Senior patrons and individual giving manager jobs

You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025. 

Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.

Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising. 

This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.

Key duties

Major Donor Fundraising

• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+

• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.

• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships

• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.

• Be responsible for our Breakthrough-ME Group with high quality proposition development.  Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.

• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.

• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.

• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.

• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.

• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.

• Create adequate systems and processes to support the major donor programme.

• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.

• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.

• Provide regular feedback and internal reporting to line management.

• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.

• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.

• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity

• Occasional travel to London, Bristol & events

Other duties

• To positively promote the work and activities of Action for M.E. at all times.

• To contribute to the team’s overall, ongoing and annual planning and budgeting.

• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.

• Act as an advocate for the Charity and its work.

• To work in accordance with Action for ME’s values of collaboration, equity and empathy.

Do you want to make a meaningful difference in local communities?

We are looking for a Community Support Coordinator to lead and develop our Community Support Volunteer service. You will ensure support for people living with and affected by MND is accessible, safe and inclusive. You will build strong partnerships with health and social care professionals, recruit, manage and guide volunteers, and help ensure individuals have choice and control in the support they receive.

This is an excellent opportunity for someone with experience in managing and co-ordinating volunteers, strong communication skills, and the ability to work collaboratively across a range of stakeholders. The Community Support Coordinator will play a key role in strengthening local services and supporting volunteers to feel valued and effective in their roles.

Key Responsibilities:

• Lead and support a team of Community Support Volunteers, ensuring services are safe, inclusive and meet local needs
• Provide guidance to volunteers on complex care and support issues, including signposting to other services
• Respond promptly to enquiries and referrals, offering information and facilitating access to support and resources
• Build and maintain effective relationships with health and social care professionals and local partners
• Support branches and groups to plan and deliver activities that respond to local needs
• Recruit, induct and develop volunteers, ensuring they are well supported and connected
• Enable effective communication and collaboration between volunteers, staff and partners
• Contribute to service development, sharing feedback and identifying opportunities for improvement

About You:

• Experience leading or co-ordinating groups of volunteers
• Strong communication skills, with the ability to present and influence effectively
• Ability to assess and respond to support needs through a person-centred approach
• Understanding of care and support services across statutory, private or voluntary sectors, and the role of volunteers
• Experience of working with people at risk of harm, and an understanding of safeguarding responsibilities
• Ability to build networks and maintain positive working relationships with a wide range of stakeholders
• Commitment to equality, diversity and inclusive practice
• Confident in prioritising, planning and making decisions independently
• Willingness to work flexibly, including some evenings and weekends
• A full driving licence

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

The full job description and information about working for the MND Association is available in the candidate pack.

Salary: £37,300 per annum (FTE) £30,243 pro rata

Hours: 30 hours per week

Contract: 12-month Fixed Term Contract

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders. As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: This role is home-based with travel expectations across the designated region: Northern Ireland. This role will also include occasional travel to Northampton as required.

Finance Coordinator is a new role to support our expanding services.

This newly created role will form part of our Finance Team. As a member of a small but dynamic team, you will work closely with the Senior Finance Officer and Head of Finance. Your role will be critical to our success, with your principal responsibilities including:

• processing purchase ledger invoices
• inputting bank and all financial transactions onto the Xero accounting system
• recording donations to Xero accounting system
• reconciling donations, stewardship and CAF transactions with Xero
• reconciling cheques, standing orders and Stripe transactions with Xero
• processing the weekly payment runs ensuring that all payments are paid on time
• processing staff and volunteer expenses

You will have the support of our excellent and established Finance Team, which is central to the smooth and effective running of our operations. You will be responsible for liaising with colleagues at all levels across the organisation, as well as our Trustees, partners and suppliers.