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Job Description:
We are seeking a Health and Science Information Manager to lead the development of highquality health information and research communications for people affected by polycystic kidney disease (PKD). This is an exciting opportunity to shape how individuals access, understand and engage with trusted information throughout their journey, from diagnosis and day-to-day management, to the latest scientific and clinical research developments. In this role, you will oversee our extensive portfolio of patient information resources, ensuring all content is accurate, accessible, evidence-based and aligned with the PIF TICK quality standard. You will identify opportunities to create new and engaging resources that meet the evolving needs of the PKD community, using innovative approaches to improve how information is delivered across multiple channels. A key part of the role will be translating complex scientific and medical research into clear, compelling and patient-friendly content. You will help increase awareness of clinical research opportunities, communicate emerging developments in PKD science, and support greater understanding of how research can shape future treatments and care. We are looking for someone with strong strategic thinking, excellent editorial judgement, and the ability to communicate complex health and scientific information with clarity and empathy. This role would suit someone passionate about improving lives through trusted health information while helping connect people to the future of PKD research.
RESPONSIBILITIES:
Health information management and quality:
• Support the development and management of the PKD Charity’s health information portfolio across digital and print platforms
• Ensure all content meets PIF TICK standards, including robust processes for development, review, updating and governance
• Maintain oversight of the full information catalogue, ensuring content is accurate, consistent and aligned with current clinical guidance
• Work with clinicians, researchers, and people with lived experience to co-produce and review content Content development and user need
Content development and user need:
• Identify gaps in current provision and lead the development of new information resources
• Ensure content is clear, accessible, inclusive, and tailored to the needs of different audiences
• Use patient insight, feedback and data to continuously improve the quality and usability of information Innovation in information deliver.
Research and science communication:
• Explore new ways of delivering information beyond written formats (e.g. video, audio, webinars, digital tools)
• Improve how information is presented and accessed across the website and other platforms
• Stay up to date with best practice in health information and digital engagement Research and science communication
• Monitor developments in PKD research, treatments, and clinical trials
• Translate complex scientific and medical information into clear, engaging, and accurate content for non-specialist audiences
• Work with the Communications Manager and wider colleagues to plan integrated campaigns, awareness activity and audience engagement.
• Develop compelling stories, updates and features that bring research to life and show its relevance to people affected by PKD.
• Work with colleagues to increase awareness, understanding and interest in PKD research.
Building engagement with research:
• Help create a culture of interest and engagement in research across the PKD community
• Develop content that builds understanding of how research works and why it matters
• Support communication around studies and clinical trials to ensure patients feel informed.
Collaboration and stakeholder engagement
• Work collaboratively across the organisation to ensure consistency and alignment in messaging
• Build relationships with healthcare professionals, researchers, and external partners
• Involve patients and volunteers meaningfully in content development and review
Quality, monitoring and impact:
• Monitor the reach and effectiveness of health information and research communications
• Maintain accurate records of content review cycles and updates in line with PIF requirements
• Use insight and evaluation to continuously improve content and delivery
ABOUT YOU:
• Strong Content and Editorial Skills: You have experience producing high-quality written content, with excellent attention to detail and the ability to present complex topics clearly and accurately.
• Health or Science Communicator: You have experience working with health, medical or scientific information and can translate technical material into accessible language for public audiences.
• Collaborative Relationship Builder: You work well with others, build positive working relationships quickly, and enjoy partnering with colleagues across different functions to achieve shared goals.
• Confident Team Player: You are comfortable working closely with colleagues such as communications, fundraising, support and leadership teams, contributing ideas and supporting collective priorities.
• Strategic and Proactive: You can see the bigger picture, identify opportunities for improvement and take initiative to drive projects forward.
• Organised and Self-Motivated: You are comfortable managing your own workload, balancing priorities and delivering high-quality work in a remote setting.
• Values-Driven: You are motivated by improving lives, empowering patients with trusted information and supporting progress in PKD research.
HOW TO APPLY:
For information on how to apply, please read the job pack for further details.
The client requests no contact from agencies or media sales.
Thank you!
Job Purpose
The Research Programme Manager will have a strong grounding in scientific research, expertise in grant management, and report to the Director of Research.
The role’s core responsibility will be to lead on the implementation and delivery of large-scale collaborative programmes and funding schemes. The post holder will have a visible presence within the research community acting as an important point of contact between partner organisations, researchers, committee members, peer reviewers and the charity. They will be expected to keep updated with the latest research developments in order to use strategic scientific expertise and judgement in the ongoing development and improvement of the Foundation’s grant funding schemes.
They will be responsible for the successful delivery of a large portfolio of active projects by working closely with others in the team to ensure all awards are expertly administered, monitored, evaluated and reported against, ensuring the outputs are of the highest quality and supporting the charities activities. The post-holder will identify opportunities to communicate the progress or impact of the work we fund and work with the communications team to develop compelling communications for our supporters.
Key responsibilities:
Grant Funding Programme
● Lead on the setup of large-scale collaborative research programmes ensuring robust peer review, effective contracting and close collaboration with funding partners;
● Lead on the management of multiple grant funding schemes, as well as ad-hoc applications that come to the Foundation;
● Oversee the smooth running of application rounds, peer review and ensure that funding committees function in line with AMRC guidance;
● Be the main point of contact for the AMRC with regards to research management;
● Support the ongoing implementation and development of the Foundation’s Grant Management Software, ensuring the research team are using the platform effectively;
● Manage project set-up including contracting, the development of detailed project plans, including go/no-go milestones and budgets;
● Work with the other Research Programme Managers to oversee the research programme budget including planning, monitoring and forecasting; work with the Directors of Research and Finance to ensure that accurate research finance information is available for organisational budgeting and planning;
● Seek opportunities to improve the Foundation’s grant funding schemes to increase the number and quality of applications received year on year, ensuring funding projects support the delivery of the Foundation’s research strategy;
● Monitor any developments or innovations across the sector and implement changes to maintain a high-quality impactful research funding programme.
Project Portfolio and Impact
● Oversee the delivery of large-scale collaborative research programmes including:
- Leading on management on behalf of funding partnerships
● Manage and oversee project delivery of the Foundation’s active project portfolio by:
- Building and managing relationships with award holders and attending site visits;
- Approving grant payments and managing the change process for any project amendments;
- Ensuring project progress is effectively monitored and reported against;
- Identifying opportunities for and approving any project communications.
● Lead on the development and implementation of an Impact Evaluation Framework, to monitor and evaluate the impact of the research we fund.
● Lead on the development of an annual impact report to demonstrate the impact of the research we fund.
Line Management
● Provide line management responsibilities to the Research Officer, supporting their performance and ongoing development.
General Responsibilities
● Support the Director of Research to deliver the Foundation’s research strategy;
● Support more junior members of the team through training and mentoring;
● Contribute to the team being proactive and supportive, and working effectively and efficiently to achieve agreed objectives;
● Support the development of research communications activities, working closely with our communications team.
● Contribute to the development and maintenance of strong internal relationships across the charity, working specifically with the Fundraising Team to support income generation;
● Support the Director of Research in the development of updates for the Board of Trustees and other groups such as our Scientific Advisors;
● Keep updated with the latest scientific developments in the field, attend conferences and build strong relationships with MND experts and other relevant stakeholders;
● Represent the Foundation at external scientific meetings and conferences;
● Undertake other work as required by the Director of Research.
Skills and experience required:
● Educated to PhD level or with equivalent experience in a science subject relevant to MND;
● Experience of research management, including the management of grant schemes, preferably with experience of using Flexi-Grant;
● Experience of research communications, including the ability to disseminate complex scientific information and present it to non-technical audiences;
● Experience of liaising with senior individuals in a variety of organisations with an ability to create favourable working relationships;
● Proven project management skills, with the ability to manage multiple projects at the same time;
● A great communicator, with excellent written and oral skills and the ability to maintain relationships with a wide variety of individuals, including those within the Foundation, researchers and clinicians, relevant organisations and industry bodies, MND patients, and other MND charities;
● Self-motivated, proactive and able to work using own initiative;
● Organised, with a proven ability to successfully manage a broad spectrum of tasks, deadlines and individuals;
● Motivated to make a real difference for those living with MND and future generations.
Working Pattern: Full time, permanent, home-based with regular travel across the UK
Salary: Circa £45,000 dependent on experience
Direct reports: Research Officer, 1 FTE
Closing date: Friday 8th May
Interviews: Week commencing 11th May
Registered Charity
6 - 10
We are My Name'5 Doddie Foundation and we're absolutely committed to our goal: A World Free of MND
The client requests no contact from agencies or media sales.