Policy and advocacy officer volunteer roles

Purpose

The Chair leads the board of Trustees, ensuring the charity is well-governed, fulfils its mission, complies with all legal and regulatory requirements, and operates in the best interests of its beneficiaries. The Chair works closely with the Executive Director to provide strategic leadership, support, and challenge.

Background to the Charity

For the past forty years, CHIRP has enabled thousands of people to report safety concerns through our confidential reporting service without fear of identification or harming their careers, contributing to safer environments in the air and at sea. This service has evolved to meet changing needs and is still providing a unique, vital and valuable service to people working in the aviation and maritime industries.

Over the past year a new strategy has been developed focusing on:

- unlocking the barriers to reporting for those who are working in the most challenging situations;

- building coalitions for system change in safety culture and practice;

- embedding best practice safety cultures with employers; and,

- engaging new and future generations.

We also seek to further the impact of the charity by ensuring future sustainability.

We have an excellent, highly motivated team, a committed and skilled Board and a well-earned reputation for being a trustworthy and willing organisation there to help and make a difference, all of which makes this is an exciting time to join the board in this leadership role. Guided by the values of trust and integrity, safety and accountability, a just culture and expertise and collaboration we know we can make an even greater difference in improving safety culture, practice and learning. To do this, and building on the excellence of the past, we will need a Chair who is collaborative, courageous, visionary and strategic, who understands the fundraising and financing challenges of today’s charity sector and who comes with experience of building sustainability and resilience. These foundations will enable the charity to achieve its ambitious plans for future growth.

If these opportunities are what you are looking for and your values align with ours, then please read on for more details about the role and the commitment we are seeking.

Principal responsibilities

Strategic leadership

· Ensure the charity has a clear vision, mission, and strategic plan, and that these are regularly reviewed.

· Lead the board in setting and monitoring the charity’s strategic direction.

· Safeguard the charity’s values and reputation.

Governance

· Ensure the board fulfils its duties under charity law, company law (if applicable), and the charity’s governing document.

· Promote high standards of governance and encourage all trustees to actively contribute.

· Ensure the board operates effectively, with appropriate policies, procedures, and controls in place to manage risk and promote the objectives of the charity.

· Ensure that the board fulfils its duties to ensure sound financial health of the charity with systems in place to ensure financial accountability.

Board Leadership

· Chair board meetings effectively, encouraging open, balanced discussion and consensus decision-making.

· Ensure meetings are focused, productive, and quorate.

· Support recruitment, induction, and development of trustees.

· Manage trustee performance and address underperformance where necessary.

Relationship with the Executive Director

· Build a partnership with the Executive Director based on shared purpose, offering support and challenge in the interests of the charity.

· Understand appropriate separation of governance and management.

· Conduct the Executive Director’s annual appraisal and support their professional development.

 External Relations

· When required act as an ambassador for the charity, representing it to funders, partners, government, and the public.

· When appropriate support fundraising, advocacy, and profile-raising activities when appropriate.

Additional information

The above list is indicative only and not exhaustive. The Chair will be expected to perform all such additional duties as are reasonably commensurate with the role.

We are looking for an outstanding individual to join our Board as Honorary Treasurer for an initial three-year term.  You must be committed to helping us achieve our charitable objectives and adding real value to our work.

All those who join our Board, are expected to work with our Chair and CEO to fulfil their responsibilities for the overall governance and strategic direction of Breakthrough T1D.  We have ambitious strategic goals and are keen to work with those who have knowledge and energy to help our CEO and her senior management team in their delivery of operational plans.

We hope to hear from people who are qualified accountants and members of a relevant chartered professional body with:

• Strong financial expertise, with the ability to provide strategic insight as well as effective governance oversight.
• Experience of contributing at Board level to organisational strategy and governance such as policy, programmes, personnel and advocacy.
• A curious, analytical and questioning mindset, with the confidence to provide independent challenge

Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis? 

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.

Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.

We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.

The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.

1. Treasurer

We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.

In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board. 

2. Young Trustee

• Recent personal experience of the impact of living with endometriosis whilst at school
• Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
  May 2026
• Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
• Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.

3. Endometriosis UK Trustee

• Personal or professional experience of diversity and inclusion issues
• Currently living in Northern Ireland, Scotland or Wales
• Charity Trustee experience
• Charity Senior Management experience
• HR expertise
• NED experience
• Experience of grant making / philanthropy

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

Role Summary

If you have a senior financial background and a passion for global justice and disability inclusion, we’d love to hear from you. The role will serve on both our Board and our Finance and Audit Committee. Experience working with UK charities, either in finance, governance or audit, is desirable, but not essential. The role would suit an experienced Trustee, or someone considering their first Trustee role. This role will oversee the charity’s financial performance and position, financial governance, and investment management. 

Please note that we will review applications as they are received, so early applications
are encouraged.

About Us

For over 115 years, CBM has been transforming lives around the world. We work with local partners, making sure people with disabilities in some of the world’s poorest communities have access to healthcare, education and a future where they can thrive. As an organisation based on Christian values, we welcome staff of all faiths and none in our work to build an inclusive world in which all people with disabilities enjoy their human rights and achieve their full potential.

Please download the Recruitment Pack for full details and how to apply.

Research & Policy Officer (Volunteer)

Purpose: To support research / policy projects in areas of the UK, ensuring strategic alignment, quality assurance, and effective collaboration that drives systemic change for young people across the UK.

Key Responsibilities

• Provide strategic oversight of research / policy projects, ensuring outputs are high-quality and impactful.

• Lead on drafting policy briefs and research reports, setting standards for evidence-based advocacy.

• Coordinate multi-stakeholder collaboration, i.e councils, commissions, and community organisations to deliver change.

• Identify emerging issues and opportunities, help in shaping the research agenda in line with organisational priorities.

• Represent the organisation in external meetings.

• Ensure consistency and coherence across multiple projects running in different localities.

Person Specification

• Background in social policy, law, health, climate, or political science, ideally with professional or postgraduate experience.

• Proven ability to manage complex projects and coordinate across multiple stakeholders.

• Excellent strategic thinking and communication skills, able to influence decision-makers.

• Strong IT and remote collaboration skills.

• Deep commitment to human rights

Join the RCGP Scottish Patient Forum

The Royal College of General Practitioners Scotland is recruiting new members to the RCGP Scottish Patient Forum.

From feeding into policy consultations, to assisting with the development of College communications and campaigns, members of the RCGP Scottish Patient Forum play a key role in helping to shape the work of the College in Scotland.

This is a voluntary role for a term of up to three years. 

You do not need experience of being on a committee or advisory group.

What You’ll Do

· Take part in up to three online Forum meetings per year, offering your insights and lived experience.

· Provide feedback on RCGP Scotland policy papers, consultation responses and strategic documents.

· Act as a sounding board for press and communications activity to help ensure the patient perspective is reflected.

· Represent the Forum at relevant conferences, workshops, seminars or clinical groups (subject to your availability).

· Contribute to wider College activities where capacity and interest allow.

What We’re Looking For

We welcome applications from individuals who:

· Understand or are interested in current health and social care issues in Scotland.

· Have an interest in the work and aims of RCGP Scotland.

· Can work collaboratively, respect diverse perspectives and contribute constructively to group discussions.

Interested?

If you want to help shape the future of general practice in Scotland and ensure the patient voice is heard at national level, we would love to hear from you.

RCGP Scotland

The Royal College of General Practitioners Scotland (RCGP Scotland) is the professional membership organisation for general practitioners in Scotland. We represent approximately 5,000 members in Scotland and our purpose is to encourage, foster and maintain the highest possible standards in general medical practice.

Treasurer Roles & Responsibilities 

Refugee Biriyani & Bananas is seeking a Treasurer to join our Board of Trustees and provide strategic oversight of the organisation’s financial health. The Treasurer plays a key governance role, strengthening financial literacy at Board level and supporting sustainable growth. The Board is responsible for governance and strategy and does not manage day-to-day operations.

Refugee Biriyani & Bananas (RBB) is a growing charity registered with the Charity Commission (Charity No. 1189561). For the financial year ending 31 March 2025, RBB reported a total income of £423,041 and total expenditure of £373,007. As a charity with income above £250,000, we prepare annual accounts in accordance with the Charities SORP and undergo independent examination.

As our current treasurer prepares to step down, we are expanding our Board of Trustees to support the growth and future plans of our ambitious small charity. Board meetings take place every 12 weeks via video call, with opportunities for in-person gatherings throughout the year. Additional meetings may occasionally be required, either more frequently, in smaller groups, or one-to-one, depending on specific needs or exceptional circumstances. 

• Responsible to: Chair, Refugee Biryani & Bananas 

• Purpose: To oversee the management and reporting of charity finances.

• Hours: Approximately six to eight hours a month.

Remuneration: This is a voluntary, unpaid Trustee role. Reasonable travel and out-of-pocket expenses will be reimbursed in line with our volunteer policy.

Role Summary 

The Treasurer will work closely with our team members including volunteers, other Trustees and with the CEO, advising on all financial matters including regulatory compliance. The Treasurer will be expected to attend Board meetings which last approximately an hour and a half every twelve weeks. The Treasurer will: 

• Actively participate as a key member of the Board of Trustees. 

• Act as an ambassador for Refugee Biryani & Bananas 

• Oversee and analyse the development of the annual budget and cash flow forecasts, ensuring alignment with organisational strategy and sustainability.

• Support with fundraising and financial strategic planning 

• Advise on all financial matters, including regulatory compliance. 

• Oversee the development and observation of financial policies 

• Advise the board on fund management and ensure an appropriate reserves policy

• Advise fellow Trustees on a regular basis of the financial status of the charity and where necessary recommend action. 

• Oversee and administer financial processes including Gift Aid claims and payroll, ensuring appropriate financial controls, transparency and board oversight are maintained. (There is currently only one person on payroll.)

• Work collaboratively with the CEO and Chair to ensure appropriate financial segregation of duties within the constraints of a small charity.

• Support the Board in monitoring financial risk, reserves policy and international financial compliance.

• Ensure appropriate internal financial controls are in place and regularly reviewed.

• Work with professional advisors including any contracted accountants 

• Review financial transactions on a monthly basis via digital accounting software, Xero

• Arrange the compilation and agreement of Refugee Biryani & Bananas’ annual report

• Lead Trustee liaison with the independent examiner and oversee the preparation and Board approval of the annual accounts and report.

The Treasurer will play a key role in strengthening financial sustainability as RBB continues to grow its international programmes and funding base.

Person Specification 

The ideal candidate will have innovative ideas and sound financial knowledge. All Trustees are expected to assist Refugee Biryani & Bananas to secure a sustainable and diverse funding base for the organisation. 

Essential 

• Understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship 

• Support for the values and mission of Refugee Biriyani & Bananas

• Familiarity with the Charities Statement of Recommended Practice (SORP), or willingness to develop this knowledge.

• Proven ability to communicate and explain financial information 

Desirable 

• A qualified accountant (formal qualification preferred) with financial and commercial awareness, experienced in managing finances, payroll, and the needs of smaller organisations. 

• An understanding of the voluntary sector and previous experience as a Trustee or Treasurer. 

• Good communication and competent IT skills 

• Extensive experience in senior strategic management and leadership, combined with strong analytical and evaluation skills. 

About Refugee Biryani & Bananas 

Refugee Biriyani & Bananas (RBB) began as a grassroots movement in 2015, in response to the Syrian refugee crisis. What started as a group of friends distributing 2,500 portions of biriyani and bananas in the unofficial camp for displaced people in Dunkirk, Northern France, has grown into a community-driven humanitarian organisation. Initially working under the umbrella of another organisation, RBB became independent to better address gaps in aid and advocacy for displaced people worldwide. 

What We Do 

RBB supports people facing displacement, war, and inequality, tailoring actions to the needs of each situation. From food distributions to medical support and human rights advocacy, our work is versatile and responsive. We have provided aid in refugee and internally displaced persons (IDP) camps, squats, and other unstable settlements along migratory pathways, including: 

• France: Calais, Dunkirk & Paris 

• Greece: Idomeni, Thessaloniki, Athens, Lavrio, Samos & Chios (our main base) 

• Northern Iraq: Duhok 

• Serbia: Belgrade Barracks 

• Bosnia & Herzegovina - Croatia Border: Vucjak Camp 

• Turkey: Istanbul 

• Poland, Belarus & Lithuania Border

• Ukraine Border (Poland and Ukraine sides) 

• Palestine: Gaza

• Egypt: Cairo

Our Approach 

RBB is a mobile grassroots organisation, designed to respond rapidly and flexibly to emerging crises. Our main base of operations is on Chios Island, Greece, where we provide ongoing support to people who are displaced.

Since October 2023, we have also established community-led initiatives to support people affected by the war in Gaza, Palestine, as well as Sudanese and other displaced communities in Cairo, Egypt.

Beyond emergency relief, we remain committed to ongoing support through volunteers, translation services, medical care, aid, and advocacy until either local capacity builds or the situation changes. In addition, our Community Humanitarian Leaders Programme (CHLP) plays a vital role in this approach by strengthening the leadership of people who are displaced by building on their existing skills, networks and lived experience in humanitarian efforts. 

Our field team comprises 90% individuals from refugee and asylum-seeking communities, representing Sudan, Syria, Iraq, Afghanistan, Somalia, Gambia, Ethiopia, Palestine, and Yemen. This diverse team is led by our founder and CEO, Ruhi Akhtar, alongside field coordinators / project managers. 

We prioritise dignity and equity, involving displaced individuals in decision-making and collaboration. RBB's direct aid includes food, water, shelter, medical supplies, clothing, hygiene packs, and season-specific items like sunscreen or firewood. Needs assessments and communication with affected communities guide our actions, ensuring targeted, person-centered care. 

Advocacy & Awareness 

RBB amplifies the voices of displaced people by sharing their stories and raising awareness about often-overlooked realities. Through storytelling and advocacy, we aim to challenge injustice and inspire action. 

The food system is unsustainable and unjust, and it’s damaging the health of a generation. We are a youth activist movement set up to challenge a food system that’s been set up to fool us all. We're looking for a new Chair who shares our passion for empowering youth leadership and transforming our food system

Help us support families to get the right education for children and young people with special educational needs and disabilities (SEND)

We are seeking new people to join our Board of Trustees to support the good governance of our charity. It is an exciting time to join us as we work to launch our new strategy; an important timeframe as we review the Government’s White Paper on SEND and consider how best to adapt our services to ensure we reach those who need us most.

Who we are

Founded in 1983, IPSEA is a leading national charity focussed on supporting families to ensure that children and young people with SEND receive the education they are legally entitled to. Since our formation, we have actively helped to improve the education experience of thousands of children and young people with SEND. We do this by providing free and independent legal advice and casework support, undertaking policy work and delivering training on the SEND legal framework.

Who are we looking for?

We wish to recruit a number of new trustees who are committed to our vision and values and who bring complementary skills to those of our current Board members.

Trustees are expected to gain an understanding of the organisation’s purpose, and to contribute their own expertise, ensuring IPSEA fulfils its objectives, and in accordance with our charitable objects and Articles of Association

Whether you’re an experienced trustee or wanting to take your first step at Board level, we are particularly interested in hearing from people with expertise and skills in one or more of the following areas:

• IT / Digital transformation / cyber security
• Governance
• Marketing and social media
• Equality, diversity and inclusion

Please note: a lack of expertise in these areas does not mean that an application will not be considered.

Our Board should also reflect the communities we support. We would particularly like to hear from candidates from ethnic minority backgrounds, LGBTQIA+ people, under-served communities and disabled people, as well as those with lived experience of the SEND system, either as a child or as a parent/carer.

What we can offer you

• an in-depth induction programme, training and reimbursement of reasonable out-of-pocket expenses
• the opportunity to be involved in making strategic decisions and developing new skills
• the opportunity to apply your knowledge and experience to an important cause
• a buddying system for new trustees as you settle into the role

The expected time commitment is six trustee meetings per year (meetings are held on weekdays in central London or at IPSEA’s office in Takeley, Essex with the option to join some meetings virtually), usually one strategic planning/training day and some other ad hoc time for occasional meetings and events.

To apply 

​Please visit our website to download a recruitment pack and application form. 

Closing date for applications: 5pm on 29 May 2026

First-round interviews: week commencing 29 June 2026

Letter from our Chair - Lucy Thomas

We are seeking a passionate and strategic individual to join our Board of Trustees, someone who brings strong commercial insight, business acumen, and ideally experience in fundraising and income generation.  This is an exciting opportunity to play a pivotal role in shaping the future of a respected national charity that continues to grow its reach and impact.

As a Trustee, you will also sit on our Commercial Advisory Group (CAG) a dynamic sub-group that advises on the Trust's commercial strategy, innovation, and sustainability.  You'll help us strengthen our commercial performance, explore new opportunities for growth and diversification, and ensure we remain on strong financial footing to deliver our vital mission.

We welcome applicants from all sectors and backgrounds.  Experience in marketing, partnerships, or charity leadership would be an advantage, but what matters most is your ability to bring fresh thinking, sound judgement, and a commitment to using your commercial experience for social good.

Background

Suzy Lamplugh Trust was founded by Diana and Paul Lamplugh following the disappearance of their daughter Suzy, a young estate agent, in 1986. Since then, the Trust has pioneered personal safety as a life skill and a public policy priority.

Our vision is to eliminate abuse, aggression and violence, creating a society where people are safer and feel safer.

Our mission is to reduce the risk and prevalence of abuse, aggression and violence with a specific focus on stalking and harassment through education, campaigning, and support.

What we do

• Campaigning - working in partnership with other charities, private and statutory organisations; raising awareness; influencing policy makers
• Education - advice; training; guidance; workplace support; free resources, information; consultancy
• Support - National stalking helpline and advocacy service; supporting people at increased risk of violence and aggression; community projects

The Position

We are looking for a Grants Officer who can support us with diverse tasks that include looking for grants opportunities, project development, proposals writing, and liaising with potential partners and donors. In this role you’ll be a key contributor to the continued existence of Second Tree, which is dependent on grants to survive, and to the creation of new projects and partnerships. To do this successfully, you'll need to employ meticulous time-management and organisation skills, as juggling multiple tasks with competing deadlines is common in this role.

The role will include:

• Researching and identifying new grant opportunities on a weekly basis

• Summarising relevant grant opportunities and suggesting how to best respond and comply with them

• Researching information and data necessary for grants and grant reporting

• Supporting the design of new projects

• Supporting with proposal writing

• Maintaining necessary records, files, reports, databases, and resource materials for the Grants team

• Working with the wider Second Tree team to ensure that all project proposals align with organisational, and programme strategies

• Establishing and maintaining connections with funding bodies

You should be able to:

• Professionally communicate in English (verbally and in writing)

• Read, comprehend, interpret, summarise and follow proposal guidelines

• Work to tight deadlines with flexibility and a problem-solving attitude;

• Conduct thorough, high-quality, independent research

• Work both independently and as part of a team

• Manage and prioritise projects effectively to meet team and proposal deadlines

The ideal candidate will have:

• Working knowledge of project management techniques such as LFA

• Knowledge of and experience with grant-giving bodies and other external funding sources (e.g. European Commission)

• A strong sense of logic while building an argument

What We Offer:

• A nurturing and collaborative working environment. We work hard to help our team members grow, investing in personal and professional development.

• Accommodation in a shared house

• Transportation to/from work

• After completion of a three-month trial, if you commit long-term, a small monthly expenses refund

In certain periods of the year, demand is extremely high, and the shared houses might be full. If you have the means to pay for your own accommodation, please let us know. We would still be happy to host you if space is available. However, in a situation where the shared houses are full, this would allow us to offer an opportunity to someone that cannot afford to pay rent.

Have experience leading a team of this type?

Consider applying to become a Grants Coordinator. Whether your experience lies in the humanitarian sector or elsewhere, we are looking for people with expertise that can drive us forward as an organisation.

Looking for an internship?

If, because of your degree or for any other reason, you would like to have your period at Second Tree credited as an internship, just apply to the vacancy that you’re interested in and mention this. We have agreements with several universities across Europe, and in many other cases, these agreements can be developed on an ad hoc basis.

NOTE: If you require a visa to stay in Greece for the minimum ten-week commitment, please know that as a Greek NGO, we are unable to sponsor your visa.

The Lucy Faithfull Foundation is looking for three exceptional Trustees to help realise our vision: a world where children live free from the threat of sexual abuse.

For over 30 years, we’ve led the way in child protection — preventing abuse before it happens, supporting families, influencing policy, and running the world‑leading Stop It Now helpline. Our work is challenging, essential, and life‑changing.

Our charity has recently grown with remarkable pace and purpose. We are proud of the progress we have made and the strong financial footing we now stand on. As several of our long‑serving trustees prepare to retire, we are seeking three exceptional individuals to join our Board and help guide the next stage of our development.

We are now recruiting:

• Research Trustee who brings enhanced research expertise to strengthen the Board’s oversight of research strategy, quality, ethics and impact.
• Finance Trustee who brings enhanced financial expertise to strengthen the Board’s oversight of financial governance.
• Scotland Representative Trustee who is based in Scotland who can strengthen our strategic presence, partnerships and governance within the Scottish context.

If you bring strategic insight, strong leadership, and a commitment to safeguarding children, we want to hear from you.

What You’ll Do

• Shape the charity’s strategy and culture
• Support and challenge the CEO and Senior Leadership Team
• Oversee finances, risk, safeguarding, and compliance
• Champion our mission and raise our profile
• Attend four Board meetings a year (mix of in‑person and online), plus the AGM and relevant committees

This is a voluntary role; reasonable travel expenses are reimbursed.

What You’ll Bring

• Passion for protecting children
• Strategic thinking and sound judgement
• Strong communication and relationship‑building skills
• Commitment to equity, diversity, inclusion, and the Nolan Principles
• Ability to collaborate, challenge constructively, and lead with integrity

Why Join Us?

You’ll help steer a pioneering UK charity with national impact, working alongside experts dedicated to keeping children safe. Your contribution will shape prevention efforts today — and protect children for generations.

Ready to Make a Difference?

If you share our values and want to play a vital role in child protection, we’d love to hear from you.

Apply now and help us build a safer future for every child.

Purpose of the Role

To join the board as a Volunteer Finanical Director, bringing governance knowledge and strategic thinking to strengthen board effectiveness, uphold the CIC's obligations, and ensure all decisions are made in the best interests of the community we serve.

Role and Responsibilities

1. Guide the Board

• Attend two to three board meetings per month, virtual or hybrid, and come prepared to contribute
• Help ensure decisions are made properly, recorded, and followed through
• Review and respond to decisions outside of meetings within 48 to 72 hours
• Support the review of policies and raise questions when something needs attention
• Support the development of projects and programmes by contributing ideas, strategic thinking, critical insight, and creative, innovative approaches, while bringing energy, boldness, and enthusiasm.

2. Keep Us on Track

• Contribute to strategic decision-making, policy approval, and organisational oversight
• Monitor organisational performance and support the Managing Director in delivery accountability
• Flag risks early and help ensure resources are used well and in line with our mission
• Keep the needs of the communities we serve at the centre of every decision

3. Be a Critical Friend

• Challenge and support the Managing Director with honesty and care
• Ask the questions that need to be asked, even when it is uncomfortable
• Help us grow in a way that is sustainable and grounded in our values

4. Champion What Matters

• Be an ambassador for Zion Wellness in how you show up and speak about us
• Participate in bi-directional mentorship exchanges with young people on the programme
• Ensure safeguarding, inclusion, and community interest are never an afterthought

What We Are Looking For

You will bring:

• A strong professional background in finance, budgeting, and strategic financial planning
• Confident, values-led leadership with the ability to represent the CIC's mission at board level
• A background in leadership, social impact, or community outreach
• Experience in creative direction, entrepreneurship, or project leadership
• Understanding of organisational strategy, stakeholder engagement, and partnership development
• A genuine commitment to systemic change and the communities we serve

It would be great if you also have:

• Governance experience such as trustee, governor, or board-level involvement, though this is not essential
• Experience in a charity, CIC, or grassroots organisation
• Training and induction will be provided for the right candidate

Please Note:  

This role is open to graduate and university students (aged 18+) who are looking to gain real leadership and governance experience. If you are early in your career and passionate about community impact, we want to hear from you. Ongoing support will be provided.

WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.