but you must be willing and able to work regularly (one day per week minimum) from our London office, which is near to Parliament. You must also be able to travel to Bristol and/or Reading once a month for a team meeting, for which expenses will be covered. 

Salary: £28,387

Contract: This is a permanent, full-time role, but we are open to being flexible on this, and on proposed working patterns. 

All applicants must have the right to work in the UK. 

About the Good Faith Partnership

We believe the world should be different and that it shouldn’t be so hard to bring about change. We help to create solutions to society’s most difficult problems. We connect businesses, governments, charities, philanthropists, foundations and communities. We help leaders harness their organisation's energy and expertise. We unite different passions, skills and expertise around a common vision: the power of people working together to bring about lasting change.

We commit to working with our clients to achieve the best outcomes, even where that might mean saying the right thing rather than the popular thing. We want to work with our partners so that our work has a positive legacy: building strong relationships and delivering positive social change.

The Good Faith Partnership was launched in 2016 as two partners and a simple hypothesis: If you can successfully bridge some of the gaps between different sectors, you might just find some innovative solutions for some of society’s more difficult problems. Over the last 10 years, we’ve been involved in a wide variety of exciting projects, and we’re sure that there is much more for us to do. 

Who we want on our team

The core competence of everyone in our team is the ability to work with surprisingly different people to understand a problem, propose a solution, and then grow what works best. We apply this across the organisation whether within our internal operations or external strategy.

We look for people who are:

• Driven to make a positive contribution to society 

• Exceptional with people and are committed to the power of relationships to facilitate social change

• Curious and have a desire to learn and try new things

• Have a track record of ‘getting things done’

• Problem solvers in mindset and approach – imaginative, strategic, pragmatic, tenacious and hope-filled

• Superb collaborators and self-starters, capable of taking initiative and working autonomously

• Willing to pitch in to help other team members if needed

• Comfortable working in high-paced, start-up environments

• Able to manage themselves and their time, juggling a variety of tasks and priorities

• Resilient and calm under pressure

• Convinced of the immense power of a sense of humour and assuming the best in others

Responsibilities

The Consultants’ main responsibilities will be to support and own parts of GFP projects by:

• Supporting projects with a public affairs component to provide accurate, incisive and impactful data and analysis

• Producing weekly reports on relevant parliamentary and government business for particular clients and projects

• Maintaining accurate, user-friendly and up-to-date databases to support public affairs work across projects

• Assisting in drafting parliamentary materials, including briefings, oral and written questions, and correspondence with stakeholders

• Supporting senior colleagues in their client and stakeholder management as necessary, including with administrative tasks such as meeting preparation and minute-taking

• Supporting colleagues to organise events on the Parliamentary estate, including room bookings and catering 

• Responding to the needs of the team to support wider project delivery

• Owning and project managing parts of a project and ensuring successful delivery, working autonomously to complete project work where required.

• As appropriate build and manage relationships with clients (usually at delivery level)

• Lead and support with GFP core tasks to drive the business forward

To get an idea of the kind of projects you might help deliver, please visit our website. 

Qualifications and Experience

Key skills and experience required for these roles are:

• Track record of supporting and delivering parts of a project 

• Ability to work well under pressure and reach set deadlines

• Experience managing relationships with a range of stakeholders from a variety of backgrounds, including a willingness to engage with senior stakeholders in areas including, but not limited to, politics, business or faith institutions

• Rigorous attention to detail

• Initiative and good problem-solving skills 

• Confident communicator with strong people skills and the ability to build relationships

• An interest in politics, with an ability to maintain neutrality and a keenness to work with politicians across the political spectrum

• Demonstrable religious literacy, ideally with direct experience of working with faith communities, faith-based organisations and religious leaders

• Experience in supporting teams and offering help proactively

• Experience of supporting both online and in person events

For full details on how to apply, as well as more information on how to contact us, please review the attached JD and follow the instructions. 

Are you our next Trusts Fundraising Officer?

If you have a talent for story telling, are looking for a role where your words can make a lasting impact and are passionate about giving vulnerable young people life changing opportunities, then this is the job for you. We’re seeking a talented individual who can tell our story and help secure vital funding from trusts and grant-makers.

Trusts and other grant-makers are an important source of funding for our charity. As we look ahead, we’re expanding our Trusts fundraising portfolio to meet the growing needs of our programmes. This is where you come in.

As our Trusts Fundraising Officer, you’ll be an inspiring storyteller whose enthusiasm for our work shines through in your writing. You’ll play a key role in researching new funders, crafting compelling funding applications and keeping our supporters engaged with our work. Your work will involve developing case studies and gathering evidence to show the need for our services. This will help secure sustainable funding. You’ll be supported by our experienced Trusts Fundraising Manager to build lasting relationships with funders. Together, you’ll keep them engaged and informed about the positive impact they’re making on the young people we support.

The Trusts Fundraising Officer must be self-motivated, well organised, able to multi-task, have good administration skills and understand the “power of the outdoors”.  Paid or voluntary experience in a fundraising environment is essential.  This is a great opportunity for somebody looking to take the next step in their career, with plenty of scope to develop your skills and experience within a supportive team. Whilst the role is home-based you must live in the South West to ensure easy access for in-person meetings.

The Charity

At the Youth Adventure Trust, we use outdoor adventure to empower vulnerable young people from Swindon, Wiltshire and Somerset to fulfil their potential and lead positive lives in the future. We work with them to build resilience, develop confidence and learn skills that will last a lifetime, helping them to face the challenges in their lives. Dedicated support, guidance and mentoring from our staff and volunteers ensures young people receive the maximum benefit from our long-term intervention. Our aim is to make a lasting improvement to the lives of vulnerable young people. All our services are provided completely free of charge to the young people who are nominated by schools and other youth organisations to take part.

We’re proud to offer our programmes completely free of charge to participants which means the fundraising team is crucial. With ambitious plans to help more young people over the coming years, our Events Fundraising Officer role is an exciting opportunity to make a real difference. You’ll be well-supported as part of a small fundraising team with a big heart, with plenty of opportunities to visit our programmes and see the tangible impact of your work. 

What We’re Looking For:

• Outstanding communication skills – You can write clearly, persuasively and passionately. You’re confident speaking to others about the charity’s work.

• Writing experience – You have experience writing successful funding applications, proposals, or compelling articles, ideally but not necessarily with a  fundraising focus

• Fundraising experience - You may not have written a grant application before but you should have some paid or voluntary experience in a fundraising capacity.

• Attention to detail – You take pride in your work, have a good eye for detail and a thorough approach.

• Creativity - able to put together eye-catching proposals, impact graphics and social media posts.

• Self-motivation and organisation – You’re able to manage your own time and prioritise effectively.

• Passion for the outdoors and youth development – You understand the importance of giving vulnerable young people outdoor experiences and are willing to put on your waterproofs and join in on our activities and camps to witness first-hand the difference the Youth Adventure Trust makes.

• Willingness to learn - if you think you have what it takes but don’t have lots of experience as a Trusts Fundraiser, this role comes with plenty of scope to develop your writing skills and gain experience within a supportive team environment.

Safer Recruitment

The Youth Adventure Trust is committed to safeguarding and promoting the welfare of young people and requires all employees to share this commitment. The suitability of all prospective employees will be assessed during the recruitment process in line with this commitment and in compliance with current employment legislation, and relevant safeguarding legislation and statutory guidance.