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Using Anonymous Recruitment
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We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.
The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.
Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.
Key Responsibilities
Community Growth and Engagement
Campaigning, Policy and Influence
Organisational Leadership
Awareness and Public Engagement
What Success Looks Like
Within five years, the postholder will have:
Person Specification
Essential Experience
Essential Knowledge and Skills
Personal Attributes
We are looking for someone who is:
Why Join Us?
myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.
Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September
Provisional interview dates will be week commencing: 28.9.26
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.
Action for Global Health (AfGH) is an influential membership network convening more than 50 organisations working in global health. Its vision is a world where health equity is achieved, and every person has access to the quality healthcare they need without being forced into financial hardship.
AfGH’s strategy, extended to 2029, aims to ensure that stronger commitments from the UK Government help more people worldwide access affordable, high-quality healthcare suited to their needs. The network works by bringing together member organisations, civil society groups, and people with lived experience of health inequality – especially from low- and middle-income countries – to influence UK policy. It acts as a key link between global health civil society and government departments such as the Foreign, Commonwealth & Development Office and the Department of Health and Social Care, guided by its 10 health-equity principles.
AfGH is an independent network hosted by STOPAIDS, which provides legal, financial, HR, and administrative support.
The Position
As the Network Director, you will be responsible for convening and guiding the network, in partnership with the AfGH team, Steering Committee, wider membership and host organisation (STOPAIDS).
In this role, you will:
Benefits
We offer a number of benefits, including:
To apply, please click the Apply button to complete our application form.
Closing date: 7th September 2026.
Candidates must be UK-based with the right to work in the UK. Unfortunately, we cannot sponsor visa requests.
People living with or affected by health inequities, from Black, Asian or minority ethnic (BAME) backgrounds or from other minority groups are particularly encouraged to apply.
Context of role:
The Outreach Officer plays a key role in raising awareness of services, strengthening community
partnerships and supporting the delivery of high-quality bereavement support activities across the
region. The postholder will engage with local networks, coordinate events, and support volunteers while ensuring effective monitoring, reporting and continuous improvement.
This role sits initially within Shropshire, Worcestershire and Herefordshire, but will expand to support phase 3 of the expansion which will include the West Midlands, Warwickshire and
Staffordshire.
Key responsibilities:
Support Service:
1. Event Coordination and Delivery
1.1: Coordinate and deliver regular community engagement activities, including; coffee mornings and
support events.
1.2: Organise and facilitate regular wellbeing and social activities, such as; walks or group sessions.
1.3: Represent the organisation at regional events, including supporting fundraising and CYP teams
when required.
1.4: Co-lead on bookings and coordination of Ty Uchaf, our respite house.
2. Awareness, Training and Engagement
2.1: Lead on regional awareness training delivery for non-emergency services and community-based
organisations.
2.2: Deliver additional 2wish training programmes as required, including Children & Young People
(CYP) and Bereavement in workplace support training.
2.3: Lead awareness and advocacy activities with local ‘support champions’, including professionals
within non-emergency services.
3. Partnership and Network Development
3.1: Actively engage with local bereavement networks through attendance at meetings, hosting
information stands and building strong professional relationships across the region.
3.2: Develop and maintain effective links with community partners to expand reach and awareness of
services.
4. Volunteer Support
4.1: Act as a key local contact for volunteers.
4.2: Support the recruitment, training and retention of volunteers in collaboration with the wider
team.
5. Administration, Monitoring and Reporting
5.1: Maintain and take ownership of relevant systems and spreadsheets, including those used for:
52: Event planning and delivery
5.3: Marketing and communications
5.4: Contact and engagement tracking
5.5: Professional and family engagement records
5.6: Accurately record interactions with stakeholders, including; families, professionals, champions
and referral partners.
5.7: Monitor and manage posts/content on Facebook family accounts.
6. Quality Assurance and Improvement
6.1: Support quality audits and contribute to continuous improvement processes.
6.2: Collect and review feedback from events and training sessions to inform future development.2.0 General:
1.1: To be responsible for organising own work agenda, time management and administration
1.2: To keep clear and up to date records on database of activities with families and any ensuing
action
1.3: To promote the on-going work and continued support that 2wish can offer
1.4: To work as part of a team providing support to suddenly bereaved families
1.5: To work alongside support team and maintain a seamless approach to service delivery
1.6: To maintain a high degree of confidentiality in accordance with the charity’s policies
1.7: To show respect and sensitivity for the cultural and religious beliefs of families
1.8: To undertake learning opportunities and seek them out for the team
1.9: To adhere to all company policies and procedures including Safeguarding, Confidentiality,
Health and Safety and Lone Working; and to be proactive in implementing new safe working
practices as appropriate
1.10: To attend weekend and evening community events in support of the charity as necessary
1.11: Participate as and when required in team meetings and one-to-one meetings, and
undertake, as appropriate, courses/training/other developmental activities, which is relevant to
the role
1.12: To contribute to the evaluation and monitoring processes to ensure effectiveness of
services and activities provided
1.13: Contribute on the social media platforms maintained by 2wish
It is the nature of the work that tasks and responsibilities are in many circumstances
unpredictable and varied. All employees are therefore expected to work in a flexible way and
tasks, which are not specifically covered in their job description may have to be undertaken.
This role is subject to a DBS check.
The client requests no contact from agencies or media sales.
Want to make a difference to people’s lives? Then join our small team at Immunodeficiency UK, a charity devoted to supporting people living with poor immune systems.
About Immunodeficiency UK
Our charity aims to create an environment that ensures those affected by immunodeficiency have the knowledge to live fully, manage their condition effectively, and have their health needs understood and addressed by the healthcare system.
Each year we help hundreds of people through our helpline, educational resources, practical support, hardship grants, and our strong patient voice. We work on a range of projects to help improve patient care. You can find out more about our work by visiting our website and reading our annual impact reports..
This is a varied and interesting opportunity working for a charity that goes above and beyond in supporting people with primary and secondary immunodeficiency. The role offers an opportunity to exercise your creativity on varied and interesting projects that can make a real difference. You will receive excellent support and encouragement from our CEO and Trustees.
Responsibilities
As the Digital Communications and Fundraising Officer, you will play a key role in raising the charity's profile and awareness of primary and secondary immunodeficiency, growing supporter engagement, and generating income to support our work.
This job is for you if:
Charity or non-profit experience is a plus, as are graphic design or video editing skills.
Diversity and inclusion
Immunodeficiency UK is committed to equality, diversity and inclusion, and welcomes applications from all suitably qualified candidates regardless of age, disability, gender identity, marital status, race, religion or belief, sex, sexual orientation, or any other protected characteristic.
Closing date is Friday 4th September at 5pm. Applications generated by AI will not be considered.
Interviews will take place the week commencing 14th September.
The client requests no contact from agencies or media sales.
This permanent, part-time role is ideal for someone with strong financial administration and bookkeeping experience who is committed to social justice and human rights. You'll be responsible for the day-to-day management of our finances, maintaining accurate records, supporting reporting and compliance, and providing financial information to help staff and trustees make informed decisions.
Join us and play a key role in supporting Just Fair's mission to secure economic, social and cultural rights for everyone in the UK.
Refer to the application pack
The client requests no contact from agencies or media sales.